Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Glutened Vent


Leper Messiah

Recommended Posts

Leper Messiah Apprentice

Grr, I've been trying to follow this by the letter but once a week, every week for the past 3 weeks, I get glutened. Today was the day I got glutened again. Every week I try to find the culprit but beginning to think it might be CC - before I blamed Peperami and then Orangina (which I'm not so sure about) but this time for sure I didn't eat anything knowingly with gluten in it yet I'm absolutely shot with tiredness and GI symptoms.

The irony in all of this is that I can actually tell when I'm glutened - before I was tired 24/7 with no respite and I know it's selfish but it's still very frustrating knowing that for the next 3-5 days I'll feel like poo even whilst I'm eating gluten-free.

Anyone else have a day when they are sure they didn't eat anything gluteny yet are equally sure they were glutened?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ciavyn Contributor

Two things that come to mind: 1. It could just be that your system is still healing. Sometimes you feel like you got glutened, and you really didn't. Your system is just still out of whack.

2. could you have another intolerance or issue that you are reacting to?

I do know the feeling. We had Mother's Day out on Sunday morning. MIL's choice, certainly not mine. I ordered eggs (after ensuring there was nothing weird on them) and bacon. The bacon had little crumbs on it, but I didn't process that until after I ate it. I have a feeling, that was what got me. :(

nyctexangal Rookie

I has similar experiences. Finally found out that it was all food intolerances, egg yolks, soy, dairy, and oils. I kept a detailed food journal to nail them down. Hope you find what's hurting you, I know how hard it is.

RoseTapper Newbie

Okay, it's time to check the shampoo, conditioner, and lipstick. Remember, you can easily ingest small amounts of shampoo, etc., and a lot of that stuff has gluten in it. Wheat is a biggie in shampoos. There are a number of great gluten-free shampoos and conditioners out there. AS for lipstick, I own gluten-free ones, but I don't bother to wear the stuff.

rdunbar Explorer

Does orangina contain corn syrup? If so then ... Bingo!! Corn is harvested with the same equipment and stored in the same silos as wheat and they don't clean it out. It is always contaminated. I am always amazed when people here can get away with processed corn. I started doing way better when I stopped eating corn chips and tortillas even though it made me sad

eva-girl Newbie

toothpaste.

kkaysmiles Newbie

Ah that would probably explain why the corn chips I have that are supposed to be gluten-free seem to bother me!!!! Thanks :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



K8ling Enthusiast

Does orangina contain corn syrup? If so then ... Bingo!! Corn is harvested with the same equipment and stored in the same silos as wheat and they don't clean it out. It is always contaminated. I am always amazed when people here can get away with processed corn. I started doing way better when I stopped eating corn chips and tortillas even though it made me sad

I can drink Corona and eat Garden of Eaten' cornchips. I also use corn tortillas in my enchiladas without issue. Is it possible that my sensitivity isn't that high?

psawyer Proficient

Corn is harvested with the same equipment and stored in the same silos as wheat and they don't clean it out. It is always contaminated.

Would you please cite your source for this information. I have been gluten-free for almost ten years, and this is the first I have heard of it. Oats, yes, oats share harvesters and silos, and are usually contaminated. But the allegation that it is also true of corn is news to me. I eat "processed" corn all the time and have not had a problem. Your source, please.

ETA: You may have a sensitivity to corn as well as gluten. A number of celiacs do, but I am not one of them.

tictax707 Apprentice

Would you please cite your source for this information. I have been gluten-free for almost ten years, and this is the first I have heard of it. Oats, yes, oats share harvesters and silos, and are usually contaminated. But the allegation that it is also true of corn is news to me. I eat "processed" corn all the time and have not had a problem. Your source, please.

ETA: You may have a sensitivity to corn as well as gluten. A number of celiacs do, but I am not one of them.

Yes, please. I would also like to know the source of the alleged gluten contamination in corn as this is the very very first I have ever heard of such a thing. (Been gluten-free almost 10 years too!)

Thank you!

tictax707 Apprentice

I can drink Corona and eat Garden of Eaten' cornchips. I also use corn tortillas in my enchiladas without issue. Is it possible that my sensitivity isn't that high?

You drink Corona??? BARLEY???

:o

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Matthias replied to Matthias's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Unexpected gluten exposure risk from cultivated mushrooms

    2. - Scott Adams replied to Matthias's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Unexpected gluten exposure risk from cultivated mushrooms

    3. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. - trents replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    5. - Jane02 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,327
    • Most Online (within 30 mins)
      7,748

    PattyPagnanelli
    Newest Member
    PattyPagnanelli
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Matthias
      Thanks a lot for your response! Can you maybe specify which kind of cheeses I should be cautious about? Camembert/Brie and blue cheeses (the molds of which are nowadays mostly grown on gluten-free media, though, so I've read, right?) or other ones as well? Also, I was under the impression that yeast is generally gluten-free if not declared otherwise. Is that false?
    • Scott Adams
      I agree with @trents, but thank you for bringing this up here!
    • Jane02
      Hi @trents, yes I've had my levels checked in Dec 2025 which revealed vit D deficiency. I considered eggs although they only contain about 45 IU vitamin D/egg. I need 2000 IU vitamin D for maintenance as per my doctor. Although now, I likely need way more than that to treat the deficiency. My doctor has yet to advise me on dosing for deficiency. I've also considered cod liver oil, although again, if it's processed in a facility that has gluten, especially on flour form, I worried to test it, even if they have protocols in place to mitigate cross-contamination with gluten.
    • trents
      Welcome to celiac.com, @Jane02! Have you had your serum D levels checked for deficiency/sufficiency? What about cod liver oil? Egg yolks can also be a good source of vitamin D.
    • Jane02
      Hello, I'm very discouraged. I've been trying to find a safe vitamin mineral supplement brand for months and am tired of testing one after the other and experiencing my typical 'glutening' reactions. I'm really feeling the nutritional deficiencies set in. I'm doing the best I can to get these nutrients from my food, although it's impossible for me to intake enough vitamin D as I can't have dairy and have insufficient sun exposure in the northern hemisphere. I've tried B Complex from Country Life (certified gluten-free) - horrible reaction. I've tried Metagenics vitamin D tab (certified glute-free) - bad reaction. I've tried liquid vitamin D Thorne and D Drops - reactions were mild since I tried a drop of a drop. I understand there could be other things I'm reacting to in my diet, although my diet/intake is pretty consistent with minimal variables so I do think it's something in these supplements. I understand I could be reacting to the active ingredient vitamin/mineral itself or even the filler ingredients. I tried the vitamin D drops since the only filler ingredient is coconut oil, in some brands, which I know I can tolerate really well on its own - I cook with coconut oil frequently and have no 'glutening' reactions at all. Perhaps I'm reacting to the vitamin D itself, although I eat fatty fish every few days, an entire fillet with no 'glutening' reactions, which contains anywhere between 400-600 IU per fillet so I shouldn't be sensitive to vitamin D. All this to say, I'm desperately looking for at least a safe vitamin D supplement. Does anyone know of a safe vitamin D supplement brand? I'd love to know if there are any supplement brands that have absolutely no gluten (especially in flour form) in their facilities. I've heard of Kirkman having no grains in their facility - I may try this brand. Has anyone reacted to this brand?   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.