Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

More And More I Read The Scary This Gets!


prisskitty

Recommended Posts

prisskitty Rookie

Well, I was watching the videos by Dr. Osborne. He is very smart. But, what on Earth would I eat if I couldn't have corn or rice?

I had no idea the colic and gas in babies is from gluten.

The thing is, I don't want to pay $320 or so to be tested for gluten-sensitivty. I feel I am smart enough to make that decision on my own from diet testing.

Not only that! I've been tested for all other stomach problems. Hernias don't cause what I have.

Another thing interesting is I was diagnosed with superficial plebitis (spell check xD) in my left leg. I had very annoying swelling for months. It was of course worse when I was on birth control. Then, I had slight swelling when I was off. That whole month I was off of gluten my leg hasn't swelled up. The day I went back to gluten is poofed out again.

Also I have a rash that showed up 7 months ago and hasn't gone away. It itches when I eat gluten, but it doesn't when I am gluten free.

The thing is, I don't know WHY I decided to go gluten free, I can't remember. It's like I woke up one day and said enough is enough. My friend was right, I am gluten intolerant!

So what would you do in my position? Would you eliminate corn and rice too? I mean, it's a pain to find things to eat as is. Especially since my mom doesn't allow me to keep any grocery money for myself, even gluten intolerant. She's like 'well its not like you can't eat anythign we're eating'. YES it is like that though. At least she reads labels before she serves me.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jestgar Rising Star

Why would you eliminate corn and rice? Because some guy you've never met and you have no idea of his credentials and he has no idea of your symptoms says in a video that you shouldn't? Can you explain your reasoning a bit better?

prisskitty Rookie

Some doctor who founded Gluten Free Society (www.(Company Name Removed - They Spammed This Forum and are Banned))

I am not sure if its just for how he wants to make money or if he is for real.

Open Original Shared Link

Video where he talks down on corn and rice a lot.

WheatChef Apprentice

There do seem to be some decent ideas for cutting out all grain consumption (except alcohol of course!), however at this point they're just moderately developed theories. The reasons for cutting out all grains is not the same for cutting out gluten and I wouldn't make that decision if I didn't know all the science and theories behind it.

prisskitty Rookie

There do seem to be some decent ideas for cutting out all grain consumption (except alcohol of course!), however at this point they're just moderately developed theories. The reasons for cutting out all grains is not the same for cutting out gluten and I wouldn't make that decision if I didn't know all the science and theories behind it.

But I suppose if my stomach is irritated after corn I should cut that. But, that to be doesnt have much to do with gluten-intolerance. To me, that seems more to just be plain corn intolerance.

dilettantesteph Collaborator

I think that Doctor is this one. Open Original Shared Link

He is a chiropractor and clinical nutritionist, not a M.D. or a G.I. doc, or a neurologist. I believe that the gluten in corn and rice is of a very different structure than the gluten found in corn and rice. They are both called gluten because gluten means storage protein found in grain, not because they are at all the same and at all likely to cause damage to celiacs.

Open Original Shared Link

I believe that the only reason that corn and rice cause problems in some celiacs is from gluten contamination of the corn or rice, or because of other food intolerances.

jststric Contributor

I think that Doctor is this one. Open Original Shared Link

He is a chiropractor and clinical nutritionist, not a M.D. or a G.I. doc, or a neurologist. I believe that the gluten in corn and rice is of a very different structure than the gluten found in corn and rice. They are both called gluten because gluten means storage protein found in grain, not because they are at all the same and at all likely to cause damage to celiacs.

Open Original Shared Link

I believe that the only reason that corn and rice cause problems in some celiacs is from gluten contamination of the corn or rice, or because of other food intolerances.

