Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How To Awkwardly Admit That Actually, You're Not Eating X


AKcollegestudent

Recommended Posts

AKcollegestudent Apprentice

Last night, I was out with friends and ended up hanging out with someone I didn't know. (Well, okay. Someone who I've apparently been introduced to probably seven times, given that he greeted me by name. Oops.) We'd been with people who know that offering me pizza is going to be met with a polite, "No thanks," but by the time we actually reached the campus pizza grill, we were the only two still around.

"We should get pizza and wings!"

"I'm not very hungry, but I'll grab water and hang out."

"Okay," he reconsiders. "I'll get the wings and you get the pizza."

*trying to figure this one out* "Actually, I can't eat a couple ingredients in wings and pizza, but I'm having fun hanging out."

"We can get something that doesn't have anything you're allergic to?"

At some point, I went no, really, allergic to wheat--yes, I know that's misleading, but you try being specific with someone you don't know!

About ten minutes later, he said, "Oh, celiac. But I thought that people just had indigestion from that!"

There is nothing like trying to educate someone about celiac and its other symptoms when it's 1 am, the smell of his pizza is making you queasy, and you've been out dancing all night, so you're thoroughly exhausted. (And my ex and I had gone to the bar earlier in the evening, so the buzz really wasn't helping.)

Oy.

Also, is there a reason why the smell of pizza really, really makes me wince? I know that others say that they miss it and feel like friends and family are taunting them with it, but seriously? It just makes me gag, even when I'm totally sober. Has been for months.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



skigirlchar Newbie

at least he had HEARD of Celiac!

i too get nauseous when i have to go into the bread isle at the grocery store.... and I HAVE TO to get to the gluten-free FOODS!!! some idiot though it would be a good idea to put the gluten-free foods w/ the organic foods on one side of the SAME ISLE as the bread!

it could be that you are breathing in things that your system doesn't handle well. (dried crust dust for example)

good luck!

AKcollegestudent Apprentice

at least he had HEARD of Celiac!

i too get nauseous when i have to go into the bread isle at the grocery store.... and I HAVE TO to get to the gluten-free FOODS!!! some idiot though it would be a good idea to put the gluten-free foods w/ the organic foods on one side of the SAME ISLE as the bread!

it could be that you are breathing in things that your system doesn't handle well. (dried crust dust for example)

good luck!

I'd noticed it with the bread aisle, actually--some genius thinks that anyone who uses peanut butter or the frozen food case clearly wants bread. But I'm around pizza so rarely that I notice the issue more.

I vote that whichever mouth-breathing architect decided to make the bread aisle an important feature of the design, and not tucked in a corner, gets to have celiac or allergy symptoms related to bread/wheat. I love my grocery store at home--the person who designed most Carrs Safeways tucked the bread into one corner, and it's really easy to avoid because Nothing Else is over there.

ciavyn Contributor

Can't say that the smell of pizza makes me queasy, but I'm glad to have an illness that makes my out-of-control noshing on bread impossible to do anymore. :) I can't afford to be that way! LOL!

Speaking of gluteny items near the gluten-free aisle...we have a damn Cocopop machine RIGHT NEXT TO the dairy, deli and organics. That crap is in the air everywhere! Talk about annoying. There are two machines, always going, and they stick it right in the middle of the store. Grrr....

eva-girl Newbie

i think he was just trying to be nice...at least he wanted to hear more about it instead of practically forcing food down your throat or looking at you like you've lost your mind. don't beat around the bush: just say "i'm not hungry" (firmly but nicely) and leave it at that. i find that when i hem and haw that's when people start trying to cajole me into eating cake or pizza. i say "no" and that's that. then i change the subject.

MagpieWrites Rookie

I have to confess... while I'm cool with the smell of pizza, driving by the major bakeries in town will give me a royal headache and a knot in my stomach (to the point I'll even try to plan trips AROUND the bakery so I don't have to deal. Oddly... this means I usually pick the route with the sewer treatment plant over the smell of bread baking - people in the car with me DO look at me a bit strangely!) too.

