Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Don't Know Whats Happening To Me


jasonD2

Recommended Posts

jasonD2 Experienced

I swear I think its a curse cause the past 2 summers i felt great and as soon as fall sets in i start feeling like crap again.

I had the PillCam capsule endoscopy on Friday and basically had to fast for 24 hrs. I expelled the capsule friday night but since then i feel like my gastritis has returned and am constipated again. i have burning 20-45 min after meals and cant eat large meals w/o discomfort. i thought this hell was in the past and now it looks like its starting up all over again...i cant handle another winter of depression and illness...i cant! My life has been going so well since March...work is great, have a girlfriend and been feeling so much better....as most of you know i barely even posted on the forum for the past few months and when i do its not my usual neurotic tirades.

Im freaking out and have been depressed all day with my eyes filling up constantly...i havent had these emotions literally since January. What do I do?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gofluoridefree Newbie

Were you drinking lots of water on your fast? It could be fluoride overload. I have had tons of problems my whole life (see my profile), and I was allergic to what seemed like all foods. When I went gluten free, I actually got worse. I finally found out that this is because of fluoride in my water. I was cooking lots of veggies and rice on the stove, eating potatoes, eating more seafood, and eating more fruits and vegetables in general. All of these are sources of fluoride that can cause dizziness, anxiety, panic attacks, depression and more. Fluoride causes toxic fumes when it's heated, and can also cause Candida Overgrowth. Cutting fluoride out of your life might be the last thing you need to do to get back to health.

jasonD2 Experienced

hmmm interesting. but i only drink bottled water. i use filtered water to cook at home..never straight from the tap, so not sure if its that

burdee Enthusiast

I swear I think its a curse cause the past 2 summers i felt great and as soon as fall sets in i start feeling like crap again.

I had the PillCam capsule endoscopy on Friday and basically had to fast for 24 hrs. I expelled the capsule friday night but since then i feel like my gastritis has returned and am constipated again. i have burning 20-45 min after meals and cant eat large meals w/o discomfort. i thought this hell was in the past and now it looks like its starting up all over again...i cant handle another winter of depression and illness...i cant! My life has been going so well since March...work is great, have a girlfriend and been feeling so much better....as most of you know i barely even posted on the forum for the past few months and when i do its not my usual neurotic tirades.

Im freaking out and have been depressed all day with my eyes filling up constantly...i havent had these emotions literally since January. What do I do?

Are you taking HCl supplements with a full cup of water AFTER eating a few bites of food? (I hope you're not taking those at the end of your meal, which would cause burning pain.) I recall that you previously said you were tolerating HCl supplements and thoe improved your digestion. Did you have to take any other supplements for the Pillcam test? You sounded like you were doing okay on Saturday. What changed?

Lizking531 Rookie

I swear I think its a curse cause the past 2 summers i felt great and as soon as fall sets in i start feeling like crap again.

I had the PillCam capsule endoscopy on Friday and basically had to fast for 24 hrs. I expelled the capsule friday night but since then i feel like my gastritis has returned and am constipated again. i have burning 20-45 min after meals and cant eat large meals w/o discomfort. i thought this hell was in the past and now it looks like its starting up all over again...i cant handle another winter of depression and illness...i cant! My life has been going so well since March...work is great, have a girlfriend and been feeling so much better....as most of you know i barely even posted on the forum for the past few months and when i do its not my usual neurotic tirades.

Im freaking out and have been depressed all day with my eyes filling up constantly...i havent had these emotions literally since January. What do I do?

the timing sounds so very familiar. I was doing great for just about 2 years - no problems, no this fall it seems like I'm sliding uncontrollably back to square 1.

gofluoridefree Newbie

hmmm interesting. but i only drink bottled water. i use filtered water to cook at home..never straight from the tap, so not sure if its that

There's actually still fluoride in bottled water (unless it's distilled). Most water bottles are filled with tap water from the city they are manufactured in; that means they could have up to 4 ppm of fluoride in them (that

mommida Enthusiast

Hi Jason,

I did notice you went AWOL for a while! It was after some girlfriend posts so I was thinkin' good for you. WINK

Well this is the third year in a row that my daughter started going down hill quick. She is going to be 8 in about 2 weeks and was diagnosed with Eosinophilic Esophagitus when she was 6. When the air here starts getting dry and the leaves are falling off the trees -she gets really sick. Tired, dark circles under her eyes, GERD like vomitting, her voice is getting kinda hoarse, and a lot of pain especially at night. Poor kid is pretty miserable and I'm probably forgetting some of the complaints.

Well the eosinophilic (name the part of the digestive track they are found for specific disorder) is believed to have a "trigger" food or in the case with the esophagus a possible AIRBORN trigger.

Most cases are diagnosed from AUGUST/ September complaints.

There appears to be a connection to seasonal allergies.

Adults cases are also increasing.

My daughter does not complain of her throat, neck, or chest hurting just her stomach. She will circle bottom ribs to just below her waist.

Have your doctors ever ordered the pathology test for eosinophil detection? What time of the year where your endoscopes with biopsy taken?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jasonD2 Experienced

No i drink spring water and SMART water (vapor distilled) - just use filtered tap for cooking

jasonD2 Experienced

Dunno Sue - actually had to stop the HCL for a bit. I usually take at the beginning of the meal - been doing really well but something flared up on me so i dont want to exacerbate with acid. I will give it a few days and see how i do. no other supplements - i did fast and swallow that huge pill so maybe it threw off the balance in my system somehow. i know changing eating habits can cause constipation and has in the past so maybe the fast caused that. hope this is a temporary thing cause i really wanna start the antibiotic regimen in a few weeks

Marz Enthusiast

Sounds like a potential seasonal allergy messing around with you?

Another idea is Vitamin D deficiency? During summer you get more sun and therefore feel better, with fall sunlight exposure goes down and you start feeling crap? Long shot, but worth mentioning.

burdee Enthusiast

Dunno Sue - actually had to stop the HCL for a bit. I usually take at the beginning of the meal - been doing really well but something flared up on me so i dont want to exacerbate with acid. I will give it a few days and see how i do. no other supplements - i did fast and swallow that huge pill so maybe it threw off the balance in my system somehow. i know changing eating habits can cause constipation and has in the past so maybe the fast caused that. hope this is a temporary thing cause i really wanna start the antibiotic regimen in a few weeks

If you fasted before doing the test, less food consumption will affect regularity. Also going off the acid supplements for a few days may cause returned indigestion, because your stomach acid is inadequate to digest what you eat without uncomfortable symptoms. I suspect your system will straighten out after you resume taking the HCl and eat normally.

sandsurfgirl Collaborator

Change of season is hard on the body. I always get sick when seasons change unless I get acupuncture. I get a treatment to balance me out and get me ready for the change and it totally works.

Breathe and relax jason. You've made tons of progress and you will not go back to the way it was before. It's okay to have a bad or two or three.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Son's legs shaking

    2. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    3. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    4. - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    5. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,852
    • Most Online (within 30 mins)
      7,748

    Maud
    Newest Member
    Maud
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • lizzie42
      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.