Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Do People Mean By "getting Sick" When They Eat Something With Gluten?


Coolclimates

Recommended Posts

Coolclimates Collaborator

I just was diagnosed with celiac disease 3 weeks ago and have been on the diet barely 3 weeks. I keep hearing people saying that if you suddenly eat something with gluten, you will get "very sick." My question is, what do they mean by sick? Do they mean throwing up/stomach issues? Or do they mean flu like symptoms like headaches, body aches, fever? or do they mean something else? Please clarify.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Korwyn Explorer

Hi cool,

If ten people respond you will probably get 20 answers. :) That is because it is different for almost everyone though many people share similar but not identical responses. Also the response can change over time.

I now usually experience fatigue, headaches, painful joints (especially my ankles). The onset of the painful joints is new however and was never one of my original symptoms. But I can experience other symptoms occasionally as well. Some of it seems to depend on how I got glutened. That is what type of food it was. But for me the onset is usually very rapid (15 minutes to a couple hours, average probably 45 minutes).

mommida Enthusiast

If I ate straight gluten ~ Usually the big "D" in about 15 minutes, or sometimes the lovely projectile vomit.

If it is maybe a little cross contamintion ~ agonizing stomach cramps for about 3 hours, and then the big "D" spread out in about three bouts until my guts are empty.

If gluten goes in is is coming out one orafice or another until it's all gone. Sure there are aches and pains, headaches, and other stuff. Day or two after I feel more tired and notice my hair tends to fall out.

conniebky Collaborator

I get weak and my joints get painful and stiff. I get a headache and stomach cramps. I get tingling in my extremeties.

luvs2eat Collaborator

I'll have horrible lower digestive issues... cramping, BIG D w/in an hour or 2... and will feel very barfy (but I always fight that one!!). The next day I'll be wiped out... foggy and hugging the couch.

WheatChef Apprentice

Abnormal bowel movements for a few days. Terrible bloating and gas. Severe lethargy for 2-3 days. Brain fog for at least a week. Loss in muscle tone. Most likely migraines for a few days. Clogged sinuses for at least a day. Most likely some mild anxiety for a few days.

Normally these don't come on severe, just kind of gradually creep in over the next few hours after getting poisoned.

chere1020 Newbie

Abnormal bowel movements for a few days. Terrible bloating and gas. Severe lethargy for 2-3 days. Brain fog for at least a week. Loss in muscle tone. Most likely migraines for a few days. Clogged sinuses for at least a day. Most likely some mild anxiety for a few days.

Normally these don't come on severe, just kind of gradually creep in over the next few hours after getting poisoned.

It depends on what I get glutened with, one time it was wheat in a chicken broth and that took only 10 minutes before I had indigestion and acid reflux and it just got worse from there. I get really nauseous and if it is a bad case and I keep eating whatever it is that causes the problem I have the big D in a huge way. The last vacation before this one we went home a day early because I had the big D so bad I was dehydrating and so viciously sick I couldnt get out of bed. I was in a bad way that time, but it was before I knew I was gluten intolerant. Now when I get glutened I drop back to fresh only foods and it clears up within 48 hours. It is horrible and you know it when it happens.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MelissaBe123 Newbie

Depending on how much I got, it will either be horrible abdominal pains or the big D. I have never really experienced headaches or pains in my joints.

Jencat Rookie

Well I got unintentionally glutened about four days ago and it Has been a rough glutening, on and off D and cramping, bloating, nausea, brain fog and fatigue,numbness to my hands and fingers and very irritable just want it to be over.-Jen :(

Korwyn Explorer

Well I got unintentionally glutened about four days ago and it Has been a rough glutening, on and off D and cramping, bloating, nausea, brain fog and fatigue,numbness to my hands and fingers and very irritable just want it to be over.-Jen :(

:( That's the worst part (mentally) for me now. Waiting for the fog to lift and kicking myself for not being more careful. Hope you feel better soon.

conniebky Collaborator

:( That's the worst part (mentally) for me now. Waiting for the fog to lift and kicking myself for not being more careful. Hope you feel better soon.

I got glutened this morning. tingly extremitries, headache, stomach troubles, panicky feeling, vertigo and kinda of sad. Seems I get sad when it happens. It's like, "oh no here comes the enemy".....something like that.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    2. - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

    3. - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    4. - trents replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Taking Probiotics but Still Getting Sick After Gluten – Advice?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,217
    • Most Online (within 30 mins)
      7,748

    Sutto
    Newest Member
    Sutto
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.