Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hey New To The Forums

Glutenfreenoobie

Recommended Posts

Black Sheep Apprentice
Black Sheep
Posted

Your fatigue may be a symptom of withdrawl. A detox thing. I've been fatigued for years, to the point of one doc thinking I had Chronic Fatigue Syndrome. But shortly after going off gluten, ohmygosh! :o It was awful. I could barely keep my eyes open, and felt so weak and run-down, it was all I could do to get up out of my recliner (which I practically lived in for awhile there!) and go to the bathroom! It was like the severe fatigue you can get with the flu, only of course without the fever, body aches, and other flu symptoms. It was so bad that, after reading some stuff here about how celiacs very often are anemic, I insisted on being tested, thinking that that just had to be it. When the tests came back, I was actually quite high in iron and ferritin, and my doc said that severe fatigue is a common symptom of the gluten withdrawl and detox process.

But that horrible fatigue is gone now, and I'm beginning to feel a little more normal. Not great, but certainly better. It's been 5 weeks for me, and I know it's going to take a long time to get well--after all, I didn't get sick overnight, so I can't expect to recover overnight either! :( I have read some posts on here where people have said they've been off gluten longer than I, and still aren't back to normal. Hang in there, Noobie--yes, it can be a long, steep road back, but hey, at least the road is going in the right direction! Beats the quick and easy road downhill to an early grave, imo. :huh:

Oh, btw, I meant to tell you, re. your answer about the burping up what you think might be stomach acid: There's a very informative book by Dr. Jonathan Wright, founder and Director of the Tahoma Clinic near Seattle, where I used to go. Dr. Wright has been a pioneer in the discovery and treatment of hypochloridia, and the name of his book is, "Why Stomach Acid is Good for You". Do you know if there are any Naturopath or Homeopathic drs./clinics in your area who can test you for low stomach acid? Good luck finding a maintstream dr. who can or will do this--I once went to a G.I. who had the gall to tell me that the testing I had done was "hocus-pocus", and that I didn't need to be taking stomach acid. He actually told me that we don't need acid to digest our food! :o Even after I told him how taking the HCL had stopped the reflux, that my food no longer sat in my gut feeling like a lead weight, and that once my B12 levels were raised, I hadn't had a problem with the pernicious anemia since--as I talked, he just kept looking at me like I was a pathetic idiot, and shaking his head. I guess you know I never returned to that clown.

I also just wanted to re-iterate that even if it turned out you do have low stomach acid (hypochloridia), that doesn't mean you're not celiac or gluten intolerant. When I went to Dr. Wright's clinic, in addition to getting the "acid test", they wanted me to go off gluten for a month to see how I felt. Unfortunately I felt no better, but looking back I now realize that I had been accidentally "glutening" myself in various ways, so it was no wonder. Now there was a case where testing was definitely called for, as I had insurance then, too (I was seeing another dr. there, not Dr. Wright).

Don't give up!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


RollingAlong Explorer
RollingAlong
Posted

I mean once you've been sick for so long with an illness, how do you remember what normal is?

You can develop an intolerance at any point in life. You can have physical, mental, emotional symptoms. Or any combo, there's a wide variety between individuals. So your symptoms may not match your dad's. It would be great if he would try the diet with you. Maybe he would be interested in the Paleo diet as a start. The Paleo diet is a great way to prevent diabetes because it helps prevent metabolic syndrome (obesity, hypertension, etc).

Glutenfreenoobie Rookie
Glutenfreenoobie
Posted
  • Author

Many folks go through a gluten withdrawal phase, which can last for a couple of weeks at least. Gluten makes you feel good and when you take it away your body wants a fix :lol:

No way? Are you saying gluten is addicting?

There is little hope for my dad trying the diet with me. My dad is a very comfort seeking person. If a new food does not taste that good but is good for him, it takes a lot of work for him to even give the new food a try. I can't get my dad to switch from whole milk to 2% milk because my dad's dad would only drink whole milk. My dad tends to see me as being mean to him when I try to get my dad to try something new.

mushroom Proficient
mushroom
Posted

No way? Are you saying gluten is addicting?

