Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Problems With Coffee?


waterlily-

Recommended Posts

waterlily- Explorer

I haven't been drinking coffee for the past few months because I felt sick from it. It's not flavored or anything, just regular cheap coffee, with milk and sugar. Lately I've tried drinking it again and I get EXTREMELY bad gas pains to the point where I can't move or breathe and I still have that sick feeling in the pit of my stomach. Is this gluten related or what? Does anyone else have this problem?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cassP Contributor

coffee can be a HUGE irritant to the intestines (for some people). im addicted to it now- and cant go to the bathroom without it. but when i first started drinking it- (or if i overdo it in one day)- i get MAJOR "D"... and pain.

i also get queasy if i overdo it.

so, the coffee could be irritating you- or even the milk in it. i THINK the only possibility of glutening is if you got a "flavored" coffee... or if someone crosscontaminated your cup or pot.

luvs2eat Collaborator

Going gluten free wasn't too hard. Having to eliminate dairy was REALLY hard. I've learned to drink my coffee black. If I had to give up coffee... I think I'd really have to take the gas pipe!!

I put my coffee into a travel cup for a few weeks so I couldn't see it... that's how I went from coffee w/ milk to black coffee.

I'm so sorry you can't drink coffee. Maybe switching to tea might be better?

dilettantesteph Collaborator

I had problems with coffee (instant). I'm very sensitive. I found that if I get organic beans and wash them with soap and rinse well, I don't get sick. I'm not sure if all that is necessary. I didn't try it without.

cassP Contributor

I had problems with coffee (instant). I'm very sensitive. I found that if I get organic beans and wash them with soap and rinse well, I don't get sick. I'm not sure if all that is necessary. I didn't try it without.

i had heard that the instant coffee had traces of gluten..??

Lisa Mentor

Maybe it's not the coffee, but the milk in your coffee. Dairy can have a "gluten-like" effect on some, until healing can take place.

burdee Enthusiast

Caffeine is one of the substances which can relax esophageal sphincter and cause reflux. So anyone with heartburn, reflux, etc. may want to substitute herbal teas. Even decaf coffee has enough caffeine to exacerbate heartburn for some people.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Skylark Collaborator

Coffee is a pretty major GI irritant. Before I healed there were times I had to switch to tea for a while.

I've read posts where some people have had trouble with ground coffee. It's hard to know why - the best guess is that some flavors have gluten in them and it gets on the grinder. Can you buy whole beans and grind them yourself? Also go for a darker roast, as it's less acidic.

If three is a Peet's in your area, there is no gluten in any of their coffees so you can get a cup to see whether it's the coffee or hidden gluten. Not sure I'd trust Starbuck's for a really thorough test as they keep doing weird corporate "wiggle" language about gluten.

waterlily- Explorer

I can see how it would irritate the gut because it's healing. But, how would the dairy affect it when you mix it in the coffee? And how could I drink it before I went gluten-free?

What if I ground my own coffee, would that make a difference?

About milk, most kinds of milk you buy like in Walmart (for a universal example) makes me sick. I'm guessing it has something to do with the processing it goes through, I don't know. The milk I can drink by the cup fulls is Fieldcrest brand. (not sure if you can only get this here in Florida but I thought I'd put that out there) So I can't see how the dairy could be affecting me when I can eat dairy products fine if they're from certain brands. Why this is I have no idea.

Skylark Collaborator

If you could drink it before, I'd try grinding your own coffee from a known gluten-free brand like Peet's. Coffee tastes better freshly ground anyway. :)

As for the milk, is Fieldcrest antibiotic or hormone free? Some people aren't sensitive to the milk itself, but to the antibiotics in it. Cows on hormones tend to be sicker and given more antibiotics. You might try other kinds of organic dairy.

grainfree Newbie

I haven't been drinking coffee for the past few months because I felt sick from it. It's not flavored or anything, just regular cheap coffee, with milk and sugar. Lately I've tried drinking it again and I get EXTREMELY bad gas pains to the point where I can't move or breathe and I still have that sick feeling in the pit of my stomach. Is this gluten related or what? Does anyone else have this problem?

Welcome. Yes, I did, after switching to a cheaper brand of ground coffee. I took this to mean that I should decrease my coffee consumption and have subsequently increased my water intake (to about 2 liters per day) and find the craving for coffee dissipating. I have also heard about gluten in instant coffee. As Lisa has posted about dairy being the problem; many of my GI upsets vanished when I eliminated dairy from my diet.

