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Glutened Or Not?

jasonD2

By jasonD2
in Coping with Celiac Disease

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jasonD2 Experienced
jasonD2
Posted

So my lower GI was doing great for several months..i was on a super strict diet then started Alinia for parasites and repopulated my flora with high dose probiotics. a few weeks ago I ate some coconut sorbet and ever since my regularity is off and i have been bloating constantly. Not sure if i just triggered an IBS flare up or if i exposed myself to gluten somewhere. The sorbet was gluten free so i dont know if it was that. i have been much more liberal with food lately and have been eating more fruits and stuff but my whole system is out of whack. Even a few months ago when i was stable I was able to eat new things without any problem and even felt fine after eating out in restaurants. For the past few days i have had difficulty going to the bathroom and my stools have been thin and floating. I get this every once and a while and still dont know if its gluten or something else.

I just started dating a wonderful girl and i can live in a bubble and go back to a super restricted diet now...i want to take her out for dinner and enjoy myself. But what am i supposed to do? There are too many what ifs...what if i still have parasites? what if the gum she chews or her make up has gluten in it? What if eating out puts me at risk for more problems like autoimmune issues, lowering of intestinal sIGA which will cause more bugs to proliferate, etc, etc.

As some of you know my mental attitude has been great for severeal months...i almost feel like a new person...but i am just scared s**tless about eating again

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burdee Enthusiast
burdee
Posted

So my lower GI was doing great for several months..i was on a super strict diet then started Alinia for parasites and repopulated my flora with high dose probiotics. a few weeks ago I ate some coconut sorbet and ever since my regularity is off and i have been bloating constantly. Not sure if i just triggered an IBS flare up or if i exposed myself to gluten somewhere. The sorbet was gluten free so i dont know if it was that. i have been much more liberal with food lately and have been eating more fruits and stuff but my whole system is out of whack. Even a few months ago when i was stable I was able to eat new things without any problem and even felt fine after eating out in restaurants. For the past few days i have had difficulty going to the bathroom and my stools have been thin and floating. I get this every once and a while and still dont know if its gluten or something else.

Are you certain that you reacted to ingredients in the coconut sorbet and not some other food that might have contained one of your other allergens? What do you mean by "my whole system is out of whack"? I usually don't continue to react more than 2 weeks even after consuming gluten and much less to any of my other 6 food allergens. Are you certain that you don't have a new intestinal infection (parasites or bacteria)? You said you haven't retested after treating for parasites. I encourage you to retest before you start restricting your diet even more. Have you continued taking the high dose probiotics?

SUE

K8ling Enthusiast
K8ling
Posted

I am allergic to coconut as well as being celiac...It complicates things. I would start looking for other allergies or seeing if possibly the sorbet was cc'd

jasonD2 Experienced
jasonD2
Posted
  • Author

i was initially able to tolerate a small amount of the sorbet but i had a large quantity which did me in- dont think it was CC'd

jerseyangel Proficient
jerseyangel
Posted

I was also going to suggest a problem with coconut. I'm intolerant to it--gives me terrible indigestion and migraines.

i-geek Rookie
i-geek
Posted

i was initially able to tolerate a small amount of the sorbet but i had a large quantity which did me in- dont think it was CC'd

Could it be the sugar? Or maybe a combination of sugar and coconut? Too much sugar upsets my stomach.

sickchick Community Regular
sickchick
Posted

Poor guy.

Doesn't enterolab do parasite testing?

We'll get you all fixed up, eventually!! B)

lovelove

sickchick

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Skylark Collaborator
Skylark
Posted

I'm wondering about the probiotic. People tolerate different probiotics differently. Sometimes a probiotic that works great for one person makes another quite sick.

julandjo Explorer
julandjo
Posted

I'm another one who can't tolerate coconut. It's almost as bad as getting glutened.

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      celiac, chocolate and alcohol

      By trents · Posted

      So, you had both and endoscopy with biopsy and a colonoscopy. That helps me understand what you were trying to communicate. No, no! It never occurred to me that you were trying to mislead me. It's just that we get a lot of posters on the forum who are misinformed about what celiac disease is and how it is diagnosed so I need some clarification from you which you were so gracious to give.
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    • barb simkin
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      By barb simkin · Posted

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