Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Scopes Tomorrow!

dermgirl

Recommended Posts

dermgirl Rookie
dermgirl
Posted

Tomorrow is my day for colonoscopy and endoscopy....I waited over 2 months to see a gastro, I was forunate he has openings this week for the scopes. He is a specialist in celiac and gluten sensitivity. I am so thankful, because my other doctor has not a clue. He didn't even run the correct celiac panel. He said it was negative, to eat more bananas & take calcium. OMG! I did testing through Enterolab, I have 1 celiac gene & tested positvie for gluten sensitivity. I will be glad when Dr. Fine publishes his studies. I have been eating gluten since yesterday. Now I am saying so long to gluten....I am beginning to think it is posion for all! I cleaned my kitchen out yesterday, bags going to the homeless shelter (I worry about them too!) I have been researching recipes, trying to gear up! I have a son in college who has some of the same issues I have. He stopped eating gluten--feels so much better! I have a supportive family, so I am blessed! I have to say I am starving today, right now I am sipping on yummy chicken broth. I have to start the laxitives at 4pm...which is so funny, I have chronic diarrea. For those of you who pray, I would covet your prayers for tomorrow, I am nervous. This is my first scope. I am thankful for this forum, up until a few months ago, I could not have told you what celiac or gluten problems were about. I just keep thinking, how many people are suffering every singe day??? How many people are actually willing to change their lifestyle to feel better? I know it is worth it to me....I can't wait to start feeling better!

Blessings!

Bev

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


anabananakins Explorer
anabananakins
Posted

Tomorrow is my day for colonoscopy and endoscopy....

Blessings!

Bev

I will be thinking of you! But don't be anxious, you will be fine :-)

Ana

AutumnSong Rookie
AutumnSong
Posted

I am praying for you, Bev. God is good and I am asking Him to give you peace and your doctors wisdom and to work all things out for His glory.

Blessing in Christ Jesus,

Elizabeth

dermgirl Rookie
dermgirl
Posted
  • Author

I am praying for you, Bev. God is good and I am asking Him to give you peace and your doctors wisdom and to work all things out for His glory.

Blessing in Christ Jesus,

Elizabeth

Thanks so much! I survived! I had a rough night...with the prep. I am certain I was dehydrated! I could not drink the rest of the prep this morning. I knew there was nothing left in me. I get my results in two weeks. He did say I have Esophagitis...I was shocked. I have never had any reflux or gerd symptons. I occasionally remember feeling like I can't swallow. He thinks it is food allergies. My colon looked good, and small intestine too :-) At least to the eye...we will see. I am gluten free as of today. I am sure I will have allergy tests soon. Since I have Hashimotos and the genetic marker for celiac...I think I will be smart to stick to the gluten-free diet. I think I will have grits for breakfast! Thanks for the prayers...God is good :-)

Blessings!

Bev

AutumnSong Rookie
AutumnSong
Posted

Praise God! I'm thankful everything went well. Yes, God is good!

Blessings,

Elizabeth

nutralady2001 Newbie
nutralady2001
Posted

Hi Bev I have Hashimoto's too. More than likely your tests will be positive. Both my blood tests and biopsy were positive. Let us know what happens !

Black Sheep Apprentice
Black Sheep
Posted

Thanks for the prayers...God is good :-)

Blessings!

Bev

Ah, that He is!!! B) I just saw this, sorry I was too late to pray for you, too, but happy to hear that you survived your ordeal, and with such a great attitude! Even though going g.f. is hard (it's been 1 month for me), it's such a blessing to finally have an answer, 'ya know? I mean, I don't know if gluten is the root of all my health issues, it's way too soon to know, but---it's obviously a huge part of my problem. As soon as we can afford it, my doc is going to test for food allergies, too.

Let us know how your tests turn out!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

Thanks so much! I survived! I had a rough night...with the prep. I am certain I was dehydrated! I could not drink the rest of the prep this morning. I knew there was nothing left in me. I get my results in two weeks. He did say I have Esophagitis...I was shocked. I have never had any reflux or gerd symptons. I occasionally remember feeling like I can't swallow. He thinks it is food allergies. My colon looked good, and small intestine too :-) At least to the eye...we will see. I am gluten free as of today. I am sure I will have allergy tests soon. Since I have Hashimotos and the genetic marker for celiac...I think I will be smart to stick to the gluten-free diet. I think I will have grits for breakfast! Thanks for the prayers...God is good :-)

Blessings!

Bev

I am glad this went well. I was also told I had irritation in the esophagus and stomach. Personally I feel this was a reaction from the prep as I had no stomach pain previous, none after and only had pain while drinking that nasty stuff. My doc gave me a bunch of different acid blockers to try but I used Pepto the next day for the left over discomfort and didn't need anything after that. This may not be the case for you.

I am glad to hear you are going to stick with the diet and hope the biopsies show something definative.

AlysounRI Contributor
AlysounRI
Posted

He did say I have Esophagitis...I was shocked. I have never had any reflux or gerd symptons.

Bev, this happened to me too.

What do you mean I have acid reflux and small ulcers in my esophagus??

How come I have never felt it??

I'm on protonix now and my doc wants me to have a repeat scope in two months to see how the little ulcers are doing.

still waiting on the results of my endopscopy and blood tests too. Next week sometime.

I'm crossing all paws for you. Just getting off the poison once and for all was such a relief!!

Good luck with everything!!

Allison

sa1937 Community Regular
sa1937
Posted

Bev, I just had my endoscopy/biopsy on Fri. My GI doc diagnosed me with gastritis and duodenitis by visual examination. I need to wait 3 weeks for a follow-up appt. as he will be out of town for two weeks so I won't know the biopsy results until then, even through they'll be available in a week.

