Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Nickel Allergy And Celiac Disease


MollyBeth

Recommended Posts

MollyBeth Contributor

Hello All!

It's been a while since I've been on here. Life has been going well and two years in I'm finally feeling like this gluten free stuff is getting almost easy!

Unfortunately, all good things must come to an end. I've been struggling with allergic reactions lately and testing confirms that I am allergic to nickel which is found in a surprising amount of foods. The foods that I've used to replace the glutenous foods I used to love. Potatoes, beans, chocolate... these are just a few of the items on the list. I'm also supposed to avoid hot water from the tap? I don't know if that means I need to start taking cold showers or what? So anyway, I'm just two days into this and am obviously still doing research but I thought I'd drop by here and see if anyone else has this strange combination of Celiac disease and a nickel allergy. Any tips or advice would be greatly appreciated. I hope this message finds all of you in high spirits and good health!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



missy'smom Collaborator

Sorry you have this additional challenge.:( Those of us with gluten issues seem to have sensitive immune systems! Don't know about nickel but I have a recent latex allergy dx and in latex allergy forum some have nickel allergy as well. Not familiar with the nature of the connection. I recently had a dx of chocolate allergy too and it's one of the very few indulgences I had left, the only "sweet". In our family, we tend to become allergic to the things that we eat often. Sigh...

snifter Apprentice

Yes I Do!! My sister gave me a watch and it had nickle on the backplate. It made me break out in a rash, I had to stop wearing it :(

Hope this helps, I've just been diagnosed with celiac and still have a lot to learn

sa1937 Community Regular

Yes I Do!! My sister gave me a watch and it had nickle on the backplate. It made me break out in a rash, I had to stop wearing it sad.gif

Hope this helps, I've just been diagnosed with celiac and still have a lot to learn

I have the same nickel allergy problem and have never been able to wear inexpensive dept. store jewelry, especially earrings. In fact, I've had this for my entire life. And I was just diagnosed with celiac in April with positive blood tests as well as endoscopy/biopsy.

There is a company who makes inexpensive nickel-free jewelry and I'm able to wear it without a problem although it's been years since I ordered. Open Original Shared Link

dilettantesteph Collaborator

I get a rash from nickel containing jewelry. I can wear only gold, and not even white gold, which contains nickel. I have a titanium watch. The gold ones I could afford kept breaking. I take hot showers, but I do heat up water for coffee, tea etc. and don't use hot water from the tap, but cold to start. I eat potatoes without problems, but I haven't found a chocolate which doesn't gluten me as I am super sensitive. Beans I can manage too if I sort and wash. Could there be some connection between nickel allergy and celiac disease?

sa1937 Community Regular

I get a rash from nickel containing jewelry. I can wear only gold, and not even white gold, which contains nickel. I have a titanium watch. The gold ones I could afford kept breaking. I take hot showers, but I do heat up water for coffee, tea etc. and don't use hot water from the tap, but cold to start. I eat potatoes without problems, but I haven't found a chocolate which doesn't gluten me as I am super sensitive. Beans I can manage too if I sort and wash. Could there be some connection between nickel allergy and celiac disease?

I'm a yellow gold person as I never liked white gold but wasn't aware that it contained nickel.

My daughter is also gluten free (had a very positive DGP test in late Aug. but skipped the endoscopy/biopsy) and is able to wear inexpensive costume jewelry without a problem. However her daughter (my granddaughter) has a nickel allergy. She's going to be 13 in Dec. and my daughter plans to have her tested when she has her annual check-up even though she has exhibited no celiac symptoms that we're aware of. Interesting thread and I never thought of the possible connection.

MollyBeth Contributor

It's always something. Just found out today I'm also allergic to something in rubber. My B12 and Iron are also too low again. Started dailyB12 shots today and am going in for IV iron next week. It will all be ok but this is all just frustrating.

Thanks for the jewelry site. I will look into it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tea-and-crumpets Explorer

I have a nickel allergy and I can't wear cheap jewelry at all. I once had a belt buckle give me a rash on my bellybutton -- it was awful.

As for white gold, not all of it is made with nickel. My wedding band has never given me a problem. I'm not sure how one would find out what the alloy metal is in a particular piece of jewelry, though.

I wear stainless steel (in my piercings) and sterling silver, mostly.

I wonder if it's related to celiac somehow, or if we are just more prone to these sorts of things?

Looking for answers Contributor

Nickel allergy is usually caused by getting your ears pieced with nickel-containing earrings. They've banned nickel in jewelry in European countries because of the likelihood of developing the allergy, but I believe it is still legal here. I also am alleric, as many people are...this is quite common.

