Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Shared Kitchens?


TwitchyMcLurcherson

Recommended Posts

TwitchyMcLurcherson Newbie

I have an EXTREME reaction to gluten in any increment. It affects me neurologically, leaving me confused, blurry eyed, tremoring, tic-ing, stuttering, and unable to walk. And yet my husband absolutely REFUSES to go gluten free in the house as well. He also won't keep separate work spaces, pans, dishes, etc. He won't wash dishes separately- or keep them separately- and won't believe me about cross-contamination, even though he keeps seeing its effects. He'll leave bread crumbs on the counter, my cutting board, piled in the sink...

What on earth can I do? How do you all manage with shared space?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

I am going to suggest that you two go to couples counseling. It's like telling your asthmatic spouse that you won't stop smoking in the house. If he doesn't care that you are getting sick, it's not an issue with the food that's the source of the problem - it's the person.

WestCoastGirl Apprentice

1. You say your husband won't keep a separate space, wash dishes, etc. -- would he physically stop you from making your own space somewhere (in the garage in bins, if need be, and a college fridge or something like that) and keeping your own dishes somewhere besides right in the sink, until you're ready to wash them?

2. I am feeling a lot of anger about what you said about your husband. Just wanted you to know that. I don't have any advice. I'm a little horrified at his attitude.

Hugs to you.

I have an EXTREME reaction to gluten in any increment. It affects me neurologically, leaving me confused, blurry eyed, tremoring, tic-ing, stuttering, and unable to walk. And yet my husband absolutely REFUSES to go gluten free in the house as well. He also won't keep separate work spaces, pans, dishes, etc. He won't wash dishes separately- or keep them separately- and won't believe me about cross-contamination, even though he keeps seeing its effects. He'll leave bread crumbs on the counter, my cutting board, piled in the sink...

What on earth can I do? How do you all manage with shared space?

i-geek Rookie

I am going to suggest that you two go to couples counseling. It's like telling your asthmatic spouse that you won't stop smoking in the house. If he doesn't care that you are getting sick, it's not an issue with the food that's the source of the problem - it's the person.

This, exactly. Sorry you're having to deal with this on top of the illness.

rdunbar Explorer

Hi. So sorry to hear you are going through all of this; you really need to be safe, your symptoms sound a lot like mine. I get that blurry vision, and droopy eyelid thing too.

Dr Peter Greenes' book "Celiac Disease, the hidden epidemic" has a part about cross contamination and how the gluten free diet is a legitimate medical treatment

he's from Columbia University, so this is very well accredited; hopefully something would click if he saw it in black in white from some ivy leager ??? I hope something works because as we know, he needs to take you seriously. You've been through enough!

TwitchyMcLurcherson Newbie

Hi. So sorry to hear you are going through all of this; you really need to be safe, your symptoms sound a lot like mine. I get that blurry vision, and droopy eyelid thing too.

Dr Peter Greenes' book "Celiac Disease, the hidden epidemic" has a part about cross contamination and how the gluten free diet is a legitimate medical treatment

he's from Columbia University, so this is very well accredited; hopefully something would click if he saw it in black in white from some ivy leager ??? I hope something works because as we know, he needs to take you seriously. You've been through enough!

Ha. The irony in this is that my husband IS an Ivy Leaguer (as am I) and the drs, neurologists, and nutritionists that diagnosed me and told me I need to avoid cross-contamination are at Harvard. That's not going to cut it. =/ Currently were screaming at each other because I threw out a couple of boxes of crackers and a loaf of bread. That'll give you some idea of what I'm up against.

TwitchyMcLurcherson Newbie

I am going to suggest that you two go to couples counseling. It's like telling your asthmatic spouse that you won't stop smoking in the house. If he doesn't care that you are getting sick, it's not an issue with the food that's the source of the problem - it's the person.

Oh, we're in couples' counseling for everything else already. It's not doing a thing.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

Any chance, then, that this is a case of "I know what I need to do, but I don't want to have to do it"?

