Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Problems Continue After 9 Months Of Being Gluten Free

amberlink09

Recommended Posts

amberlink09 Apprentice
amberlink09
Posted

Hey guys,

I was wondering if anyone had been in a situation similar to mine, when I first went gluten free (about 9 months ago) I lost about 10 pounds over a few months without trying, I just assumed it was because I was getting healthy. I'm 19, 5'2," and about 120 pounds. A few months ago, I just started gaining all of the weight plus more back. If anything, I was eating healthier. I rarely eat frozen meals or gluten free cookies or anything. My worst habit is snacking but since I know that I snack on stuff like yogurt, fruit, and baked chips. I exercise on a regular basis also, though currently I haven't been to the gym in a few weeks because I am in college and I got really busy with finals and everything.

Also, I had been doing really well on the diet, but a few months ago (when the weight gain started) I started feeling sick all the time again. I am constantly constipated and I have terrible stomach pains, I can't eat ANYTHING without being sick anymore and I have checked everything I own for gluten. I am wondering if its possible that I have developed another food allergy or disorder? It's really discouraging, I felt great just a few months ago and now I feel like I'm back to square one. Thanks for your help!

Amber

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


trents Grand Master
trents
Posted

Hey guys,

I was wondering if anyone had been in a situation similar to mine, when I first went gluten free (about 9 months ago) I lost about 10 pounds over a few months without trying, I just assumed it was because I was getting healthy. I'm 19, 5'2," and about 120 pounds. A few months ago, I just started gaining all of the weight plus more back. If anything, I was eating healthier. I rarely eat frozen meals or gluten free cookies or anything. My worst habit is snacking but since I know that I snack on stuff like yogurt, fruit, and baked chips. I exercise on a regular basis also, though currently I haven't been to the gym in a few weeks because I am in college and I got really busy with finals and everything.

Also, I had been doing really well on the diet, but a few months ago (when the weight gain started) I started feeling sick all the time again. I am constantly constipated and I have terrible stomach pains, I can't eat ANYTHING without being sick anymore and I have checked everything I own for gluten. I am wondering if its possible that I have developed another food allergy or disorder? It's really discouraging, I felt great just a few months ago and now I feel like I'm back to square one. Thanks for your help!

Amber

Hi, Amber!

It certainly is possible you have other food intolerances. Many Celiacs also have dairy and soy allergies/intolerances. Have you had any food allergy testing done? The ELISA test is commonly used for this but make sure you have it done at a place where they use a reputable laboratory for the analysis part. Not to scare you but there is also something called refractory sprue and and something else called collagenous sprue (spelling?) that do not respond to going gluten free or where there is reversion to original problems unrelated to gluten. Research is discovering that a certain percentage of Celiacs fall into that category. But, start with your original suspicion of other food alllergies/intolerances. That is more likely.

mushroom Proficient
mushroom
Posted

This sounds like a good time to start a food and symptom diary to see if you can correlate how you feel with what you eat. You probably should start off eliminating some of the major known allergens; for celiacs when they are first healing this would be lactose - your ability to digest that will probably come back later. Other intolerances often associated with gluten include soy, corn, and the casein in all dairy. Try getting rid of those to start with and then if you stabilize on feeling better you can start adding in other things. Try to eat whole fresh foods, meat, vegetables and fruits, rice, nuts and see how you go.

frieze Community Regular
frieze
Posted

hmm young, female, weight gain, belly pain......have you been checked to see if you are pregnant?

  • 2 weeks later...
dnwiebe Newbie
dnwiebe
Posted

Amber, I'm in the exact same situation. I'm 22 years old, and have only been diagnosed for a year. I started getting sick about a month ago, it seems I get quite ill in the afternoons, no matter what I eat. I think I will start a food journal to track everything. If you find anything that might help, please let me know!

Dani

ravenwoodglass Mentor
ravenwoodglass
Posted

Amber, I'm in the exact same situation. I'm 22 years old, and have only been diagnosed for a year. I started getting sick about a month ago, it seems I get quite ill in the afternoons, no matter what I eat. I think I will start a food journal to track everything. If you find anything that might help, please let me know!

