Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Staying With Friends For A Week, But


book-worm

Recommended Posts

book-worm Apprentice

Hi all.

I


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Bobbijo6681 Apprentice

If your friends are understanding about the diet, you most certainly could cook for yourself and they would be OK with it. I am sure they do not want to ruin your vacation with you being sick, so they will work with you to make sure that you will be fine. You can also use it as an opportunity to teach them some things, and show them some recipes that you have that even they could eat. How much of a treat would it be for them to not have to cook for a week while you are there? They can get a mini vaca while you are there, and you will know that what you are eating is safe and you can stay healthy to enjoy everything else you will be doing while you are there.

Don't miss an opportunity to do something like that just because of the diet....you have to keep living your life. It's just a much healthier life now!!

jackay Enthusiast

I also neeed suggestions as I'll be flying to spend 10 days with my daughter in August. She does have a dishwasher but I don't know if her pots and pans are safe. I will be doing my own cooking so hope she doesn't mind. Right now I'm on a very limited diet so hope I can eat more by then.

I'll be taking gluten free grains with me plus lots of nuts.

skigirlchar Newbie

I would suggest to both of you that you ask your hosts for the names of the local grocery stores where you are going now. MANY now have online lists of the gluten-free foods they carry. You may be putting a lot more stress on yourself than needed!

I have NEVER bothered to take anything with me and my friends have always been very accommodating. Yes, there is a lot of teasing about my "food issues" but even when i eat w/ their kids (no one wants to be a picky eater in front of kids,) we have always made it work.

jackay - If you're flying, you may not be allowed to take the food w/ you. Besides, there are probably a variety of available foods wherever you go. If you take your daughter w/ you to the store, she will also know what to get when you visit next. Maybe she will even keep a selection for you.

I know that at first my parents were overwhelmed and when they tried accommodating me it got very confusing because they kept going the route of "what can't you eat" (on top of my already existing list of allergies.) Now - just like when I was little, we shop together when I visit, and though I don't visit them often, he has a shelf that is delegated "gluten-free/CF/SF" that he keeps stocked for when I come home. He uses those foods himself, but when he shops he keeps those items there.

As for gluten-free free cooking utensils and the like - worst case scenario, go to the local store to the baking isle and get some single use foil pans and an inexpensive pot. ANYWHERE you go you can find rice & beans. They both work as a base for a wide variety of meals.

Many cities also now have restaurant guides online that even list gluten-free restaurants (or if they have gluten-free menu choices.)

And remember, in the US, it's farmers market time - fresh veggies and fruits are readily available almost everywhere.

Good luck to both of you & enjoy your trips!

jackay Enthusiast

jackay - If you're flying, you may not be allowed to take the food w/ you. Besides, there are probably a variety of available foods wherever you go. If you take your daughter w/ you to the store, she will also know what to get when you visit next. Maybe she will even keep a selection for you.

My daughter lives in a small town in Alaska so there is limited availability in shopping and food is very expensive. I'll take plenty of nuts with as don't know if the ones I can buy there are packaged in a gluten free facility. There are no farmer's markets and fresh fruit and veggies at the grocery store aren't the best. My DD says the only fruits they can count on being edible are bananas. I did find other summers that whatever fruits or veggies were in their weekly grocery ad were the freshest.

We could stop at Anchorage and do some shopping before we head out of town but by the time we get there, we are already exhausted and just want to head to DD's and get that 2 1/2 hour drive over with. It takes about 12 hours for the complete trip so is a very full day. I really don't want the expense of spending a night in Anchorage and am very anxious to see my grandsons.

I am still trying out foods for other intolerances. Am also currently fighting candida so am avoiding all sugars and limiting fruits grains and high carbohydrate veggies. Hopefully by August, I will no longer have to worry about that. Beans give me way too much gas at this point. I'm hoping I'll also be able to eat eggs by that time.

eva-girl Newbie

jackay -

maybe you could buy some non-perishable food in your town, box it up and ship it to your daughter's house before you go? i did that when i was visiting my parents (they live in a very tiny town in maine - no gluten-free food anywhere) and the food was waiting for me when i got there. good luck!

YoloGx Rookie

I would suggest to both of you that you ask your hosts for the names of the local grocery stores where you are going now. MANY now have online lists of the gluten-free foods they carry. You may be putting a lot more stress on yourself than needed!

