Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Glutened Or Not?


jasonD2

Recommended Posts

jasonD2 Experienced

So my lower GI was doing great for several months..i was on a super strict diet then started Alinia for parasites and repopulated my flora with high dose probiotics. a few weeks ago I ate some coconut sorbet and ever since my regularity is off and i have been bloating constantly. Not sure if i just triggered an IBS flare up or if i exposed myself to gluten somewhere. The sorbet was gluten free so i dont know if it was that. i have been much more liberal with food lately and have been eating more fruits and stuff but my whole system is out of whack. Even a few months ago when i was stable I was able to eat new things without any problem and even felt fine after eating out in restaurants. For the past few days i have had difficulty going to the bathroom and my stools have been thin and floating. I get this every once and a while and still dont know if its gluten or something else.

I just started dating a wonderful girl and i can live in a bubble and go back to a super restricted diet now...i want to take her out for dinner and enjoy myself. But what am i supposed to do? There are too many what ifs...what if i still have parasites? what if the gum she chews or her make up has gluten in it? What if eating out puts me at risk for more problems like autoimmune issues, lowering of intestinal sIGA which will cause more bugs to proliferate, etc, etc.

As some of you know my mental attitude has been great for severeal months...i almost feel like a new person...but i am just scared s**tless about eating again


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



burdee Enthusiast

So my lower GI was doing great for several months..i was on a super strict diet then started Alinia for parasites and repopulated my flora with high dose probiotics. a few weeks ago I ate some coconut sorbet and ever since my regularity is off and i have been bloating constantly. Not sure if i just triggered an IBS flare up or if i exposed myself to gluten somewhere. The sorbet was gluten free so i dont know if it was that. i have been much more liberal with food lately and have been eating more fruits and stuff but my whole system is out of whack. Even a few months ago when i was stable I was able to eat new things without any problem and even felt fine after eating out in restaurants. For the past few days i have had difficulty going to the bathroom and my stools have been thin and floating. I get this every once and a while and still dont know if its gluten or something else.

Are you certain that you reacted to ingredients in the coconut sorbet and not some other food that might have contained one of your other allergens? What do you mean by "my whole system is out of whack"? I usually don't continue to react more than 2 weeks even after consuming gluten and much less to any of my other 6 food allergens. Are you certain that you don't have a new intestinal infection (parasites or bacteria)? You said you haven't retested after treating for parasites. I encourage you to retest before you start restricting your diet even more. Have you continued taking the high dose probiotics?

SUE

K8ling Enthusiast

I am allergic to coconut as well as being celiac...It complicates things. I would start looking for other allergies or seeing if possibly the sorbet was cc'd

jasonD2 Experienced

i was initially able to tolerate a small amount of the sorbet but i had a large quantity which did me in- dont think it was CC'd

jerseyangel Proficient

I was also going to suggest a problem with coconut. I'm intolerant to it--gives me terrible indigestion and migraines.

i-geek Rookie

i was initially able to tolerate a small amount of the sorbet but i had a large quantity which did me in- dont think it was CC'd

Could it be the sugar? Or maybe a combination of sugar and coconut? Too much sugar upsets my stomach.

sickchick Community Regular

Poor guy.

Doesn't enterolab do parasite testing?

We'll get you all fixed up, eventually!! B)

lovelove

sickchick


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Skylark Collaborator

I'm wondering about the probiotic. People tolerate different probiotics differently. Sometimes a probiotic that works great for one person makes another quite sick.

julandjo Explorer

I'm another one who can't tolerate coconut. It's almost as bad as getting glutened.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    2. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    3. - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

    4. - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

    5. - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748

    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • asaT
      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.