Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help! My Hair Is Falling Out


CarolinaKip

Recommended Posts

CarolinaKip Community Regular

I need some help with vitamin suggestions targetting hair loss or other suggestions. I noticed a few weeks ago losing some, but now it's breaking off and I have a noticable spot. I use Johnson and Johnson baby shampoo, Suave Aloe Vera and ginseng conditioner, Garnier Fructis fiber gum putty and suave hair spray. To my knowledge they are gluten-free or have a missed something? I'm thinking it is more of not getting the right vitamins? Suggestions and help is most appreciated!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cahill Collaborator

I need some help with vitamin suggestions targetting hair loss or other suggestions. I noticed a few weeks ago losing some, but now it's breaking off and I have a noticable spot. I use Johnson and Johnson baby shampoo, Suave Aloe Vera and ginseng conditioner, Garnier Fructis fiber gum putty and suave hair spray. To my knowledge they are gluten-free or have a missed something? I'm thinking it is more of not getting the right vitamins? Suggestions and help is most appreciated!

Have you had your thyroid checked lately ??

CarolinaKip Community Regular

Have you had your thyroid checked lately ??

4 Months ago, but I'm willing to have it checked again!

cassP Contributor

ya- i second that- get a complete thyroid panel- and ask for a copy of your result-> a lot of our docs are still using the TSH range that goes up to 4.5, when a group of endocrinologists are now suggesting the normal range should only go up to 3

& getting your vitamin levels checked would be a good idea too! altho i dont know what deficiencies involve hair loss- im sure others here could tell us

fattycat Rookie

I had this happen in 2005. Several vitamin and mineral levels were low or fluctuating but all of my hormone levels were also low. My thyroid tests came back normal but I had to go on hormone replacement therapy for about 6 months.

rosetapper23 Explorer

A couple of suggestions: Take amino acid chelated zinc and a supplement with choline in it (BioSil is a good brand). If you have a zinc deficiency, you'll have thinning hair, flaky scalp (perhaps only in a few areas, though), perhaps some pimples around your mouth (above, two the sides, and on your chin), and you might also be having some problems with your tendons.

Another thing to try is EO Volumizing shampoo, which is gluten free. It contains rosemary essential oil, which stimulates hair growth. You can also take organic aloe vera pulp and mix in a little rosemary essential oil to dab on those areas where the hair is thinning.

mommida Enthusiast

BIOTIN

I strongly suggest Biotin in more a liquid form not the powdery pill. It would by from eating liver. Not too many people eat liver, so vitamin supplements are probably needed.

Thyroid problems should be looked into. I have been on thyroid medication for 15 years and the Biotin really helps.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



golfer03 Newbie

I need some help with vitamin suggestions targetting hair loss or other suggestions. I noticed a few weeks ago losing some, but now it's breaking off and I have a noticable spot. I use Johnson and Johnson baby shampoo, Suave Aloe Vera and ginseng conditioner, Garnier Fructis fiber gum putty and suave hair spray. To my knowledge they are gluten-free or have a missed something? I'm thinking it is more of not getting the right vitamins? Suggestions and help is most appreciated!

I recently self-diagnosed with gluten intolerance after years of problems. I referred myself to an endocrologist to confirm and was also diagnosed with PCOS (which I strongly believe is caused by undiagnosed gluten intolerance). The main reason I finally had to figure out what was wrong was becasue I started losing my hair. I have always had long thick brown hair. I suppose I've always taken my thick head of hair for granted, but in the last couple months I started losing lots of hair. At first I noticed my shower drain had hair in it almost daily which I thought was odd. Then I noticed hair shedding all over my bathroom counter from doing my makeup and hair in the mornings. It just began to worsen and worsen. By the third month that I had been noticing the hair loss I was losing handfuls every singe day in the shower. I would run my hands through my hair in the shower while rinsing it and handfuls of hair would come out. At this point I had already determined that I had gluten intolerance, but I was not religiously supplementing, and while I had cut out the majority of gluten, I was still ingesting gluten occassionally. I requested that the endoconrologist perform blood work to test: testosterone levels, iron levels and vitamin B12 levels. I knew that untreated gluten intolerance very often leads to B12 and iron deficiencies since the small intestine is responsible for absorbing these two nutrients from the food we eat. I was also suspicious that the gluten intolerance was causing my homones to be out of balance and was suspicious that excess testosterone may be converting to DHT (the bad testosterone which is mainly responsible for balding in both men and women). A week later I went back to receive the results from the blood work: testosterone levels were very high for a female, I was B12 deficient and iron deficient. I knew this was from the gluten because I eat a diet high in B12 and iron and I eat 2 eggs every single day. The only way I would be deficient was because of malabsorption issues (small intestine damage). I received B12 injections into my arm that day before I left the doctor. Now I take 400% the daily recommended value of iron and I take 16,000% daily value of B12 sublingually (you need to take the b12 in a tablet that you place under your tongue while it dissolves. This increased absorption since it goes directly into your blood stream instead of being processed by your intestine). I also take Saw Palmetto (a natural supplement that blocks DHT from binding to hair follicles). I am also on low dose birth control which, along with the absolute exclusion of gluten, will hopefully bring my testosterone levels back down to normal in about 3 months time. But I didn't want to risk losing more hair in the meantime so I added the saw palmetto in case the excess testosterone was the culprit behind my hair falling out. However, I am near certain my hair started falling out because of the B12 and iron deficiencies. I think the deficiency has been getting worse as time has gone on and it finally reached a point of hair loss-although now I see there were warning signs long before such as tingling hands and feet, dizziness, fatigue, and poor balance that I attributed solely to the gluten. I strongly suggest you ask you doctor to test you testosterone levels, B12 and iron levels or even just buy sublingual b12 tablets (less than $5.00 a bottle) and iron and start taking them ASAP. If your testosterone levels also come back high then add the saw palmetto or ask you doctor their recommendation for balancing the high testosterone (again I think this hormone imbalance is from gluten) My hair loss stopped within 4 days. Hope this helps.

