Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dr Wants More Mammogram Films

Skylark

Recommended Posts

Skylark Collaborator
Skylark
Posted

I had my first screening mammogram a couple weeks ago. Didn't think anything of it. Yesterday I got a call out of the blue to schedule more films and an ultrasound. :unsure:

Dr's office didn't even call me to tell me there was an issue. I got on the phone and called them. A nurse called back, said there was no info in my chart, only the order for more films. She couldn't tell me anything else. I didn't get to talk to the Dr.

Now I'm scared half to death. Is it normal to go for more tests after a first mammogram so they know how things look? Has anyone else had this happen and it turned out to be nothing? I keep trying not to cry here at work from fear. The appointment is Monday and I don't know how I'm going to make it through the weekend.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mushroom Proficient
mushroom
Posted

I had my first screening mammogram a couple weeks ago. Didn't think anything of it. Yesterday I got a call out of the blue to schedule more films and an ultrasound. :unsure:

Dr's office didn't even call me to tell me there was an issue. I got on the phone and called them. A nurse called back, said there was no info in my chart, only the order for more films. She couldn't tell me anything else. I didn't get to talk to the Dr.

Now I'm scared half to death. Is it normal to go for more tests after a first mammogram so they know how things look? Has anyone else had this happen and it turned out to be nothing? I keep trying not to cry here at work from fear. The appointment is Monday and I don't know how I'm going to make it through the weekend.

I'm so sorry you're scared half to death by this. They really don't know what dread these calls place in our hearts. It is not unusual to request follow-up fillms - I always used to expect them because I have very fibrocystic breasts and they could never visualize things properly or did not know what they were seeing. Most often it is nothing at all to worry about. I have had oodles of follow-up films, ultrasounds, biopsies, and still have both intact boobs :D. And I have a very strong family history of breast cancer to boot - grandmother, mother, two sisters. So while I know it is alarming, do try not to be too alarmed because it will most likely turn out to be nothing to worry about. But they do want to make sure, which is good :)

ksymonds84 Enthusiast
ksymonds84
Posted

This happened to me last year. For me it was that they needed to compress a little tighter on one side to see better. It was all good. It did scare me to death though. Like you they also waited a couple weeks to inform me that I needed to come back in for more images. The one thing they told me which may help you is that they don't wait two weeks if they see something suspicious, they haul you in that same day of your mammogram if they see something that could be serious. Will be thinking of you!

jerseyangel Proficient
jerseyangel
Posted

This happened to me too. I had to go back and have another film of the right side--they needed a clearer look because I had very dense breast tissue. Everything was fine, thank goodness, but I had the same sheer panic as you do now when I got the call. The nurse the day I went back told me that this happens sometimes.

(((hug))) take a deep breath :)

Roda Rising Star
Roda
Posted

It's hard not to think the worst. There are alot of reasons for follow up films. Women who have dense breast tissue are harder to see things on a mammogram. Tissue can be superimposed and can give the appearance of something abnormal. Other benign findings can be cysts, fibroadenomas and benign calcifications just to name a few. The ultrasound will help tell them if the area is fluid filled or solid and can help identify if the borders are irregular or smooth. Alot of the time they either need to do additional views to see if it is superimposed tissue or can do magnification views to see something better. In the breast center I worked at the radiologist would always come in and review the extra images with the patient and tell them what they saw before they left. I'm not sure that is how your center works or not.

Skylark Collaborator
Skylark
Posted
  • Author

Thanks so much everyone. It helps a LOT to know that this is a normal process. Also helps to know that they would have hauled me right back if they saw something bad and not just a little unclear.

I'm new to the screening and I have a friend who had breast cancer surgery and radiation therapy last year so it's fresh in my mind. I'm er... well endowed... so I guess it's no surprise they couldn't visualize everything perfectly the first time round.

Darn210 Enthusiast
Darn210
Posted

I've had to do this too . . . sometimes immediately if the radiologist is there and sees them before I've left. Last year I got called back in the same week. I've had additional films and ultrasounds done.

I also have dense fibrocystic breasts. I tell the rad tech that I'm dense (*cough*)and to squeeze 'em good so I don't have to come back . . . that has actuall helped . . . :P I also asked the tech if women with fibrocystic breasts are at a higher risk for breast cancer. She said no, but they are MUCH more likely to be called back for second looks.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Skylark Collaborator
Skylark
Posted
  • Author

Thanks, Janet

I got another call from the center confirming my appointment and they actually said something about dense tissue. I guess they just couldn't see everything.