He did tell me to go gluten free until then. So here I am wondering where I stand. I do not have stomach pain, acid reflux or anything like that so the gastritis/duodenitis was a complete surprise to me.

So I don't know if I will be diagnosed with celiac or not. Nor do I know how long it will take to see if the gluten free diet will make a difference or if 3 weeks is long enough to see any results. I had a very positive celiac panel in Dec., which pretty well tells me I do have celiac regardless of biopsy results. It just seems to take so long while waiting for a referral to a GI doc and then scheduling the endoscopy. A colonoscopy is definitely in my future. I just want to get rid of the Big D.

I'm so glad everything went well for you!!! biggrin.gif

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,874
    • Most Online (within 30 mins)
      7,748
    RoxanneK
    Newest Member
    RoxanneK
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Diagnosed w Celiacs, but reacting to gluten-free Digiorno Pizza AND Kraft Zesty Italian Dressing

      By trents · Posted

      As I suspected, xanthan gum is one of the ingredients. It is a polysaccharide used as a texturing agent in many gluten-free products. It's hard to digest and causes distress for many celiacs. I can't say for sure if that was the problem but you might be on the lookout for it in the future. Muscle spasms can be caused by magnesium deficiency. Are you taking any vitamin and mineral supplements? I mean some things more potent than a multivitamin?
    • Wheatwacked
      Gluten-Free Newbie

      By Wheatwacked · Posted

      Hello @Suze046 In the western world 40 to 60 percent are low or deficient in Vitamin D.  Malabsorption from Celiac Disease, avoidance of UV from the sun and seasonal variations can result in low vitamin D.  A simple 25(OH)D test will tell you your status.  Low vitamin D affects immune system, bone health, mental health.  I keep mine around 80 ng/ml (200 nmol/L). Choline has many functions in our body.  From the neurotransmitter Acetylcholine to fat digestion.  It is made by our bodies but in insufficient amount.  The major dietary source is from beef and eggs.  The RDA is 500 mg a day.  That would be equivelant to 3 eggs or 10 cups of cooked brocolli a day.  Choline is a significant portion of biliary phospholipids and is a crucial element for bile function.n.  I found taking Phosphatidly Choline capsules helps.  A homocysteine test can be indicative of choline deficiency.  Could we be overlooking a potential choline crisis in the United Kingdom? NIH Choline Fact Sheet Vitamin D Is Not as Toxic as Was Once Thought
    • annamarie6655
      Diagnosed w Celiacs, but reacting to gluten-free Digiorno Pizza AND Kraft Zesty Italian Dressing

      By annamarie6655 · Posted

      @trents thank you so much for your response!  When i was diagnosed, I was exhibiting mainly joint pain, hair loss, bloating, and allodynia (painful feeling from non painful stimuli). The muscle spasms only started after diagnosis, and it seems to only happen when I am severely glutened. It’s only happened twice, but it definitely makes me nervous when it happens.    In regard to the pizza, thats what i saw after i got sick from it. I’m still trying to figure out how to switch to ALL certified gluten-free goods.    for the dressing, here is the ingredient list:  WATER, VEGETABLE OIL, VINEGAR, SUGAR, GARLIC, SALT, RED BELL PEPPER, ONION, CONCENTRATED LEMON JUICE, XANTHAN GUM, POTASSIUM SORBATE, HERBS, CALCIUM DISODIUM EDTA, MONOACETIN, SPICES. and the link: https://www.kraftheinz.com/en-CA/kraft/products/00068100903577-zesty-italian-salad-dressing  
    • trents
      Diagnosed w Celiacs, but reacting to gluten-free Digiorno Pizza AND Kraft Zesty Italian Dressing

      By trents · Posted

      Welcome to the forum, @annamarie6655! Are the muscle spasms and joint aches a new pattern of reaction to gluten or have you experienced these in the past? Concerning DeGiorno's "gluten-free" pizza, we have had many reports from celiac.com members of gluten reactions from consuming this product. I believe it is one of those "gluten-free" products that is made from wheat (speaking of the crust component) that has been processed in such a way as to remove most of the gluten. The FDA regs allow food companies to use the claim "gluten-free" as long as the product contains no more than 20ppm of gluten. This works for most celiacs but not for those on the more sensitive end of the spectrum. There is another industry standard known as "Certified Gluten-Free" that is stricter, requiring no more than 10ppm of gluten. Certified Gluten-Free products use the "GFCO" logo. Concerning the salad dressing, could you list the ingredients in another post or link it? There are certain other ingredients besides gluten commonly used in gluten-free manufactured food items to give them acceptable textures that give a lot of celiacs problems. 
    • annamarie6655
      Diagnosed w Celiacs, but reacting to gluten-free Digiorno Pizza AND Kraft Zesty Italian Dressing

      By annamarie6655 · Posted

      Hello, so I was diagnosed with Celiacs about 8 months ago. After being diagnosed, I have been trying very hard to maintain a completely gluten-free (and celiac safe) diet.  Two of the main times I had a huge reaction, it was from: - gluten-free Digiorno Pizza w Pepperoni - Kraft Zesty Italian Dressing (this was in canada if that changes anything) Both are marked as gluten-free. Following eating these items, I had a severe bout of diarrhea, uncontrollable and heavy muscle spasms throughout my whole body, and aching throughout every joint.   If these are both gluten-free, why would I be reacting to them? Should I be worried about a separate allergy?  In regards to the muscle spasms, should I follow up with someone about that?
×
×
  • Create New...