Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Very Depressed, Suggestions....


Lindsay630

Recommended Posts

Lindsay630 Rookie

Hi Everyone....

I posted an intro last week after being diagnosed. I am really struggling today with feeling really depressed and like their is no chance of ever leading a normal life again. This diagnosis and new eating style is ruining my relationship with my brand new husband, I resent whenever he eats anything in front of me. I also get super angry when he touches any of my gluten free stuff ie: pots and pans, cooking area... I have one tiny spot in our house and he cannot even stay away from it. I just feel like crying all the time, actually I a crying right now. I don't know how to get over this feeling. I am constantly feeling light headed and weak, like how I use to feel when I didn't eat enough, but I don't know what else to eat so I feel full. I'm just really struggling.... DO any of you have any great words of wisdom for me, suggestions anything to make me feel better?

Thanks,

Lindsay


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Skylark Collaborator

Oh, gosh. Depression is the worst and you do sound clinically depressed. I've been depressed lately from low thyroid so I understand.

Grief can make you depressed, especially with a bunch of other major life changes. You've just married, are starting school, and now a medical diagnosis you weren't expecting. Remember that even wonderful changes like a new spouse can actually be a little stressful. It might just be too much all at once, especially since the celiac diagnosis hit you hard. If you've felt this way for a couple weeks and just can't seem to get back to normal, you might go to your doctor or a therapist. Sometimes you need a little cognitive therapy or an antidepressant to break a cycle of depression once it's set in full force.

As far as light-headed and not feeling full, what are you eating? Are you getting enough protein to even out your blood sugar? White rice and potatoes have a higher glycemic index than breads and I've found I need to eat brown rice and sweet potatoes instead to steady my blood sugar. Fats tend to be filling, so you can drizzle olive oil on your veggies or have some nuts with your meals. If you tolerate dairy, have a little cheese.

ravenwoodglass Mentor

You have had a lot of changes in a short time. You are also newly diagnosed and may be dealing with a bit of withdrawl. It is hard at first for everyone.

(((((((((((((((((((((Hugs))))))))))))))))))))))

There is a world of food that is naturally gluten free. Can you try to design your meals around those? Things like a roasted chicken with some potatoes, beef stew can be made by cutting some of the potatoes real small so they break up and thicken it instead of using flour, Thai Kitchen makes rice noodles that can replace regular ones in pasta dishes, steak and baked potatoes and much more are naturally gluten free. Since you are a student and likely have little time a crockpot and a rice cooker can make life easier. Soups, chili and stews can be made in large amounts so you have more than one meal made with the same effort.

Instead of having you have just a tiny spot in the kitchen give him a small dedicated spot to prepare his sandwiches and have him clean up after himself. He is your partner and this is a big change for him also. If you can get him to come here and read some posts and learn about the CC issues that might help.

If he likes his cakes and brownies get some of the Betty Crocker mixes and keep those on hand so you both have those to turn to when you want a treat instead of him bringing home doughnuts or cupcakes. Try some of the gluten-free breads, Grainless Baker is my currant favorite, Udi's get rave reviews but I can't find that where I am. Kinnickkinnick makes a good bread along with pizza crusts that you can keep on hand to have when he brings home a pizza slice. He might even like them if he trys them himself.

You'll get through this. You both have a lot to learn as this gluten-free lifestyle does take some getting used to. But you will get used to it. I don't know where you are but if you are near a Wegmans they label all their gluten-free food with a circle G and they make life so much easier.

Hang in there it will get better.