I've never heard of the need to cut out nickel-containing foods. In fact, it seems very difficult, as it's a trace mineral and naturally occurs in all soil, etc. Is this something your doctor recommended? Did he/she say why? Just curious for my own knowledge...

MollyBeth Contributor

Yeah he told me to try a low nickel diet but that it would be hard because I'm gluten free. He didn't say I needed to completely eliminate it though like we do with gluten. He said chocolate and tree nuts were big ones. I'm still doing research. I'm going back in on Monday so I plan to talk to him more about it.

dilettantesteph Collaborator

I had a nickel allergy before I had my ears pierced. I also eat a lot of nuts without any issues. Go figure.

WW340 Rookie

I have had a nickel allergy for as long as I can remember. I can only wear yellow gold. I had to have all the amalgum taken out of my teeth and root canals, because I had such a terrible bone and tissue reaction to it.

Here is some information on nickel.

Open Original Shared Link

shopgirl Contributor

Nickel allergy is usually caused by getting your ears pieced with nickel-containing earrings. They've banned nickel in jewelry in European countries because of the likelihood of developing the allergy, but I believe it is still legal here. I also am alleric, as many people are...this is quite common.

I never knew that. I can't handle nickel in jewelry

missy'smom Collaborator

Do be sure to look into that rubber issue. If it's natural latex rubber allergy, nrla, then there are a number of everday things that need to be looked into and it's especially important to know about and notify others of in a medical setting.

mbrookes Community Regular

I'm surprised so many of you can wear sterling silver with nickle allergies. Most US made sterling is hardened with nickle. I can't wear most sterling.

Birch Hills is another company that makes nickle free jewelry. I buy it at Stein Mart.

shopgirl Contributor

I'm surprised so many of you can wear sterling silver with nickle allergies. Most US made sterling is hardened with nickle. I can't wear most sterling.

Birch Hills is another company that makes nickle free jewelry. I buy it at Stein Mart.

I wear a ring twenty-four hours a day that was guaranteed by the company to be pure sterling silver. It's the only jewelry I wear and have never had a problem with it. I'm not picking up cheap "sterling silver" from a department store. :)

If it itches, I take it off. But I wouldn't trust anything in my ears ever, even if it was guaranteed. A ring or a necklace is very different to me.

cyberprof Enthusiast

Yeah he told me to try a low nickel diet but that it would be hard because I'm gluten free. He didn't say I needed to completely eliminate it though like we do with gluten. He said chocolate and tree nuts were big ones. I'm still doing research. I'm going back in on Monday so I plan to talk to him more about it.

I too have a nickel allergy. It could be related to celiac or to having my ears pierced with nickel/white gold posts: They both happened around the same time.

See this other thread:

MollyBeth, you might want to avoid mineral make-up, which has metals in it. (BareMinerals is the most common but some mainstream makeup has minerals too.)

cyberprof Enthusiast

I wear a ring twenty-four hours a day that was guaranteed by the company to be pure sterling silver. It's the only jewelry I wear and have never had a problem with it. I'm not picking up cheap "sterling silver" from a department store. :)

If it itches, I take it off. But I wouldn't trust anything in my ears ever, even if it was guaranteed. A ring or a necklace is very different to me.

I can wear good quality sterling in my ears - have had some bad pieces. I can even wear white gold rings. Watches, necklaces though give me a problem almost 100% of the time...I can't wear sterling or nickel or white gold - only stainless.

MollyBeth Contributor

My allergy testing is 100% complete now. My reaction to rubber is mild, as is the nickel. I had a plus four reaction to thiomersal though. That is found in vaccines, soap free cleansers, cosmetics, and some first aid products.

Thank you all so much for the information! I've continued to eat many foods for the last week that have nickel in them and I haven't had any problems. I'm going to continue to monitor myself and see what happens!

  • 2 years later...
powerofpositivethinking Community Regular

*I posted this info in another thread, but also thought I'd add it here.

 

"came across this article.   p. 10 and 11 beginning in section 5 especially table 5 shows that patients with allergic reactions to nickel just happen to have an increase of carrying the DQ2 and DQ8 genes   :o

 

Open Original Shared Link"

 

mamat78 Apprentice

I am not diagnosed...yet, but I have had a nickel rash from my belt consistently for about 8 years. It is there most of the time but with regular cortisone cream, it stays under control. awful, awful place for a rash! I also get severe DH (if thats what it turns out to be!). I go to doc on Tuesday to review my results. 

