Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Im Not Crazy

ragidyann

Recommended Posts

ragidyann Rookie
ragidyann
Posted

So I am going to a new Dr. He spends 2 hrs with you for a consultation. I had to write page long Bio on my self and as I did this I rememberd all theese things from my past . I have been having these problems for longer than I thought. Allthough I have not been positively diagnosed with Celiacs,because I had been on the diet for 6 months when they did the test. i still treat myself for It. i have lost 16 pounds this year. Hardley ever bloated unless I get constipated. IBS right? Yeah i have been diagnosed with that sence I was 16 Im 44. People and friends thought I was just suffering from anxiety attacks I wouldnt eat out cuz I always got sick.I stared to beleve them that I was having anxiety attack. But now im here to say im not CRAZY!!!!!! And to all the Dr.s that would just dissmiss me with a scrip for some stupid pill that did nothing for me and a new diagnosis. Spend some time with your patients do a history on them Do what your suposed to do. and when you find out your patient has vitamin dificences ,do something about It and if your not willing to take the time refer them to someone that will. I hope to God that this new guy will give me the answers that I need. But honestly this site has helped me more than anything else. Thanks to all of you out there that listen and learn. Its a blessing oh and IM NOT CRAZY!!! im sick. and zanex does not help constipation and nausea . Hello thats why im here.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Black Sheep Apprentice
Black Sheep
Posted

So I am going to a new Dr. He spends 2 hrs with you for a consultation. I had to write page long Bio on my self and as I did this I rememberd all theese things from my past . I have been having these problems for longer than I thought. Allthough I have not been positively diagnosed with Celiacs,because I had been on the diet for 6 months when they did the test. i still treat myself for It. i have lost 16 pounds this year. Hardley ever bloated unless I get constipated. IBS right? Yeah i have been diagnosed with that sence I was 16 Im 44. People and friends thought I was just suffering from anxiety attacks I wouldnt eat out cuz I always got sick.I stared to beleve them that I was having anxiety attack. But now im here to say im not CRAZY!!!!!! And to all the Dr.s that would just dissmiss me with a scrip for some stupid pill that did nothing for me and a new diagnosis. Spend some time with your patients do a history on them Do what your suposed to do. and when you find out your patient has vitamin dificences ,do something about It and if your not willing to take the time refer them to someone that will. I hope to God that this new guy will give me the answers that I need. But honestly this site has helped me more than anything else. Thanks to all of you out there that listen and learn. Its a blessing oh and IM NOT CRAZY!!! im sick. and zanex does not help constipation and nausea . Hello thats why im here.

Yuck, I've been there, with the Prozac and Celexa....mood swings to the point where people really thought I was crazy....but all the time I knew there was something physically wrong with me that was causing these mood swings, even if sometimes I acted pretty crazy! After taking lots of fish oil for 6 or 8 months, the mood swings went away, but I was still sick with more symptoms I think than I can count. And nobody really gets it, do they?

Until you find this place. It's great!

nutralady2001 Newbie
nutralady2001
Posted

Oh I hear you ! Problems as a child in the '50's, OK I'll cut the doctors some slack back then not much was known. Diagnosed with "eczema" in the '60's, know now it was DH, then in 1969 with "mucous colitis" was so sick that year the Education Department refused to give me permanency til I'd been teaching a year and had another medical OK still cutting some slack.

Fast forward to when "IBS" became the buzzword.............basically "suck it up and learn to live with it"......yeah right !

An endoscopy showed villi damage at 12 months gluten free by then I'd figured out the problem and gone gluten free the scope was for something entirely different thank God the gastro took biopsies and enough of them.

Agreed to go back on gluten for the antibodies test, as the scope report said "early Coeliac" when I believe it was "late healing". Only lasted 2 and 1/2 weeks and couldn't go on was so sick could taste blood in my mouth. Had the Coeliac panel done scared I hadn't been on gluten long enough.......every antibodies test positive with a tTG of 300 (0-35) !!!!!!!!

So problems from about the age of 8 and officially diagnosed when I was 59 !!! I'm over the anger now and just glad I know what was wrong with me.

  • 5 weeks later...
Skylark Collaborator
Skylark
Posted

Yuck, I've been there, with the Prozac and Celexa....mood swings to the point where people really thought I was crazy....but all the time I knew there was something physically wrong with me that was causing these mood swings, even if sometimes I acted pretty crazy! After taking lots of fish oil for 6 or 8 months, the mood swings went away, but I was still sick with more symptoms I think than I can count. And nobody really gets it, do they?

