Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Tocopheryl Acetate

GFLindsey

By GFLindsey
in Coping with Celiac Disease

Recommended Posts

GFLindsey Explorer
GFLindsey
Posted

I just realized that I start nearly every meal with hand sanitizer that has tocopheryl acetate in the ingredients list. I didn't know that this ingredient could be derived from wheat. After lots of online research, I am still finding conflicting information, so if someone can clear the air for me it would be much appreciated!

Basically I have found sites that say tocopheryl acetate is derived from soy. Others say it is unsafe for celiacs because it can be made from wheat. Still another said that it was processed to the point where it is probably safe. Then to top it all off, I found several gluten free products available with tocopheryl acetate in the ingredients.

Someone help!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Heidi S. Rookie
Heidi S.
Posted

From what I understand, Vitamin E or Tocopheryl can be derived from wheat, soy, or corn. If it is derived from wheat is it not safe for Celiacs. It can be safe if derived from corn or soy (I am assuming that is why it can be found on gluten free products). It is commonly found in lotion and make-up for the skin. I avoid Tocopheryl (Vitamin E) when possible, unless I email the company or it is label gluten free. For hand sanitizer I use burts bees or purell, they are gluten free. I believe on this forum is a school products list with gluten free wipes and hand sanitizer like Equate, Pampers, etc, you should check it out! gluten-free school supply list Scroll down to the updated 2009 list!

Hope it helps!

jerseyangel Proficient
jerseyangel
Posted

Whenever I see tocopheryl or vitamin E on an ingredients list, I call the company to inquire about the source. Most times, they have to check and get back to me since the reps don't always have that information in front of them.

Lycopene Rookie
Lycopene
Posted

Germ-x hand sanitizer is gluten free too, and it smells FANTASTIC.

buffettbride Enthusiast
buffettbride
Posted

Tocopherol acetate is a pain in the butt. I have to call about that ingredient more than any other. I know that it is in Cetaphil lotion and it is NOT safe. I've also found it in make-up, called the company, and many times it IS safe. It's a booger, that's for sure.

GFLindsey Explorer
GFLindsey
Posted
  • Author

Is it sad that this information makes me happy?! I have been gluten-free for 3 months since my diagnosis and still dont feel 100%. I definitely use a lot of products with tocopheryl acetate -- specifically ALL of my hand sanitizers that I use before each meal! This new info will def. help clear out old lingering CC issues.

Of course, thank you for your responses and helpful information about safe products. Also, I have used Cetaphil several times because its hypoallergenic. DUH. Can get rid of that one!

jerseyangel Proficient
jerseyangel
Posted

Is it sad that this information makes me happy?! I have been gluten-free for 3 months since my diagnosis and still dont feel 100%. I definitely use a lot of products with tocopheryl acetate -- specifically ALL of my hand sanitizers that I use before each meal! This new info will def. help clear out old lingering CC issues.

Of course, thank you for your responses and helpful information about safe products. Also, I have used Cetaphil several times because its hypoallergenic. DUH. Can get rid of that one!

The only Cetaphil product that is gluten-free is the Gentle Skin Cleanser. I've been using it for a while now with no issues, and I'm very sensitive. When I inquired about their moisturizer, they told me that all of their other products can not be considered gluten-free. Here is the email from them--

The Cetaphil Gentle Skin Cleanser does not contain ingredients that may be derived from grains and therefore does not contain gluten.

The other Cetaphil products contain ingredients that may be derived from grains and therefore possibly contains gluten.

A cleansing validation of the production lines is performed between runs of different products. However, we cannot claim with 100% certainty that cross contamination has not occurred.

Best regards,

Special Services Specialist

Galderma Laboratories, L.P.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


buffettbride Enthusiast
buffettbride
Posted

Is it sad that this information makes me happy?! I have been gluten-free for 3 months since my diagnosis and still dont feel 100%. I definitely use a lot of products with tocopheryl acetate -- specifically ALL of my hand sanitizers that I use before each meal! This new info will def. help clear out old lingering CC issues.

