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Dh Coming Back After Going Gluten Free

srfjeld

By srfjeld
in Dermatitis Herpetiformis

Recommended Posts

srfjeld Apprentice
srfjeld
Posted

I'm 'completely' new to this... as in 3 days new, but I just assumed that if I didn't eat gluten, my Dh would have no reason to come back. Is this something I'm going to be putting up with for the rest of my life, even off of gluten?

Thank you.

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poopedout Apprentice
poopedout
Posted

I'm new to this also. The same thing happened to me. I had diarrhea for about three months and then went on a gluten free diet. After two months I was great, but it only lasted for a month. Now I am still on the diet and the diarrhea has been back for over a month. I just went to the doctor and am waiting for tests.

Ahorsesoul Enthusiast
Ahorsesoul
Posted

For skin problems, Check your personal care products for gluten in the form of wheat or oats. Dental items, hair care, everything. I think you will find something you are using has gluten in it. Anything that touches you can be a problem. Some people do not appear to be sensitive to gluten on their body. I am one who breaks out if I use a product that is gluten contaminated. You may be also.

Ahorsesoul Enthusiast
Ahorsesoul
Posted

I'm new to this also. The same thing happened to me. I had diarrhea for about three months and then went on a gluten free diet. After two months I was great, but it only lasted for a month. Now I am still on the diet and the diarrhea has been back for over a month. I just went to the doctor and am waiting for tests.

Being new to gluten free eating it sounds like you have added something to what you are eating/drinking that has set you back. Check everything that goes into your mouth. Food, drinks, medications, vitamins, mints and do not forget to ask the person you are kissing to brush their teeth and rinse their mouth. You'd be surprised where gluten is hiding. Check your toothpaste and other dental items.

Since you are new to the gluten free diet did you go dairy and soy free also. Sometimes you will need to stay off of these items for a few months until your intestines are healed. Let us know what the tests showed. Remember that oats are generally contaminated with gluten so they should be avoided.

dilettantesteph Collaborator
dilettantesteph
Posted

Lots of celiacs find that they become more sensitive to trace gluten as time goes on. That happened to me. You may be eating some trace gluten without realizing it. Something that didn't bother you before may have started to bother you now. I hope you can figure out what it is.

poopedout Apprentice
poopedout
Posted

Being new to gluten free eating it sounds like you have added something to what you are eating/drinking that has set you back. Check everything that goes into your mouth. Food, drinks, medications, vitamins, mints and do not forget to ask the person you are kissing to brush their teeth and rinse their mouth. You'd be surprised where gluten is hiding. Check your toothpaste and other dental items.

Since you are new to the gluten free diet did you go dairy and soy free also. Sometimes you will need to stay off of these items for a few months until your intestines are healed. Let us know what the tests showed. Remember that oats are generally contaminated with gluten so they should be avoided.

poopedout Apprentice
poopedout
Posted

I haven't added anything new to my diet. I don't eat soy or dairy except for probiotic yogurt. I don't eat oats. My diet is very limited right now as I am afraid to eat things like raw vegetables, salads, nuts, etc., as they may make the diarrhea worse.

I have read that this is typical of refractory celiac disese - getting better on a gluten free diet and then having a return of symptoms.

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ravenwoodglass Mentor
ravenwoodglass
Posted

I haven't added anything new to my diet. I don't eat soy or dairy except for probiotic yogurt. I don't eat oats. My diet is very limited right now as I am afraid to eat things like raw vegetables, salads, nuts, etc., as they may make the diarrhea worse.

I have read that this is typical of refractory celiac disese - getting better on a gluten free diet and then having a return of symptoms.

What are you typically eating? Gluten can be sneaky. Also do you have a gluten free home? CC from gluten eaters is not uncommon and we really need to take precautions against it. Go gentle with your system and go with whole unprocessed foods as much as you can as that makes it a bit easier.

poopedout Apprentice
poopedout
Posted

What are you typically eating? Gluten can be sneaky. Also do you have a gluten free home? CC from gluten eaters is not uncommon and we really need to take precautions against it. Go gentle with your system and go with whole unprocessed foods as much as you can as that makes it a bit easier.

I eat gluten free toast with aged cheddar or gluten-free English muffins or eggs for breakfast,not much for lunch and a normal dinner - no processed foods, everything cooked from scratch - chicken, halibut, beef, rice, some vegetables, no gluten that I am aware of.

ravenwoodglass Mentor
ravenwoodglass
Posted

I eat gluten free toast with aged cheddar or gluten-free English muffins or eggs for breakfast,not much for lunch and a normal dinner - no processed foods, everything cooked from scratch - chicken, halibut, beef, rice, some vegetables, no gluten that I am aware of.

It sounds like you are doing the right things. Have you eliminated gluten from all supplements, OTC and script meds, all personal care products? It can also take some time for us to heal and things can be up and down for a bit. Refractory celiac is very rare and hopefully it isn't the issue.

dilettantesteph Collaborator
dilettantesteph
Posted

What about the gluten free toast or gluten free English muffins? Those sound processed to me. I can't eat processed gluten free grains myself, though I can eat them when I buy them whole and treat them carefully.

poopedout Apprentice
poopedout
Posted

What about the gluten free toast or gluten free English muffins? Those sound processed to me. I can't eat processed gluten free grains myself, though I can eat them when I buy them whole and treat them carefully.