The good news, waterlily, is that the gluten free diet will lead to a healthier diet overall. After almost one year gluten free (with two accidental glutenings, one of them from flavored coffee, the other from a crouton) I find that my diet is very much the same as pre gluten free (same likes and dislikes of foods) with only the need to eliminate certain food items. Your body will adjust. Hope the additional information helped. Please seek additional advice should you need to; a beverage should not cause you to not breathe. Be well, and all the best.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - Wheatwacked replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      13

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    5. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748

    Helen1984
    Newest Member
    Helen1984
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • catnapt
      during the gluten challenge I did not consume any wheat germ   the wheat germ is TOASTED - it's the only way it is sold now afiak doesn't matter I consume vast amounts of lectin containing foods PROPERLY prepared and have for well over a decade. They do not bother me in the least.    no anemia however the endo who ordered the celiac panel is the one who suggested the 2 week gluten challenge of eating at least 2 slices of bread per day or a serving of pasta- ALSO put me on a new drug at the same time (not a good idea)  I ate 4 slices because they were thin, or 2 English muffins, and just once some lasagna that someone else made since I stopped eating wheat pasta years ago. The English muffins caused some of the worst symptoms but that pc of lasagna almost killed me ( not literally but the pain was extreme) during those 12 days there were at least 3 times I considered going to Urgent Care.   This entire process was a waste of time TBH due to being on that new drug at the exact same time. it is impossible to tell if the drug I am taking for the possible renal calcium leak is working or not- given the dramatic response to the gluten challenge and resulting nausea (no vomiting) and eventually a loss of appetite and lower intake of foods so now I have a dangerously low potassium level   I don't have a simple case of celiac or no- I have an extremely complicated case with multiple variables I am seeing an endocrinologist for a problem with the calcium sensing glands - that system is very complicated and she has been unable to give me a firm diagnosis after many tests with confusing and often alarming results. She also appears to be inexperienced and unsure of herself. but I don't have the luxury of finding a new endo due to multiple issues of insurance, lack of drs in my area, money and transportation. so I'm stuck with her At least she hasn't given up    in any case I can assure you that lectins are not and never were the problem. I know they are a favorite villain in some circles to point to, but I have ZERO symptoms from my NORMAL diet which DOES NOT contain gluten. The longer I went without bread or foods with wheat like raisin bran cereal, the better I have felt. my body had been telling me for several years that wheat was the problem- or maybe specifically gluten, that remains to be seen- and stopping eating it was the best thing I could have done   I almost had unnecessary MAJOR SURGERY due to joint pain that I ONLY have if I am eating bread or related products I assumed it was the refined grains - never really suspected gluten but it does not matter I won't put that poison in my body ever again not that it is literally poison but it is def toxic to me        
    • knitty kitty
      @catnapt,  I'm sorry you're having such a rough time.   How much wheat germ and how much gluten were you eating? Lectins in beans can be broken down by pressure cooking them.  Do you pressure cook your beans?  Were you pressure cooking your wheat germ? What drugs are you taking?  Some immunosuppressive drugs affect IgA production.  Do you have anemia?
    • catnapt
      oops my gluten challenge was only 12 days It started Jan 21s and ended Feb 1st   worst 12 days of my life   Does not help that I also started on a thiazide-like drug for rule in/out renal calcium leak at the exact same time No clue if that could have been symptoms worse 🤔
    • Wheatwacked
      Welcome to the forum @Known1, What reaction were you expecting? Pipingrock.com High Potency Vitamin D3, 2000 IU, 250 Quick Release Softgels $6.89 I've have been taking the 10,000 IU for close to 10 years. When I started with vitamin D I worked my way up to 10000 over several weeks.  Even at 8000 I felt no noticeable difference.  Then after a few days at 10000 it hit Whoa, sunshine in a bottle.  celiac disease causes malabsorption of dietary D and you've poor UV access.  It took me from 2015 to 2019 to get my 25(OH)D just to 47 ng/ml.  Another two years to get to 80.  70 to 100 ng/ml seems to be the body's natural upper homeostasis  based on lifeguard studies.  Dr. Holick has observed the average lifeguard population usually has a vitamin D 3 level of around 100 ng/ml. Could it be that our normal range is too low given the fact that ¾ or more of the American population is vitamin D deficient? Your Calcium will increase with the vitamin D so don't supplement calcium unless you really need it.  Monitor with PTH  and 25(OH)D tests. Because of your Marsh 3 damage you need to ingest way more than the RDA of any supplement to undo your specific deficiencies. I believe you are in the goiter belt.  Unless you have reason not to, I recommend pipingrock's Liquid Iodine for price and quality.  The RDA is 150 to 1100 mcg.  In Japan the safe upper level is set at 3000 mcg.  Start with one drop 50 mcg to test for adverse response and build up.  I found 600 mcg (12 drops) a day is helping repair my body.  Iodine is necessary to healing.  90% of daily iodine intake is excreted in urine.  A Urine Iodine Concentration (UIC) can tell how much Iodine you got that day.  The thyroid TSH test will not show iodine deficiency unless it is really bad.  
    • xxnonamexx
      I don't know if I am getting sufficient Omega Threes. I read about  phosphotidyl choline may cause heart issues. I will have o do further research on heathy Omega 3 supplements or from foods. Is there a blood test that can tell you everything level in your system such as Thiamine, Benfotiamine levels etc? Thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.