There is little hope for my dad trying the diet with me.

'Fraid so, but not quite as bad as ciggies or that white powder stuff :rolleyes: I speak as someone who didn't have a lot of problem with gluten, but almost d.i.e.d without the ciggies :lol: (but would have died with them!) :o Some people won't even quit ciggies to save their lives so, no, there may not be a lot of hope for your dad. unless you can make him see how much better he would feel by your example.

Unfortunately, we seem to crave those things that harm our bodies :(

Glutenfreenoobie Rookie
Glutenfreenoobie
Posted
  • Author

'Fraid so, but not quite as bad as ciggies or that white powder stuff :rolleyes: I speak as someone who didn't have a lot of problem with gluten, but almost d.i.e.d without the ciggies :lol: (but would have died with them!) :o Some people won't even quit ciggies to save their lives so, no, there may not be a lot of hope for your dad. unless you can make him see how much better he would feel by your example.

Unfortunately, we seem to crave those things that harm our bodies :(

Most of my favorite food was pasta dishes. I'm an Italian so my family is upset about the no gluten mess, I mean diet. :)

mushroom Proficient
mushroom
Posted

Most of my favorite food was pasta dishes. I'm an Italian so my family is upset about the no gluten mess, I mean diet. :)

Buy some Tinkyada pasta and surprise him!

Black Sheep Apprentice
Black Sheep
Posted

I second that! Tinkyada is great! Even though I've been g.f. for 5 1/2 weeks, I've been using Tinkyada brown rice pasta for a couple of years now. My reasoning then was, brown rice is probably healthier than all that processed wheat. But I think I knew deep down that I had a major gluten problem--just didn't want to admit it. Anyway, my husband didn't even know for the longest time that he wasn't eating "regular" pasta. Neither did my kids, both pasta lovers, when they'd visit. I found that the secret is to rinse it really, really, well--and then, once you've put on whatever your putting on it, seasoned it, or whatever, you can't tell the difference. It seems to take a bit longer to cook that the regular kind. And I've found that when using it for cold salads, I actually need to overcook it just a bit, because for some reason, once the salad is made and it's been in the fridge for several hours, the pasta seems to get a bit harder. Strange.

Now that's the brown rice pasta, I don't know about the white rice.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Wolicki Enthusiast
Wolicki
Posted

My favorite pastas are Ancient Harvest Quinoa pasta. It comes in like 8 varieties. they're all great, and quinoa is really good for you. It's a "perfect protein."

Black Sheep Apprentice
Black Sheep
Posted

Oh, I want to try that! In fact I have some of their spaghetti, but it's the quinoa-corn combo. In fact, that's the only quinoa pasta I can find around here, is mixed with corn.

Nilnala Newbie
Nilnala
Posted

A month and a half is not that long? Oh man I've been having lots of trouble with my social life trying to go gluten free. My friends tend to love baked goods. I can't believe how many of my favorite fast food restaurants serve gluten. Oddly I've never liked steak before and now I like steak a lot. Seems by eliminating gluten, other foods I suddenly like. I'm also eating a lot of seafood. I've been crazed about eating seafood lately.

Mushroom "And for the remaining digestive symptoms, perhaps some digestive enzymes would help your pancreas out a little, because sometimes its ability to produce enzymes is impaired by gluten. Stick with it, and keep asking questions."

Hmm, by digestive enzymes you mean yogurt right? I've been drinking the last of the soy milk in my house until the digestive problems diminish.

Wow! Before I went gluten free I absolutely hated meat. Now I am seriously craving chicken and pork chops and though I always used to hate the texture of most beef, I'm considering trying steak and pot roast. Anybody have an explanation for changes in food tastes off of gluten (I do admit, I haven't read all the way through the posts on this thread, so forgive me if that has already been answered)?

Nilnala Newbie
Nilnala
Posted

My favorite pastas are Ancient Harvest Quinoa pasta. It comes in like 8 varieties. they're all great, and quinoa is really good for you. It's a "perfect protein."