GlutenFreeManna Rising Star

It sounds like gluten free is very new to you. It's okay to feel angry and depressed at first. Everyone deals with it in their own way. IF the depression continues for several months I would suggest a counselor and not just for you, ask your husband to go with you to a couples counselor so that you are both on the same page. In the mean time, have you told your husband how you feel? Try to do it at a time when he's not eating and you are not angry or about to cry. Approach him when you are calm and explain you are struggling with this diagnosis and you need him to not eat certain things in front of you right now. If you can, designate a gluten-eating room or zone. I've seen people in mixed households post here that their spouses eat their gluten outside or in a basement or office or some room where they don't go very often. Do you cook the meals and buy most of the food? Perhaps you need to take your household more towards gluten free. If your husband doesn't want to be gluten free at home that's understandable and you can't force it. But you CAN start buying mostly naturally gluten free food for meals you prepare for both of you. It doesn't need to be the expensive gluten free substitutes. Use rice, potatoes, or corn instead of bread or pasta. Eat plenty of lean meat and cooked vegetables. Then try to find some gluten free snacks you like so that when your husband is eating his gluten snacks you have something you can eat. Through all of this, be honest and open with your husband. You may be surprised and he may suggest you make the entire household gluten free. My husband did this for me (without me asking him to) and it made it so much easier to adjust. My husband still eats gluten at restaurants or parties we go to, but there is no gluten in my home.

sb2178 Enthusiast

The first couple of weeks are really rough, and it sounds like you have lots else going on. I was a mess for the first two weeks and then a bit more... uh... irritable/*itchy... for a couple of weeks after that. Adjusting is hard. You'll make it, especially if you reach out to everyone who could possibly help you.

Have you been to a support group? Met with a knowlegable RD (and take hub if you can)? Sometimes taking a few concrete actions can help give you small steps to achieve that are more realistic and less scary than the whole picture. Even something like going and buying a new snazzy lunch box to make packing lunches more fun for school might be nice. I just splurged and bought a new thermos for soup since i'm starting a new full time job and want to be able to take soup often. Oh, and avoid traveling if you can. I did far too much traveling shortly after diagnosis and kept ending up sick.

To eat: spoonfuls of peanut butter, almond butter, cashews, olives, tuna salad. Try more beans and lentils for your carbs instead of things like white rice or corn tortillas. Some days I swear I eat a 1/4 c of peanut butter and I'm still a bit lighter than I think of as normal. Hunger is also pretty common in recently diagnosed. It usually calms down once people are absorbing more nutrients and their weight is close to normal. Were you tested for nutrient deficiencies?

I second everything else above! I made the betty crocker chocolate cake into cupcakes and they worked quite nicely.

Looking for answers Contributor

It's quite possible you have a vitamin/mineral deficiency. I take a liquid vitamin (Isotonix) that's helped me so much with my emotions because I'm getting all the minerals I need from it (I wasn't absorbing enough through food intake).

I also supplement with 5 HTP and SAME, both are available at any health food store. I take both in low doses, which helps keep my mood even despite my sluggish thyroid.

MelindaLee Contributor

Lindsay,

I was just diagnosed 2 weeks ago as well. I know what you mean that it seems like nothing will be normal again. But, I have noticed that many of the restaurants that my dh and I like to visit also have gluten-free options. I was amazed. As I drove home from my doctor, two restaurants I passed had on their display that they have gluten free menus! Did they have it before and I didn't notice??? I have found people in my community that also have celiac. It has been helpful to learn from each other. I have always been a big baker/cook, so I was excited to find cookbooks and try new recipies. Even the Food Network has recipies that are gluten free. I made the best chocolate cupcakes the other day from a cook book called "Baby Cakes" by Erin McKenna. While I was recovering from my surgery to remove my gallbladder (test for the gallbladder revealed my celiac), she was on the Food Network and won "Cupcake Wars". Sometimes we need to focus on what we can do, instead of what we can't anymore. By embracing all the great things we can eat, it won't feel so bad when ther are things we can't. (I just finished a slice of my cheesecake pie...it was yummy! Made with gluten free grahmcracker crumbs, and my same old recipe) Life can still be good! We will all get through this! :-) Hang in there!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lucia Enthusiast

Lindsay,

Hang in there! And you can always talk to us here on the board. We do understand!

Going gluten-free is a huge change for your body and your lifestyle. It takes time to adjust. People experience physical withdrawal from gluten too. You can expect to be out of sorts the first couple of months. But try to remember that you're doing the right thing for yourself!

As people have said, untreated celiac can lead to nutritional deficiencies and other issues. Talk to your doctor, and make sure you are tested for nutritional deficiencies right away, especially B12 deficiency since that will often cause depression. If you can find one who knows anything about celiac, it'd be good for you to see a nutritionist too. But first go see a doctor.

