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Gluten Free Surprise


SGWhiskers

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SGWhiskers Collaborator

I'm still in SHOCK. I was told 4 years ago that I would need an egg donor. Hubby has severe problems too. Due to financial and health problems, we never pursued it. Today, my period was 3 days late and I took a test to get the hope of pregnancy out of my mind. I'm pregnant.

I have not been taking vitamin supplements and have been living off peanuts, oranges, juice, yogurt and soy protien shakes the past few weeks. I'm going to ask a doctor I work with for a blood test, but changes do I need to do now? I know the obvious of no caffine, no alcohol, and there never was any cigarettes. I want off my Cymbalta, but I will have to taper that one.

I'm moving in a month. Do I need a high risk doctor now or just later.

Can anyone recommend a gluten free multivitamin. I quit taking them long ago after they hurt my stomach.

I'm completely unprepared for this concept even though I desperately want a family. I just had given up long ago on conceiving.


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jerseyangel Proficient

OMG--what a happy surprise!! I'm so happy for you and your husband!!!

I'm sure some of the more recent moms will chime in about vitamins and things--I just wanted to say congratulations :D

mommida Enthusiast

Congratulations! :D

My baby is 7 years old, so my prenatal advice would be out of date. :rolleyes:

Find a doctor you are comfortable with.

tarnalberry Community Regular

Unless there's something you haven't mentioned, you have no need for a high-risk doctor. Celiac disease isn't sufficient reason, and you achieved a natural pregnancy. Do start taking a prenatal vitamin along with extra calcium (spread throughout the day). Wait for a blood test to determine if you should be taking iron supplements - you don't want to get too much iron, however unlikely that is.

Stay healthy and there's no particular reason that you shouldn't have a perfectly fine pregnancy. And keep in mind that all the advice in the world out there doesn't trump your own gut instinct. My midwives specifically noted that moderation is the key to everything - it wasn't that I couldn't drink green tea, but shouldn't be drinking cups and cups a day. Most of these things are based on the extra-extra conservative approach, and not hard data.

lisa25 Rookie

I take Country Life Maxi Prenatal and it seems to do pretty well for me, but it does cost more than some brands. I hadn't had very good luck in the past finding any type of multivitamin that didn't make me feel sick. These are gelcaps...supposed to take them three times a day. They say gluten free, milk free, soy free, etc. on the bottle.

  • 1 month later...
lucia Enthusiast

I'm still in SHOCK. I was told 4 years ago that I would need an egg donor. Hubby has severe problems too. Due to financial and health problems, we never pursued it. Today, my period was 3 days late and I took a test to get the hope of pregnancy out of my mind. I'm pregnant.

How is your pregnancy going?

SGWhiskers Collaborator

How is your pregnancy going?

Thank you for asking. We had our 12 week ultrasound today. I got to see it's little fingers waving at me while it flipped all around while the ultrasound tech tried to get good images for the nuchal test. I've had very little morning sickness but some pretty strong migraines that without my Imitrex, have had throwing up and miserable for several days at a time. All in all, the pregnancy is going quite well. I gained 15 lbs between weeks 5-9. My hunger was just like when I started the gluten-free diet and ate literally non stop. I got glutened 2 weeks ago and my appetite is starting to recover again. I'm hoping it picks up a little more though. Even though mom was worried about the weight gain, I felt FANTASTIC and liked the idea of baby getting more nutrition. Hopefully the nuchal test comes back with good results and we can rest easy for the next 6 months. Well, as easy as one can rest knowing their world is about to be turned upside down. Oh, and my husband who said he never wanted kids came out of the spare bedroom today after putting a few of my pregnancy books away giggling at the baby clothes sitting on the shelf in the closet. He's gonna be a great daddy.


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mushroom Proficient

Oh, that's great news that I somehow missed whilst we were in the air. Congratulations and I am sure you both will be great as mommy and daddy. :D

kareng Grand Master

Great news!

I had horrible headaches & light headedness while pregnant but they seemed to be from very low blood pressure. Had a patient in the ICU take one look at me and painfully move his legs over & tell me to sit. He was afraid the pregnant lady was going to fall over. I looked that bad! Drinking more water then an elephant seemed to help.