Any ideas on where one could purchase it? I read in a Gluten free something or other for dummies that Quinoa is really, really nutritious...but I can't seem to find any where I am at (think small and rural and cornfield).

  • 4 weeks later...
Glutenfreenoobie Rookie
Glutenfreenoobie
Posted
  • Author

Wow! Before I went gluten free I absolutely hated meat. Now I am seriously craving chicken and pork chops and though I always used to hate the texture of most beef, I'm considering trying steak and pot roast. Anybody have an explanation for changes in food tastes off of gluten (I do admit, I haven't read all the way through the posts on this thread, so forgive me if that has already been answered)?

Here's my totally non-expert opinion. Whenever the body goes through a major change in diet, for example eliminating gluten, the body is forced to change. In other words, you are changing your body's chemistry by going gluten-free.

Now about me! :) I've been good about going gluten-free since my last post. I've also tried milk free, but I cannot bear to give cheese. Cheese! I'm also trying a new technique to me. My GI track and my throat seem irritated, I think I have a head cold.

I've been dousing my throat with hot liquid like green tea and microwaved almond milk. I'm also using acupressure to clear my sinus. With my sinus clear I can breathe through my nose which helps my throat. I'm also chewing my food at minimum 50 time and sometimes in excess of 200 times per bite. 200 is when I'm chewing something like sweet potato skin. I think all the nutrients are in the skin. I feel great despite my head cold. I have not taken any medicine other than my usual over the counter allergy medicine. I just sneezed while writing about my allergies, coincidence?

Mrsb2010 Newbie
Mrsb2010
Posted

Hmmm, I still have some symptoms, mostly upset digestive system as of right now. Is there any food I can eat that will help purge my system of gluten? I just have a little bit of gas and erratic elimination of waste. For example I'll drink 10oz of water over 2 hours and I'll have to pee 6 times in the same 2 hours.

Wolicki "If you live in a gluteny household, get your own toaster, condiments, etc. because YES someone douple dipping a knife into the peanut butter or margarine can make you sick!"

Peanut butter and Margaine don't have gluten do they?

It isn't the peanut butter and margarine, but the toast the knife goes across in the spreading then dipping back into the jars for more.....cross contamination.

Glutenfreenoobie Rookie
Glutenfreenoobie
Posted
  • Author

It isn't the peanut butter and margarine, but the toast the knife goes across in the spreading then dipping back into the jars for more.....cross contamination.

I'm starting to feel better. I've been gluten free since Feb. 22ish, or three months now. I've noticed that I have increased stamina and I don't have to eat quite so much. I'm wondering what would cause increased stamina and not having to eat so much.

My dad was often called "hollow-leg" because my dad could eat so much and not get fat. I'm wondering if my dad has the same condition as me. BTW I'm going dairy free lately and my stomach is so much more calm now.

Glutenfreenoobie Rookie
Glutenfreenoobie
Posted
  • Author

I'm starting to feel better. I've been gluten free since Feb. 22ish, or three months now. I've noticed that I have increased stamina and I don't have to eat quite so much. I'm wondering what would cause increased stamina and not having to eat so much.

My dad was often called "hollow-leg" because my dad could eat so much and not get fat. I'm wondering if my dad has the same condition as me. BTW I'm going dairy free lately and my stomach is so much more calm now.

I just observed something else that may involve celiac. In the bathroom I noticed I have no pimples. I haven't had any pimples for about 2 months, approx one month after going gluten free! Hopefully this info will be of some use to someone. I'm using this thread like a journal or progress report on myself going gluten-free.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. cristiana
      - cristiana posted a topic in Related Issues & Disorders
      0

      Healthy diet leading to terrible bloating

      Hello fellow coeliacs and a Happy New Year I'd appreciate some advice. In December I gave up junk food and ate a new healthy diet, which had a lot of gluten-free oats, nuts, oranges in it, and a quite a lot of black coffee, rather than my usual lattes etc. After a week or so I felt awful bubbling and bloating in the area which I would say is the...
    2. TheDHhurts
      - TheDHhurts posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Prana Organics no longer GFCO-certified