You gals have been so helpful. I'm not worried any more, which is a great change from this morning. It's so nice to have a community of kind, supportive people to turn to! :wub:

jerseyangel Proficient
jerseyangel
Posted

I'm not worried any more, which is a great change from this morning.

The first thing I thought when I read your post yesterday was--jeesh, why do these things always seem to happen on a Friday! I'm glad you won't have to be anxious about it all weekend. :D

kareng Grand Master
kareng
Posted

Thanks, Janet

I got another call from the center confirming my appointment and they actually said something about dense tissue. I guess they just couldn't see everything.

You gals have been so helpful. I'm not worried any more, which is a great change from this morning. It's so nice to have a community of kind, supportive people to turn to! :wub:

Many years ago, I used to read the mammogram reports to see if they found anything to put on the billing as a diagnosis for the people who needed repeat or extra x-rays & thus more charges. Most of them had dense tissue that required some extra angles and shots but nothing found. Since this was your first, they didn't have anything to compare it to. Next year should go smoother as they will know what is normal for you.

ravenwoodglass Mentor
ravenwoodglass
Posted

Yea I had this happen to me too and as you have seen from the other responses it is not unusual. I have had a couple times when they would send me straight in for an ultrasound after making me sit until the mammo was read. Try not to worry about it.

Juliebove Rising Star
Juliebove
Posted

I had the dense tissue too. Needed a 2nd one. But no problem in the end.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,922
    • Most Online (within 30 mins)
      7,748
    Linda Higgs
    Newest Member
    Linda Higgs
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Ginger38
      Confused About Results

      By Ginger38 · Posted

      Okay, Thank you!! I already have thyroid problems and my total iron binding capacity is high which usually means low iron but everything else was normal, lower end but “normal” my hair falls out and my nails won’t grow without breaking but nothing is being treated iron wise.  I have started having palpitations and chest pain,  both of which seem to be attributed to exposure to gluten. I’ve also been having a lot of nightmares, anxiety, numbness and tingling, brain fog, spotting between cycles and acne. Idk if all those are relatable to gluten / celiac but I’m concerned  I’ve finally tipped my body/ immune system into a bad place. Is there anyway to detox and heal faster or treat these symptoms if related to gluten ? 
    • knitty kitty
      Waiting on biopsy after positive bloodwork, but also not really believing this is real

      By knitty kitty · Posted

      @Alibu, Start with this study... High-dose thiamine supplementation improves glucose tolerance in hyperglycemic individuals: a randomized, double-blind cross-over trial https://pubmed.ncbi.nlm.nih.gov/23715873/ "Conclusion/interpretation: Supplementation with high-dose thiamine may prevent deterioration in fasting glucose and insulin, and improve glucose tolerance in patients with hyperglycemia. High-dose thiamine supplementation may prevent or slow the progression of hyperglycemia toward diabetes mellitus in individuals with impaired glucose regulation." They used 100 mg of thiamine three times a day.  They don't say which kind of thiamine was used.  Benfotiamine is my recommendation because it has been shown to promote intestinal health and helps with leaky gut and SIBO.  Thiamine forms including Benfotiamine and TTFD are safe and nontoxic even in higher doses.   The old "gold standard" diagnosis is changing.  It must be confusing for doctors as well.  I went through all this myself, so I understand the frustration of the vagueness, but set your course and watch as your health improves. Keep us posted on your progress!   P.S. here's another link.... https://pubmed.ncbi.nlm.nih.gov/39642136/
    • Alibu
      Waiting on biopsy after positive bloodwork, but also not really believing this is real

      By Alibu · Posted

      @knitty kitty I see, thank you!!  Yes, basically the biopsy just said "normal villous architecture."  It didn't give any kind of Marsh score at all, but it sounds like it would be a 0 based on the biopsy report, which is why he's saying it's Latent or Potential celiac.  It's just weird because I know in Europe if I was a child, they wouldn't even do the biopsy, so how does this system make any sense?? I have had an A1c and it's normal.  I do know that I have insulin resistance, however, so there's that. Wow, thank you for all this information!!!  I have a lot of reading to do!
    • trents
      Diagnosis confusion

      By trents · Posted

      That is one issue but the bigger issue may be the human tendency to rationalize it all away without an official diagnosis such that you keep falling off the gluten free bandwagon. But there is the option of going for the gluten challenge in a more robust way and getting retested.
    • Scott Adams
      foods

      By Scott Adams · Posted

      Welcome to the forum!  Do you mean that you eat food from fryers that also cook gluten items, and you don't have serious issues? If so, the problem with this approach is that, depending on how often you do this, you could be causing villi damage if you have celiac disease (you haven't mentioned whether or not you have celiac disease), which can lead to more serious issues later.
×
×
  • Create New...