Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hot Skin


Mexican Trailrunner

Recommended Posts

Mexican Trailrunner Rookie

I haven't seen anyone else mention this, has anyone else had the sensation of having hot skin, particularly upper body and arms, when glutened?

I don't get the rash.

Thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cassP Contributor

years ago, i always had RED cheeks- not neccesarily hot unless i drank alchohol- but BEET RED- since i was 11 or 12- this is what led my docs to begin testing me for Lupus which was always negative- FF to age 28- i went on Atkins, then Bloodtype O diet-> red cheeks went away.

i also occasionally get hot red ears- everyone has said that is either blood pressure or too much Niacin.... but mine never came after vitamins, and i normally have low bp.... ???

when i used to eat gluten or go on gluten binges- i was always hotter, always had to keep my AC lower, and my mornings i would feel hotter and nauseaus. there's a thread somewhere on this forum where parents are talking about how their kids with celiac/gluten intolerance were always complaining of being hot or ripping their socks off all the time....

and one last thing- ive been gluten-free now since july.... about a month ago, i ate a frozen prepared meal.... technically gluten free, but it had a lot of crap in it, a lot of soy & corn byproducts. but the only ingredient which stood out for me was High Maltose Corn Syrup- 30 seconds after i ingested this food- my arms, neck, stomach, and face turned BEET BEET BEET RED & SO HOTTTTTTTTT- i was inflamed like this for over an hour!!!!!! it was AWFUL, i am CONVINCED that even tho its technically gluten free- that it must have the same molecular structure- this HMCS- i KNOW that as soon as it hit my stomach- my body thought: "OMG GLUTEN"- and my body freaked....

kpryan Apprentice

I just realized today that i do get this too!!

I've been on a gluten challenge for 1 month and all month I've been feeling irregularly hot and my face gets very flushed.

I just finished eating my last gluten meal (I have my endoscopy tomorrow) and my face is hot...like I have a fever... Strange!!

I haven't seen anyone else mention this, has anyone else had the sensation of having hot skin, particularly upper body and arms, when glutened?

I don't get the rash.

Thanks

Mexican Trailrunner Rookie

It IS weird, isn't it. The hot flush is, for me, my first indication of glutening. And it happens after just a few bites, it's my warning signal.

My doc said it might be something to do with hormones, like lack up estrogen uptake or too much estrogen uptake. It does feel like hot flashes so I think he might be on to something there.

CassP mentioned Niacin and that would be the same kind of flush feeling too.

Thanks for responding, I was feeling like this might be indicative of something else.

gf-soph Apprentice

It IS weird, isn't it. The hot flush is, for me, my first indication of glutening. And it happens after just a few bites, it's my warning signal.

My doc said it might be something to do with hormones, like lack up estrogen uptake or too much estrogen uptake. It does feel like hot flashes so I think he might be on to something there.

CassP mentioned Niacin and that would be the same kind of flush feeling too.

Thanks for responding, I was feeling like this might be indicative of something else.

I've had rosacia, which is the hot red face, often in a 'butterfly' over the cheeks and nose. The face goes red and hot, sometimes even purple, and can stay that way for hours. It's worse on gluten but I've still had it on and off over the 2 years gluten free. It's triggered by MSG and some other food chemicals, and I also tend to get it when I'm sick.

My dr told me that it's linked to inflammation in the body, and it seems to be the case for me. One time I had it very badly and my whole head was purple and hurt for days, a dr said that it was an atypical allergic reaction, similar to getting hives. I took a basic antihistamine and it finally went away. Now if I get a really bad flush that won't go away I know that an antihistamine will usually fix it up.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rogol72 replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

    2. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

    3. - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

    4. - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,220
    • Most Online (within 30 mins)
      7,748

    Dye42
    Newest Member
    Dye42
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.