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How Long Has It Taken For You To Feel Normal/healthy On The Gluten-Free Diet?

GFLindsey

Gluten-Free Recovery Time  

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GFLindsey Explorer
GFLindsey
Posted

Please answer the poll question and share your personal recovery experience!

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GFinDC Veteran
GFinDC
Posted

I started feeling better almost right away. But had some symptoms that didn't go away and even got worse until I got soy out of my diet.

Bobbijo6681 Apprentice
Bobbijo6681
Posted

There were definately major improvements right away, but I am still not 100%.

O.N. Rookie
O.N.
Posted

I am gluten-free since the beginning of January. I got better almost immediately, and my health overall has improved dramatically :rolleyes: . BUT I have discovered other food intolerances, and I developed new symptoms such joint pain and "needles" all over my body while I was already on a gluten-free diet.

So I don't feel healthy yet. I am taking lots of vitamins and trying to avoid foods that could cause negative reaction/ inflammation in my guts. I HOPE that my new symptoms will disappear or at least get milder sooner or later. It is not always a case as I know... <_<

Yoshi Newbie
Yoshi
Posted

I was diagnosed the 1st part of February. Went gluten free immediately and felt fantastic for about 3 weeks. Then I suddenly started feeling bad -- almost worse than before I quit gluten. I've gradually gotten better, but haven't gotten totally back to that fantastic feeling. Last month, I had to have dental surgery for an old root canal that had abscessed. So, it's taking longer to get back to feeling better.

GFLindsey Explorer
GFLindsey
Posted
  • Author

I am just past the three month mark and I still feel pretty awful. It can be really disheartening at times, but it is helpful to hear that everyone has had their challenges. I am similar to others, because I have had some symptoms completely disappear (ulcers, diarrhea, ringing in my ears) but some have gotten worse or appeared out of nowhere (severe bloating, nausea, hair loss). I am hoping to find the right balance soon! I should probably cut out soy and dairy for awhile and see how that goes.

sandiz Apprentice
sandiz
Posted

Gluten free since beginning of Jan, started to feel better within 3 days. However, that feeling went away and have waves of before gluten free. My tummy is not as bloated and I feel more energy in my body but still not 100%. Having a bad time right now and I don't think stress helps.

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sa1937 Community Regular
sa1937
Posted

I've been gluten free since April 9 following my EGD/biopsy and I also felt better within three days. I know I am not there yet but I sure do feel better overall than I did before.

eastvangal Newbie
eastvangal
Posted

[font="Tahoma"]I too felt better almost immediately after going gluten-free. It's been a year and half for me and I think I've become better at avoiding gluten and so have more stretches of feeling well recently, which means for me - no stomachache(due to gas and "constipation", bloating) and resulting nausea, fatigue, depression, achy muscles and joints, foggy brain and so on.

Now I am tapering off Zoloft- on it for nearly twenty years.

-Was on 250mg-300mg,

-Now on 75mg alternating with 100mg.

-I started tapering a year ago.

It's going well, but this is another topic...[/font :rolleyes: ]

MagpieWrites Rookie
MagpieWrites
Posted

To be honest, I'm not sure how much good my answer will be - I got seriously ill almost immediately following my diagnosis (brown recluse spider bites went bad, got shingles, and oh yeah... 3rd set of wisdom teeth came in and caused a massive blood infection. It's been... a year. :D:blink: ) so my view is likely skewed. I'm almost to my one year mark though, and have to say - for the first time I can ever remember - I feel... good. Kinda weird, really. I've been sick since I was a kid.

An added bonus to going gluten-free - since I actually HAVE energy, I'm doing all sorts of things I never dreamed I would do - started running, enjoy a huge variety of healthy/tasty foods (weird to crave raw broccoli and oranges).

I think the shift came at the 6 month mark for me, and I still have less than normal days as I figure this out, but I'm out of the woods now.

detritus Apprentice
detritus
Posted

Getting close to the 3 month mark now; felt pretty bad for the first 3 weeks, then slowly started to see symptoms recede. At 2 months I felt like I was on solid footing, and felt like I was coming back stronger after the occasional accidental glutenings. But the last couple weeks I've been having wretched muscle/joint pain running up and down my right arm. And there haven't been any of the "good" days to balance the bad ones. I don't know if this is another part of the healing phase, or new sensitivities cropping up, or my body reacting to deficiencies, or something I have no idea about.Finding out that gluten was causing my problems gave me confidence to be able to overcome them, so it's hard to feel lost again. I hope this part of the battle doesn't last very long.....

lynnelise Apprentice
lynnelise
Posted

I've been gluten-free for 6 months. I feel TONS better in general but am still having problems with fatigue and low energy. Some days I feel better than I have in years and others are just so-so. Of course there have been a few accidental glutenings which have set me back. I no longer feel like I'm wading through quicksand though so that's a good thing! Most of my aches are gone (I'm still having shoulder issues, but I think I injured it), my bloating, and GI issues are gone. Overall a great improvement!

redsidekick Apprentice
redsidekick
Posted

Beginning my 15th month gluten free. Started to feel myself again around the ninth month of GFD. Every so often I don't feel so good again, but the discomforts that come about are less and less intense.

i-geek Rookie
i-geek
Posted

I'm just over four months gluten-free. I was getting quite a long list of "do not eat unless you want pain" foods. After about a month, I could eat brassica veggies, peppers, and beans again and have a glass of wine with dinner. About another month and I could eat hard cheeses. Last month I added back in pork and dairy yogurt. This month: I've had ice cream twice this week- a major victory for me. Last December, right before going gluten-free, I took three lactase pills, ate about 1/4 cup ice cream, and spent the evening in the bathroom. Last Thursday I forgot to take lactase before eating ice cream (very busy day) and the complete absence of adverse symptoms meant that I didn't even realize my mistake until later. :) It's also nice to be able to eat a piece of fruit for an afternoon snack and not feel sick afterwards.

I've also noticed that gluten CC doesn't hit my gut quite as badly now, maybe because it's healed somewhat. The gluten migraines are much, much worse now, and even more obvious now that I'm no longer used to having a daily headache.

Luvbeingamommy Contributor
Luvbeingamommy
Posted

I have been gluten-free about 3 months and feel A LOT better, but not 100%. I am still dealing with nausea, that just won't go away completely....its's very frustrating.

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

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    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
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