LauraB0927 Apprentice

I also have a nickel allergy and used to get a terrible itching, oozing rash on my stomach where my belt came in contact with my skin - I went to an allergist several months back and he explained to me that many people have a topical nickel allergy and cant wear items (jewelry, belts, etc) that contain nickel, however out of those people, there is a very small percentage of people that cannot ingest nickel in foods or water.  So based on the way he explained it (and he was VERY thorough), just because someone reacts to nickel on the skin, it does not necessarily mean that they have to avoid nickel-containing foods.     MollyBeth - if you're not reacting to nickel foods, you may be in the topical group.  Hope this helps!!

  • 10 months later...
Amelia1878 Newbie

Hi there, I suffer from diatary nickle allergy and anything with nickle in it, and I have Celiac Disease. For the past 15 years I have been stuggling with sores on my arms face and neck. Had a Chemical test done on my back that took a week to do and found out the reason for all the sores was a Nickle allergy. I am stumped because all the comfort foods that I enjoy to eat I can not eat anymore.

 

Does anyone have a list of Nickle free foods that are ok to eat? Not alloud to use silverware or use stainless steal pots and pans.

 

What is really sad on my part is I had a stroke 5 years ago I can no longer work, So I recieve SSDI and help from the state. which includeds Foodstamps and Medcaid I get medicare. But they just reduced my foodstamps to 60.00 a month Right now I just buy Chicken Boneless skinless Chicken, I drink Coffee with non dairy creamer and sugar. I should weight my goal weight but I am over that by 46 pounds.

 

They say I have High Cholestrol and I do not know why I do not eat anything but chicken.

 

I can not have onions, Chocolate, No Seeds, Nuts, Garlic, Potato's, Spinach,No canned goods, No Soy, No seafood, No beans, No peas, No Dairy, I have filters on all of my water faucts Tub shower and kitchen, Because my water has a high count of Nickle in it. I know there is more to my list but what I am seeking is a list of GOOD FOOD that contains NO Gluten or NICKLE  can you help me????

GottaSki Mentor

Hi there, I suffer from diatary nickle allergy and anything with nickle in it, and I have Celiac Disease. For the past 15 years I have been stuggling with sores on my arms face and neck. Had a Chemical test done on my back that took a week to do and found out the reason for all the sores was a Nickle allergy. I am stumped because all the comfort foods that I enjoy to eat I can not eat anymore.

 

Welcome Amelia!

 

Just to let you know, most of the folks on this thread have not been on in a while.  Hopefully someone will be along that can help.

kareng Grand Master

Hi there, I suffer from diatary nickle allergy and anything with nickle in it, and I have Celiac Disease. For the past 15 years I have been stuggling with sores on my arms face and neck. Had a Chemical test done on my back that took a week to do and found out the reason for all the sores was a Nickle allergy. I am stumped because all the comfort foods that I enjoy to eat I can not eat anymore.

 

Does anyone have a list of Nickle free foods that are ok to eat? Not alloud to use silverware or use stainless steal pots and pans.

 

What is really sad on my part is I had a stroke 5 years ago I can no longer work, So I recieve SSDI and help from the state. which includeds Foodstamps and Medcaid I get medicare. But they just reduced my foodstamps to 60.00 a month Right now I just buy Chicken Boneless skinless Chicken, I drink Coffee with non dairy creamer and sugar. I should weight my goal weight but I am over that by 46 pounds.

 

They say I have High Cholestrol and I do not know why I do not eat anything but chicken.

 

I can not have onions, Chocolate, No Seeds, Nuts, Garlic, Potato's, Spinach,No canned goods, No Soy, No seafood, No beans, No peas, No Dairy, I have filters on all of my water faucts Tub shower and kitchen, Because my water has a high count of Nickle in it. I know there is more to my list but what I am seeking is a list of GOOD FOOD that contains NO Gluten or NICKLE  can you help me????

This looks like a good explanation. There are some foods to avoid on about page 5.

Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,398
    • Most Online (within 30 mins)
      7,748

