Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Onset Of Glutening Sx

haleym

By haleym
in Coping with Celiac Disease

How long does it take to get sx from eating gluten.  

29 members have voted

You do not have permission to vote in this poll, or see the poll results. Please sign in or register to vote in this poll.

Recommended Posts

haleym Contributor
haleym
Posted

Just curious to see what you all have for a reaction time on average if you accidentaly eat gluten. I usually feel it gradually build up from within a couple hours with the worst coming the day or two after. What about you all?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


SocalLinz Newbie
SocalLinz
Posted

Just curious to see what you all have for a reaction time on average if you accidentaly eat gluten. I usually feel it gradually build up from within a couple hours with the worst coming the day or two after. What about you all?

My gastro symptoms hit within 1-2 hours and my cluster headaches start within 1-8 hours.

ravenwoodglass Mentor
ravenwoodglass
Posted

This was a hard question to answer. I get my gluten ataxia and my tummy starts to growl within a couple hours, migraines come the next day along with joint pain and an overwhelming depression but the upset tummy doesn't arrive until 2 or 3 days later. My whole reaction takes about 3 weeks to resolve. My 'pattern' makes it pretty clear to me when I get glutened as there is never any doubt it was gluten and not some bug I picked up. I guess in that respect I am lucky to have multiple system impact.

summerteeth Enthusiast
summerteeth
Posted

My answer wasn't exactly a black-or-white one... there is definitely a grey area for me. Sometimes it can take a few days. Other times, it is the following day. A reaction for me is never really immediate, which makes it hard for me to pinpoint exactly when. Plus, one of my major symptoms is C, so it can take a few days to realize I have been glutened.

If I get a migraine, though, I know I have been glutened in the last few days.

Jestgar Rising Star
Jestgar
Posted

My tummy starts to hurt within a few minutes. I use this as a way to 'test' before eating something someone else has prepared. An hour or so later I get headache/fatigue.

kwylee Apprentice
kwylee
Posted

I don't have celiac disease, but have tested gluten/casein sensitive. 90% of my worse symptoms are neurological, especially the sensation of dizziness within 10 minutes after eating, but I can get brain fog anytime, even if I haven't ingested anything reactive (just about 7 weeks into this, so still in the healing process, I am sure).

When I first went gluten-free/CF, the reaction would last for about 18 hours, but that is drastically less these days, down to just a couple of hours.

knittingmonkey Newbie
knittingmonkey
Posted

... I usually feel it gradually build up from within a couple hours with the worst coming the day or two after. What about you all?

Yep, that's me.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Canadian Girl Apprentice
Canadian Girl
Posted

I bloat out like a balloon w/in minutes, than get cramps and veryy moody. These symptoms last from about 6 hrs to 2 days :S

vbecton Explorer
vbecton
Posted

Got glutened yesterday ... BOOOOO! My symptoms start within 1 hour. I bloat like a balloon, the gas starts, then nausea, then the blood sugar drops, then the headaches. My blood sugar will dip all night long into the next day. Then I get pissy. My foul mood spilled over today because I snapped at my friend who said her salsa was gluten free...so I said "SALSA IS SUPPOSED TO BE GLUTEN FREE, WHAT KIND OF CRAPPY SALSA NEEDS GLUTEN!" I'll have to apologize tomorrow :o

kwylee Apprentice
kwylee
Posted

Got glutened yesterday ... BOOOOO! My symptoms start within 1 hour. I bloat like a balloon, the gas starts, then nausea, then the blood sugar drops, then the headaches. My blood sugar will dip all night long into the next day. Then I get pissy. My foul mood spilled over today because I snapped at my friend who said her salsa was gluten free...so I said "SALSA IS SUPPOSED TO BE GLUTEN FREE, WHAT KIND OF CRAPPY SALSA NEEDS GLUTEN!" I'll have to apologize tomorrow :o

Funny post! That's the first good belly laugh I've had in awhile!

Thanks for that!

vbecton Explorer
vbecton
Posted

Funny post! That's the first good belly laugh I've had in awhile!

Thanks for that!

Ha! No problem, I knew you guys could understand!

Skylark Collaborator
Skylark
Posted

Where's the "anywhere from 4 to 24 hours" option? :lol:

Lgood22573 Rookie
Lgood22573
Posted

15-20 mins my stomach starts to bloat and hurt. This lasts for hours and then the humdinger bathroom visits are usually 6-8 hrs later.