I'm not sure it's an actual celiac/gluten thing though. I get the same problem when I'm near seafood restaurants and my mom bakes banana bread - I'm deathly allergic to shellfish and bananas are a close second. I think a good chunk of it is psychological - you KNOW it would make you sick to eat what you're smelling, and your body is tossing up all the sensory memories in a flash... just in case you had the stupid idea to eat the dangerous substance. Folks who have been stung by bees get nervy around buzzing, and a dear friend who got severe food-poisoning (as in hospitalized) once at a Chinese restaurant gets a stomach ache if you TALK about the restaurant. It's like your body just wants to make SURE you aren't going to do anything IT will regret! (I've found that my brain and my stomach don't really trust each other. :D )

sandsurfgirl Collaborator

The word allergy makes sense to people and it sounds serious to them. I use the word allergy frequently if I need to get my point across at a restaurant or in a social situation. It's quick and it makes sense.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



rdunbar Explorer

I've read many times on the forum that people feel teased and tempted by the smell of glutenous foods, but I'm with you, the smell makes me nauseous, so much that i'll avoid walking by a bakery. I've been off of wheat for 2 years plus, but only got all the gluten ( and casien ) weeded out (hopefully) about 2 months ago. I've had this reaction to the smell of wheat for quite a while, so maybe it takes time to develop it after you stop eating it. i feel like someone would need a crowbar to get me to open my mouth to ingest that garbage!

drloots Newbie

yea using the word 'allergic' usually brings a firm 'no' to the conversation as sandsurfgirl said. Most people just move on after that and suggest you pick the food as a nice gesture. They could be allergic to something too so don't feel you're the only in the group.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,803
    • Most Online (within 30 mins)
      7,748

    MadiKlumpner
    Newest Member
    MadiKlumpner
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      Since I've been a member of this forum,  I've seen some people write that they have not been able to tolerate corn, and others nightshades - tomatoes, potatoes, eggplant, and peppers (including bell peppers, chili peppers, and paprika).    However, intolerances can be short term, just while you are healing.    So bear this in mind if you start dropping certain foods from your diet - you may well be able to eat them again once you are healed.
    • trents
      Welcome to the forum, @Izelle! Normally, the diagnosis of celiac disease involves two stages.  The first stage involves a simple blood test that looks for antibodies that are pretty specific to celiac disease. Celiac disease is an autoimmune disorder that attacks the lining of the small bowel which produces antibodies that can be detected in the blood with tests specifically designed for this purpose. There are a number of these tests that can be run. Some are more specific for celiac disease and thus more reliable than others. The two most common antibody tests ordered by physicians when diagnosing celiac disease are the "total IGA" and the "tTG-IGA" test. At least these two should always be ordered. Here is a an article outlining the subject matter of celiac antibody tests:  If the tTG-IGA levels are 10x normal then it is becoming common practice in some countries to grant a celiac diagnosis on the bloodwork alone. The second stage involves an endoscopy with biopsy of the small bowel lining to look for the damage to the small bowel lining typically caused by celiac disease's inflammatory process over time. This is usually done in response to one or more positives from the blood antibody testing and constitutes confirmation of the antibody testing to eliminate the possibility of false positives. 
    • Izelle
      Hi there, Please can you tell me exactly how this disease is diagnosed? I am also from South Africa Regards Izelle
    • Waterdance
      Thank you for saying that. That doctor diagnosed me with IBS with no follow-up so the relationship is already concluded. If I pursue diagnosis further I'll request someone else. 
    • Rejoicephd
      Hey everyone. Thanks again for your suggestions. I wanted to give an update and ask for some follow-up suggestions from you all.  So I did go through all of my food items and stopped eating things that were “gluten free” and switched over to the “certified gluten free” ones (the ones with the g symbol). I also stayed away from restaurants except once and there I ordered something raw vegan and gluten free hoping for the best. I also stayed away from oats and soy and dairy. I've also been increasing my vitamin B complex. I've been doing this for about 12 days and while I know that's not that long, I'm still getting sick. Sometimes having diarrhea. Sometimes getting headaches and having necklaces. Sometimes waking up feeling horrible brain fog. I did go to my GI doc and they did a blood test and found my TtG-IgA was in the negative range (and a lower number than I'd had before). I also had normal levels of CRP. My stool showed no elevation of calprotectin and no pathogens. My GI doc said the symptoms could be related to a gluten exposure or to IBS. I'm keeping a food diary to see if I can narrow down whats going on. I know I have good days and bad days and Im trying to isolate what makes a good day versus a bad day. Generally so far it looks like if it eat something super cautious like raw vegetables that I chopped myself into a salad and almonds, im fine but if I eat something more complex including, say, chicken and rice (even if packaged and certified gluten free or made by me with gluten free ingredients), it may not go so well. I may end up with either a headache, neck tension, brain fog, and/or diarrhea that day or the morning after. Any other thoughts or suggestions? I am planning to start tracking my foods again but I wanted to do it in more detail this time (maybe down to the ingredient level) so are there any common ingredients that celiacs have issues with that you all know of that I should track? I've got dairy, oats, soy, eggs, corn, peas, lentils on my “watch list”. Other things I should add? I'm hoping if I track for another two weeks I can maybe pin down some sensitivities. Appreciate the help and tips. Thank you so much!!
×
×
  • Create New...