Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does Anyone Get Upper Back Spasms When Glutened?


Celiac15

Recommended Posts

Celiac15 Newbie

Hey there -

I am new to this site and it is so helpful. For years, I get upper back spasms when I am glutened and it lasts for about a week. It is so strange considering nobody else seems to have these symptoms. Of course, I get the headache, stomach bloating etc...but its the upper back spasms that are sometimes unbearable and make me so irritable. I use heat, ice, bengay, advil.

If anyone has this symptom, have you found anything that really works to alieve the symptoms? Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Cypressmyst Explorer

I get all over back spasms. In fact its funny that you should ask because I'm having them now. <_<

Got glutened by soap that was mislabeled at a friends house tonight. Didn't eat anything or touch my mouth afterwards but I've got all the symptoms now, achy back spasms, foggy brain, headaches, cold hands. :( Within minutes of washing them too.

But you know...gluten can't get through the skin or anything... :rolleyes:

I've found that eating an apple sometimes helps alleviate some of the symptoms. Apples are detoxing fruits.

lcarter Contributor

Yes, I get spasms too, but more in the mid back area and usually after the bloating and diarrhea have subsided some. Interesting!

dilettantesteph Collaborator

I get them too. What helps me is to keep my back really strong with exercise. Also to keep it well supported by strong stomach muscles, also exercise, and limber, stretching exercises. I get lazy and stop doing all that and then go back to the back problems when glutened.

cap6 Enthusiast

and here I thought I was nuts! I get mid back pain so bad when glutened. That was one of my big 3 glutened symptoms.

Lesx2 Newbie

and here I thought I was nuts! I get mid back pain so bad when glutened. That was one of my big 3 glutened symptoms.

lower back for me... Massage, lots of water, and heating pad help me

twe0708 Community Regular

Hey there -

I am new to this site and it is so helpful. For years, I get upper back spasms when I am glutened and it lasts for about a week. It is so strange considering nobody else seems to have these symptoms. Of course, I get the headache, stomach bloating etc...but its the upper back spasms that are sometimes unbearable and make me so irritable. I use heat, ice, bengay, advil.

If anyone has this symptom, have you found anything that really works to alieve the symptoms? Thanks!

Not now but I used to before I went gluten-free.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Nadia2009 Enthusiast

I get muscle spasms too and mostly in the back. I used to wonder what it was when I was still eating gluten. My mom has a lot of spasm like that but she isn't excited to go for the test. I think I will end up paying the test for my whole family if I want them tested :)

  • 2 years later...
diva2000 Newbie

I had this happen to me really bad this week. I was getting back spasms for 3 days when I thought about taking an allergy pill. Just store brand chloriphenirine maleate, and it started relieving the spasms. I took it every 4 hours, and it got better and better. When I would forget, the back spasms would start up. After about 3 days of the allergy meds, it is getting to the point where I don't get the spasms when I forget a pill. Saved me big time! I thought I was going to have to go to the hospital.

  • 3 years later...
BeeGfree Newbie

I am newly diagnosed as celiac and have gotten mid back spasms 3x in 2 weeks. The 1st time I ingested something I knew was gluten my mid back actually locked.  That was one of the reasons I went to my GP for it in the first place. This week I went to my chiro twice for it.  When I asked him how it could be connected to celiac he told me your duodenum which is right below your esophagus in the front has nerve endings that go to the vertebrae in the middle of your shoulder blades.  That was how I found out that the 2 are connected.  Chiropractic helps with immediate relief every time...

  • 1 year later...
LiseJoy Newbie

Hello,

I am so relieved to be reading this post. I really thought I was losing my mind. I just had fried chicken from a take-out and pretty sure the batter had gluten. 5 minutes later I was in excruciating pain!! Still am:( 

I haven't been tested but amtrying to eat grain free as per recommendation of book: No Grain, No Pain.

Victoria1234 Experienced
2 hours ago, LiseJoy said:

Hello,

I am so relieved to be reading this post. I really thought I was losing my mind. I just had fried chicken from a take-out and pretty sure the batter had gluten. 5 minutes later I was in excruciating pain!! Still am:( 

I haven't been tested but amtrying to eat grain free as per recommendation of book: No Grain, No Pain.

Unless the fried chicken says it's gluten-free and you know they fried it in oil that's only had gluten-free foods in it, you can rest assured your fried chicken had gluten.

welcome to the board!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    2. - cristiana replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    3. 0

      Celiac Friendly Sports Camps - Academy Camps - Virtual Open House

    4. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Low iron and vitamin d

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,217
    • Most Online (within 30 mins)
      7,748

    Beanography
    Newest Member
    Beanography
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • cristiana
    • trents
      Cristiana, that sounds like a great approach and I will be looking forward to the results. I am in the same boat as you. I don't experience overt symptoms with minor, cross contamination level exposures so I sometimes will indulge in those "processed on equipment that also processes wheat . . ." or items that don't specifically claim to be gluten free but do not list gluten containing grains in their ingredient list. But I always wonder if I am still experiencing sub acute inflammatory reactions. I haven't had any celiac antibody blood work done since my diagnosis almost 25 years ago so I don't really have any data to go by.   
    • cristiana
      I've been reflecting on this further. The lowest TTG I've ever managed was 4.5 (normal lab reading under 10).  Since then it has gone up to 10.   I am not happy with that.  I can only explain this by the fact that I am eating out more these days and that's where I'm being 'glutened', but such small amounts that I only occasionally react. I know some of it is also to do with eating products labelled 'may contain gluten' by mistake - which in the UK means it probably does! It stands to reason that as I am a coeliac any trace of gluten will cause a response in the gut.  My villi are healed and look healthy, but those lymphocytes are present because of the occasional trace amounts of gluten sneaking into my diet.   I am going to try not to eat out now until my next blood test in the autumn and read labels properly to avoid the may contain gluten products, and will then report back to see if it has helped!
    • lizzie42
      Hi, I posted before about my son's legs shaking after gluten. I did end up starting him on vit b and happily he actually started sleeping better and longer.  Back to my 4 year old. She had gone back to meltdowns, early wakes, and exhaustion. We tested everything again and her ferritin was lowish again (16) and vit d was low. After a couple weeks on supplements she is cheerful, sleeping better and looks better. The red rimmed eyes and dark circles are much better.   AND her Ttg was a 3!!!!!! So, we are crushing the gluten-free diet which is great. But WHY are her iron and vit d low if she's not getting any gluten????  She's on 30mg of iron per day and also a multivitamin and vit d supplement (per her dr). That helped her feel better quickly. But will she need supplements her whole life?? Or is there some other reason she's not absorbing iron? We eat very healthy with minimal processed food. Beef maybe 1x per week but plenty of other protein including eggs daily.  She also says her tummy hurts every single morning. That was before the iron (do not likely a side effect). Is that common with celiac? 
    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.