Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Don't Know Whats Happening To Me


jasonD2

Recommended Posts

jasonD2 Experienced

I swear I think its a curse cause the past 2 summers i felt great and as soon as fall sets in i start feeling like crap again.

I had the PillCam capsule endoscopy on Friday and basically had to fast for 24 hrs. I expelled the capsule friday night but since then i feel like my gastritis has returned and am constipated again. i have burning 20-45 min after meals and cant eat large meals w/o discomfort. i thought this hell was in the past and now it looks like its starting up all over again...i cant handle another winter of depression and illness...i cant! My life has been going so well since March...work is great, have a girlfriend and been feeling so much better....as most of you know i barely even posted on the forum for the past few months and when i do its not my usual neurotic tirades.

Im freaking out and have been depressed all day with my eyes filling up constantly...i havent had these emotions literally since January. What do I do?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gofluoridefree Newbie

Were you drinking lots of water on your fast? It could be fluoride overload. I have had tons of problems my whole life (see my profile), and I was allergic to what seemed like all foods. When I went gluten free, I actually got worse. I finally found out that this is because of fluoride in my water. I was cooking lots of veggies and rice on the stove, eating potatoes, eating more seafood, and eating more fruits and vegetables in general. All of these are sources of fluoride that can cause dizziness, anxiety, panic attacks, depression and more. Fluoride causes toxic fumes when it's heated, and can also cause Candida Overgrowth. Cutting fluoride out of your life might be the last thing you need to do to get back to health.

jasonD2 Experienced

hmmm interesting. but i only drink bottled water. i use filtered water to cook at home..never straight from the tap, so not sure if its that

burdee Enthusiast

I swear I think its a curse cause the past 2 summers i felt great and as soon as fall sets in i start feeling like crap again.

I had the PillCam capsule endoscopy on Friday and basically had to fast for 24 hrs. I expelled the capsule friday night but since then i feel like my gastritis has returned and am constipated again. i have burning 20-45 min after meals and cant eat large meals w/o discomfort. i thought this hell was in the past and now it looks like its starting up all over again...i cant handle another winter of depression and illness...i cant! My life has been going so well since March...work is great, have a girlfriend and been feeling so much better....as most of you know i barely even posted on the forum for the past few months and when i do its not my usual neurotic tirades.

Im freaking out and have been depressed all day with my eyes filling up constantly...i havent had these emotions literally since January. What do I do?

Are you taking HCl supplements with a full cup of water AFTER eating a few bites of food? (I hope you're not taking those at the end of your meal, which would cause burning pain.) I recall that you previously said you were tolerating HCl supplements and thoe improved your digestion. Did you have to take any other supplements for the Pillcam test? You sounded like you were doing okay on Saturday. What changed?

Lizking531 Rookie

I swear I think its a curse cause the past 2 summers i felt great and as soon as fall sets in i start feeling like crap again.

I had the PillCam capsule endoscopy on Friday and basically had to fast for 24 hrs. I expelled the capsule friday night but since then i feel like my gastritis has returned and am constipated again. i have burning 20-45 min after meals and cant eat large meals w/o discomfort. i thought this hell was in the past and now it looks like its starting up all over again...i cant handle another winter of depression and illness...i cant! My life has been going so well since March...work is great, have a girlfriend and been feeling so much better....as most of you know i barely even posted on the forum for the past few months and when i do its not my usual neurotic tirades.

Im freaking out and have been depressed all day with my eyes filling up constantly...i havent had these emotions literally since January. What do I do?

the timing sounds so very familiar. I was doing great for just about 2 years - no problems, no this fall it seems like I'm sliding uncontrollably back to square 1.

gofluoridefree Newbie

hmmm interesting. but i only drink bottled water. i use filtered water to cook at home..never straight from the tap, so not sure if its that

There's actually still fluoride in bottled water (unless it's distilled). Most water bottles are filled with tap water from the city they are manufactured in; that means they could have up to 4 ppm of fluoride in them (that

mommida Enthusiast

Hi Jason,

I did notice you went AWOL for a while! It was after some girlfriend posts so I was thinkin' good for you. WINK

Well this is the third year in a row that my daughter started going down hill quick. She is going to be 8 in about 2 weeks and was diagnosed with Eosinophilic Esophagitus when she was 6. When the air here starts getting dry and the leaves are falling off the trees -she gets really sick. Tired, dark circles under her eyes, GERD like vomitting, her voice is getting kinda hoarse, and a lot of pain especially at night. Poor kid is pretty miserable and I'm probably forgetting some of the complaints.

Well the eosinophilic (name the part of the digestive track they are found for specific disorder) is believed to have a "trigger" food or in the case with the esophagus a possible AIRBORN trigger.

Most cases are diagnosed from AUGUST/ September complaints.

There appears to be a connection to seasonal allergies.

Adults cases are also increasing.

My daughter does not complain of her throat, neck, or chest hurting just her stomach. She will circle bottom ribs to just below her waist.

Have your doctors ever ordered the pathology test for eosinophil detection? What time of the year where your endoscopes with biopsy taken?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jasonD2 Experienced

No i drink spring water and SMART water (vapor distilled) - just use filtered tap for cooking

jasonD2 Experienced

Dunno Sue - actually had to stop the HCL for a bit. I usually take at the beginning of the meal - been doing really well but something flared up on me so i dont want to exacerbate with acid. I will give it a few days and see how i do. no other supplements - i did fast and swallow that huge pill so maybe it threw off the balance in my system somehow. i know changing eating habits can cause constipation and has in the past so maybe the fast caused that. hope this is a temporary thing cause i really wanna start the antibiotic regimen in a few weeks

Marz Enthusiast

Sounds like a potential seasonal allergy messing around with you?

Another idea is Vitamin D deficiency? During summer you get more sun and therefore feel better, with fall sunlight exposure goes down and you start feeling crap? Long shot, but worth mentioning.

burdee Enthusiast

Dunno Sue - actually had to stop the HCL for a bit. I usually take at the beginning of the meal - been doing really well but something flared up on me so i dont want to exacerbate with acid. I will give it a few days and see how i do. no other supplements - i did fast and swallow that huge pill so maybe it threw off the balance in my system somehow. i know changing eating habits can cause constipation and has in the past so maybe the fast caused that. hope this is a temporary thing cause i really wanna start the antibiotic regimen in a few weeks

If you fasted before doing the test, less food consumption will affect regularity. Also going off the acid supplements for a few days may cause returned indigestion, because your stomach acid is inadequate to digest what you eat without uncomfortable symptoms. I suspect your system will straighten out after you resume taking the HCl and eat normally.

sandsurfgirl Collaborator

Change of season is hard on the body. I always get sick when seasons change unless I get acupuncture. I get a treatment to balance me out and get me ready for the change and it totally works.

Breathe and relax jason. You've made tons of progress and you will not go back to the way it was before. It's okay to have a bad or two or three.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,405
    • Most Online (within 30 mins)
      7,748

    Kbradway
    Newest Member
    Kbradway
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
    • JoJo0611
      I didn’t know there were different types of CT. I’m not sure which I had. It just said CT scan with contrast. 
    • Scott Adams
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.