I have NEVER bothered to take anything with me and my friends have always been very accommodating. Yes, there is a lot of teasing about my "food issues" but even when i eat w/ their kids (no one wants to be a picky eater in front of kids,) we have always made it work.

jackay - If you're flying, you may not be allowed to take the food w/ you. Besides, there are probably a variety of available foods wherever you go. If you take your daughter w/ you to the store, she will also know what to get when you visit next. Maybe she will even keep a selection for you.

I know that at first my parents were overwhelmed and when they tried accommodating me it got very confusing because they kept going the route of "what can't you eat" (on top of my already existing list of allergies.) Now - just like when I was little, we shop together when I visit, and though I don't visit them often, he has a shelf that is delegated "gluten-free/CF/SF" that he keeps stocked for when I come home. He uses those foods himself, but when he shops he keeps those items there.

As for gluten-free free cooking utensils and the like - worst case scenario, go to the local store to the baking isle and get some single use foil pans and an inexpensive pot. ANYWHERE you go you can find rice & beans. They both work as a base for a wide variety of meals.

Many cities also now have restaurant guides online that even list gluten-free restaurants (or if they have gluten-free menu choices.)

And remember, in the US, it's farmers market time - fresh veggies and fruits are readily available almost everywhere.

Good luck to both of you & enjoy your trips!

excellent advice!

by the way for the above poster I too have candida overgrowth so it does limit my diet quite a lot too esp. fruit!! I am finding olive leaf as well as my usual oregano oil, garlic and caprylic acid and enterically coated acidophilus really helps--plus avoid as much carbs as I can handle (sometimes I just can't!). If you can take nystatin from a doc that too would be helpful...

Bea


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



skigirlchar Newbie

alaska does put a damper on shopping - but you also didn't put that in your original message :/

i understand the candida issue - IT DOES GET BETTER!!! i had already been on a limited diet because of allergies when this started for me, too. adding beans & rices - when i already disliked them - was tough.

the pots - if they have a "non-stick" coating, you could have a gluten transfer issue as they cannot be scrubbed as well as the non-coated ones.

and if she uses wooden cooking utensils you will want a new one or a plastic or metal one as the wood totally absorbs. you will also want your own cutting board (wax paper on top of an existing can help but it's not 100%.)

you have 3 months to prepare. i am sure she is as excited for you to be there those 10 days as you are!

AKcollegestudent Apprentice

My daughter lives in a small town in Alaska so there is limited availability in shopping and food is very expensive. I'll take plenty of nuts with as don't know if the ones I can buy there are packaged in a gluten free facility. There are no farmer's markets and fresh fruit and veggies at the grocery store aren't the best. My DD says the only fruits they can count on being edible are bananas. I did find other summers that whatever fruits or veggies were in their weekly grocery ad were the freshest.

We could stop at Anchorage and do some shopping before we head out of town but by the time we get there, we are already exhausted and just want to head to DD's and get that 2 1/2 hour drive over with. It takes about 12 hours for the complete trip so is a very full day. I really don't want the expense of spending a night in Anchorage and am very anxious to see my grandsons.

I am still trying out foods for other intolerances. Am also currently fighting candida so am avoiding all sugars and limiting fruits grains and high carbohydrate veggies. Hopefully by August, I will no longer have to worry about that. Beans give me way too much gas at this point. I'm hoping I'll also be able to eat eggs by that time.

Which small town? And honestly? I've done the 12 to 15 hour trip to and from Anchorage every four months for the past 3 years. It sucks balls, but realistically, it's might be really good to stop in Anchorage overnight. If you're heading the way I think you might be...honestly? That highway is treacherous. The past couple years, the fatality rates are so high that I caution you against driving it tired. (Actually, in either direction, the fatality rates have been increasing.)

And if your daughter lives any of the places I'm thinking, she might love you forever for bringing groceries. When I was a kid, anyone who brought groceries was damned near a god. (I can give you grocery store suggestions and probably a list of cheap hotels. Also, bus routes if you're not picking up a car or being met.)

jackay Enthusiast

Which small town? And honestly? I've done the 12 to 15 hour trip to and from Anchorage every four months for the past 3 years. It sucks balls, but realistically, it's might be really good to stop in Anchorage overnight. If you're heading the way I think you might be...honestly? That highway is treacherous. The past couple years, the fatality rates are so high that I caution you against driving it tired. (Actually, in either direction, the fatality rates have been increasing.)

