Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ibs And Celiac?

Alex33

By Alex33
in Coping with Celiac Disease

Recommended Posts

Alex33 Newbie
Alex33
Posted

anyone diagnosed with both? do you have a hard time telling the symptoms apart? how do you manage them?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kayo Explorer
kayo
Posted

I am. My opinion is that IBS isn't really an illness, just a label doctors hand out to describe a set of symptoms when they're too lazy to find out the real cause. I believe my IBS is celiac, that they are one in the same.

AlysounRI Contributor
AlysounRI
Posted

IBS stands for "I'm basically stumped" ...

It's a nothing diagnosis. :angry:

If you present with symptoms of IBS you should get checked for celiac disease.

If you are not diagnosed with celiac disease, then you have non-celiac gluten intolerance.

Either way, I, too, believe that cutting out the gluten in your diet will take care of your IBS.

hypersof Apprentice
hypersof
Posted

I am. My opinion is that IBS isn't really an illness, just a label doctors hand out to describe a set of symptoms when they're too lazy to find out the real cause. I believe my IBS is celiac, that they are one in the same.

Yep, I agree. I think a lot of us have been diagnosed w/ IBS before discovering the celiac thing...

I am "only" gluten intolerant/ sensitive/ whatever, but I have to point out that before going gluten-free, absolutely NOTHING I tried -for several years- to relieve the IBS symptoms worked (be it water/ fiber intake, eating a very balanced diet, not too much fat/ spicy food, always eating small amounts and slowly, exercising, relaxing...really, I was trying hard!) but it just kept getting worse.

Then, removing gluten from my diet reversed the process and I am now getting better.

Not all 100% perfect, but it is definitely going the right way so I have hope (I have been gluten-free for 10 weeks now)

So, my two cents are, either IBS is really celiac and it is going to get better on a gluten-free diet; or if the symptoms persist, maybe they are caused by something else?

skigirlchar Newbie
skigirlchar
Posted

my dr doesnt even diagnosis IBS because he feels it's really a "catchall" diagnosis when there is something else wrong but the insurance company doesn't want to pay for more expensive tests.

by following the gluten-free/cf/sf diet, my "ibs" symptoms have all but disappeared

eastvangal Newbie
eastvangal
Posted

Yup, me too with the IBS diagnoses. I also tried everything- ibs drugs, macrobiotic diet, yeast-free diet, 17 years of antidepressants, colonics, a naturopath, psychotherapy, cognitive-behavioural therapy, fiber, laxatives, transcendental meditation...

I too think is IBS is Celiac Disease.

WheatChef Apprentice
WheatChef
Posted

See sig. It literally just means that something is wrong in your bowels.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Skylark Collaborator
Skylark
Posted

My "IBS" went away when I stopped eating gluten. Mom's "IBS" went away when she stopped eating fructose. I have a friend with "IBS" who is intolerant of soy and nightshades. It seems to me that IBS is a symptom of a lot of different food intolerances.

zergcoffeebean Newbie
zergcoffeebean
Posted

I was given the IBS diagnosis when I had my colonoscopy and gastroscopy they didn't see anything indicative of anything else. So there, I got IBS. That was when I was 16. So, 9 Years ago. The only medication that ever seemed to help was buscopan. Nothing else seemed to do anything. I tried diets and food elimination. (Not going gluten free though, I hadn't ever heard of that, the concept didn't exist in the reality I was walking in.) Only recently when my last doctor asked me if I had ever been tested for Celiac disease did the idea ever come up. Going gluten free eliminated my symptoms, completely. Now, I just get "IBS" when I've been glutened some how, and usually only after the next day.

starrytrekchic Apprentice
starrytrekchic
Posted

Add me to the group initially diagnosed with IBS...but didn't really have that.

My doctor didn't even test for anything! He just listened to my tummy, listened to my description, and told me I had IBS. I was a freshman in college and clueless--no idea I should have pursued it further. 11 often miserable years later and finally everything has resolved due to being gluten free.

I'm also skeptical that IBS actually exists as a separate illness. Seems like it's more of a symptom of an illness, rather than an illness itself.

Alex33 Newbie
Alex33
Posted
  • Author

Thank you for your replies everyone.

So, a few years ago I was officially diagnosed with IBS by my doctor, with minimal testing I'll admit. I now do not have insurance so I cannot go back for a celiac test, or other tests for that matter. I have tried to go gluten-free to test myself (I was very diligent and careful about it) and also cut out dairy at that time too. I think I went gluten-free for roughly a month or so and did not see much, if any change. I know a month isn't THAT long, but from what I've read, I should have seen some improvement?

Skylark Collaborator
Skylark
Posted

I felt better after two weeks of a really strict lamb/rice/veggies elimination diet. When I tried to reintroduce wheat, my symptoms came right back.

K8ling Enthusiast
K8ling
Posted

I am gluten-free and I still am classified as "IBS" because I get symptoms around my period. Hormones can cause IBS.

Nor-TX Enthusiast
Nor-TX
Posted

Along with being gluten intolerant, I have Colitis, Dairy intolerance, IBS and Gastro Paresis. Being on this diet along with dairy free, fresh veggie and fruit free, has helped alot. I still have issues with some foods and still trying to work out all the kinks, but feeling much better than I did. The biggest issue is that food is on my mind every minute... what to eat, what to buy, when to eat, how much to eat.... *sigh*

DownWithGluten Explorer
DownWithGluten
Posted

I am. My opinion is that IBS isn't really an illness, just a label doctors hand out to describe a set of symptoms when they're too lazy to find out the real cause. I believe my IBS is celiac, that they are one in the same.

I agree. Probably everyone diagnosed with 'IBS' has some more specific condition. Such as Chron's, celiac, other food intolerance, maybe even conditions we haven't discovered yet.

I was diagnosed with IBS "C-D." I used to post on an IBS board, and was struck with how varying everyone's symptoms/triggers were. That's when I got a little suspicious...

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed. Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    2. knitty kitty
      - knitty kitty replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fruits & Veggies

      Hello, @Jordan Carlson, So glad you're feeling better. Tecta is a proton pump inhibitor. PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12. Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the...
    3. knitty kitty
      - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1. There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine. In Thiamine deficiency, the body...
    4. Scott Adams
      0

      Inmate with Celiac Disease Wins $630,000 After Jail Denies Gluten-Free Food

    5. trents
      - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,020
    • Most Online (within 30 mins)
      7,748
    Ericaa
    Newest Member
    Ericaa
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Fruits & Veggies

      By knitty kitty · Posted

      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Positive biopsy

      By trents · Posted

      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
      Positive biopsy

      By pothosqueen · Posted

      26F!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.