Well, I don't know this particular "doctor", but I do know enough to know that doctors, overall, in this country are very poorly versed in our issues. Also, I think I read once that more than 50% of Celiac or gluten-intolerant people are also intolerant of multiple other foods. There IS the issue of cross-contamination at mills and such. I happen to be one of the fortunate gluten-intolerant people that can have oatmeal. But I've learned I have to stick with Quaker brand (name brand, I think) versus other more generic brands and I'm guessing its a cross-contamination issue. I am also rice intolerant. But I've discovered recently that I can have some brown rice every so often. I can eat gluten-free bread with rice flour in it SOME. I can't eat it 2 days in a row. Until you experiment with these other foods, you'll never really know. And then don't count everything in or out about it....you may be like me....can have a little every so often. MOST of us that aren't "official" have figured these things out for ourselves. And until there's a pill or cure, the only way of dealing is keeping these items out of our diets.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



knittingmonkey Newbie

But I suppose if my stomach is irritated after corn I should cut that. But, that to be doesnt have much to do with gluten-intolerance. To me, that seems more to just be plain corn intolerance.

Maybe lignan intolerance. Might want to cut out all grains, beans (including green beans and peanuts) and potatoes. Interestingly; these are all foods that, in their raw form, contain poisons.

T.H. Community Regular

From what I've seen of Dr. Osborne, I don't totally trust his science. I agree with one of the previous commenters: the gluten in each grain is not the same, so it shouldn't be treated the same. If that is the only reason you have to avoid these two, I'd...think carefully, I suppose. :-)

That said...there is one reason that corn and rice might bother you if you are a celiac (or have food issues): the majority of corn (I think it's now 85% or so) and much of the rice are genetically modified. If this was the reason to avoid these two, avoiding soy would be logical, too, as it is usually GMO, as well. The only way to ensure it's not GMO is to buy organic, as that's part of the 'organic' definition.

Celiacs and others with auto-immune issues (allergies or diseases) seem to have more problems with genetically modified foods - this is from my GI, who tends to specialize in celiacs. He said he hasn't come across any studies on this yet, but more and more of his celiac patients are reacting to genetically modified food, so he's letting the rest of his patients know that he recommends avoiding it. On top of that, some rat studies have shown rats get these abnormal growth patterns in their stomach linings when they are fed a lot of GMO foods. My GI has started seeing this same growth pattern in his patients, now. :o

Also, my GI said he HAS seen some folks who have trouble with gluten also have problems with other foods in the grain family. Rice, corn, teff, bamboo, sugarcane, sorghum, oats, etc... Buckwheat, quinoa, and amaranth aren't part of that family, however.

Once people have been off gluten for a while, he said that a lot of them can eventually have the other grains, usually within 6 months to 2 years.

After I went gluten free, I started having problems with other foods, and corn and rice were definitely on the list. Quinoa works okay as a rice substitute, but if you are worried you are reacting to corn? It's HARD to avoid. It's in your iodized salt and baking powder and even between paper plates, as corn starch. Xanthan gum and dextrose are derived from it and so can be contaminated by it during processing. Most medicines, vitamins, etc... have corn used in them. I would recommend checking out some 'corn free' blogs to find out what to avoid. Corn is harder to avoid than gluten, really.

But it's doable. You just get used to making a lot of your own food. :-)

By the way - I would TOTALLY believe gluten could be causing issues with your leg (by the way, is your birth control gluten free?). Since I went gluten free (and corn free), I've had tendonitis, carpal tunnel, nerve and pain issues in my back and neck - all went away. They come back if I accidentally (okay, or on purpose with corn sometimes) eat one of my bad foods.

I don't know why, but just for the record, I raise my hand as someone else who has had weird symptoms affected by what I eat. :)

Well, I was watching the videos by Dr. Osborne. He is very smart. But, what on Earth would I eat if I couldn't have corn or rice?

I had no idea the colic and gas in babies is from gluten.

The thing is, I don't want to pay $320 or so to be tested for gluten-sensitivty. I feel I am smart enough to make that decision on my own from diet testing.

Not only that! I've been tested for all other stomach problems. Hernias don't cause what I have.

Another thing interesting is I was diagnosed with superficial plebitis (spell check xD) in my left leg. I had very annoying swelling for months. It was of course worse when I was on birth control. Then, I had slight swelling when I was off. That whole month I was off of gluten my leg hasn't swelled up. The day I went back to gluten is poofed out again.

Also I have a rash that showed up 7 months ago and hasn't gone away. It itches when I eat gluten, but it doesn't when I am gluten free.