Until you find this place. It's great!

They stuck me on Prozac too! I thought I was the only person unlucky enough to have been treated for depression instead of celiac. My shrink never thought anything of all my GI symptoms and my GP who diagnosed "gastritis" never suspected that the fatigue and depression had anything to do with diet.

WheatChef Apprentice
WheatChef
Posted

They stuck me on Prozac too! I thought I was the only person unlucky enough to have been treated for depression instead of celiac. My shrink never thought anything of all my GI symptoms and my GP who diagnosed "gastritis" never suspected that the fatigue and depression had anything to do with diet.

Nope, add another onto that list. They stuck me on ritalin, then phased me through 3 different antidepressants intermixed with klonopins and xanax as each new doctor seemed to just through another chemical at me until my last psychiatrist just confessed "There's just too many different things wrong with you to figure out what's going on." Money well spent...

  • 4 weeks later...
GlutenFreeManna Rising Star
GlutenFreeManna
Posted

So I am going to a new Dr. He spends 2 hrs with you for a consultation. I had to write page long Bio on my self and as I did this I rememberd all theese things from my past . I have been having these problems for longer than I thought. Allthough I have not been positively diagnosed with Celiacs,because I had been on the diet for 6 months when they did the test. i still treat myself for It. i have lost 16 pounds this year. Hardley ever bloated unless I get constipated. IBS right? Yeah i have been diagnosed with that sence I was 16 Im 44. People and friends thought I was just suffering from anxiety attacks I wouldnt eat out cuz I always got sick.I stared to beleve them that I was having anxiety attack. But now im here to say im not CRAZY!!!!!! And to all the Dr.s that would just dissmiss me with a scrip for some stupid pill that did nothing for me and a new diagnosis. Spend some time with your patients do a history on them Do what your suposed to do. and when you find out your patient has vitamin dificences ,do something about It and if your not willing to take the time refer them to someone that will. I hope to God that this new guy will give me the answers that I need. But honestly this site has helped me more than anything else. Thanks to all of you out there that listen and learn. Its a blessing oh and IM NOT CRAZY!!! im sick. and zanex does not help constipation and nausea . Hello thats why im here.

Oh I totally understand! I used to think I was going crazy too. I broke down crying in a doctors office one time out of frustration and he suggested I get psychological help! Isn't it a great feeling though to be able to take your life back? It can only get better now that you know what's wrong.

chere1020 Newbie
chere1020
Posted

Oh I totally understand! I used to think I was going crazy too. I broke down crying in a doctors office one time out of frustration and he suggested I get psychological help! Isn't it a great feeling though to be able to take your life back? It can only get better now that you know what's wrong.

Me too, all of the above, told I had "barnacles" on my butt (cleared up when I went gluten free) told I had chronic gastritis (cleared up when gluten-free) and everytime I have been glutened my mouth tastes just like blood. This started when I was around 6 years old and had horrible flair ups all my life. Right now I am on vacation in Maine and I have gotten glutened, feel like crap, have blood taste, hopefully it will clear up in a couple of days, am grateful I havent had diaherra like I usually do, last time I was here, I almost had to be hospitalized for dehydration. My drs never figured it out, I did all by myself and I am NOT going back on gluten so they can test me, too painful, my stomach feels like it is on fire when I am glutened. Glad to have found this site thou, misery loves company. :-)

Glad to be not "crazy" too.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents commented on Scott Adams's article in Kids and Celiac Disease
      2

      New Study Reveals Age and Racial Gaps in Pediatric Celiac Testing

      The practical takeaway: "For people who care about celiac disease, especially families who have children at higher risk, the findings highlight the importance of self-advocacy." It's the only parameter that the affected individual or their family members have control over. We need to learn to become "politely pushy" in order to get proper testing done when...
    2. Russ H
      - Russ H replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Positive biopsy

      What you describe is seronegative villous atrophy (negative antibody tests but positive biopsy). It is uncommon in coeliac disease, and there are other causes, but the most common cause is coeliac disease. I would pursue this with your healthcare provider if possible. Based on clinical history, test results and possible genetic testing for susceptibility...
    3. Scott Adams
      - Scott Adams replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Positive biopsy