What's wrong with gluten free bread and English muffins? I thought they were made for people with celiac disease. What bread can I eat if I cannot eat gluten free bread?

dilettantesteph Collaborator
dilettantesteph
Posted

Celiacs vary in their sensitivity to trace gluten. What many can eat, some can't. That can be why symptoms return. Some of us have to do a lot of cooking from scratch. Some of us avoid grains. Others avoid nuts, beans nightshades etc. Most consider themselves lactose intolerant until healing occurs. I make my own bread from whole grains which I sort, wash, dry and grind.

rdunbar Explorer
rdunbar
Posted

Try dropping the yoghurt; I know for me, I knew dairy was bad, but I thought , Oh, a little in my tea every day won't hurt, I can get away with it> If I ever broke down and had ice cream I felt horrible the next day, and my DH just erupted, so I knew what was up, but was just stubborn. When I cut out all casien I noticed a very significant improvement, even though it was mostly a very small amount i was using.and my DH is actually getting better. I understand it takes time, so be patient is all I can say

ravenwoodglass Mentor
ravenwoodglass
Posted

What's wrong with gluten free bread and English muffins? I thought they were made for people with celiac disease. What bread can I eat if I cannot eat gluten free bread?

You can eat gluten free bread. Some of us do have other intolerances like soy or dairy for example. If you have been eating a bread with either or both drop it for a bit and see if it makes a difference. For most of us gluten free bread is just fine as long as it doesn't have something else in it we are also intolerant to.

countryhick Newbie
countryhick
Posted

I'm 'completely' new to this... as in 3 days new, but I just assumed that if I didn't eat gluten, my Dh would have no reason to come back. Is this something I'm going to be putting up with for the rest of my life, even off of gluten?

Thank you.

My husband was diagnosed 10 years ago with DH. He has been religiously gluten free for all that time now. He was on Dapsone for about 2 years before he could give it up and go it on his own. It took a few years for the DH to dissappear,(it did lessen as time went on), but even now if he gets really sweaty he gets bands of DH around hat lines, sunglass lines, pants waist bands etc. But the good news is, he can live with it now whereas before he was gluten-free, he almost went mad. I dont think an ordinary person would understand the distress this damn disease casues. Good luck, Jude.

poopedout Apprentice
poopedout
Posted

Try dropping the yoghurt; I know for me, I knew dairy was bad, but I thought , Oh, a little in my tea every day won't hurt, I can get away with it> If I ever broke down and had ice cream I felt horrible the next day, and my DH just erupted, so I knew what was up, but was just stubborn. When I cut out all casien I noticed a very significant improvement, even though it was mostly a very small amount i was using.and my DH is actually getting better. I understand it takes time, so be patient is all I can say

I have read that bacterial enzymes in yogurt partially digest the casein making it more easily absorbed. Also the lactose is broken down by the bacteria. I think I will stay with the yogurt for now because of the good bacteria and because it is quite high in protein and low in carbohydrates and fat.

Anyway I originally posted to the wrong topic as I thought it was about diarrhea, not dermatitis herpetiformis.

Swimmr Contributor
Swimmr
Posted

You can eat gluten free bread. Some of us do have other intolerances like soy or dairy for example. If you have been eating a bread with either or both drop it for a bit and see if it makes a difference. For most of us gluten free bread is just fine as long as it doesn't have something else in it we are also intolerant to.

pooped...

It was the most difficult thing for me to give up bread.

I wasn't able to even tolerate gluten free bread because my intestines needed healing so badly. After going on a combination of probiotic and candida digester, I was able to tolerate milk and yeast. I've read that yeast sometimes can make you react sometimes. My mom is hard headed and keeps blaming the bread I eat for HER symptoms and I keep telling her to take a probiotic supplement. I was on a brand called Massey Medicinals - Candida Freedom and Candida Digest from November to February...I just added it back to my diet because my doc said it would be a good idea.

Everyone here has so much information and if it weren't for the people on here I would have never known HALF of the stuff I do about this disease...and I still don't know everything.

Bread is a staple you have to let go of...and it sucks. But we all had to do it, so if we did it you can too :)

Good luck!

  • 3 weeks later...
RoseTapper Newbie
RoseTapper
Posted

DH is caused by ingesting BOTH gluten and iodine. You'll need to get rid of your iodized salt and replace it with non-iodized salt, stop eating anything processed that is salted (chips and fries), and drink/eat only organic dairy products (otherwise, iodine tends to be pretty prevalent). That should take care of it.

  • 2 weeks later...
RoseTapper Newbie
RoseTapper
Posted

If it's the DH that's bothering you, please remember that DH occurs when a person ingests both gluten and iodine. That means that you need to avoid seafood, iodized salt, asparagus, and milk that's not organic. Once you've eliminated iodine AND gluten, you should be fine.

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