Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Are People Just Ignorant Or Inconsiderate?


jasonD2

Recommended Posts

jasonD2 Experienced

I ate out with my colleagues last week - they were cool with picking a gluten friendly restaurant so we went to a Thai place. My one colleague Andrew knows i cant eat gluten and has for 2 years. He asked if he could have some of my food so, using his spoon, he took some of my food and then set it down on his plate which had soy sauce on it then went back and took some more with the same spoon. I didnt want to make a big stink so i just let him have the rest of my food and was still hungry after dinner, but didnt wanna risk getting cc'd

then the other night I was out with my girlfriend. they brought an appetizer which was supposed to be gluten free but had two huge pieces of pita bread. I sent it back and all the kitchen did was remove the bread (it was obvious that they didnt give me a fresh plate)- so i sent it back again and they brought a fresh one out. then my girlfriend removed some stuff from the plate and was eating it with bread and used her knife and fork repeatedly to take stuff off the plate that i wanted to eat from. so again i wound up not enjoying the appetizer cause it was cc'd.

did i do anything wrong in these scenarios? should i have been more vocal? eating out is challenging enough and ive gotten so much better at it & people are understanding, but if i take it to the next level then its just gonna make me look neurotic.

would appreciate feedback


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RachelisFacebook Apprentice

Well, I wish I could help you more, but I feel like I should say, that you should be more vocal. However, if I were in the same situation, I probably wouldn't say anything either. I understand what you mean by not wanting to make a stink, or draw more attention to the issue. I don't think people are inconsiderate, they just might not know about the risk of CC and how sick it makes us.

curiousgirl Contributor

I ate out with my colleagues last week - they were cool with picking a gluten friendly restaurant so we went to a Thai place. My one colleague Andrew knows i cant eat gluten and has for 2 years. He asked if he could have some of my food so, using his spoon, he took some of my food and then set it down on his plate which had soy sauce on it then went back and took some more with the same spoon. I didnt want to make a big stink so i just let him have the rest of my food and was still hungry after dinner, but didnt wanna risk getting cc'd

then the other night I was out with my girlfriend. they brought an appetizer which was supposed to be gluten free but had two huge pieces of pita bread. I sent it back and all the kitchen did was remove the bread (it was obvious that they didnt give me a fresh plate)- so i sent it back again and they brought a fresh one out. then my girlfriend removed some stuff from the plate and was eating it with bread and used her knife and fork repeatedly to take stuff off the plate that i wanted to eat from. so again i wound up not enjoying the appetizer cause it was cc'd.

did i do anything wrong in these scenarios? should i have been more vocal? eating out is challenging enough and ive gotten so much better at it & people are understanding, but if i take it to the next level then its just gonna make me look neurotic.

would appreciate feedback

It certainly is a delicate balance. Seems like some people care but don't understand or, unless they've experienced the results, they forget about their gluten-free friend. And some people do just think we're neurotic...or as one member said "spoiled."

It can be difficult to deal with this. I've found that if I speak to one person at a time and make that "meeting" ABOUT this issue, I've had more success with getting their attention. I started by asking them how they felt/thought about my gluten intolerance/celiac disease and the times we've been out to eat (with a group or alone). Based on what they say, I can educate them...have a brochure handy. Just let them know one-on-one, how serious it is. It could be looked at as "bullying" if they're all out in a group and they tease you about being neurotic. hmmmm

lynnelise Apprentice

I honestly think they are just ignorant. When you are used to doing something like serving yourself from an appetizer plate it's kind of ingrained in you and you scoop into it without thinking.

When I'm out and an appetizer is ordered I say do you mind if I grab my portion first so I can be sure that no gluten will touch it? Everyone has been really cool about it.

When people ask to share from my plate I ask for extra silverware and I give them a serving. That way I don't have to worry about their fork getting in my food. I find by saying "Yes, let me grab some silverware and I'll get you some" they are less likely to try to grab it themselves.

jerseyangel Proficient

Jason, people sometimes don't think about these issues because they don't have to ;)

We do. What I have done is ask the waiter for a small clean plate and then you can share safely. Use your fork or spoon to transfer the food to the clean plate. I actually do this all the time at PF Changs since my husband and I like to split the Lemon Chicken, which is gluten-free, and he gets a couple appetizers/sides that are not.

Just one more thing we have to plan ahead..... :)

kareng Grand Master

I honestly think they are just ignorant. When you are used to doing something like serving yourself from an appetizer plate it's kind of ingrained in you and you scoop into it without thinking.

When I'm out and an appetizer is ordered I say do you mind if I grab my portion first so I can be sure that no gluten will touch it? Everyone has been really cool about it.

When people ask to share from my plate I ask for extra silverware and I give them a serving. That way I don't have to worry about their fork getting in my food. I find by saying "Yes, let me grab some silverware and I'll get you some" they are less likely to try to grab it themselves.

Ditto.