Dani

Dani also look at what may have changed a month ago. Are you on any meds or supplements? Check scripts at each refill. Did you start using a new shampoo or other toiletries or makeup? Do you have a significant other who is a gluten eater? Kisses can CC us. Are you doing remodeling at your home or have you recently started doing arts and crafts? Some items used for those can get us.

Gutsy Girl Rookie
Gutsy Girl
Posted

Refractory sprue? I've heard of it a few times but have no clue what it is. Guess I'm off to do some more reading.....

I'm in the same category with original poster of this topic. I've been gluten-free for 11 months but still having problems, some getting worse, and increased intolerances to foods that I used to be able to eat (soy, corn, some lactose-free dairy foods, etc).

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Gutsy Girl Rookie
Gutsy Girl
Posted

Ah...this is why I LOVE Celiac.com.....

https://www.celiac.com/articles/710/1/Refractory-Sprue-by-Michelle-Melin-Rogovin-University-of-Chicago-Celiac-Disease-Program/Page1.html

GFinDC Veteran
GFinDC
Posted

That's a good article on refractory sprue F.A. Thanks for posting the link. :)

I felt much better when I fIrst went gluten free. But I didn't feel completely right. Over time I discovered other foods that were bothering me. Eliminating them made a big difference. Soy was a major improvement when I got rid of it. But I also have problems with dairy, nightshades (potatoes, tomatoes, peppers), carrots, turnips, garbanzo beans, etc. If you have another food intolerance, or several, and you continually eat those problem foods, you just won't feel good. An elimination diet is a good way to figure other intolerances out.

dnwiebe Newbie
dnwiebe
Posted

Yes, I'm sure it must be some other food bothering me. I haven't had any big changes in my life lately other than finishing school for the year and starting a summer job. I will start a food journal tomorrow morning and see where I go from there. Should I just start very basic, fruits and veggies and such? Or just continue to eat normally and track everything?

rachel-gf Newbie
rachel-gf
Posted

I found that changing the proportions of what I was eating was helpful. Do try increasing vegetables, protein (meats), reducing starchy stuff (chips, bread). You may also want to try removing dairy for a while - it can cause bloating. Also be sure you don't have vitamin deficiencies. That could be wreaking havoc on your body as well. Now that your body is able to absorb food, it can get easier to put on weight. Good luck.

  • 2 weeks later...
Dggraha Newbie
Dggraha
Posted

Hey,

Amber I know how you feel. I was diagnosed with celiac Disease over 2 years ago and since this past winter I have been experiencing a relapse. I delt with Celiac disease my whole life and was constantly sick, or just completly misserable. My fear for food had developed into a mental issue and even though I still eat 100% gluten free, I will feel sick in times of stress. My mind has been conditioned to relate the stresses of life to my eating habits. Because feeling sick all the time stressed me out, now when Im stress I feel sick. This may or may not be the reason for my relapse, but I am going to find out because I refuse to live my life always in the dumps. I do not know if anyone else has this same issue?? but I wouldnt neglect the fact that Celiac disease is just more than an upset stomach. Research has proven the history of mental disorders have direct correlation with the development of the disease. How do you react to stress? Have you ever had a negative life changing event? Get the small things under control and they can help your stomach recover... Afterall, I never feel sick when doing something I love to do.

Comment please!, Derek

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      0

      Celiac Diner Sues Olive Garden After Gluten Mix-Up Leads to Medical Emergency (+Video)

    2. knitty kitty
      - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed. Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    3. knitty kitty
      - knitty kitty replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fruits & Veggies

      Hello, @Jordan Carlson, So glad you're feeling better. Tecta is a proton pump inhibitor. PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12. Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the...
    4. knitty kitty
      - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1. There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine. In Thiamine deficiency, the body...
    5. Scott Adams
      0

      Inmate with Celiac Disease Wins $630,000 After Jail Denies Gluten-Free Food

  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,033
    • Most Online (within 30 mins)
      7,748
    DeeDeeS
    Newest Member
    DeeDeeS
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Fruits & Veggies

      By knitty kitty · Posted

      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Positive biopsy

      By trents · Posted

      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
      Positive biopsy

      By pothosqueen · Posted

      26F!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.