Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Digestive Issues First Week Gluten-Free?


GypsyGirl

Recommended Posts

GypsyGirl Rookie

Hello!

I'm new here, and relatively new to this whole subject (though I've been reading like mad).

For 9 years now I've been on a yeast/candida control diet (no fruit, no refined flowers or refined oils, no sugar, no dairy, nothing fermented, no caffeine, etc.).

I have not been tested for Celiac Disease, but I and my family exactly fit the profile for either Celiac or Gluten Intolerance, and I finally took the plunge to try 30 days gluten-free and see if my symptoms improve. Until now my diet has been very heavy on the wheat.

I've been gluten-free 4 days now, and I can already tell this was the right decision, because some things have improved tremendously (I actually bonked my head on the floor during yoga, because doing my usual bending motion put me much lower than usual, due to the increased space and comfort in my lower belly!). However, (and pardon the TMI, but I suppose you are all used to it:)) my bowel movements have been really loose, near liquid. No cramping (which in the past would have always accompanied such), but a little off schedule as well, and not exactly pleasant. Some excess gas throughout the day, etc...

I'm just looking for some advice while I try to stick it out. Is it likely this is just my system adjusting to the shock of the dietary change? A reaction to adding more vegetables and meat? Does this happen to other people, and is it likely to subside soon?

Any advice or reassurance (or just commisserating LOL) would be very much appreciated.

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



srall Contributor

Yes. I think you need to stick this out while your system adjusts. I discovered my intolerance to gluten (and dairy, soy, caffeine) while on a detox diet so I felt awful for 2 weeks. I think my body was just getting rid of so many things that were poisoning me it made me really sick. Now I've been doing this since March and I'm still trying to figure out the perfect formula. Some days I just feel off, fatigued and foggy and I can't trace it to anything. From what I'm reading it just takes a very long time for your body to heal and recover. Even as much as 2 years. I think if you stick with it you'll continue to improve and feel better.

sandsurfgirl Collaborator

4 days is just the baby steps phase. The body goes through withdrawals and it takes time depending on how sick you were to begin with. It may be that you didn't need all that candida cleanse stuff, that it was always gluten.

(The candida claims are dubious anyway)

Search on here for withdrawals and read old threads to know what to expect and what is "normal."

I had the oddest things happen to me in the beginning. Pooping literally 10 and 12 times per day, some days more, for like 2 or 3 weeks. All manners of D, C and everything in between.

Okay, this one is so TMI but I will share. We all share poop and gas stories on here. It's a party! :lol:

I had this horrible cramp in my side. I'd had pain in my right side off and on for years and after tons of tests they came up with nothing. I was 2 weeks gluten free approximately and one night I was sitting in bed and got that same pain I always had gotten. But this time it was really bad and it was spasming and twitching. Then I got this major anxiety attack (one of my big celiac symptoms) and dizzy spells. I was gasping for breath and had to run to the bathroom. I felt like a pop or something on that right side where I'd had the pain all that time. Then I went to the bathroom, and was having anxiety and dizzy spells and all these weird sensations while I had to go. This stuff came out of me that looked like black tar. And when it was gone my symptoms subsided and I haven't had that pain since.

VERY Twilight Zone! Welcome to celiac!

If you have it, which you likely so since you are having big improvements on the diet, then you'll find all sorts of unexpected good results that you don't think are related to celiac. My anxiety was all due to celiac. Now I only get if I've been glutened. I had chronic sinus infections for years and years. All gone now.

GypsyGirl Rookie

srall and sandsurfgirl - thank you both so much for the replies. It's very reassuring to hear that others have gone through the same and far worse. I am definitely going to stick it out and I'm tentatively hopeful that life may be a whole lot better on the other side.

sandsurfgirl - you may be right that the candida is only a side symptom of the larger problem. Coming off the sugar and fruit and dairy definitely eliminated an array of symptoms that had long been plaguing me and they have not returned as long as I've been on on the diet. But other symptoms have remained regardless, and that is most like the gluten issue. I've also had CFS since I was 13 (I'm turning 38 this weekend), and am currently undergoing the Gupta Amygdala Retraining program to help treat that (which is the first thing in 35 years to actually improve my health), but some debilitating symptoms have remained, and I'm really starting to wonder how many of them may disappear as I continue to be gluten free. There is definitely an anxiety element to the CFS/Amygdala problem as well, and I wouldn't be surprised if the two syndromes are interrelated or one can lead to the other (gluten intolerance to CFS).

Your story sounds SO much like the symptoms my mother has suffered with her whole life. She is most likely celiac as well and I'm trying to get her to get tested. Problem for her is that she's on SUCH a massively restricted diet otherwise (for candida, food allergies, etc.), that she would need something to change in order to be able to remove wheat from her diet and not quite literally starve to death. I'm having enough trouble finding adequate food sources myself, and I have more diversity in my diet than she. I do hope to add in more foods that I haven't yet tested my tolerance for and expand my diet in the long run, but obviously I can't try new things during the initial detox phase, or I would never get any kind of accurate test.

Anyhow, thank you all for the support, and I will definitely be doing more reading of this forum's archives.

I'm about to hop on a plane tomorrow (with my son) for a visit to my parents, during which net access will be spotty, so I really appreciate the quick replies before I take off.:)

Here's hoping my symptoms leave me alone during the flight!

sandsurfgirl Collaborator

I bet the CFS is related to gluten. I will be surprised if you don't get relief.

If I were you I would add back in the fruits and some sugar and stuff, not go crazy or anything, but focus on being gluten free and eating as healthy as you can for gut healing.

Marz Enthusiast

This stuff came out of me that looked like black tar. And when it was gone my symptoms subsided and I haven't had that pain since.

Were you badly const just before this? Sounds IMHO like a impaction that cleared. I've had a similar experience 0.o Also cleared without any further incident, but just weird. I also had liquid d in my first week of going gluten free.

Since then, while I've been properly gluten free (and not challenging myself in some stupid attempt to prove to myself that I am gluten intolerant :angry: ), I haven't had any of these sort of problems.

I think the first few weeks you can expect anything, your system is really adjusting to this new gluten-free diet!

notme Experienced

I am very new here, too. this place has been a Godsend for me! I had a lot of D the first week - a lot - and seemingly out of nowhere but I read *on here* to try going dairy-free for awhile while my body is healing. worked like a charm :) learning to read my body better, too ( after all those years of clean living... NOT! ) I never knew what was wrong with me or how to correct it so whatever. what a huge difference!!! feeling better every day and gained some much needed weight.

in my mechanical mind: I am comparing my neglected and abused digestive system (and the rest of my malnourished systems/senses!) as an old machine that has sat idle for a long while. I keep thinking that my intestines are working now, like I've started that creaky wreck. the pains I'm feeling from time to time are parts that haven't been used properly in a long time? that make any sense?

and detox I expect will continue for awhile.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748

    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • asaT
      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.