Also, with the girl friend. Next time, either get your portion first or say " can we just get the veggies and corn chips and skip the bread? That way I don't have to worry about crumbs.". Then if she says, " But Jason, Honey, I really love that dip with bread". Don't melt. Just suggest the clean spoon that stays in the dip and doesn't touch the bread. Or grab your first. Do this a couple of times and she'll start getting it.

tarnalberry Community Regular

My husband is even better about watching out for this than I am. (Gotta love him for it!)

They're not inconsiderate (or even ignorant); they're mindless. Seriously, in your own kitchen, are you AWARE of what you're doing with every utensil as you go about things you do many times a day? As you do your job, are you completely AWARE of everything your pen has touched in the past four hours? No - we autopilot tasks we do a lot, and don't think about them.

I WOULD point it out.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MelindaLee Contributor

I know my DH is ignorant about it. It's still relatively new to us as I've only been diagnosed 3 months. The other night I fixed a plate of cheese and sausage with some fruit. He plunked his gluten filled crackers right in the middle. I think he was hurt when I said I couldn't eat any of it now. One time I asked if he forgot...didn't care...or didn't believe me. I wouldn't suggest that tactic as it didn't go over great, but I think it has started to make him think. :o

gf-soph Apprentice

I don't think you've done anything wrong, but I do think you need to speak up. I don't expect others to think through all the possibilities of cross contamination, though I have trained my family and close friends pretty well by now. Try and put yourself in their position, if you only knew the very basics of celiac would you have known not to touch your used spoon to their plate? I think a lot of people just aren't aware of cc.

Bringing it up doesn't make you neurotic, just cautious. It's a good start that they are happy to go somewhere safe for you, so I don't think they will react too badly.

I would just nicely let them know next time that it's a bad idea to share any utensils between your food any any gluten food as it will contaminate your food. Either ask for a spare spoon for serving, offer to pass the food with yours, or just politely decline to share. If they seem surprised, explain that very small amounts are enough to make you sick, I have used the example that you need 5 ppm (in australia) to be considered gluten free, it tends to get the point across.

Marz Enthusiast

I'd go with them being on auto-pilot with these things - other people just don't think about what they do with their forks and what they eat. While we're always double, triple checking what we do around food, they just go *nom* :P

Don't get massively upset, but don't be silent about the issue. It is very frustrating though... As your girlfriend gets more mindful of what she's doing, I'm sure she'll be more careful and considerate about it.

Anna1227 Newbie

I think most people just have a hard time grasping the concept of cc and how just a teeny, tiny bit CAN hurt you. I have one daughter who was diagnosed with a peanut allergy a few years ago, and I know my parents and other family and friends had a hard time understanding how a small bit of peanut butter that you couldn't even see could make her have a reaction. It's taken a while for them to get the hang of it, but now they seem to understand better. My other DD has just been diagnosed with Celiac, so I am hoping that even though it is not an allergy, our family and friends will understand that the same strict avoidance issues and watching out for cc are just as important for her.

I also think a lot of people think gluten is just in baked goods and pasta, and don't realize how many things it is really in. Soy sauce, for example, is something I think a lot of people wouldn't realize contains wheat, if they had never had to think about it before.

I think the suggestions to use a clean spoon to give food off of your plate to someone else is good, as is just asking if you can scoop of your portion of the appetizer with a clean spoon onto your plate before others dig in, just so they (and you) don't have to worry about it getting cc. Good luck. I am really shy, and it has been hard for me to learn to speak up for my kids in social situations to make sure things are safe for them, but it is so important. Most people aren't mean about it, they just don't realize how it all works.

Nomi Rookie

I ate out with my colleagues last week - they were cool with picking a gluten friendly restaurant so we went to a Thai place. My one colleague Andrew knows i cant eat gluten and has for 2 years. He asked if he could have some of my food so, using his spoon, he took some of my food and then set it down on his plate which had soy sauce on it then went back and took some more with the same spoon. I didnt want to make a big stink so i just let him have the rest of my food and was still hungry after dinner, but didnt wanna risk getting cc'd

then the other night I was out with my girlfriend. they brought an appetizer which was supposed to be gluten free but had two huge pieces of pita bread. I sent it back and all the kitchen did was remove the bread (it was obvious that they didnt give me a fresh plate)- so i sent it back again and they brought a fresh one out. then my girlfriend removed some stuff from the plate and was eating it with bread and used her knife and fork repeatedly to take stuff off the plate that i wanted to eat from. so again i wound up not enjoying the appetizer cause it was cc'd.

did i do anything wrong in these scenarios? should i have been more vocal? eating out is challenging enough and ive gotten so much better at it & people are understanding, but if i take it to the next level then its just gonna make me look neurotic.

would appreciate feedback

I'm sorry this happened. I have yet to experience the whole eating out thing for myself; will this weekend I

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Are Lindt chocolate balls gluten free?

    2. - BlessedinBoston replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Are Lindt chocolate balls gluten free?

    3. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      14

      My only proof

    4. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      14

      My only proof

    5. - marion wheaton posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Are Lindt chocolate balls gluten free?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,406
    • Most Online (within 30 mins)
      7,748

    Kbradway
    Newest Member
    Kbradway
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.