Of course, thank you for your responses and helpful information about safe products. Also, I have used Cetaphil several times because its hypoallergenic. DUH. Can get rid of that one!

We tend to use Eucerine or Aquaphor as a moisturizer. Good for sensitve skin and free of the bad stuff.

  • 4 weeks later...
melblondin Apprentice
melblondin
Posted

My eye shadow (Revlon Cream to Powder Eye Shadow) makes my eyelids red and burn every time I've used it. I've just been looking to see if it contains wheat and tocopheryl acetate is the best that I can come up with. Has anyone already contacted Revlon to know if their use of T.A is derived from wheat? If not, I guess I'll be contacting them. I can't use it either way because I'm reacting to it, but I'm curious to know if it's because of wheat/gluten.

  • 1 year later...
amieb Newbie
amieb
Posted

I use a facial cleansing product I buy at Walgreens called Cerave. I can't use Cetaphil - I break out in a rash. Hope this helps.

Coleslawcat Contributor
Coleslawcat
Posted

Tocopherol acetate is a pain in the butt. I have to call about that ingredient more than any other. I know that it is in Cetaphil lotion and it is NOT safe. I've also found it in make-up, called the company, and many times it IS safe. It's a booger, that's for sure.

Please don't tell me this about cetaphil. It's the only cleanser that doesn't cause my skin to break out.

Takala Enthusiast
Takala
Posted

The beginning of this thread is a year old.

However....

Was listening to the television news this morning and they had a story about how if you used hand sanitizers at the rate that doctors and nurses are supposed to use them in a clinical setting, i.e., like over 4 times an hour, after several hours of this there's enough alcohol absorbed thru the skin that you could set off a breathalizer test.

Happy next thing to worry about !

Chiana Apprentice
Chiana
Posted

Tocopherol acetate is a pain in the butt. I have to call about that ingredient more than any other. I know that it is in Cetaphil lotion and it is NOT safe. I've also found it in make-up, called the company, and many times it IS safe. It's a booger, that's for sure.

Cetaphil? Damn it. >_<

cap6 Enthusiast
cap6
Posted

Tocopherol acetate ~ Well, this does not make me smile. I didn't know about this one! Also I use hand wipes on the tables at restaurants all the time. Guess I need to rethink those as well. grrrrrr :(

sherrylynn Contributor
sherrylynn
Posted

Well heck, I am a nurse, I only work the weekends but I use a LOT of alcohol sanitizer. Now I am going to have to look at the ingredients. I didn't even think that it could contain wheat. I can't win for losin. :(

  • 4 years later...
Coltsneck24 Rookie
Coltsneck24
Posted

ops - see below

Coltsneck24 Rookie
Coltsneck24
Posted

Hi, 

I was just reading the label on a bottle of Kirkland Signature Vitamin E, 400 I.U. that contains dl-Alpha Tocopherol Acetate.  I've read that this chemical contains gluten; however, on the table it states "No starch, yeast or gluten."  Should I assume that it means it's a gluten free product (stating the obvious) or should I be concerned because there is no gluten-free stamp on the bottle.

Gemini Experienced
Gemini
Posted

Open Original Shared Link

Here is an article that will explain why tocopherols are safe for Celiac's to consume.  There does not have to be a gluten free stamp on the bottle for it to safe.  The company stated there was no gluten and tocopherols are not unsafe for consumption.  I have used countless vitamins and supplements that contain this ingredient and have never once gotten sick and I am very sensitive.

 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      8

      My only proof

      @NanceK, I do have Hypersensitivity Type Four reaction to Sulfa drugs, a sulfa allergy. Benfotiamine and other forms of Thiamine do not bother me at all. There's sulfur in all kinds of Thiamine, yet our bodies must have it as an essential nutrient to make life sustaining enzymes. The sulfur in thiamine is in a ring which does not trigger sulfa allergy...
    2. Wheatwacked
      - Wheatwacked replied to Jmartes71's topic in Coping with Celiac Disease
      8

