Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is Cancer Inevitable For Me?


jasonD2

Recommended Posts

jasonD2 Experienced

with the constant burden of leaky gut, parasites, bacterial overgrowth and food allergies should i just accept the fact that I will be getting cancer at some point in the next 10-15 years? my problems cant be corrected because nothing is working...i may feel better for a few months but i then relapse and all my symptoms return in full force. is it juts a matter of time?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bluebonnet Explorer

unfortunately the "c" word can strike anyone. i battle with that thought daily. i hope it doesn't. harder to do than say but being positive and optimistic can help your physical health tremendously. prayer, meditation, faith and hope are important too. just keep staying away from what you *know* makes you sick. try to sleep, exercise and find people/things/hobbies that make you happy regularly. that's all anyone can do really. best wishes. :)

India Contributor

Nothing is inevitable - it's amazing what the human body can endure and survive and there are many people on this board who are a testament to that. From what I understand, there is a slightly elevated risk of cancer for celiacs but that's all. If you believe the worst will happen, you may miss out on the chance to make the most of all the time you have left, whether that's 15 years or 50. All you can do is take the best care of yourself that you can - and the rest is left to chance.

Sorry - this is a string of cliches! - but I'm sure other people will reassure you too.

ravenwoodglass Mentor

I went over 40 year mis- and undiagnosed. I am cancer free. Will it develop down the line either from being misdiagnosed, working with chemicals without gloves, smoking for so many years, a occasional drink or not drinking well who knows.

I will not spend time worrying about it. Now making a left hand turn in heavy traffic and getting broadsided that I will worry about. :D

I have a plaque in my kitchen that says:

"Worrying does not empty tomorrow of it's troubles,

It empties today of it's strength."

A very wise saying, just wish I knew who to credit for it.

scarlett77 Apprentice

with the constant burden of leaky gut, parasites, bacterial overgrowth and food allergies should i just accept the fact that I will be getting cancer at some point in the next 10-15 years? my problems cant be corrected because nothing is working...i may feel better for a few months but i then relapse and all my symptoms return in full force. is it juts a matter of time?

Awe I just want to give you a great big hug. I wish there was a hugging emoticon.

jasonD2 Experienced

is this risk elevated for celiacs who continue to consume gluten or people w/ celiac in general?

Skylark Collaborator

For starters, no you are not guaranteed cancer. Celiac related cancer is very rare and I am not aware of any cancer risk associated with infections or allergies. Risk is only elevated in celiacs who continue to consume gluten.

That said, I am concerned about your state of mind. You sound very stressed out and very worried. Is there a possibility that your relapse has made you depressed? (Remember, our minds and bodies are linked and when one is not working right, the other often follows.)

You could try a test like the Hamilton Depression Scale. If you come up depressed, you might want to seek some help coping while you get through this round of GI trouble.

Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



burdee Enthusiast

with the constant burden of leaky gut, parasites, bacterial overgrowth and food allergies should i just accept the fact that I will be getting cancer at some point in the next 10-15 years? my problems cant be corrected because nothing is working...i may feel better for a few months but i then relapse and all my symptoms return in full force. is it juts a matter of time?

I sure hope not! You were a lot younger than I was, when you were diagnosed with celiac and started the gluten free diet. However, I've had about as many gut bug infections as you had. I also have obvious leaky gut symptoms (very sensitive to sorbitol, 7 food allergies, etc.). Nevertheless, I focus on how much healthier I am and will be in the future, because I've dealt with all those problems, rather than accepting the 'ibs' misdiagnosis and letting those things go untreated.

I also get the same kind of symptoms (gastrointestinal pain, bloating and irregularity) whether I have a bacteria, parasite or fungus, whether I accidentally eat an allergen or whether I just react to one of my sensitivities (like sorbitol in prunes or other dried fruit). I consider myself lucky to have obvious though painful symptoms, rather than have other somatic symptoms like joint pain, headaches, fatigue, etc., which docs readily misdiagnose as autoimmune conditions, for which they quickly prescribe drugs to treat the symptoms, rather than eliminating the cause. I've also learned to only see my naturopath for gut problems, but leave the broken bones, ob/gyn exams, etc. to my traditional doc. Ultimately we can be our own health advocate with how we live as well as how we treat our symptoms.

psawyer Proficient

Jason, you asked, "Is cancer inevitable for me?"

I don't really know. How many packs a day do you smoke? Oh, wait, not every smoker develops lung cancer.

A celiac who continues to eat gluten is at a higher risk for certain types of cancer. Higher risk does not equate to a guarantee.

A celiac who follows a strict gluten-free diet is at no greater risk for cancer than a non-celiac in the long term.

sandsurfgirl Collaborator

It's not inevitable for anyone and I think you are depressed if you're thinking this way. That's not a normal or healthy thought process to be going through.