In the meantime, supplements may help you feel better. A good multi-vitamin from Freeda Vitamins is highly recommended. Also, fish oil or flax oil is recommended for low mood.

This is not easy, so try not to be hard on yourself. Keep preservering, and you'll get to a better place!

Lucia

India Contributor

Hi Lindsay,

Other people have already made very good comments but I have one further thing to add, which I hope won't sound insensitive. I decided when I started eating gluten free diet that I was not going to let it bother me that other people can eat things I can't, since gluten-free is forever and forever is a really long time to be upset about something :) In addition, I don't want to make other people feel uncomfortable about their food, especially since I often need them to be sympathetic towards my needs. I hope that in time you can accept that they have their food and you have yours - by now, I don't want to eat that stuff anyway, because it I know it makes me feel wretched.

Regarding cross-contamination (ok, two things to add) I guess I'm lucky that my house is gluten free, except for beer (his, not mine!) - my husband suggested this himself when he realised how much this would help me and make both our lives easier. However, before that, we had decided gluten was the special exception - so all food containing gluten was labelled with florescent stickers and anything else was good for me to eat. I'd also second the suggestion that the gluten-eater is the person with one small area to prepare food. Hope you can get your husband to work with you on this - but do take it easy on him as it's a big adjustment for him too.

Hope you feel better soon x

Lindsay630 Rookie

Thanks Guys....

Today has been a better day... I spoke with my husband and let him read your comments. He has really made an effort this weekend to not make a big deal of eating around me. I also explored a few new options at the grocery store, so hopefully I will start to be able to eat a little more.

I figured out that I am not getting very much protein, especially because I am a vegetarian and have been my whole life. I am going to make a follow up appointment with my doctor to check on the deficiencies many of you mentioned.

Thanks for giving me hope, I intend to become an active part of this community... I hope you will continue to include me.

Thanks Again....

Lindsay

dilettantesteph Collaborator

You might want to look into iodine supplementation. Do you eat iodized salt? Sea salt doesn't have enough iodine. I had terrible problems with depression when glutened. It had already got better before I started iodine supplementation, but when I did, the rest went away too. Now I don't get any depression when glutened, and a lot less irritability too.

nora-n Rookie

Hi, I think there are several vegetarian gluten free food blogs out there. Just that I do not remember where.

Anyone have any links?

Open Original Shared Link

Open Original Shared Link

GlutenFreeManna Rising Star

You might want to look into iodine supplementation. Do you eat iodized salt? Sea salt doesn't have enough iodine. I had terrible problems with depression when glutened. It had already got better before I started iodine supplementation, but when I did, the rest went away too. Now I don't get any depression when glutened, and a lot less irritability too.

I have not read about this connection between iodine and depression, but I avoid iodized salt because I read that it can irritate DH.

dilettantesteph Collaborator

I have not read about this connection between iodine and depression, but I avoid iodized salt because I read that it can irritate DH.

I haven't read about it either. I just experienced it. I just googled iodine and depression and came up with a bunch of stuff, though. My son (age 13) has DH, and we were worried about supplementing him with iodine. Then again, if there is no gluten in his diet, the iodine shouldn't affect the DH right? So we tried it. He found that the iodine made him feel more happy and energetic. It didn't seem to affect his DH.

ravenwoodglass Mentor

I have not read about this connection between iodine and depression, but I avoid iodized salt because I read that it can irritate DH.

Iodine only cause flares while the antibodies are still present in the skin layers. Once you have been breakout free for a time it can and should be added back in as iodine is an important nutrient.

GlutenFreeManna Rising Star

Iodine only cause flares while the antibodies are still present in the skin layers. Once you have been breakout free for a time it can and should be added back in as iodine is an important nutrient.