      Related issues

      Your goal is not to be a good puppet, there is no gain in that. You might want to restart the ones that helped. It sounds more like you are suffering from malnutrition. Gluten free foods are not fortified with things like Thiamine (B1), vitamin D, Iodine, B1,2,3,5,6 and 12 as non-gluten free products are required to be. There is a Catch-22 here. Malnutrition...
    3. NanceK
      - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      8

      My only proof

      Hi…Just a note that if you have an allergy to sulfa it’s best not to take Benfotiamine. I bought a bottle and tried one without looking into it first and didn’t feel well. I checked with my pharmacist and he said not to take it with a known sulfa allergy. I was really bummed because I thought it would help my energy level, but I was thankful I was given...
    4. Wheatwacked
      - Wheatwacked replied to Scatterbrain's topic in Sports and Fitness
      4

      Feel like I’m starting over

      Hello @Scatterbrain, Are you getting enough vitamins and minerals. Gluten free food is not fortified so you may be starting to run low on B vitamins and vitamin D. By the way you should get your mom checked for celiac disease. You got it from your mom or dad. Some studies show that following a gluten-free diet can stabilize or improve symptoms...
    5. Scott Adams
      - Scott Adams replied to Kirita's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Recovery from gluten challenge

      Hopefully the food she eats away from home, especially at school, is 100% gluten-free. If you haven't checked in with the school directly about this, it might be worth a planned visit with their staff to make sure her food is safe.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,291
    • Most Online (within 30 mins)
      7,748
    DottieLyn
    Newest Member
    DottieLyn
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @NanceK, I do have Hypersensitivity Type Four reaction to Sulfa drugs, a sulfa allergy.  Benfotiamine and other forms of Thiamine do not bother me at all.  There's sulfur in all kinds of Thiamine, yet our bodies must have it as an essential nutrient to make life sustaining enzymes.  The sulfur in thiamine is in a ring which does not trigger sulfa allergy like sulfites in a chain found in pharmaceuticals.  Doctors are not given sufficient education in nutrition (nor chemistry in this case).  I studied Nutrition before earning a degree in Microbiology.  I wanted to know what vitamins were doing inside the body.   Thiamine is safe and nontoxic even in high doses.   Not feeling well after starting Benfotiamine is normal.  It's called the "thiamine paradox" and is equivalent to an engine backfiring if it's not been cranked up for a while.  Mine went away in about three days.  I took a B Complex, magnesium and added molybdenum for a few weeks. It's important to add a B Complex with all eight essential B vitamins. Supplementing just one B vitamin can cause lows in some of the others and result in feeling worse, too.  Celiac Disease causes malabsorption of all the B vitamins, not just thiamine.  You need all eight.  Thiamine forms including Benfotiamine interact with each of the other B vitamins in some way.  It's important to add a magnesium glycinate or chelate supplement as well.  Forms of Thiamine including Benfotiamine need magnesium to make those life sustaining enzymes.  (Don't use magnesium oxide.  It's not absorbed well.  It pulls water into the intestines and is used to relieve constipation.)   Molybdenum is a trace mineral that helps the body utilize forms of Thiamine.   Molybdenum supplements are available over the counter.  It's not unusual to be low in molybdenum if low in thiamine.   I do hope you will add the necessary supplements and try Benfotiamine again. Science-y Explanation of Thiamine Paradox: https://hormonesmatter.com/paradoxical-reactions-with-ttfd-the-glutathione-connection/#google_vignette
    • Wheatwacked
      Related issues