    Megannnnn
    Newest Member
    Megannnnn
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Scott Adams
    • Scott Adams
      I had the same thing happen to me at around your age, and to this day it's the most painful experience I've ever had. For me it was the right side of my head, above my ear, running from my nerves in my neck. For years before my outbreak I felt a tingling sensation shooting along the exact nerves that ended up exactly where the shingles blisters appeared. I highly recommend the two shot shingles vaccine as soon as your turn 50--I did this because I started to get the same tingling sensations in the same area, and after the vaccines I've never felt that again.  As you likely know, shingles is caused by chicken pox, which was once though of as one of those harmless childhood viruses that everyone should catch in the wild--little did they know that it can stay in your nervous system for your entire life, and cause major issues as you age.
    • trents
    • Clear2me
      Thanks for the info. I recently moved to CA from Wyoming and in that western region the Costco and Sam's /Walmart Brands have many nuts and more products that are labeled gluten free. I was told it's because those products are packaged and processed  in different  plants. Some plants can be labeled  gluten free because the plant does not also package gluten products and they know that for example the trucks, containers equipment are not used to handle wheat, barely or Rye. The Walmart butter in the western region says gluten free but not here. Most of The Kirkland and Members Mark brands in CA say they are from Vietnam. That's not the case in Wyoming and Colorado. I've spoken to customer service at the stores here in California. They were not helpful. I check labels every time I go to the store. The stores where I am are a Sh*tshow. The Magalopoly grocery chain Vons/Safeway/Albertsons, etc. are the same. Fishers and Planters brands no longer say gluten free. It could be regional. There are nuts with sugar coatings and fruit and nut mixes at the big chains that are labeled gluten free but I don't want the fruit or sugar.  It's so difficult I am considering moving again. I thought it would be easier to find safe food in a more populated area. It's actually worse.  I was undiagnosed for most of my life but not because I didn't try to figure it out. So I have had all the complications possible. I don't have any spare organs left.  No a little gluten will hurt you. The autoimmune process continues to destroy your organs though you may not feel it. If you are getting a little all the time and as much as we try we probably all are and so the damage is happening. Now the FDA has pretty much abandoned celiacs. There are no requirements for labeling for common allergens on medications. All the generic drugs made outside the US are not regulated for common allergens and the FDA is taking the last gluten free porcine Thyroid med, NP Thyroid, off the market in 2026. I was being glutened by a generic levothyroxin. The insurance wouldn't pay for the gluten free brand any longer because the FDA took them all off their approved formulary. So now I am paying $147 out of pocket for NP Thyroid but shortly I will have no safe choice. Other people with allergies should be aware that these foreign generic pharmaceutical producers are using ground shellfish shell as pill coatings and anti-desicants. The FDA knows this but  now just waits for consumers to complain or die. The take over of Wholefoods by Amazon destroyed a very reliable source of good high quality food for people with allergies and for people who wanted good reliably organic food. Bezos thought  he could make a fortune off people who were paying alot for organic and allergen free food by substituting cheap brands from Thailand. He didn't understand who the customers were who were willing to pay more for that food and why. I went from spending hundreds to nothing because Bezo removed every single trusted brand that I was buying. Now they are closing Whole foods stores across the country. In CA, Mill Valley store (closed July 2025) and the National Blvd. store in West Los Angeles (closed October 2025). The Cupertino store will close.  In recent years I have learned to be careful and trust no one. I have been deleberately glutened in a restaurant that was my favorite (a new employee). The Chef owner was not in the kitchen that night. I've had  a metal scouring pad cut up over my food.The chain offered gluten free dishes but it only takes one crazy who thinks you're a problem as a food fadist. Good thing I always look. Good thing they didn't do that to food going to a child with a busy mom.  I give big tips and apologize for having to ask in restaurants but mental illness seem to be rampant. I've learn the hard way.          I don't buy any processed food that doesn't say gluten free.  I am a life long Catholic. I worked for the Church while at college. I don't go to Church anymore because the men at the top decided Jesus is gluten. The special hosts are gluten less not gluten free. No I can't drink wine after people with gluten in their mouth and a variety of deadly germs. I have been abandoned and excluded by my Church/Family.  Having nearly died several times, safe food is paramount. If your immune system collapses as mine did, you get sepsis. It can kill you very quickly. I spent 5 days unconscious and had to have my appendix and gall bladder removed because they were necrotic. I was 25. They didn't figure out I had celiac till I was 53. No one will take the time to tell you what can happen when your immune system gets overwhelmed from its constant fighting the gluten and just stops. It is miserable that our food is processed so carelessly. Our food in many aspects is not safe. And the merging of all the grocery chains has made it far worse. Its a disaster. Krogers also recently purchased Vitacost where I was getting the products I could no longer get at Whole Foods. Kroger is eliminating those products from Vitacost just a Bezos did from WF. I am looking for reliable and certified sources for nuts. I have lived the worst consequences of the disease and being exposed unknowingly and maliciously. Once I was diagnosed I learned way more than anyone should have to about the food industry.  I don't do gray areas. And now I dont eat out except very rarely.  I have not eaten fast food for 30 years before the celiac diagnosis. Gluten aside..... It's not food and it's not safe.  No one has got our backs. Sharing safe food sources is one thing we can do to try to be safe.        
    • Mmoc
      Thank you kindly for your response. I have since gotten the other type of bloods done and am awaiting results. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.