      I've been buying my seeds and nuts from Prana Organics for a number of years because the products have been GFCO-certified. I just got a new order delivered of their flax and sunflower seeds, and it turns out that they are no longer GFCO-certified. Instead, it just has a generic "Gluten Free" symbol on the package. I reached out to them to ask what...
    3. cristiana
      - cristiana replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

      Hi @Dizzyma I note what @trents has commented about you possibly posting from the UK. Just to let you know that am a coeliac based in the UK, so if that is the case, do let me know if can help you with any questions on the NHS provision for coeliacs. If you are indeed based in the UK, and coeliac disease is confirmed, I would thoroughly recommend...
    4. trents
      - trents replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

      Welcome to the celic.com community @Dizzyma! I'm assuming you are in the U.K. since you speak of your daughter's celiac disease blood tests as "her bloods". Has her physician officially diagnosed her has having celiac disease on the results of her blood tests alone? Normally, if the ttg-iga blood test results are positive, a follow-up endoscopy...
    5. Dizzyma
      - Dizzyma posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

      Hi all, I have so many questions and feel like google is giving me very different information. Hoping I may get some more definite answers here. ok, my daughter has been diagnosed as a coeliac as her bloods show anti TTG antibodies are over 128. We have started her on a full gluten free diet. my concerns are that she wasn’t actually physically s...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,929
    • Most Online (within 30 mins)
      7,748
    KayTag
    Newest Member
    KayTag
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • cristiana
      Healthy diet leading to terrible bloating

      By cristiana · Posted

      Hello fellow coeliacs and a Happy New Year I'd appreciate some advice. In December I gave up junk food and ate a new healthy diet, which had a lot of gluten-free oats, nuts, oranges in it, and a quite a lot of black coffee, rather than my usual lattes etc.  After a week or so I felt awful bubbling and bloating in the area which I would say is the ascending and transverse colon.  Earlier in the day it might start with stabbing pain, maybe just two or three 'stabs', or a bit of an ache in my pelvis area, and then by the evening replaced with this awful bloated feeling.   I can still fit into all my clothes, there isn't any visible bloating but a feeling of bloating builds from early afternoon onwards.  The pain and bloating has always gone by the morning.  BMs normal.   I went back to my normal diet over Christmas, for a couple of days things improved, but the bubbling and bloating then came back with a vengeance.  I'm having an ultrasound in a couple of weeks to check my pelvic area and if that is clear I suspect may have to have a colonoscopy, but is there anything anyone can recommend to calm this bloating down.  I have been given an additional diagnosis of IBS in the past but it has never been this severe.   I have to confess that I might have had some gluten over Christmas, I ate a lot of Belgium chocolates which were meant to be gluten free but the small print reveals that they were made in a shared facility, so I have probably brought this all on myself!
    • TheDHhurts
      Prana Organics no longer GFCO-certified

      By TheDHhurts · Posted

      I've been buying my seeds and nuts from Prana Organics for a number of years because the products have been GFCO-certified. I just got a new order delivered of their flax and sunflower seeds, and it turns out that they are no longer GFCO-certified. Instead, it just has a generic "Gluten Free" symbol on the package. I reached out to them to ask what protocols/standards/testing they have in place. The person that wrote back said that they are now certifying their gluten free status in-house, but that she couldn't answer my questions related to standards because the person with that info was on vacation. Not very impressed, especially since it still says on their website that they are GFCO-certified. Buyer beware!
    • cristiana
      Newly diagnosed mam to coeliac 11 year old