Almendra Apprentice
Almendra
Posted

Got glutened yesterday ... BOOOOO! My symptoms start within 1 hour. I bloat like a balloon, the gas starts, then nausea, then the blood sugar drops, then the headaches. My blood sugar will dip all night long into the next day. Then I get pissy. My foul mood spilled over today because I snapped at my friend who said her salsa was gluten free...so I said "SALSA IS SUPPOSED TO BE GLUTEN FREE, WHAT KIND OF CRAPPY SALSA NEEDS GLUTEN!" I'll have to apologize tomorrow :o

vbecton,

Oddly enough, I was just settling down to eating salsa at a Mexican restuarant (after they had carefully prepared food for me in separate oil) when the waitress told me, "Stop!" They actually put a gluten-containing chicken baste in their Salsa! It's good salsa, so I guess anyone who can have gluten has no reason to complain. But, sadly, yeah, salsa can be dangerous!

vbecton Explorer
vbecton
Posted

vbecton,

Oddly enough, I was just settling down to eating salsa at a Mexican restuarant (after they had carefully prepared food for me in separate oil) when the waitress told me, "Stop!" They actually put a gluten-containing chicken baste in their Salsa! It's good salsa, so I guess anyone who can have gluten has no reason to complain. But, sadly, yeah, salsa can be dangerous!

OMG! I can't believe they add chicken baste to salsa. HOLY COW! Good to know info though as now I'll pay more attention. I'm from south Texas and we take our salsas and Tex-Mex ultra seriously. It's almost a sport around here to grow the best tomatoes & jalapenos for the best salsa. I'm so glad they told you and you avoided a glutening :D

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,199
    • Most Online (within 30 mins)
      7,748
    Stacy M
    Newest Member
    Stacy M
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Redanafs
      Diagnosis and further testing Celiac

      By Redanafs · Posted

      Hi everyone. Back in 2022 I had blood work drawn for iga ext gliadin. Since then I’ve developed worse stomach issues and all other health issues. My doctor just said cut out gluten. He did no further testing. Please see my test results attached. I just need some direction cause I feel so ill and the stomach pain is becoming worse. Can this test show indications for other gastrointestinal diseases?
    • Fayeb23
      Waiting Gastroenterology review

      By Fayeb23 · Posted

      Thank you. These were the results TTG ABS NUMERICAL: > 250.0 U/mL [< 14.99]  Really don’t understand the results!
    • Scott Adams
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Scott Adams · Posted

      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
    • RMJ
      Waiting Gastroenterology review

      By RMJ · Posted

      To evaluate the TTG antibody result we’d need to know the normal range for that lab.  Labs don’t all use the same units.  However, based on any normal ranges that I’ve seen and the listed result being greater than a number rather than a specific number, I’d say yes, that is high! Higher than the range where the test can give a quantitative result. You got good advice not to change your diet yet.  If you went gluten free your intestines would start to heal, confusing any further testing,
    • Bev in Milw
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Bev in Milw · Posted

      Scott is correct….Thank you for catching that!      Direct link for info  of fillers.    http://www.glutenfreedrugs.com/Excipients.htm Link is on 2nd page  of www.glutenfreedrugs.com   Site was started by a pharmacist (or 2) maybe 15-20 yrs ago with LAST updated in  2017.  This makes it’s Drug List so old that it’s no longer relevant. Companies & contacts, along with suppliers &  sources would need to be referenced, same amount effort  as starting with current data on DailyMed      That being said, Excipient List is still be relevant since major changes to product labeling occurred prior ’17.           List is the dictionary that sources the ‘foreign-to-us’ terms used on pharmaceutical labels, terms we need to rule out gluten.    Note on DailyMed INFO— When you look for a specific drug on DailyMed, notice that nearly all of companies (brands/labels) are flagged as a ‘Repackager’… This would seem to suggest the actual ‘pills’ are being mass produced by a limited number of wholesaler suppliers (esp for older meds out of  patent protection.).      If so, multiple repackager-get  bulk shipments  from same supplier will all  be selling identical meds —same formula/fillers. Others repackager-could be switching suppliers  frequently based on cost, or runs both gluten-free & non- items on same lines.  No way to know  without contacting company.     While some I know have  searched pharmacies chasing a specific brand, long-term  solution is to find (or teach) pharmacy staff who’s willing help.    When I got 1st Rx ~8 years ago, I went to Walgreens & said I needed gluten-free.  Walked  out when pharmacist said  ‘How am I supposed  to know…’  (ar least he as honest… ). Walmart pharmacists down the block were ‘No problem!’—Once, they wouldn’t release my Rx, still waiting on gluten-free status from a new supplier. Re: Timeliness of DailyMed info?   A serendipitous conversation with cousin in Mi was unexpectedly reassuring.  She works in office of Perrigo, major products of OTC meds (was 1st to add gluten-free labels).  I TOTALLY lucked out when I asked about her job: “TODAY I trained a new full-time employee to make entries to Daily Med.’  Task had grown to hours a day, time she needed for tasks that couldn’t be delegated….We can only hope majorities of companies are as  conscientious!   For the Newbies…. SOLE  purpose of  fillers (possible gluten) in meds is to  hold the active ingredients together in a doseable form.  Drugs  given by injection or as IV are always gluten-free!  (Sometimes drs can do antibiotics w/ one-time injection rather than 7-10 days of  pills .) Liquid meds (typically for kids)—still read labels, but  could be an a simpler option for some products…
×
×
  • Create New...