Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My 11 Year Old Was Glutened For The First Time


sahm-i-am

Recommended Posts

sahm-i-am Apprentice

When I was diagnosed with Celiac I had my daughters tested. Both bloodworks came back negative but my younger daughter wanted to try gluten free to see if it cleared up her GI issues. I am not ready to go through a biopsy with her and a gluten-free diet was the answer anyway so why not? So, she has been voluntarily gluten free for 4 months and feeling much, much better. Yesterday we were at a local farm and they were giving away ice cream. She asked about the cone (good girl!) but didn't think to ask about the lemon ice cream (awww!). I wondered out loud when I saw her eating it but most was gone. 3 hours later poor little thing was feeling it! :( It didn't last long but she had a strong reaction, which confirms her decision to be gluten-free. It is interesting because her reaction to gluten was SO much stronger than mine (I get mild heartburn) and I'm the one with all the positive bloodwork and lazy villi!! Go figure!

I have a question for you experienced GFers - would sudden consumption of gluten cause a reaction in all people that ate a gluten-free diet, regardless of diagnosis of celiac disease or GS/GI? Do you think perhaps that gluten can cause a reaction in everyone if they went gluten-free for a while? Just wondering, curious if it is toxic to all, not just us. And I do think my daughter has GI because of all her digestive issues, but wondering if so many people's bodies are 'addicted' to gluten.

Thanks for listening!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

I have a question for you experienced GFers - would sudden consumption of gluten cause a reaction in all people that ate a gluten-free diet, regardless of diagnosis of celiac disease or GS/GI? Do you think perhaps that gluten can cause a reaction in everyone if they went gluten-free for a while?

Thanks for listening!

No gluten will not cause a reaction in those who are not intolerant of it. If people reacted to food just because they hadn't eaten it in a while we would react to a lot of stuff we only have on holidays or seasonally. People who are not intolerant to gluten can add it in and out all they want with no reaction. That is the reason why eliminating gluten and then challenging with it is a good diagnostic for gluten reactions.

cassP Contributor

i agree with Ravenwood! i do NOT think everyone on a gluten-free diet would react to being glutened.

i do think with 30% of the population carrying DQ genes- that it is POSSIBLE for 30% of the population to be sensitive to gluten... with a subset of that group being intolerant or celiac.

i think there's even more than 30% who might have sensitivities to Wheat Germ Agglutin and other grains, etc..

im very impressed with your daughter- deciding she wanted to try the diet anyways!

also- i think its very possible that she had a reaction because of the dairy..???

and again- i agree with RW-> there's a misconception out there about allergies & intolerances... and that if we havent had something in awhile- then we just need to desensitize to it. there are certain foods that i never even tried till i was almost 30- and i never reacted to them

T.H. Community Regular

Don't believe it causes that reaction in people with no gluten issue, nope. I can say that I've seen no issue with my husband. Our house is gluten free, so he's been gluten free with the rest of us who HAVE to be. When I was making him lunch for work, he didn't get gluten for maybe 3 months straight. Then I stopped for a couple weeks and he had gluten during lunch with no issues at all, you know?

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,991
    • Most Online (within 30 mins)
      7,748

    ZENken
    Newest Member
    ZENken
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Wheatwacked
      Have faith, you will survive. I get mine from Pipingrock.com.  500 capsules of 10,000 IU for $22.  That is almost two years worth for me.  250 caps 5000 IU for $6.69 if you only take 5,000 a day.  It's like half the price of Walmart.
    • Wheatwacked
      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
    • Scott Adams
      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.