Keep us informed as we are very nosey. :P

SGWhiskers Collaborator

Great news!

I had horrible headaches & light headedness while pregnant but they seemed to be from very low blood pressure. Had a patient in the ICU take one look at me and painfully move his legs over & tell me to sit. He was afraid the pregnant lady was going to fall over. I looked that bad! Drinking more water then an elephant seemed to help.

Keep us informed as we are very nosey. :P

Actually, my lightheadedness has dissappeared since getting pregnant. I think the extra blood supply is helping me too. Since you asked for updates and confessed to being nosey, and since I'm a big mouth, I'll share today's updates.

Jr. passed the ultrasound 1/2 of the nuchal test. The blood test portion will be available in a week. I was worried about the neural tube defect portion of the test the most since I wasn't taking any vitamins when I conceived and since I'm pretty sure I'm not all the way healed from Marsh IIIc damage. My appetite is returning with a vengance now that it has been 14 days since getting glutened. (by the way, don't be an idiot and trust the customer service rep at the grocery store chain when he says he is supposed to refer you to the nutritionist, but he knows that product is gluten free. It was Friday night, the nutritionist wouldn't be back until Monday, and I've had excellent customer service from them in the past).

Also, I heard the heartbeat today and doc says all is well. Baby is dating 2 days older than it really is, but that is probably normal and I'm eating like a pig and hubby and I are both tall. I'm telling myself this so that I can convince myself baby is not on track to being an 11 pounder.

I'm also crazy and think I felt Jr swimming around in there a few days ago. I'm only 12 weeks though and I think that is too early to feel a first baby. I guess it was gas.

kareng Grand Master

I think I felt mine around 12 weeks once or twice. Just sort of a little touch. If I was sitting quietly. Sounds like the little guppy is doing well. :P

T.H. Community Regular

Oh, congrats, congrats, congrats!!!

And I felt one of my midgets that early, so if you have a real little mover and shaker, it's possible. And even if it's gas - hey, no harm in giving yourself a boost and thinking about it.

I hope your pregnancy goes very well and wonderfully!! :D

Frances03 Enthusiast

How exciting! Another pregnancy on the board! I'm almost 17 weeks. This was a surprise too!! I'm really excited. You can start feeling them pretty early especially if they are active little ones! Mine is a total spaz!! I got a heart rate monitor and baby is always kicking it hard and hurting my ears when I try to listen LOL! Good luck with this pregnancy!! I'm happy for you!

SGWhiskers Collaborator

Thanks for the encouragement about the movement. Congrats McPhena! That is very cool about the heart rate monitor. I might look into one of those for fun. On the 12 week ultrasound, the little one didn't stop wiggling and was flipping up and down. Either my gas is getting worse or I'm feeling baby swimming around because now when I'm quiet and relaxed I notice the same sensation more frequently (like once a day 3-8 times in a row). That would be pretty cool if it was Jr. In a few months when I feel a serious kick, I might change my mind about baby vs. gas. For now, I'll think baby.

So, what ointments, creams, meds, stuff will the hospital give me during my stay that I will want to have pre checked for gluten? That darned Vitamin E shows up in everything now. Yes, some may disagree with the need, but I got gluten from hand soap before eating grapes. No gluten is going on my body.

Also, since this is my first baby, I've got no clue what products I need for self care and baby care at home aside from nipple cream, diaper cream, and baby shampoo.

And the Dr. says vitamin E is the only thing that actually really works to help prevent stretch marks. I can't find a lotion sized, pure Vitamin E product that is gluten free.

Oh, and did you see the recent article that children delivered vaginally have a lesser rate of celiac than children delivered by c-section. The researchers were suspecting the benificial bacteria in mom's system was transferred during the birthing process.

kareng Grand Master

I think that when you are about 7 months, call or have your OB's nurse call the Nursing Supervisor for Labor & Delivery where you are going. Make an appt and talk to her about all of this. You can try to talk to the Dietary Dept too but I would just have your hub prepared to bring all your food. You usually aren't at the hospital long after delivery.

Also, I think you are feeling baby. :)

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    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
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      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
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