      By Wheatwacked · Posted

      Your goal is not to be a good puppet, there is no gain in that. You might want to restart the ones that helped.  It sounds more like you are suffering from malnutrition.  Gluten free foods are not fortified with things like Thiamine (B1), vitamin D, Iodine, B1,2,3,5,6 and 12 as non-gluten free products are required to be. There is a Catch-22 here.  Malnutrition can cause SIBO, and SIBO can worsen malnutrition. Another possibility is side effects from any medication that are taking.  I was on Metformin 3 months before it turned me into a zombi.  I had crippling side effects from most of the BP meds tried on me, and Losartan has many of the side effects on me from my pre gluten free days. Because you have been gluten free, you can test and talk until you are blue in the face but all of your tests will be negative.  Without gluten, you will not create the antigen against gluten, no antigens to gluten, so no small intestine damage from the antigens.  You will need to do a gluten challange to test positive if you need an official diagnosis, and even then, no guaranty: 10 g of gluten per day for 6 weeks! Then a full panel of Celiac tests and biopsy. At a minimum consider vitamin D, Liquid Iodine (unless you have dermatitis herpetiformis and iodine exasperates the rash), and Liquid Geritol. Push for vitamin D testing and a consult with a nutritionist experienced with Celiack Disease.  Most blood tests don't indicate nutritional deficiencies.  Your thyroid tests can be perfect, yet not indicate iodine deficiency for example.  Thiamine   test fine, but not pick up on beriberi.  Vegans are often B12 deficient because meat, fish, poultry, eggs, and dairy are the primary souces of B12. Here is what I take daily.  10,000 IU vitamin D3 750 mg g a b a [   ] 200 mg CoQ10 [   ] 100 mg DHEA [   ] 250 mg thiamine B1 [   ] 100 mg of B2 [   ] 500 mg B5 pantothenic acid [   ] 100 mg B6 [   ] 1000 micrograms B12 n [   ] 500 mg vitamin c [   ] 500 mg taurine [   ] 200 mg selenium   
    • NanceK
      My only proof

      By NanceK · Posted

      Hi…Just a note that if you have an allergy to sulfa it’s best not to take Benfotiamine. I bought a bottle and tried one without looking into it first and didn’t feel well.  I checked with my pharmacist and he said not to take it with a known sulfa allergy. I was really bummed because I thought it would help my energy level, but I was thankful I was given this info before taking more of it. 
    • Wheatwacked
      Feel like I’m starting over

      By Wheatwacked · Posted

      Hello @Scatterbrain, Are you getting enough vitamins and minerals.  Gluten free food is not fortified so you may be starting to run low on B vitamins and vitamin D.   By the way you should get your mom checked for celiac disease.  You got it from your mom or dad.  Some studies show that following a gluten-free diet can stabilize or improve symptoms of dementia.  I know that for the 63 years I was eating gluten I got dumber and dumber until I started GFD and vitamin replenishment and it began to reverse.  Thiamine can get used up in a week or two.  Symptoms can come and go with daily diet.  Symptoms of beriberi due to Thiamine deficiency.   Difficulty walking. Loss of feeling (sensation) in hands and feet. Loss of muscle function or paralysis of the lower legs. Mental confusion. Pain. Speech difficulties. Strange eye movements (nystagmus) Tingling. Any change in medications? Last March I had corotid artery surgery (90 % blockage), and I started taking Losartan for blood pressure, added to the Clonidine I was taking already.  I was not recovering well and many of my pre gluten free symptoms were back  I was getting worse.  At first I thought it was caused a reaction to the anesthesia from the surgery, but that should have improved after two weeks.  Doctor thought I was just being a wimp. After three months I talked to my doctor about a break from the Losartan to see if it was causing it. It had not made any difference in my bp.  Except for clonindine, all of the previous bp meds tried had not worked to lower bp and had crippling side effects. One, I could not stand up straight; one wobbly knees, another spayed feet.  Inguinal hernia from the Lisinopril cough.  Had I contiued on those, I was destined for a wheelchair or walker. She said the symptoms were not from Losartan so I continued taking it.  Two weeks later I did not have the strength in hips and thighs to get up from sitting on the floor (Help, I can't get up😨).  I stopped AMA (not recommended).  Without the Losartan, a) bp did not change, after the 72 hour withdrawal from Losartanon, on clonidine only and b) symptoms started going away.  Improvement started in 72 hours.  After six weeks they were gone and I am getting better.  
    • Scott Adams
      Recovery from gluten challenge

      By Scott Adams · Posted

      Hopefully the food she eats away from home, especially at school, is 100% gluten-free. If you haven't checked in with the school directly about this, it might be worth a planned visit with their staff to make sure her food is safe.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.