Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Glutened? How?


kitgordon

Recommended Posts

kitgordon Explorer

I don't get it. I haven't eaten anything outside of my own home except Uno's gluten free pizza - but that was three days ago. Could it take that long? What else? Kix? Jello mousse temptations? B&M beans? I've eaten all those things before without any reaction.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GlutenFreeManna Rising Star

My glutening symptoms can take up to 72 hours to appear, so yes it could have been cc from Unos. However, I didn't know Kix cereal was safe--what are the ingredients? Have you started using any new personal products like a new shampoo? Make sure vitamins and everything else are gluten free. Also depending on your symptoms it may not be a glutening. The flu is going around where I live.

Rissmeek Newbie

Here's what I found with a quick google search about Kix.

Well, almost, a customer service representative told me today. Kix has been reformulated so that it no longer contains oats. However, the company has decided not to specifically label Kix gluten free nor claim it to be so, as cross-contamination is still a possibility. I

ravenwoodglass Mentor

In myself since it takes three days for the gut reaction to set in my best guess would be the Uno's was CC'd. Can't say for sure since I don't know what other circumstances and stuff you have eaten or if you are living in a gluten-free house or using toiletries with gluten ingredients.

kitgordon Explorer

Thanks all. My house is not completely gluten-free; there are regular bread and cereal and things for the gluten-eaters in separate cabinets. My toaster is seperate and all cooking is gluten free since I am the one doing it. My understanding was that Kix ingredients are safe, but made in a shared facility. I haven't been as careful as some of you are about toiletries and CC, because in 5 months it hasn't been an issue for me. I stopped having symptoms within 5 days of going off gluten, and have had none since (except once when I was silly enough to cheat on vacation - won't be doing THAT again!).

Quite definitely gluten - way TMI, I know, but I was passing mucus and undigested fats just like before the diet. No other flu symptoms.

Perhaps I am becoming more sensitive, and need to be stricter, but I am relieved to know gut symptoms can take 3 days - I thought it would be immediate.

jerseyangel Proficient

I find that the longer I'm gluten-free, the longer it takes for cross contamination to "catch up with me". It's especially irritating when trying a new processed food--it may seem fine for a few days and then the digestive reactions start and I have to back-track and figure out what it is.

wheeleezdryver Community Regular

Here's what I found with a quick google search about Kix.

Well, almost, a customer service representative told me today. Kix has been reformulated so that it no longer contains oats. However, the company has decided not to specifically label Kix gluten free nor claim it to be so, as cross-contamination is still a possibility. I


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dilettantesteph Collaborator

I find that the longer I'm gluten-free, the longer it takes for cross contamination to "catch up with me". It's especially irritating when trying a new processed food--it may seem fine for a few days and then the digestive reactions start and I have to back-track and figure out what it is.

I find the same thing. Also sometimes things that I've been eating fine for ages start to bother me. I don't know if it is an increase in sensitivity or a change in processing.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,029
    • Most Online (within 30 mins)
      7,748

    Nancy N Rosen
    Newest Member
    Nancy N Rosen
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.