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Cross Contamination Issues


Jacky

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Jacky Rookie

Hi there. I was diagnosed 2 months ago and went gluten free at that time, however, it seems like all I keep getting sick from hidden gluten or cross contamination. I go about 5 days at a time and then something gets me again! I don't know much about this. Am I being too daring with my food choices? Is it because my gut is not healed?

I ate a Healthy Choice frozen dinner Wednesday pm and am still sick on Saturday. I've learned about hydrolyzed vegetable protein and dextrin and there was none in it.

Please help!


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dilettantesteph Collaborator

You could try to only eat gluten free food that is processed in gluten free facilities. That cuts down on CC and is what some celiacs do. Personally, I avoid processed foods in general. I don't think that you need to go that far yet.

Jacky Rookie

You could try to only eat gluten free food that is processed in gluten free facilities. That cuts down on CC and is what some celiacs do. Personally, I avoid processed foods in general. I don't think that you need to go that far yet.

Thanks! I agree. I've decided to stop with unknown "mainstream" foods for now. I may be trying things too quickly. This whole thing is pretty complicated. Thanks for the feedback.

T.H. Community Regular

so far, my daughter and I are sensitive enough that we've had to make everything from scratch or we get ill. My father and brother, on the other hand, have no trouble at all, so I think a lot depends on individual sensitivity too. good luck!

Thanks! I agree. I've decided to stop with unknown "mainstream" foods for now. I may be trying things too quickly. This whole thing is pretty complicated. Thanks for the feedback.

Lily127 Rookie

I share your angst. I'm feeling pretty awful tonight and I'm not sure if it's something I ate. I had Amy's Low Sodium Lentil with Vegetables (and it tasted really good, I'll give it that) but I started to feel sick afterwards. It felt more like an MSG type feeling but given that I have CFS and Fibro and Gluten issues I sometimes don't know what is causing what. It could also be that it was very spicy. Even spice can make me feel shaky so I just don't know where to start sometimes other than really going simple. Baked Chicken Breast, Veggies, Rice for awhile.

I wonder if stuff that low sodium has something extra in it to make it tasty?

frogrun Apprentice

I can't eat anything from Amy's due to cc. I spoke to the dietitian at a recent gluten free gala and she said a lot of people can't eat Amy's.

Juliebove Rising Star

Did you go through your kitchen and get rid of anything that might have lurking gluten? Like non-stick cookware, colanders and the like? That was the first thing I did when daughter was diagnosed. Also got rid of the obvious foods like wheat flour and scrubbed out the cupboards. I don't use cutting boards except to put under the paper plates that I cut on. So I felt those were safe.


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      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
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