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Back Issues


gaingus

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gaingus Rookie

I'm sure someone may have posted something like this before, but I figured I would throw this out there. Has anyone had any back problems that came up after being diagnosed? Currently, my doctor is looking into one degenerating disc and two wedged vertebrae. DW is thinking it might be related to mal-absorption from the damage that we all went through.


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trents Grand Master

I'm sure someone may have posted something like this before, but I figured I would throw this out there. Has anyone had any back problems that came up after being diagnosed? Currently, my doctor is looking into one degenerating disc and two wedged vertebrae. DW is thinking it might be related to mal-absorption from the damage that we all went through.

I have kyphosis and a little scoliosis. Lots of wedged vertebrae and DDD. Presumably from celiac-related malabsorption as I have osteopenia. I'm almost 60 mow and beginning to have more and more back pain. I develop lower back pain while sleeping most nights and I'm prone to thorasic strains and pinched nerves because of the curvature problems.

Loey Rising Star

I'm sure someone may have posted something like this before, but I figured I would throw this out there. Has anyone had any back problems that came up after being diagnosed? Currently, my doctor is looking into one degenerating disc and two wedged vertebrae. DW is thinking it might be related to mal-absorption from the damage that we all went through.

I've alway been prone to what I considered "pulling my back out and extreme klutziness." i also suffer from ataxia which i learned here is caused by a vitamin deficiency. I have osteoporosis and I had herniated discs when I was younger. My most recent flare with Celiac has caused excruciating abdominal and lower back pain. I am following a modified elimination diet to find triggers outside of gluten. I was also just diagnosed with an ulcer (I'm a mess). Everyone says that we do heal after following the diet. The time frame varies for individuals. Hang in there@!

Loey smile.gif

P.S. I'm currently unemployed and am a self proclaimed resource geek. If you ever want me to research something for you please let me know.

Loey Rising Star

I have kyphosis and a little scoliosis. Lots of wedged vertebrae and DDD. Presumably from celiac-related malabsorption as I have osteopenia. I'm almost 60 mow and beginning to have more and more back pain. I develop lower back pain while sleeping most nights and I'm prone to thorasic strains and pinched nerves because of the curvature problems.

I find that if I sleep on my back I wake up in severe pain. I even had h=no sensation in my legs in the middle of night one. I now sleep with a pillow between my legs (not a very large one). That tends to keep me from sleeping on my back and helps with waking up in less pain.

Loey

  • 2 weeks later...
gaingus Rookie

So yea, it's not what they originally thought. Well, I still have the wedged vertebrae, but it is more along the lines of a herniated and torn disc that is causing all the pain. So it looks like surgery... Just waiting on when.

Loey Rising Star

So yea, it's not what they originally thought. Well, I still have the wedged vertebrae, but it is more along the lines of a herniated and torn disc that is causing all the pain. So it looks like surgery... Just waiting on when.

So sorry to hear that. Will keep you in my prayers and send healing positive energy (I strongly believe in it)!!!! I had a herniated disc when i was younger. Didn't have surgery. Used a TENS (transcutaneous electrode nerve stimulator) machine (it was experimental then and I wish I still had it). It really helped with the pain.

Loey smile.gif

cap6 Enthusiast

I've had back issues as long as I can remember but so much better now. I used a TENS also but no longer need it. Not sure if this is allowed - is there anyone that could use it? They are an expensive item.


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dilettantesteph Collaborator

My back problems largely cleared up gluten free, but come back when glutened. What also helped a lot was an exercise and stretching program developed with a physical therapist.

Loey Rising Star

I've had back issues as long as I can remember but so much better now. I used a TENS also but no longer need it. Not sure if this is allowed - is there anyone that could use it? They are an expensive item.

I might be able to use it. I lost mine years ago. Would you let me pay you for it?

Loey

cap6 Enthusiast

Loey ~ I sent you a private email on the Tens.

