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Update On Scaredandworried

Scaredandworried87

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Scaredandworried87 Newbie
Scaredandworried87
Posted

just thought id let everyone know about my biopsy, they found nothing wrong so any ideas what i should ask my gi doctor next?

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mushroom Proficient
mushroom
Posted

The next thing you do is start the gluten free diet in earnest, no cheating, no slip-ups, no cross-contamination. Read every label, check all your personal care products, get rid of wooden and plastic spoons and scratched nonstick pans, buy a new toaster and colander. You don't even have to tell your GI because he will probably tell you if you are not a celiac you don't need to do this. But we are telling you that 99.9% most likely you do. You seem to be a non-celiac gluten intolerant. Or just not sufficiently damaged yet to test celiac.

As for the weight issue, there seem to be two reactions to gluten intolerance while still eating gluten. For one type of person, the nutrients are not absorbed and the weight just falls off. For the other type of person, the body says, Whoa, wait a minute, I am not getting what I need, must be a famine going on here, I've got to hold on to everything I can get, and the weight piles on. For both types, once gluten is eliminated the weight seems to stabilize. The losers gain and the gainers lose. So just hang in there and give things a chance. :)

lilbit Apprentice
lilbit
Posted

just thought id let everyone know about my biopsy, they found nothing wrong so any ideas what i should ask my gi doctor next?

Question- Did you actually see your biopsy lab results? My GI doc told me that there was nothing wrong and I requested my lab results... and whaddya know... I had celiac!

Don't forget- Celiac is notoriously difficult to diagnose! Best of luck!

ravenwoodglass Mentor
ravenwoodglass
Posted

The next thing you do is start the gluten free diet in earnest, no cheating, no slip-ups, no cross-contamination. Read every label, check all your personal care products, get rid of wooden and plastic spoons and scratched nonstick pans, buy a new toaster and colander. You don't even have to tell your GI because he will probably tell you if you are not a celiac you don't need to do this. But we are telling you that 99.9% most likely you do. You seem to be a non-celiac gluten intolerant. Or just not sufficiently damaged yet to test celiac.

As for the weight issue, there seem to be two reactions to gluten intolerance while still eating gluten. For one type of person, the nutrients are not absorbed and the weight just falls off. For the other type of person, the body says, Whoa, wait a minute, I am not getting what I need, must be a famine going on here, I've got to hold on to everything I can get, and the weight piles on. For both types, once gluten is eliminated the weight seems to stabilize. The losers gain and the gainers lose. So just hang in there and give things a chance. :)

I second everything Mushroom has said and she has said it very well. Please do give the diet a good strict try.

Weight wise I am in the second group. I thought I was just gaining weight because of my age, late 40's at diagnosis. I couldn't figure out how I gained so much when I had constant D but I was at my heaviest in my life the year before diagnosis. Now 8 years later I am at about 5 lbs more than I was in my teens. I did freak out at first cause I seemed to lose weight too quickly and was concerned something else was going on. I even fought to regain 5 lbs at one point (used Wylde pretzels to do so) but have stopped worrying about it and slowly went back down to the weight I am now and have held steady for a couple years now.

Scaredandworried87 Newbie
Scaredandworried87
Posted
  • Author

ok to be honest is there just truely such a thing as only being gluten free not soy, dairy, meat, nut or all these other wacky things i see on peoples profiles i mean it just seems to me like once you eliminate gluten you have to eliminate everything else and to be honest im completely alone here i live at home where gluten reignns supreme and ive tried and tried again to tell them about my symptoms but once theyve heard that i had a negative biopsy they tell me to move on. then there is the fact only make $700 every two weeks and cant afford to move out

ravenwoodglass Mentor
ravenwoodglass
Posted

ok to be honest is there just truely such a thing as only being gluten free not soy, dairy, meat, nut or all these other wacky things i see on peoples profiles i mean it just seems to me like once you eliminate gluten you have to eliminate everything else and to be honest im completely alone here i live at home where gluten reignns supreme and ive tried and tried again to tell them about my symptoms but once theyve heard that i had a negative biopsy they tell me to move on. then there is the fact only make $700 every two weeks and cant afford to move out

Yes there are folks that are only gluten free. Not everyone has other intolerances even though it may seem that way. Most of us do have to eliminate dairy at first because the same area that gets damaged by gluten helps us to digest dairy. Many are able to safely add it back in. For now just concentrate on eliminating the gluten then if you are still having issues after a few months then worry about the possibility of other intolerances. I had a great deal of healing gluten free but I increased my soy consumption greatly. The issues were minor compared to gluten, for me, but it the end it has helped me to avoid soy.

It is possible to be gluten free on a limited budget. I live off $50 less every two weeks than you do and rely on mostly whole foods and frozen single ingredient veggies. The gluten free specialty foods like breads, pizza crusts, cakes etc are very pricey so I don't get them often. I use quite a bit of rice and rice noodles, which I get in the Asian section of my store, instead of the more expensive specialty gluten free pastas.

You do need to get your own toaster and be careful of cross contamination if you are living in a gluten household.

Skylark Collaborator
Skylark
Posted

ok to be honest is there just truely such a thing as only being gluten free not soy, dairy, meat, nut or all these other wacky things i see on peoples profiles i mean it just seems to me like once you eliminate gluten you have to eliminate everything else and to be honest im completely alone here i live at home where gluten reignns supreme and ive tried and tried again to tell them about my symptoms but once theyve heard that i had a negative biopsy they tell me to move on. then there is the fact only make $700 every two weeks and cant afford to move out

I had to eliminate soy and dairy at first to feel well. My gut was just such a mess from the gluten. After about a year, I tried them again and had no reactions. Now I eat anything I like, as long as it has no gluten.

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