Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

At A Loss


allygirl

Recommended Posts

allygirl Newbie

I am at a loss.

I figured out I have celiac, and after figuring this out discovered my grandmother does too. My mother and brother have since gone gluten-free and both are doing better. They both seem to have more severe reactions to MSG than they do to gluten however.

This past weekend I got VERY sick with what seemed like a cousin reaction to my gluten reaction. I am absolutely certain no gluten was involved and I think it may have been the soy.

I have an appt with an allergist but not until the end of October and right now I'm at a total loss. I have gone to eating plain quinoa cooked in water and drinking iced tea. My body seems to be healing on that. I ate some grapes and my throat started to feel super dry and almost scratchy, my face is hot, and I just feel crummy.

What the heck do I eat? Also I planned on cooking and freezing some things for my honey who is due home from a year long deployment come fall and I'm at an absolute loss as to what to fix.

Living gluten-free was an interesting challenge but it never really tortured me. The thought of being allergic to soy and goodness knows what else has me terrified. I started reading up on lectins and my mom reacts to many many many of the items on the lectin list.

What do I eat?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cassP Contributor

MSG hits me harder than gluten- but only in the short run. MSG bloats me up bigger than any of my intolerances- i easily look 4-5 months pregnant... but it doesnt affect my BM the next day or stay with me like gluten does.

also, my reactions to gluten sometimes differ.

and dont be surprised about additional intolerances.. most of us have them.

it IS possible tho- that SOME intolerances, and SOME "allergic" reactions may just be temporary.. during this healing process- the body goes thru lots of changes and different phases of inflammation- one day your body may be flooded with histamines, and one day you're fine.

it can be a different journey for everyone.

keep checking this forum- lots of good info. and just start googling Gluten Free recipe blogs... you'll be surprised just how yummy things can be :)

Skylark Collaborator

You could try some of the foods on a rare food elimination diet. The idea is to eat stuff you don't usually eat so you won't have an allergy to the food.

Open Original Shared Link

allygirl Newbie

I ended up calling my mom last night and she told me that she AND my brother both react worse to MSG than they do to gluten.

Mystery solved.

I ate some trader Joe's "gluten-free" rice noodles Monday and they have autolyzed Yeast Extract.

MSG.

I think that may be the culprit.

Sigh.

At least I know, that is better. I've been cooking gluten-free and doing so much from scratch out of fear of processed foods I guess I just hadn't run across MSG until now. I'm just grateful to know what happened, much less scary when I know WHAT exactly I am reacting to. I still think my body didn't like soy but maybe I can keep small amounts of it if I'm careful.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,602
    • Most Online (within 30 mins)
      7,748

    Patricia8
    Newest Member
    Patricia8
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • amantelchi
      Your response on this matter is what I expect. You’ve had a similar episode years ago, but this one is lasting longer!
    • amantelchi
      I'd like to clarify: Is the pain you describe in the area just below your chest constant, or does it only appear when you start moving?
    • Jmartes71
      Shingles is dormant and related to chicken pox when one has had in the past.Shingles comes out when stress is heightened.I had my 3rd Shingles in 2023.
    • knitty kitty
      Here's one more that shows Lysine also helps alleviate pain! Exploring the Analgesic Potential of L-Lysine: Molecular Mechanisms, Preclinical Evidence, and Implications for Pharmaceutical Pain Therapy https://pmc.ncbi.nlm.nih.gov/articles/PMC12114920/
    • Flash1970
      Thank you for the links to the articles.  Interesting reading. I'll be telling my brother in law because he has a lot of pain
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.