Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Depressed And Sleepy

revenant

Recommended Posts

revenant Enthusiast
revenant
Posted

Think i'm around 3 weeks free of gluten (without cheats) and 1 month if including cheats (I cheated 3 weeks ago)

The first week I felt better than any other time in my life, energetic, was running a lot, getting things done and picking things up that I had dropped.

Now it's been about 2 weeks where I am unenergized and depressed. It's not the same kind of depression as when I was on gluten, or the same fatigue. On gluten it felt like I was being robbed of energy and tired beyond what I was doing, and my depression was violent with anxiety and anger, physically in my body.

Now i'm in more of a 'lost' zone. I feel as if I have no energy to be robbed of. I wake up and go back to bed, and then sleep all day. I never had much of a life because I've been suffering with anxiety very badly and extreme avoidance issues, but before this fog I could atleast get myself to go for a walk or enjoy the little things. Now I just don't enjoy anything, and I cry like 4 times a day but it's a different kind of crying than my incessive crying on gluten... it's a more honest crying, lighter, less angry... but more sincere in hopelessness.

I keep hearing about withdrawal but then I hear about people who didn't go through any and it makes me wonder whether this is just who I am or whether this is some kind of emotional withdrawal. I don't have any other ill effects unless I eat something accidentally.. Only this sleepiness and severe depression. Then again, maybe I'm just noticing it more now that the brain fog of gluten is gone.. does it go away?

Edit: I should add that I've been depressed all of my life, but at least I could wake up and look forward to the unknown drugs in my food. That made me happy. Now there's nothing. That could be it.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mushroom Proficient
mushroom
Posted

I don't recall if you have had your essential nutrient levels checked, especially Vits D, B12, folate, and potassium, magnesium and zinc. Deficiencies in any of these can really affect your mood.

revenant Enthusiast
revenant
Posted
  • Author

I had them checked a month ago, they said all was fine. I wasn't feeling as bad at that time, maybe I should go again

mushroom Proficient
mushroom
Posted

Make sure you get a copy of your results, as low "normal" can really be deficient as far as your body's needs., especially for the gluten intolerants.

ravenwoodglass Mentor
ravenwoodglass
Posted

It may also be withdrawl. What you are describing is very similiar to what I experienced when I went through withdrawl. For me it just one day lifted, hopefully if it is withdrawl you will wake up soon and it will be gone. Do get the report on the vitamin levels also as sometimes, as mentioned, the levels can be really low and doctors will still call the levels 'normal'. For example my B12 levels were 261 when tested since the lower level was 250 my doctor said it was fine but suggested I go ahead and try the sublingual B12 anyway. It made a big difference really quick when I did.

cassP Contributor
cassP
Posted

YES always get your results yourself... within range may still not be good enough!!! my sis in law had B12 WITHIN range but in the 200s... she ended up in the emergency room with peripheal neuropathy and panic attacks.. so, good to see the numbers yourself.

and check your thyroid & adrenals too.

revenant Enthusiast
revenant
Posted
  • Author

I think it is partly deficiencies and partly withdrawal

I was feeling SO tired today, I slept 11 hours and then took a nap and then just stayed in bed all day

and then I had a sudden urge to "cheat", lucky I only cheated with nightshades and nothing worse like gluten or lactose so I have minor symptoms. But most of my fatigue is gone. Which leads me to believe that a lot of the fatigue is withdrawal.

I am getting a tingling sensation in my hip lately, 34/7. Could this be b12 deficiency?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mushroom Proficient
mushroom
Posted

Warning!!! Lecture coming up...

YOU MUST resist this urge to cheat. You do have the willpower to do it and you won't get better until you do!!. End of lecture.

revenant Enthusiast
revenant
Posted
  • Author

I've never been one to have willpower but I understand the importance.

Unfortunately food used to be my means of self harm and those ways of thinking creep back sometimes...

A lot of the time it's because I start thinking that I could be making it all up (my family tells me every day I am even though I know I am not) leading me to think 'maybe I should cheat to reassure that I'm not making it all up"

So your mini lecture will keep me thinking realistically, when my mind starts to doubt! A mini thankyou for your mini lecture

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,163
    • Most Online (within 30 mins)
      7,748
    Estee
    Newest Member
    Estee
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • DAR girl
      Celiac and allergic to common subs and adds in prepared foods

      By DAR girl · Posted

      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      Disregarded

      By Scott Adams · Posted

      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By Oldturdle · Posted

      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By plumbago · Posted

      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Scott Adams · Posted

      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...