Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Shared Equipment


samcarter

Recommended Posts

samcarter Contributor

So I never thought I was this sensitive to gluten. I knew that if i actually ate something with gluten, I would start getting the symptoms--headache, sometimes a bad stomach, most often neuropathy. I had been avoiding even stuff with wheat starch (like Pringles). Because I knew that would cause the same symptoms.

Then I went to Trader Joe's yesterday, to get some pizzas for the kids. I picked up a bag of tortilla chips--should be safe, right? And a container of spicy guacamole (which turned out to taste horrible, but that's beside the point).

A few hours after dinner, I had a horrible stomachache, the same kind of sleepiness I get when I've been glutened with a big dose of wheat, and a headache. I looked at the labels--"made on shared equipment." Now, I i had seen this, but before on Trader Joe's labels they make a point of saying that their providers take care to avoid cross-contamination. Not any more, it seems. It also seems my sensitivity is getting worse, not better. UGH.

Anybody else have trouble with trader joe's food? seems like even if they say it uses gluten free ingredients, everything is made on shared equipment. I'm going to have to go back to buying dedicated gluten free foods from dedicated facilities, and whole foods all the way, I guess.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

I completely avoid food made on the same equipment. I have reacted every single time.

ciavyn Contributor

I personally don't have issues (thus far) with foods made on shared equipment, but from what I've read, folks have different levels of sensitivity. You may need to avoid it in the future.

NorthernElf Enthusiast

For the most part I avoid it too - been zinged too many times. I used to eat Tostitos with my family when we would have the occassional nachos...but it was hit & miss and I got tired of the misses. Ugh. Now I eat Riceworks plain chips while they eat nachos.

When we were in New York last summer we went to Trader Joes and I got hit a few times. Gotta admit, I wondered what the big deal was with TJ's because before I went it was recommended to buy food there. I did much better at a small natural market that carried a lot more gluten-free food. Is it TJs that has the "gluten free" label and then has the "made in a factory that uses gluten" on it ? Those I avoid totally.

I have noticed some things lately labeled "naturally gluten free" and then have that disclaimer...it's a loophole to sound gluten-free but not be. Same with the one that goes along the lines of being made without gluten ingredients.

conniebky Collaborator

For the most part I avoid it too - been zinged too many times. I used to eat Tostitos with my family when we would have the occassional nachos...but it was hit & miss and I got tired of the misses. Ugh. Now I eat Riceworks plain chips while they eat nachos.

When we were in New York last summer we went to Trader Joes and I got hit a few times. Gotta admit, I wondered what the big deal was with TJ's because before I went it was recommended to buy food there. I did much better at a small natural market that carried a lot more gluten-free food. Is it TJs that has the "gluten free" label and then has the "made in a factory that uses gluten" on it ? Those I avoid totally.

I have noticed some things lately labeled "naturally gluten free" and then have that disclaimer...it's a loophole to sound gluten-free but not be. Same with the one that goes along the lines of being made without gluten ingredients.

Oh, terrific. man I'm having a gluteney day. I'm sitting here eating Tostitos.......

laurelfla Enthusiast

If it is a product that I eat regularly, I don't do shared equipment. However, if it is a one-time thing, or I'm at someone's house and that's all there is to eat, for example, I'll make an exception.

Sometimes I think it's good to call the company and see exactly what the situation is, how they minimize cross-contamination. However, I know some people aren't able to eat anything that's processed on shared equipment. I never have experienced a negative reaction from doing it, but then again, I've never done it on a regular basis.

Skylark Collaborator

Most of the time I tolerate shared equipment food OK but I've had an occasional glutening where that was the only sensible explanation.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sa1937 Community Regular

Oh, terrific. man I'm having a gluteney day. I'm sitting here eating Tostitos.......

Connie, I don't have a problem eating Tostitos, Lay's regular potato chips, Fritos, Cheetos, etc. (I'm talking about the plain ones as I'm sure that not all varieties have gluten free ingredients...I always check the label before buying). So maybe I'm not that sensitive. Hopefully you'll be fine, too!!! biggrin.gif

larry mac Enthusiast

I never worry about it and haven't had any problems. I only worry about gluten ingredients.

best regards, lm

GFinDC Veteran

I avoid foods made on shared equipment. It just isn't worth the risk to me. I used to eat Tostitos but when I stopped soy I cut them out. Wylde brand gluten-free pretzels are soy free. Tiny but tasty.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

    2. - cristiana replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

    3. - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

    4. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

    5. - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,697
    • Most Online (within 30 mins)
      7,748

    Knotalota
    Newest Member
    Knotalota
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      I read that as well but I saw the Certified Gluten free symbol that is the reason I ourchased it.
    • cristiana
      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms.  I was diagnosed in 2013 and was told immediately that my parents, sibling and children should be checked.  My parents' GP to this day has not put forward my father for testing, and my mother was never tested in her lifetime, despite the fact that they both have some interesting symptoms/family history that reflect they might have coeliac disease (Dad - extreme bloating, and his Mum clearly had autoimmune issues, albeit undiagnosed as such; Mum - osteoporosis, anxiety).  I am now my father' legal guardian and suspecting my parents may have forgotten to ask their GP for a test (which is entirely possible!) I put it to his last GP that he ought to be tested.  He looked at Dad's blood results and purely because he was not anemic said he wasn't a coeliac.  Hopefully as the awareness of Coeliac Disease spreads among the general public, people will be able to advocate for themselves.  It is hard because in the UK the NHS is very stretched, but the fallout from not being diagnosed in a timely fashion will only cost the NHS more money. Interestingly, a complete aside, I met someone recently whose son was diagnosed (I think she said he was 8).  At a recent birthday party with 8 guests, 4 boys out of the 8 had received diagnosis of Coeliac Disease, which is an astounding statistic  As far as I know, though, they had all had obvious gastric symptoms leading to their NHS diagnosis.  In my own case I had  acute onset anxiety, hypnopompic hallucinations (vivid hallucinations upon waking),  odd liver function, anxiety, headaches, ulcers and low iron but it wasn't until the gastric symptoms hit me that a GP thought to do coeliac testing, and my numbers were through the roof.  As @trents says, by the grace of God I was diagnosed, and the diet has pretty much dealt with most of those symptoms.  I have much to be grateful for. Cristiana
    • knitty kitty
      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.