The body just keeps on kicking against tremendous odds. My mother is diabetic but eats sugar like it's going out of style and weighs about 350 pounds. She's still going and has never had cancer. Lots and lots of other health issues and you'd think she wouldn't even be alive but here she is.

My old boyfriend's mother was a raging alcoholic and chain smoker. She put vodka in her coffee, I'm not kidding. She would then drink all day long, hard alcohol and smoke all those cigarettes. Every year when she went for her physical the doc would say how healthy she was. My boyfriend would get so mad because he hoped there would be something wrong to kick her in the butt and get her to stop all the drinking.

Of course it's not inevitable. Stop thinking about it and enjoy your new girlfriend.

Wolicki Enthusiast

OK Jason, it's time for an intervention. Now I say this with care and concern, but YOU HAVE GOT TO GET SOME PROFESSIONAL HELP NOW. This is interfering with every part of your life. You're in a place where you can't see the forest for the trees. People here are really trying to help, but you can only see why the advice won't work.

You've got to spend the energy you currently spend "awfulizing" everything into therapy. Please, don't come up with all the reasons you can't or won't go. Just do it. If you haven't realized by now that this endless worrying is affecting your health, consider yourself told.

Go. Get. Help. Now.

It's time to do this for yourself.

Looking for answers Contributor

Jason, even the CDC agress that 85% of diseases are based on emotion. Meaning negative thoughts and behaviors will lead to disease. I suggest you do whatever it is you need to do to get in a better frame of mind. That's one of the best ways to fight ever getting it.

precious831 Contributor

I know it's very easy to be down and feel this way Jason but if I think of all the bad things, I'll miss out on the good things. I'm grateful for each day I get to live my life, despite the celiac and my other health problems. I think it's important to have a support system. It helps me also that I have a daughter who has multiple food allergies(though most of the time I'm sad about her as well). I tell myself that I have to be strong for her(and for me), that no one else is going to take care of her, she depends on me. I know my faith in God has helped me also. And most of all I believe in miracles.

Please try and talk to a counselor, get some help, nothing wrong with that. Sometimes we just need a little push. Please do what you need to find some joy in living again. I don't believe in reincarnation so for me, it's best to live this one life we've been given to the fullest, no matter what our lot in life is.

India Contributor

I'm no expert but I think I read that the risk returns to normal after five years gluten free - that is, it is untreated coeliac disease/eating gluten which carries the slightly higher risk.

That said, I would expect someone with coeliac disease who knowingly continues to eat gluten to also be neglecting their health and lifestyle in other ways which might also affect well-being.

India Contributor

Sorry Jason, I should've posted that further up. Another brain mush day. Sigh.

oldmann1 Newbie

Awe I just want to give you a great big hug. I wish there was a hugging emoticon.

I have been told by doctors that I should not be alive but, I am still here. With all the seven disorders and illnesses I have, I was told most people do not make it to their 50th birday. I am 57 years old now and still here. Yes, my weight is way down low at the bottom but, I am still here and alive. I have beaten the odds and lived when the government doctors expected to me die.

All I can say is live each day until you die however long that takes.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,859
    • Most Online (within 30 mins)
      7,748

    Lesley-Anne
    Newest Member
    Lesley-Anne
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      Some interesting articles regarding the use of Zinc Carnosine to help heal gastric ulcers, gastritis and intestinal permeability. I would consult a medical professional about it's use. https://www.nature.com/articles/ncpgasthep0778 https://www.rupahealth.com/post/clinical-applications-of-zinc-carnosine---evidence-review https://pmc.ncbi.nlm.nih.gov/articles/PMC7146259/ https://www.fallbrookmedicalcenter.com/zinc-l-carnosine-benefits-dosage-and-safety/
    • Jillian83
      He is. Which makes everything even more difficult. I’m not a believer in “staying for the kids” but I have nowhere to go and it’s not just me, it’s me plus my babies. We live in a beautiful place, lots of land in the country and me and the kids love the place we’ve called home for their entire lives. But Im seeing that he’ll never change, that my kids deserve a happy healthy Momma, and that staying in this as is will be the early death of me. Then I look at the scars covering my entire body…this disease and the chronic stress I’ve been enduring for years that tell me I’m no longer beautiful and no one will ever look at me with interest again. I try self care, try to give myself grace so I can just start loving myself enough to gain strength but the slightest sparkle in my eye and skip in my step attracts his wrath and it all comes crashing ten fold. Life is just absolutely railing me from every single direction leaving me wanting to wave that white flag bc I don’t feel like there’s much hope no matter what happens. 
    • trents
    • Jillian83
      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.