Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Did I Do The Right Thing?


jasonD2

Recommended Posts

jasonD2 Experienced

I was out with my friend last night and at the bar i saw a urologist that i went to years ago who pumped me full of 6 months worth of antibiotics for no reason and this incidentally is what destroyed my insides and gave me food allergies and celiac disease; im convinced his ignorance is what is responsible for all my problems today. Anyway this Dr is an arrogant cocky jerk, would make me wait over an hour in his waiting room before he saw me and was rude and inconsiderate and show no sympathy towards me. Ultimately another doctor helped with my urinary issues, but by then it was too late and all the damage was done.

He was at the bar with his wife and I so wanted to curse him out and tell him how he ruined me life, or just spit in his face..but i didnt. i was with my friend and didnt want to make a scene and just walked away.

still seeing him brought back bad memories and ruined my night. sorry if this sounds psychotic or immature but did i do the right thing by not confronting him? He definitely spotted me and knew who i was but ignored me


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lycopene Rookie

You did the right thing. That's VERY big of you to not do that. I understand what you mean by that. My doctor almost KILLED me when I was younger.

I know exactly how you feel, but stuff like that never helps. You would've been kicked out, blahblahblah and it wouldn't have made you feel better. All you have to do is just shove it off to the side.

I don't believe in god or anything, but I DO believe that everything happens for a reason. For example, one of the reasons why I have celiac disease, I think, is to make me healthier... in a sense. I used to eat REALLY bad. Now I eat amazingly healthy and I LOVE it. The pain sucks... but yeah.

Good for you though, not starting anything. *Applauds you*

mushroom Proficient

Well done, Jason. Some people are beyond education, so there's really no point in trying to tell anything to someone who already knows it all :P

katifer Apprentice

I have wanted to write some of the Dr.s that diagnosed me w/ random wrong things and just tell them it was GLUTEN! please dont continue to miss this with other patients! you did the right thing for sure. it is hard when you have suffered for such a long time to not want justice though.

jasonD2 Experienced

I could've just splashed my drink in his face...maybe i woulda been kicked out of the bar but who cares...grrr

Lycopene Rookie

Be happy you didn't! Seriously, it's the bigger thing to do. You say he looked at you and knew who you were but said nothing? Obviously that's not being the bigger person.

So be pleased with yourself that you are. Being positive is a gooood thing, trust me!

eastvangal Newbie

I did write a doctor and a naturopath who misdiagnosed me, and enclosed an information sheet that I compiled on Celiac Disease. I could have used some of your restraint at the time, as I recall rashly sending it off with great angry enthusiasm and wish I'd have edited. It was quite early into my self-diagnosis.

But I've kept that information sheet and give it to family, friends and other doctors. I've even posted it at work (psychiatrists office), just to spread the information.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

Good job Jason! Wouldn't have done any good to get in a fight & you could have ended up finding out what passes for gluten-free in jail. You could send him a note detailing everything that happened but I doubt he would read past the first 2 lines. If you do want to do that, write it & wait a few days. Then re-read & have someone or 2 or 3 someones read it first. Good restraint. Love - mom :P

jerseyangel Proficient

You took the high road, Jason--you did the right thing.

I have to add that I understand completely the rage and frustration you felt towards him, and how good it would have felt for that one second to toss your drink in his face. ;)

ciavyn Contributor

Way to go! You definitely did the right thing. It would have done nothing to assuage your frustration and anger and only given him the right to blame you. Why give him that power?

Regardless of his poor treatment, you are taking control of your life and finding the answers he was too incompetent to discover. Take pride in that, and know that one day he will get his. God, karma, whatever. Stay strong and focus your energy on feeling as healthy as you can.

jasonD2 Experienced

Thanks for all your support! A roundhouse kick to his skull would have been nice, but I know I did the right thing as well :)

JNBunnie1 Community Regular

Thanks for all your support! A roundhouse kick to his skull would have been nice, but I know I did the right thing as well :)

Sometimes the fantasy is SO much more satisfying than the reality (yes, I'm speaking from experience) so I say keep on daydreaming about that roundhouse to the head! Jerk. That, and telling everyone you know not to use that doctor is better revenge anyway. (Is it against board rules for him to tell us so we can avoid this doctor?)

psawyer Proficient

It is not against the rules to name names, but Rule 1 applies. The wording in the opening post was okay because it did not identify the "arrogant cocky jerk," but to name him now would not be appropriate.

jasonD2 Experienced

His name is Dr. Ahole ;) Hows that?

kareng Grand Master

His name is Dr. Ahole ;) Hows that?

That's my GI doc's name!

jerseyangel Proficient

His name is Dr. Ahole ;) Hows that?

What a coincidence--I had one of those too! :lol:

sandsurfgirl Collaborator

I had a Dr. Ahole, Dr. Moron, Dr. Idiot.

I would write a letter and send it to him with specific info about your lab results. Not an angry one, even though you want to send an angry one, but an informative one. I would make it short as possible. I called a couple of my old docs just to let them know and I plainly said "If you have another patient with an unexplained array of symptoms, please consider testing them for celiac."

jenngolightly Contributor

That's my GI doc's name!

OMG - that's my GI's name, too! We all must be neighbors.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,556
    • Most Online (within 30 mins)
      7,748

    Rachel Wilson
    Newest Member
    Rachel Wilson
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.