      If you are still eating gluten you could get a celiac disease blood panel done, but I agree with @trents and the gold standard for diagnosing celiac disease would be your endoscopy results. Is it possible they did do a celiac disease panel before your biopsy? This would be the normal chain of events. This article might be helpful. It breaks down each...
    4. Scott Adams
      - Scott Adams commented on Scott Adams's article in Latest Research
      3

      New "Glowing Bacteria" Pill Could Transform Gut Disease Detection (+Video)

      This technology is currently years away, as it will need to go through an extensive FDA approval process.
    5. trents
      - trents replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      7

      Help understand results

      Actually, it would be more correct to say that the genetic potential to develop celiac disease is passed down from parents to children. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% of the general population actually do. But it is also true that the offspring of those who do have active celiac disease...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,001
    • Most Online (within 30 mins)
      7,748
    bonniebeebe143
    Newest Member
    bonniebeebe143
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Russ H
      Positive biopsy

      By Russ H · Posted

      What you describe is seronegative villous atrophy (negative antibody tests but positive biopsy). It is uncommon in coeliac disease, and there are other causes, but the most common cause is coeliac disease. I would pursue this with your healthcare provider if possible. Based on clinical history, test results and possible genetic testing for susceptibility to coeliac disease it should be possible to give a diagnosis. There is a bit more here: Seronegative coeliac disease
    • Scott Adams
      Positive biopsy

      By Scott Adams · Posted

      If you are still eating gluten you could get a celiac disease blood panel done, but I agree with @trents and the gold standard for diagnosing celiac disease would be your endoscopy results. Is it possible they did do a celiac disease panel before your biopsy? This would be the normal chain of events. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • trents
      Help understand results

      By trents · Posted

      Actually, it would be more correct to say that the genetic potential to develop celiac disease is passed down from parents to children. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% of the general population actually do. But it is also true that the offspring of those who do have active celiac disease are at a considerably higher risk of developing active celiac disease than those of parents who have the genes but don't develop the disease. Some recent, larger studies put the risk at near 50% for the first degree relatives of those who have active celiac disease.
    • Jordan Carlson
      Fruits & Veggies

      By Jordan Carlson · Posted

      Hello everyone! Been a while since I posted. The past few moths have been the best by for recovery for myself. I have been the least bloated I have ever been, my constant throat clearing is almost gone, I have stopped almost all medication I was prevously taking (was taking vyvanse for adhd, pristiq for anxiety,fomotadine/blexten for histamine blockers and singulair). Only thing I take now is Tecta. I also no longer get any rashes after eating. Things are going very well. Most success came actually once I upped my B12 daily dose to 5,000 mcg. I do have one thing I am un able to figure out and want to see if anyone else has this issue or has experience working around it. Ever since I was born I have always had a issue getting fruits and veggies down. No matter how hard I tried, it would always result in gagging or throwing up. Always just thought I was a picky eater. Now that my stomach and system has healed enough that I can feel when something is off almost istantly, I notice that after eating most fruits (sometimes I am ok with bananas) and veggies, my stomach instantly starts burning and my heart starts to pound and I get really anxious as if my body doesnt know what to do with what just enetered it. So I am thinking now that this is what probably was going on when I was born and my body started rejecting it before which caused this weird sensory issue with it causing the gagging. Hoping someone has some exprience with this as well because I would love to be able to enjoy a nice fruit smoothie once in a while haha. Thanks everyone!
    • wellthatsfun
      heaps of hope!

      By wellthatsfun · Posted

      i know i've been rather cynical and sad about being fully diagnosed in june 2025, but my boyfriend has been consistently showing me the wonderful world that is gluten free cooking and baking. in the past couple of days he's made me a gluten free rice paper-wrapped spanakopita "pastry", plus a wonderful mac and cheese bechamel-ish sauce with gluten free pasta (san remo brand if you're in australia/if you can get your hands on it wherever you are).  those meals are notably gluten free, but mainly he's been making me easy gluten free meals - chili mince with white rice and sour cream, chicken soup with homemade stock from the chicken remains, and roast chickens with rice flour gravy and roast veggies. i'm a bit too thankful and grateful lol. how lucky could i possibly be? and, of course, for those who don't have someone to cook for them, it's quite easy to learn to cook for yourself. i've been making a lot of meals for us too. honestly, cooking is pretty darn fun! knowing basic knife skills and sanitary practices are all you really need. experimenting with spices will help you get on track to creating some really flavourful and yummy dishes. coeliac is a pain, but you can use it to your advantage. healthier eating and having fun in the kitchen are major upsides. much luck to all of you! let's be healthy!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.