And if your daughter lives any of the places I'm thinking, she might love you forever for bringing groceries. When I was a kid, anyone who brought groceries was damned near a god. (I can give you grocery store suggestions and probably a list of cheap hotels. Also, bus routes if you're not picking up a car or being met.)

We are headed to Seward. Their new grocery store is much improved over the old one and does have more variety. Last year when I was there I was shopping gluten free but not aware of cc issues. I was also very sick so have no memory of gluten free items available.

We are always very cautious of the driving because of DD's warnings. This time we may be lucky enough to have her pick us up. Her boys are now old enough 3 and 1 1/2 so old either have a sitter or possibly even drive along with her. Also, if she does the driving, we may be able to stop off for some fresh fruit and veggies.

We do take a cooler with to bring home fish if DH catches any, so will be able to bring some food with us. I think that can weigh up to 50 pounds but I'll have to check before we go. Normally, we bring them a variety of sausages which take up quite a bit of the weight. This year we may cut back on that so we can bring more food for me.

I am so looking forward to going this year since I am so much healthier. The past four summer trips were pretty miserable. If I can stay healthy while I am there, it will be the greatest!

jackay Enthusiast

excellent advice!

by the way for the above poster I too have candida overgrowth so it does limit my diet quite a lot too esp. fruit!! I am finding olive leaf as well as my usual oregano oil, garlic and caprylic acid and enterically coated acidophilus really helps--plus avoid as much carbs as I can handle (sometimes I just can't!). If you can take nystatin from a doc that too would be helpful...

Bea

Bea,

I've been taking Candex for about six weeks now for candida. I have also added oregano oil. I plan on trying the antifungals one at a time since I've read that our systems can adapt to them. I plan on starting caprylic acid after three weeks of oregano oil. After that, I'll probably go back to garlic. If I don't feel I still don't have it under control, I'll see if my doctor will prescribe Nystatin. At my last appointment, he wanted me to stick with the Candex for the second month since it seemed to be helping quite a bit. I am going to cut my dose of that in half for a week and then cut it into a fourth and see what happens. Hopefully, with continuing antifungals, it won't get worse. It is suggested with Candex to stay on a maintenance dose of 1 capsule a day (full dose is 4 per day).

jenngolightly Contributor

We are headed to Seward. Their new grocery store is much improved over the old one and does have more variety. Last year when I was there I was shopping gluten free but not aware of cc issues. I was also very sick so have no memory of gluten free items available.

Ahhh, you bring back memories from my childhood. I grew up in Anchorage, but we spent summers in Seward on our boat. Thanks for giving me a moment to smile. :-) Now back to the realities of life as a Celiac.

drloots Newbie

@book-worm the biggest supermarket down under is Coles they have a gluten-free section on their website Open Original Shared Link Use This To Link To Spam/c1IqB6 you can check out. You and your friend should go there and shop together for the stuff you need while there. Communication is key in a situation like this. Anyways, enjoy your time in Melbourne, its a really fun city!

Mack the Knife Explorer

Hi Bookworm. I'm not sure if you're from Australia or not but check out these websites if you need to find places to eat out.

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Some of my favourite gluten-free friendly food places in Melbourne are:

Grill'd - a gourmet burger place

Open Original Shared Link

Sushi Sushi - chain store sushi place (they have 3 city stores and are in all the shopping mall). Ask staff for the list of gluten-free items.

Open Original Shared Link

The Organic Food and Wine Deli - they aren't a dedicated gluten-free place but I've never had a problem.

Open Original Shared Link

Mrs Parmas - this place does gluten-free chicken parmas, chips and gluten-free beer. Ask for the gluten-free menu.

Open Original Shared Link

Cicalata - ask for the gluten free menu

Open Original Shared Link

Crust Gourmet Pizza Bar - chain pizza place

Open Original Shared Link

SACS Gluten Free Cafe

Open Original Shared Link

Pizza Farro

Open Original Shared Link

Muffin Break - chain store in all the shopping malls.

Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      7

      My only proof

    2. - Wheatwacked replied to Scatterbrain's topic in Sports and Fitness
      4

      Feel like I’m starting over

    3. - Scott Adams replied to Kirita's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Recovery from gluten challenge

    4. - Scatterbrain replied to Scatterbrain's topic in Sports and Fitness
      4

      Feel like I’m starting over

    5. - Kirita replied to Kirita's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Recovery from gluten challenge


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,288
    • Most Online (within 30 mins)
      7,748

    Greg R.
    Newest Member
    Greg R.
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • NanceK
      Hi…Just a note that if you have an allergy to sulfa it’s best not to take Benfotiamine. I bought a bottle and tried one without looking into it first and didn’t feel well.  I checked with my pharmacist and he said not to take it with a known sulfa allergy. I was really bummed because I thought it would help my energy level, but I was thankful I was given this info before taking more of it. 
    • Wheatwacked
      Hello @Scatterbrain, Are you getting enough vitamins and minerals.  Gluten free food is not fortified so you may be starting to run low on B vitamins and vitamin D.   By the way you should get your mom checked for celiac disease.  You got it from your mom or dad.  Some studies show that following a gluten-free diet can stabilize or improve symptoms of dementia.  I know that for the 63 years I was eating gluten I got dumber and dumber until I started GFD and vitamin replenishment and it began to reverse.  Thiamine can get used up in a week or two.  Symptoms can come and go with daily diet.  Symptoms of beriberi due to Thiamine deficiency.   Difficulty walking. Loss of feeling (sensation) in hands and feet. Loss of muscle function or paralysis of the lower legs. Mental confusion. Pain. Speech difficulties. Strange eye movements (nystagmus) Tingling. Any change in medications? Last March I had corotid artery surgery (90 % blockage), and I started taking Losartan for blood pressure, added to the Clonidine I was taking already.  I was not recovering well and many of my pre gluten free symptoms were back  I was getting worse.  At first I thought it was caused a reaction to the anesthesia from the surgery, but that should have improved after two weeks.  Doctor thought I was just being a wimp. After three months I talked to my doctor about a break from the Losartan to see if it was causing it. It had not made any difference in my bp.  Except for clonindine, all of the previous bp meds tried had not worked to lower bp and had crippling side effects. One, I could not stand up straight; one wobbly knees, another spayed feet.  Inguinal hernia from the Lisinopril cough.  Had I contiued on those, I was destined for a wheelchair or walker. She said the symptoms were not from Losartan so I continued taking it.  Two weeks later I did not have the strength in hips and thighs to get up from sitting on the floor (Help, I can't get up😨).  I stopped AMA (not recommended).  Without the Losartan, a) bp did not change, after the 72 hour withdrawal from Losartanon, on clonidine only and b) symptoms started going away.  Improvement started in 72 hours.  After six weeks they were gone and I am getting better.  
    • Scott Adams
      Hopefully the food she eats away from home, especially at school, is 100% gluten-free. If you haven't checked in with the school directly about this, it might be worth a planned visit with their staff to make sure her food is safe.
    • Scatterbrain
      Thanks to those who have replied.  To Cristina, my symptoms are as follows: Dizziness, lightheaded, headaches (mostly sinus), jaw/neck pain, severe tinnitus, joint stiffness, fatigue, irregular heart rate, post exercise muscle fatigue and soreness, brain fog, insomnia.  Generally feeling unwell. To Trents, We didn’t do any of the construction but did visit the job site quite often.  While getting the old house ready we stirred up a lot of dust and I’m sure mold but haven’t been back there for over a month.
    • Kirita
      Thank you so much for your response! I have a follow-up appointment with her pediatrician next week, and also an appointment with her pediatric GI Dr. Your message gives me some ideas for questions to ask the doctors. My daughter went strictly gluten-free in January following her first endoscopy so I’m guessing her diet is pretty solid. She is compliant but also reliant on others to make her food (at school and home) but she didn’t have this problem prior to the gluten challenge when she went strictly gluten-free. It really makes sense to me that the gluten challenge inflammation hasn’t healed and I will be asking her doctors about nutritional issues. I ask for anecdotal stories because the research surrounding the gluten challenge seems to be inconsistent and inconclusive (at least what I’ve been able to find!). Thank you so much for your response!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.