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Does Anyone Else Have Other Auto Immune

ivegotitalso

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ivegotitalso Rookie
ivegotitalso
Posted

hi- i was wondering if anyone else had any other auto immune problems like i have sjorgrens pronounced show grins ?

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Roda Rising Star
Roda
Posted

Yep, I have hashimotos disease. I was diagnosed with it in 2000. Probably had celiac then and just didn't know it.

Skylark Collaborator
Skylark
Posted

I have Hashimoto's thyroiditis as well.

mushroom Proficient
mushroom
Posted

Psoriatic arthritis here.

bluebonnet Explorer
bluebonnet
Posted

hypothyroid for me ... diagnosed at 19 years old with it. and i agree with roda, i probably had celiac back then but just didn't know it.

Looking for answers Contributor
Looking for answers
Posted

I also have been diagnosed with sjpogrens...however vie never had a symptom. I'm hoping going gluten free stopped it I it's track.

  • 2 weeks later...
MsModelSara Rookie
MsModelSara
Posted

I have Hashimoto's Thyroiditis too...probably caused by my gluten sensitivity

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kayo Explorer
kayo
Posted

RA and Sjogrens. Gluten and soy free has almost eliminated the Sjogrens.

  • 4 months later...
Pippi13 Newbie
Pippi13
Posted

Hi! I know this question was posted several months ago, but I'm new here & just saw it.

I also have another autoimmune disease - one I didn't see listed among the other replies. I have Guillian-Barre. That's a terribly painfull & crippling autoimmune disease. I was in a wheelchair for several years because of that. After my celiac diagnosis & my new gluten free lifestyle, my GB has gotten much better. I'm even walking again! :)

Additionally, my "mystery anemia" has healed, & I haven't had a blood transfusion in nearly a year.

My biggest problem now is accidental gluten ingestion.

Although I read all ingredient labels, (as we all know) gluten hides under many false names.

Other times, I was accidentally "glutenised" by cross-contamination. Hence, I only eat food from my own kitchen now. Restaraunts are horrible cross-contaminators, as are the kitchens of friends & relatives - even when they try to be careful, & think they've decontaminated surfaces, they really don't know how to do that correctly.

dwillia75 Newbie
dwillia75
Posted

Hi. I have Hashimoto's and Raynaud's syndrome.

catarific Contributor
catarific
Posted

I have Hashimoto's Thyroiditis too. Had it for years - never need thyroid replacement though until I hit my thirties. Even to this day, I take a moderate dose. Always had constipation issues as a child and teenager - but I do not think when I was that young that people even attributed it to anything but not eating enough ruffage or vegetables. :(

chasbari Apprentice
chasbari
Posted

Rheumatoid Arthritis, Sjogren's Syndrome, high Lupus indicators, Reynaud's in addition to Celiac. All the other have responded positively to strict gluten free.

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  • Posts

    • asaT
      nothing has changed

      By asaT · Posted

      Scott, I am mostly asymptomatic. I was diagnosed based on high antibodies, low ferritin (3) and low vitamin D (10). I wasn't able to get in for the biopsy until 3 months after the blood test came back. I was supposed to keep eating gluten during this time. Well why would I continue doing something that I know to be harmful for 3 more months to just get this test? So I did quit gluten and had the biopsy. It was negative for celiacs. I continued gluten free with iron supps and my ferritin came back up to a reasonable, but not great level of around 30-35.  Could there be something else going on? Is there any reason why my antibodies would be high (>80) with a negative biopsy? could me intestines have healed that quickly (3 months)?  I'm having a hard time staying gluten free because I am asymptomatic and i'm wondering about that biopsy. I do have the celiacs gene, and all of the antibody tests have always come back high. I recently had them tested again. Still very high. I am gluten free mostly, but not totally. I will occasionally eat something with gluten, but try to keep to a minimum. It's really hard when the immediate consequences are nil.  with high antibodies, the gene, but a negative biopsy (after 3 months strict gluten-free), do i really have celiacs? please say no. lol. i think i know the answer.  Asa
    • nanny marley
      IBS-D vs Celiac

      By nanny marley · Posted

      I have had a long year of testing unfortunately still not diagnosed , although one thing they definitely agree I'm gluten intolerant, the thing for me I have severe back troubles they wouldnt perform the tests and I couldn't have a full MRI because I'm allergic to the solution , we tryed believe me  I tryed lol , another was to have another blood test after consuming gluten but it makes me so bad I tryed it for only a week, and because I have a trapped sciatic nerve when I get bad bowels it sets that off terribly so I just take it on myself now , I eat a gluten free diet , I'm the best I've ever been , and if I slip I know it so for me i have my own diagnosis  and I act accordingly, sometimes it's not so straight forward for some of us , for the first time in years I can plan to go out , and I have been absorbing my food better , running to the toilet has become occasionally now instead of all the time , i hope you find a solution 🤗
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      I was undiagnosed for decades. My ferritin when checked in 2003 was 3. It never went above 10 in the next 20 years. I was just told to "take iron". I finally requested the TTgIgA test in 2023 when I was well and truly done with the chronic fatigue and feeling awful. My numbers were off the charts on the whole panel.  they offered me an endoscopic biopsy 3 months later, but that i would need to continue eating gluten for it to be accurate. so i quit eating gluten and my intestine had healed by the time i had the biopsy (i'm guessing??). Why else would my TTgIgA be so high if not celiacs? Anyway, your ferritin will rise as your intestine heals and take HEME iron (brand 4 arrows). I took 20mg of this with vitamin c and lactoferrin and my ferritin went up, now sits around 35.  you will feel dramatically better getting your ferritin up, and you can do it orally with the right supplements. I wouldn't get an infusion, you will get as good or better results taking heme iron/vc/lf.  
    • par18
      Is it gluten?

      By par18 · Posted

      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test" itself. If you were gluten-free and got tested, you more than likely would test "true" negative or just negative. This means that the gluten-free diet is working and no anti-bodies should be present. I know it sounds confusing and if you don't agree feel free to respond. 
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      IBS-D vs Celiac

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