At the least, you may find that you have to move out - you need *someplace* that you can be safe, and it doesn't sound like it's with your husband. (And I'm just talking about food, not even the emotional aspect.)

psawyer Proficient

Oh, we're in couples' counseling for everything else already. It's not doing a thing.

Sometimes the best approach to a bad situation is to walk away. :(

You need to do what is right for you at this point.

kareng Grand Master

Oh, we're in couples' counseling for everything else already. It's not doing a thing.

I think you know what you need to do. This has nothing to do with gluten.

TwitchyMcLurcherson Newbie

I think you know what you need to do. This has nothing to do with gluten.

Well, regardless, there's a lot more to a marriage... and life... than a few sentences I wrote in a forum. I didn't mean to come on here looking to rant. Surely some of you have shared kitchens- how do you manage? What specific tips might you have for keeping things safe? Is it possible without owning a dishwasher? We live in a small urban apartment with two little boys, the oldest (two years old) who has to be gluten-free/cf as well due to being on the autism spectrum (and the diet is working for him!). I also seem to be allergic/intolerant to corn and casein and possibly even to soy now. Do these cross-contaminate the way gluten does?

starrytrekchic Apprentice

Surely some of you have shared kitchens- how do you manage? What specific tips might you have for keeping things safe? Is it possible without owning a dishwasher? We live in a small urban apartment with two little boys, the oldest (two years old) who has to be gluten-free/cf as well due to being on the autism spectrum (and the diet is working for him!). I also seem to be allergic/intolerant to corn and casein and possibly even to soy now. Do these cross-contaminate the way gluten does?

Hi, I share a kitchen too. I prepare my meals on the plate I'm going to eat off, that way I lessen the risk of cc'ing from counters and cutting boards. Keeping everything clean is a must, but don't feel like you need to clean the entire area, just keep the areas clean that you use.

Stainless steel pans are easier to clean. Prepare your and your son's meals first. Buy any condiments you can in a squeezable jar, rather than a dipping one. Set aside and label your own butter, peanut butter, or anything you can't buy squeezable. Be sure your husband has these same things available that he can use for himself.

Watch your husband for a few days and see how he prepares his meals. That'll clue you in to which areas of the kitchen might be cc'd. Wash your hands a lot, and never eat any food you've dropped on the counter or floor.

If you can have a separate cabinet for gluten free stuff--the sort that can be cc'd like jars of peanut butter, that'll help.

Washing dishes is trickier. A dishwasher is fine, and you can put both glutened and non-glutened dishes in together and they'll come out fine (that's what I do), but since you don't have one, I'm not sure what you should do. Maybe clean your dishes as soon as you're done with them and leave the rest for your husband?

For cooking you might need aluminum foil, if you have one of those toaster ovens, for cooking things on. That way you don't have to clean the oven racks. Obviously things like shared toasters are out.

I'm not positive about cc'ing from corn and soy, but if you're just intolerant of them, not allergic, then a little cc'ing from them should be fine. Casein *might* be more problematic, but I'm not sure on that.

Hope this helps.

tarnalberry Community Regular

It's not that you can't have a mixed kitchen, it's that - unless you do a thorough, deep clean of the kitchen EVERY TIME YOU GO IN THERE, the people sharing the kitchen have to do their part as well. If he is leaving bread crumbs on your cutting board (as you say in your first post), he isn't even close to doing his part - he is knowingly making you sick. And, apparently, knowingly making your child sick. (We tend to take a strong stance on people doing that on this board.)

The only advice I can give for trying to eat in a situation where your environment is traced with a poison is to eat somewhere else. Prepare food in the bathroom or garage and on paper plates with plastic utensils.

kareng Grand Master

I think what got to us was that your husband will not help you and the child be gluten-free. Infact, he seems to be sabotaging your efforts. I have a shared kitchen. My husband does not use my cutting board, colander, etc unless its for something gluten-free. They keep the bread and their toaster, crackers, etc on one counter. They get the sliced cheese out and put it on a plate before they touch the bread. Bread crumbs get washed down the sink immediately. I have my own butter, Pb, etc. I got a roll of red tape. I put that on my butter tub so that they don't get crumbs in it.