      By cristiana · Posted

      Hi @Dizzyma I note what @trents has commented about you possibly posting from the UK.  Just to let you know that am a coeliac based in the UK, so if that is the case, do let me know if can help you with any questions on the NHS provision for coeliacs.    If you are indeed based in the UK, and coeliac disease is confirmed, I would thoroughly recommend you join Coeliac UK, as they provide a printed food and drink guide and also a phone app which you can take shopping with you so you can find out if a product is gluten free or not. But one thing I would like to say to you, no matter where you live, is you mention that your daughter is anxious.  I was always a bit of a nervous, anxious child but before my diagnosis in mid-life my anxiety levels were through the roof.   My anxiety got steadily better when I followed the gluten-free diet and vitamin and mineral deficiencies were addressed.  Anxiety is very common at diagnosis, you may well find that her anxiety will improve once your daughter follows a strict gluten-free diet. Cristiana 
    • trents
      Newly diagnosed mam to coeliac 11 year old

      By trents · Posted

      Welcome to the celic.com community @Dizzyma! I'm assuming you are in the U.K. since you speak of your daughter's celiac disease blood tests as "her bloods".  Has her physician officially diagnosed her has having celiac disease on the results of her blood tests alone? Normally, if the ttg-iga blood test results are positive, a follow-up endoscopy with biopsy of the small bowel lining to check for damage would be ordered to confirm the results of "the bloods". However if the ttg-iga test score is 10x normal or greater, some physicians, particularly in the U.K., will dispense with the endoscopy/biopsy. If there is to be an endoscopy/biopsy, your daughter should not yet begin the gluten free diet as doing so would allow healing of the small bowel lining to commence which may result in a biopsy finding having results that conflict with the blood work. Do you know if an endoscopy/biopsy is planned? Celiac disease can have onset at any stage of life, from infancy to old age. It has a genetic base but the genes remain dormant until and unless triggered by some stress event. The stress event can be many things but it is often a viral infection. About 40% of the general population have the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. So, for most, the genes remain dormant.  Celiac disease is by nature an autoimmune disorder. That is to say, gluten ingestion triggers an immune response that causes the body to attack its own tissues. In this case, the attack happens in he lining of the small bowel, at least classically, though we now know there are other body systems that can sometimes be affected. So, for a person with celiac disease, when they ingest gluten, the body sends attacking cells to battle the gluten which causes inflammation as the gluten is being absorbed into the cells that make up the lining of the small bowel. This causes damage to the cells and over time, wears them down. This lining is composed of billions of tiny finger-like projections and which creates a tremendous surface area for absorbing nutrients from the food we eat. This area of the intestinal track is where all of our nutrition is absorbed. As these finger-like projections get worn down by the constant inflammation from continued gluten consumption before diagnosis (or after diagnosis in the case of those who are noncompliant) the efficiency of nutrient absorption from what we eat can be drastically reduced. This is why iron deficiency anemia and other nutrient deficiency related medical problems are so common in the celiac population. So, to answer your question about the wisdom of allowing your daughter to consume gluten on a limited basis to retain some tolerance to it, that would not be a sound approach because it would prevent healing of the lining of her small bowel. It would keep the fires of inflammation smoldering. The only wise course is strict adherence to a gluten free diet, once all tests to confirm celiac disease are complete.
    • Dizzyma
      Newly diagnosed mam to coeliac 11 year old

      By Dizzyma · Posted

      Hi all, I have so many questions and feel like google is giving me very different information. Hoping I may get some more definite answers here. ok, my daughter has been diagnosed as a coeliac as her bloods show anti TTG antibodies are over 128. We have started her  on a full gluten free diet. my concerns are that she wasn’t actually physically sick on her regular diet, she had tummy issues and skin sores. My fear is that she will build up a complete intolerance to gluten and become physically sick if she has gluten. Is there anything to be said for keeping a small bit of gluten in the diet to stop her from developing a total intolerance?  also, she would be an anxious type of person, is it possible that stress is the reason she has become coeliac? I read that diagnosis later in childhood could be following a sickness or stress. How can she have been fine for the first 10 years and then become coeliac? sorry, I’m just very confused and really want to do right by her. I know a coeliac and she has a terrible time after she gets gluttened so just want to make sure going down a total gluten free road is the right choice. thank you for any help or advise xx 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.