Loey Rising Star

Haven't gotten the PM it yet but I just sent you my email address in a PM. Need to shower and go to a doctor's appointment and then my painting class. Will be home around five.

You are SO generous!

Loey biggrin.gif

Loey Rising Star

Haven't gotten the PM it yet but I just sent you my email address in a PM. Need to shower and go to a doctor's appointment and then my painting class. Will be home around five.

You are SO generous!

Loey biggrin.gif

gaingus Rookie

So sorry to hear that. Will keep you in my prayers and send healing positive energy (I strongly believe in it)!!!! I had a herniated disc when i was younger. Didn't have surgery. Used a TENS (transcutaneous electrode nerve stimulator) machine (it was experimental then and I wish I still had it). It really helped with the pain.

Loey smile.gif

I appreciate it, I also believe in positive healing energies. I will have to ask my doc about that when I see him again. Unfortunately, it is beyond a herniated disc. Got the results of my MRI and I have degenertating disc disease, degenerated joint disease, the hernia, spinal stenosis, and a disclocated vertibrae.

Loey Rising Star

I appreciate it, I also believe in positive healing energies. I will have to ask my doc about that when I see him again. Unfortunately, it is beyond a herniated disc. Got the results of my MRI and I have degenertating disc disease, degenerated joint disease, the hernia, spinal stenosis, and a disclocated vertibrae.

Continuing to keep you in my prayers.

Loey

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  • Posts

    • trents
      I don't see how cornstarch could alter the test results. Where did you read that?
    • knitty kitty
      For pain relief I take a combination of Thiamine (Benfotiamine), Pyridoxine B 6, and Cobalamine B12.  The combination of these three vitamins has analgesic effects.  I have back pain and this really works.  The B vitamins are water soluble and easily excreted.   Hope this helps!  Keep us posted on your results!
    • knitty kitty
      Welcome to the forum, @Xravith. I experienced similar symptoms before my diagnosis.  Mine were due to the loss of vitamins and minerals, essential nutrients we must get from our food.  With Celiac Disease, the intestinal lining, made up of thousands of villi, gets damaged and cannot absorb essential vitamins and minerals, especially the eight B vitamins.  The loss of Thiamine B 1 can cause muscle loss, inability to gain weight, edema (swelling), fatigue, migraines and palpitations.  Low thiamine can cause Gastrointestinal Beriberi with symptoms of nausea, abdominal pain and bloating.   Thiamine is only stored for a couple of weeks, so if you don't absorb enough from food daily, as the thiamine deficiency worsens physical symptoms gradually worsen.  If you're eating lots of carbs (like gluten containing foods usually do), you need more thiamine to process them (called high calorie malnutrition).  Thiamine works with all the other B vitamins, so if you're low in one, you're probably getting low in the others, too, and minerals like iron, magnesium, zinc, and calcium, as well as Vitamin D..  Talk to your doctor about checking for nutritional deficiencies.  Most doctors rarely recognize vitamin deficiency symptoms, especially in thiamine. Get a DNA test to see if you carry any Celiac genes.  If you do not have genetic markers for Celiac, it's probably IBS.  If you do have genetic markers for Celiac, it's probably Celiac.  I was misdiagnosed with IBS for years before my Celiac diagnosis.   Keep us posted on your progress. P. S. Deficiency in thiamine can cause false negatives on antibody tests, as can diabetes and anemia.  
    • Julie 911
      No she didn't because if I want to ask I have to pay 700$ for 1 hour appointment so I couldn't even ask. I read that fillers like cornstash can alter the result and tylenol contains it so that's why I tried to find someone who can answer. 
    • trents
      Did the GI doc give you any rational for stopping the Tylenol during the gluten challenge? I have never heard of this before and I can't imagine a good reason for it. Ibuprofen, maybe, because it is an anti inflammatory but acetaminophen?  I don't see that it would have any impact on the test results to take Tylenol.
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