All this stuff works well for us, but my Hub and kids want to keep me safe and feeling well even if it's a little inconvenient for them.

  • 1 year later...
violentlyserene Rookie

Well, regardless, there's a lot more to a marriage... and life... than a few sentences I wrote in a forum. I didn't mean to come on here looking to rant. Surely some of you have shared kitchens- how do you manage? What specific tips might you have for keeping things safe? Is it possible without owning a dishwasher? We live in a small urban apartment with two little boys, the oldest (two years old) who has to be gluten-free/cf as well due to being on the autism spectrum (and the diet is working for him!). I also seem to be allergic/intolerant to corn and casein and possibly even to soy now. Do these cross-contaminate the way gluten does?

I'm still working out the kinks in all this but I have created a separate section of the kitchen for myself. Gluten stuff is a different color or type than gluten free and they aren't stored together. Something like a big rubbermaid tub might be helpful for storing food if you can't get cubboard space. I use one for gluten-free dishes. Anything that I've used goes into that bucket so it can be washed seperately. Most of my food is marked (not all since we don't eat the same kinds of foods).

pondy Contributor

Well, regardless, there's a lot more to a marriage... and life... than a few sentences I wrote in a forum. I didn't mean to come on here looking to rant. Surely some of you have shared kitchens- how do you manage? What specific tips might you have for keeping things safe? Is it possible without owning a dishwasher? We live in a small urban apartment with two little boys, the oldest (two years old) who has to be gluten-free/cf as well due to being on the autism spectrum (and the diet is working for him!). I also seem to be allergic/intolerant to corn and casein and possibly even to soy now. Do these cross-contaminate the way gluten does?

I'm sorry that you're going through all this...

I share a kitchen with no dishwasher also. Here's what helps me:

Wipe down counter surfaces before I do anything.

Use lots of paper towels & tin foil.

Have a designated (top) shelf in the fridge, and a cupboard for my own for gluten-free food.

Use a clean dish rag each time I do dishes.

All best to you.

By the way, I don't know about corn, casein, soy cc but I'd err on the side of caution and say yes it's possible.

cyberprof Enthusiast

1. You say your husband won't keep a separate space, wash dishes, etc. -- would he physically stop you from making your own space somewhere (in the garage in bins, if need be, and a college fridge or something like that) and keeping your own dishes somewhere besides right in the sink, until you're ready to wash them?2. I am feeling a lot of anger about what you said about your husband. Just wanted you to know that. I don't have any advice. I'm a little horrified at his attitude.

Hugs to you.

kareng Grand Master

FYI.

This poster hasn't been on since March. This thread was a year ago. She may not answer you and has hopefully sorted this out. :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

    2. - Scott Adams replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

    3. - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      1

      My only proof

    4. - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      1

      Methylprednisone treatment for inflammation?

    5. - Scott Adams replied to ElenaM's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      I think I am gluten intolerant


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,906
    • Most Online (within 30 mins)
      7,748

    Dakota4
    Newest Member
    Dakota4
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • klmgarland
      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
    • Scott Adams
      Based on what you've described, it is absolutely possible you are dealing with non-celiac gluten sensitivity (NCGS).  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.   Your situation is a classic presentation: a negative celiac panel but a clear, recurring pattern of symptoms triggered by gluten. The symptoms you listed—particularly the extreme fatigue, bloating, neurological-psychiatric symptoms like depression and anxiety, and even the skin manifestations like facial flushing—are all well-documented in research on NCGS. It's important to know that you are not alone in experiencing this specific combination of physical and emotional reactions. The only way to know for sure is to commit to a strict, 100% gluten-free diet under the guidance of a doctor or dietitian for a period of several weeks to see if your symptoms significantly improve. It is also crucial to rule out other potential causes, so discussing these symptoms with a gastroenterologist is a very important next step.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.