cO-ol Explorer

B12 and iron deficiencies definitely can contribute to hair loss. If you haven't gotten your iron or b12 checked, that's a really good idea (as is getting your thyroid checked).

Make sure that for iron the ferritin is tested and for b12 MMA & homocysteine are also checked, because you can have deficiencies that don't quite show up on standard b12 and hemoglobin tests.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - suek54 replied to suek54's topic in Dermatitis Herpetiformis
      5

      Awaiting dermatitis herpetiformis confirmation following biopsy

    2. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      how much gluten do I need to eat before blood tests?

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      how much gluten do I need to eat before blood tests?

    4. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      how much gluten do I need to eat before blood tests?

    5. - catnapt posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,257
    • Most Online (within 30 mins)
      7,748

    KariNoMoreGluten
    Newest Member
    KariNoMoreGluten
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • suek54
      Thank you all for your advice and the dermatitis herpetiformis article. The latter made me realise I had stopped taking my antihistamine, which I will restart today. The Dapsone has cleared the rash entirely but I still get quite a bit itching, absolutely nothing to see though. I know its notoriously hard to clear and its still relatively early days for me.  The iodine issue is very interesting. I do eat quite a bit of salt because I have Addison's disease and sodium retention is an issue. I also have autoimmune hypothyroidism, not sure how a low iodine diet would play into that? Because of my Addison's I am totally steroid dependent, I take steroids 4 x daily and cannot mount any defence against inflammation. I need to increase my meds for that. Now that I know what is wrong I can do just that if Im having a bad day. Life is very sweet, just so damn complicated sometimes! Hey ho, onwards. Thank you again for your advice.  
    • trents
      So, essentially all of the nutrition in the food we eat is absorbed through the villous lining of the small bowel. This is the section of the intestinal track that is damaged by celiac disease. This villous lining is composed of billions of finger-like projections that create a huge amount of surface area for absorbing nutrients. For the celiac person, when gluten is consumed, it triggers an autoimmune reaction in this area which, of course, generates inflammation. The antibodies connected with this inflammation is what the celiac blood tests are designed to detect but this inflammation, over time, wears down the finger-like projections of the villous lining. Of course, when this proceeds for an extended period of time, greatly reduces the absorption efficiency of the villous lining and often results in many and various nutrient deficiency-related health issues. Classic examples would be osteoporosis and iron deficiency. But there are many more. Low D3 levels is a well-known celiac-caused nutritional deficiency. So is low B12. All the B vitamins in fact. Magnesium, zinc, etc.  Celiac disease can also cause liver inflammation. You mention elevated ALP levels. Elevated liver enzymes over a period of 13 years was what led to my celiac diagnosis. Within three months of going gluten free my liver enzymes normalized. I had elevated AST and ALT. The development of sensitivities to other food proteins is very common in the celiac population. Most common cross reactive foods are dairy and oats but eggs, soy and corn are also relatively common offenders. Lactose intolerance is also common in the celiac population because of damage to the SB lining.  Eggs when they are scrambled or fried give me a gut ache. But when I poach them, they do not. The steam and heat of poaching causes a hydrolysis process that alters the protein in the egg. They don't bother me in baked goods either so I assume the same process is at work. I bought a plastic poacher on Amazon to make poaching very easy. All this to say that many of the issues you describe could be caused by celiac disease. 
    • catnapt
      thank you so much for your detailed and extremely helpful reply!! I can say with absolute certainty that the less gluten containing products I've eaten over the past several years, the better I've felt.   I wasn't avoiding gluten, I was avoiding refined grains (and most processed foods) as well as anything that made me feel bad when I ate it. It's the same reason I gave up dairy and eggs- they make me feel ill.  