The thing is, I don't know WHY I decided to go gluten free, I can't remember. It's like I woke up one day and said enough is enough. My friend was right, I am gluten intolerant!

So what would you do in my position? Would you eliminate corn and rice too? I mean, it's a pain to find things to eat as is. Especially since my mom doesn't allow me to keep any grocery money for myself, even gluten intolerant. She's like 'well its not like you can't eat anythign we're eating'. YES it is like that though. At least she reads labels before she serves me.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      1

      New issue

    2. - knitty kitty replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Blood Test for Celiac wheat type matters?

    3. - trents replied to Charlie1946's topic in Related Issues & Disorders
      38

      Severe severe mouth pain

    4. - knitty kitty replied to Charlie1946's topic in Related Issues & Disorders
      38

      Severe severe mouth pain

    5. - Caligirl57 replied to Charlie1946's topic in Related Issues & Disorders
      38

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,085
    • Most Online (within 30 mins)
      7,748

    kk007
    Newest Member
    kk007
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jmartes71, Sorry you've been feeling so poorly.   Are you taking any medication to treat the SIBO?   Are you taking any Benfotiamine?  Benfotiamine will help get control of the SIBO.  Thiamine deficiency has symptoms in common with MS. Have you had your gas appliances checked for gas leaks and exhaust fume leaks?  Carbon Monoxide poisoning can cause the same symptoms as the flu and glutening.  Doctors have to check venous blood (not arterial) for carbon monoxide.  Are other inhabitants sick, or just you?  Do they leave the house and get fresh air which relieves their symptoms?  
    • knitty kitty
      European wheat is often a "soft wheat" variety which contains less gluten than "hard wheat" varieties found in the States.   In European countries, different cooking methods and longer  fermentation (rising or proofing) times allow for further breakdown of gluten peptides. Wheat in the States is a blend of hard and soft wheat.  Gluten content can vary according to where the wheat was grown, growing conditions, when harvested, and local preference, so a blend of both hard and soft wheat is used to make a uniform product.   I moved around quite a bit as a child in a military family.  I had different reactions to gluten in different areas of the country every time we moved.  I believe some wheat breeds and blends are able to provoke a worse immune response than others.   Since European soft wheat doesn't contain as much gluten as American wheat, you may try increasing your intake of your soft wheat products.  A minimum of ten grams of gluten is required to get a sufficient immunological response so that the anti-gluten antibodies leave the intestines and enter the bloodstream where they can be measured by the tTg IgA test.  Your whole wheat bread may only have a gram of gluten per slice, so be prepared...  
    • trents
      From my own experience and that of others who have tried to discontinue PPI use, I think your taper down plan is much too aggressive. It took me months of very incremental tapering to get to the point where I felt I was succeeding and even then I had to rely some days on TUMS to squelch flareups. After about a year I felt I had finally won the battle. Rebound is real. If I were you I would aim at cutting back in weekly increments for two weeks at a time rather than daily increments. So, for instance, if you have been taking 2x20mg per day, the first week cut that down to 2x20mg for six days and 1x20 mg for the other day. Do that for two weeks and then cut down to 2x20mg for five days and 1x20 for two days. On the third week, go 20x2 for four days and 20x1 for 3 days. Give yourself a week to adjust for the reduced dosage rather than reducing it more each week. I hope this makes sense. 
    • knitty kitty
      Talk to your doctor about switching to an antihistamine, and supplementing essential vitamins and minerals.  Dietary changes (low carb/paleo) may be beneficial for you.  Have you talked to a dietician or nutritionist about a nutrient dense gluten free diet?   It's harder to get all the vitamins needed from a gluten free diet.  Gluten containing products are required to be enriched or fortified with vitamins and minerals lost in processing.  Gluten free facsimile processed foods are not required to be enriched nor fortified.  So we have to buy our own vitamin supplements.   Glad to be of help.  Keep us posted on your progress!
    • Caligirl57
      I’m pretty sure they do. I have been on myfortic, tacrolimus since 2021 for my liver transplant and added prednisone after kidney transplant.  I’m going to try to cut back omeprazole to 20 mg a day and then after a week try to stop altogether. Thank you for your help.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.