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I'm Feeling Worse Since Going gluten-free

rose-thorn98

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rose-thorn98 Rookie
rose-thorn98
Posted

I just started gluten-free diet 4 days ago and I'm now feeling worse than I did before I gave up Gluten. My main complaint was neuropathy before, but now I'm having horrible reflux since going gluten-free. Is it normal to feel worse in the beginning? Or could this be from the biopsy endoscopy I had done 5 days ago?

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mushroom Proficient
mushroom
Posted

Endoscopy and biopsy does not normally cause reflux, although I suppose it is theoretically possible. It is more likely your system adjusting to your new diet, depending on what you are eating. It is best to eat only whole foods that you cook yourself at first, to be sure that they are gluten free and also avoid possible problems with other gluten free grains. Also, you have to be sure to rid yourself of gluten contamination - in wooden cooking utensils and cutting boards, scratched nonstick pans, buy a new toaster and colander, check your scrips and OTC medications, personal care products like lipstick and shampoo, etc.

Sometimes when we first go gluten free we react more strongly to traces of gluten so you really need to be totally strict about ridding yourself of it. Have you tried taking some pepto bismol to calm things down a bit? Sorry you are feeling bad and I hope it settles down soon.

Emilushka Contributor
Emilushka
Posted

I just started gluten-free diet 4 days ago and I'm now feeling worse than I did before I gave up Gluten. My main complaint was neuropathy before, but now I'm having horrible reflux since going gluten-free. Is it normal to feel worse in the beginning? Or could this be from the biopsy endoscopy I had done 5 days ago?

This shouldn't be from the biopsies or endoscopy, especially this long afterward. What are you eating these days? Some foods are more likely to cause reflux than others.

T.H. Community Regular
T.H.
Posted

There is such a thing called 'gluten withdrawal,' but I can't recall the symptoms right now.

However, I felt worse within days of going gluten free, and it turned out to be a few food allergies I never knew about plus a HUGE jump in sensitivity to gluten. I had to drop all grains (they were all too contaminated with gluten to tolerate, even now, a year later), although most just buy specifically gluten-free grains. A good beginning diet can be fruits, veggies, and meats that aren't chopped in the meat dept, but come chopped from the supplier (too easy to contaminate at the meat counter) might help. Dairy is probably good to avoid for now, too.

Soy is often cross contaminated, so it's not bad to avoid, either, for a little bit, anyway. And sea salt may be a bit better, and have less additives, than iodized salt, for a bit.

If you can, keeping a food diary might help you figure out what is bothering you, if it is a particular food.

Oh, and one last thing: did they ever test you for H. pylori? That can cause acid reflux and it's pretty common in celiacs.

shelbymartin93 Newbie
shelbymartin93
Posted

I just started gluten-free diet 4 days ago and I'm now feeling worse than I did before I gave up Gluten. My main complaint was neuropathy before, but now I'm having horrible reflux since going gluten-free. Is it normal to feel worse in the beginning? Or could this be from the biopsy endoscopy I had done 5 days ago?

I'm sort of expierencing the same thing. I've been on the diet for about two weeks now, three on friday, and I'm still having many symptoms. Does anything seem to help you?

GFinDC Veteran
GFinDC
Posted

Getting started problems are a pretty common topic around here. Also withdrawal symptoms. This thread has some ideas. If you search on withdrawal that may find some more threads with info. Unfortunately the board doesn't have any stickies for common questions that people need answers too. But you can search through the forums or just read through the various threads over a few weeks time. This one is only a week old.

Just Diagnosed: How To Keep Eating Enough?

CarolinaKip Community Regular
CarolinaKip
Posted

I'm going into my sixth month gluten-free. Keep a food diary to see what foods may be bothering you. I noticed brown rice at first. I also thought my lipgloss was safe, but found out it had wheatgerm oil in it this month. Don't trust a salespersons word for it, research it yourself. Look for CC in your own home if you have gluten eaters. Make sure you have your own toater, cutting broad, knives etc. Put your food on the top shelf and top shelf in fridge. I even have my own can opener. Look at your shampoo. lotions, meds as well. It seems overwhelming at first, hang in there!

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      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
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      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
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      26F!
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