I do have a bit of a sugar addiction lol so a lot of times I wasn't sure if it was the refined grains that I was eating - or the sugar. So from time to time I might have a cookie or something but I've learned how to make wonderful cookies and golden brownies with BEANS!! and no refined sugar - I use date paste instead. Pizza made me so ill- but I thought it was probably the cheese. I gave up pizza and haven't missed it. the one time I tried a slice I felt so bad I knew I'd never touch it again. I stopped eating wheat pasta at least 3 yrs ago- just didn't feel well after eating it. I tried chick pea pasta and a few others and discovered I like the brown rice pasta. I still don't eat a lot of pasta but it's nice for a change when I want something easy. TBH over the years I've wondered sometimes if I might be gluten intolerant but really believed it was not possible for me to have celiac disease. NOW I need to know for sure- because I'm in the middle of a long process of trying to find out why I have a high parathyroid level (NOT the thyroid- but rather the 4 glands that control the calcium balance in your body) I have had a hard time getting my vit D level up, my serum calcium has run on the low side of normal for many years... and now I am losing calcium from my bones and excreting it in my urine (some sort of renal calcium leak) Also have a high ALP since 2014. And now rapidly worsening bone density.  I still do not have a firm diagnosis. Could be secondary HPT (but secondary to what? we need to know) It could be early primary HPT. I am spilling calcium in my urine but is that caused by the high parathyroid hormone or is it the reason my PTH is high>? there are multiple feedback loops for this condition.    so I will keep eating the bread and some wheat germ that does not seem to bother me too much (it hasn't got enough gluten to use just wheat germ)    but I'm curious- if you don't have a strong reaction to a product- like me and wheat germ- does that mean it's ok to eat or is it still causing harm even if you don't have any obvious symptoms? I guess what you are saying about silent celiac makes it likely that you can have no symptoms and still have the harm... but geez! you'd think they'd come up with a way to test for this that didn't require you to consume something that makes you sick! I worry about the complications I've been reading about- different kinds of cancers etc. also wondering- are there degrees of celiac disease?  is there any correlation between symptoms and the amnt of damage to your intestines? I also need a firm diagnosis because I have an identical twin sister ... so if I have celiac, she has it too- or at least the genetic make up for having it. I did have a VERY major stress to my body in 2014-2016 time frame .. lost 50lbs in a short period of time and had severe symptoms from acute protracted withdrawal off an SSRI drug (that I'd been given an unethically high dose of, by a dr who has since lost his license)  Going off the drug was a good thing and in many ways my health improved dramatically- just losing 50lbs was helpful but I also went  off almost a dozen different medications, totally changed my diet and have been doing pretty well except for the past 3-4 yrs when the symptoms related to the parathyroid issue cropped up. It is likely that I had low vit D for some time and that caused me a lot of symptoms. The endo now tells me that low vit D can be caused by celiac disease so I need to know for sure! thank you for all that great and useful information!!! 
    • trents
      Welcome, @catnapt! The most recent guidelines are the daily consumption of a minimum of 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a minimum of two weeks. But if possible stretching that out even more would enhance the chances of getting valid test results. These guidelines are for those who have been eating gluten free for a significant amount of time. It's called the "gluten challenge".  Yes, you can develop celiac disease at any stage of life. There is a genetic component but also a stress trigger that is needed to activate the celiac genes. About 30-40% of the general population possesses the genetic potential to develop celiac disease but only about 1% of the general population actually develop celiac disease. For most with the potential, the triggering stress event doesn't happen. It can be many things but often it is a viral infection. Having said that, it is also the case that many, many people who eventually are diagnosed with celiac disease probably experienced the actual onset years before. Many celiacs are of the "silent" type, meaning that symptoms are largely missing or very minor and get overlooked until damage to the small bowel lining becomes advanced or they develop iron deficiency anemia or some other medical problem associated with celiac disease. Many, many are never diagnosed or are diagnosed later in life because they did not experience classic symptoms. And many physicians are only looking for classic symptoms. We now know that there are over 200 symptoms/medical problems associated with celiac disease but many docs are only looking for things like boating, gas, diarrhea. I certainly understand your concerns about not wanting to damage your body by taking on a gluten challenge. Your other option is to totally commit to gluten free eating and see if your symptoms improve. It can take two years or more for complete healing of the small bowel lining once going gluten free but usually people experience significant improvement well before then. If their is significant improvement in your symptoms when going seriously gluten free, then you likely have your answer. You would either have celiac disease or NCGS (Non Celiac Gluten Sensitivity).
    • catnapt
      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.