Thanks Raven. I have gotten used to using Sea Salt and Kosher salt, maybe I will have to pick up some plain table salt with iodine again though. I still have scars from a rash I suspect was DH. I have been worried about it flaring again as I had it for two years and the dermatologist didn't know what it was, just gave me steroid creams to put on it. I have been gluten free for 8 months except for a few accidental glutenings so hopefully that means my antibodies are gone.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,198
    • Most Online (within 30 mins)
      7,748

    Jamie0230
    Newest Member
    Jamie0230
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
    • RMJ
      To evaluate the TTG antibody result we’d need to know the normal range for that lab.  Labs don’t all use the same units.  However, based on any normal ranges that I’ve seen and the listed result being greater than a number rather than a specific number, I’d say yes, that is high! Higher than the range where the test can give a quantitative result. You got good advice not to change your diet yet.  If you went gluten free your intestines would start to heal, confusing any further testing,
    • Bev in Milw
      Scott is correct….Thank you for catching that!      Direct link for info  of fillers.    http://www.glutenfreedrugs.com/Excipients.htm Link is on 2nd page  of www.glutenfreedrugs.com   Site was started by a pharmacist (or 2) maybe 15-20 yrs ago with LAST updated in  2017.  This makes it’s Drug List so old that it’s no longer relevant. Companies & contacts, along with suppliers &  sources would need to be referenced, same amount effort  as starting with current data on DailyMed      That being said, Excipient List is still be relevant since major changes to product labeling occurred prior ’17.           List is the dictionary that sources the ‘foreign-to-us’ terms used on pharmaceutical labels, terms we need to rule out gluten.    Note on DailyMed INFO— When you look for a specific drug on DailyMed, notice that nearly all of companies (brands/labels) are flagged as a ‘Repackager’… This would seem to suggest the actual ‘pills’ are being mass produced by a limited number of wholesaler suppliers (esp for older meds out of  patent protection.).      If so, multiple repackager-get  bulk shipments  from same supplier will all  be selling identical meds —same formula/fillers. Others repackager-could be switching suppliers  frequently based on cost, or runs both gluten-free & non- items on same lines.  No way to know  without contacting company.     While some I know have  searched pharmacies chasing a specific brand, long-term  solution is to find (or teach) pharmacy staff who’s willing help.    When I got 1st Rx ~8 years ago, I went to Walgreens & said I needed gluten-free.  Walked  out when pharmacist said  ‘How am I supposed  to know…’  (ar least he as honest… ). Walmart pharmacists down the block were ‘No problem!’—Once, they wouldn’t release my Rx, still waiting on gluten-free status from a new supplier. Re: Timeliness of DailyMed info?   A serendipitous conversation with cousin in Mi was unexpectedly reassuring.  She works in office of Perrigo, major products of OTC meds (was 1st to add gluten-free labels).  I TOTALLY lucked out when I asked about her job: “TODAY I trained a new full-time employee to make entries to Daily Med.’  Task had grown to hours a day, time she needed for tasks that couldn’t be delegated….We can only hope majorities of companies are as  conscientious!   For the Newbies…. SOLE  purpose of  fillers (possible gluten) in meds is to  hold the active ingredients together in a doseable form.  Drugs  given by injection or as IV are always gluten-free!  (Sometimes drs can do antibiotics w/ one-time injection rather than 7-10 days of  pills .) Liquid meds (typically for kids)—still read labels, but  could be an a simpler option for some products…
    • Ginger38
      So I recently had allergy testing for IGE antibodies in response to foods. My test results came back positive to corn, white potatoes, egg whites. Tomatoes, almonds and peanuts to name a few.  I have had obvious reactions to a few of these - particularly tomatoes and corn- both GI issues. I don’t really understand all this allergy versus celiac stuff. If the food allergies are mild do I have to avoid these foods entirely? I don’t know what I will eat if I can’t  have corn based gluten free products 
    • JForman
      We have four children (7-14 yo), and our 7 year old was diagnosed with NCGS (though all Celiac labs were positive, her scope at 4 years old was negative so docs in the US won't call it celiac). We have started her on a Gluten Free diet after 3 years of major digestive issues and ruling out just about everything under the sun. Our home and kitchen and myself are all gluten-free. But I have not asked my husband/her dad or her other siblings to go completely gluten-free with us. They are at home, but not out of the home. This has led to situations when we are eating out where she has to consistently see others eating things she can't have and she has begun to say "Well, I can't have <fill in the blank>...stupid gluten."  How have you supported your gluten-free kiddos in the mental health space of this journey, especially young ones like her. I know it's hard for me as an adult sometimes to miss out, so I can't imagine being 7 and dealing with it! Any tips or ideas to help with this? 
×
×
  • Create New...