Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Your Opnions


Mama Melissa

Recommended Posts

Mama Melissa Enthusiast

Hey guys,

I have a little dilema i am newly on the diet but starting to get the hang of it.In a sad turn of events my husbands grandmother passed away yest:(However the wake is tom and then the funeral on fri now i know that after the funeral everyone will prob go somewhere to eat.My question to you guys is how do i stay safe and not be pushy about my diet at a time like this,since i have no control where they may be going.I dont want to make my diet a big deal at a time like this even though my inlaws are very understanding,i just get nervous when put in these situations.Its not like i can say oh ill just eat home i have to be there for my husband.Thanx for listening guys xoxo


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Roda Rising Star

Sorry to hear of your loss. If you are able, pack some things in a cooler. That would probably be your best bet.

lovegrov Collaborator

Taking something with you will probably be difficult in this situation so you could settle for something simple and relatively safe like a salad with oil and vinegar or maybe Italian. Other relatively safe items include plain steak or shrimp broiled or steamed.

richard

kareng Grand Master

Just bring some food. Don't fuss. Just take it out when everyone else is eating. You could skip the restuarant if there is a chore you could help with like distributing flowers or going back to the house and cleaning up or whatever.

Mama Melissa Enthusiast

thank you everyone, i would feel almost out of place bringing my own food in this type of situation.I guess i will order something plain and mention to them my condition on the dl.I have to be there it just wouldnt be right...

ravenwoodglass Mentor

thank you everyone, i would feel almost out of place bringing my own food in this type of situation.I guess i will order something plain and mention to them my condition on the dl.I have to be there it just wouldnt be right...

Sorry for your loss. This will be a tough time for your family and they likely wouldn't be concentrating on what you are or are not eating. Celiac is nothing to be ashamed of and if bringing your own food will keep you safe then it shouldn't be an issue. However if you are really uncomfortable bringing something safe to the restaurant you could eat something safe before you go and then just order a plain salad if you feel you have to eat something with the group.

rainer83 Newbie

Sorry to hear about your loss, my condolences.

In situations like that, bring some snack foods that will tide you over. Eat an apple and/or banana, they're both proven to tide hunger over just as much as a small meal.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mama Melissa Enthusiast

would it be to much of a risk ordering a plane meat and potato and tell them to make sure everything is clean and explain my condtiion if i pulll the manager aside???of course ill bring a snack i just think it would be nice to eat with the famiky u kno?

srall Contributor

I'm sorry for your loss. If you can't eat ahead of time or pack your own food, I hope you are able to order something safe. I have found that I've become very good at just being hungry when it's not safe for me to eat. I've said to my husband, hunger is so much better than risking being sick. I always have cashews in my purse. I'd probably do some cut up veggies and fruit too. Certainly not a meal, but maybe something to get you through.

SGWhiskers Collaborator

For my body, it would be a risk at many restaraunts. Any time there is a large table of people, or during lunch/dinner rush, the kitchen gets busy and mistakes are more likely to happen. I am very sensitive to CC and seem to be unable to manage meals that others might be fine with.

I would take my own meal into the restaraunt in a small container. In a situation where didn't have much control over the timing of the outing, I would probably take canned food that I wouldn't mind eating cold. At minimum, I would take the dish into the restaraunt in my purse along with a snack and see how busy or safe the restaraunt felt. Then I could decide to order or eat my own meal without feeling hungry.

As a bonus to eating your own meal, maybe a cousin will ask why you are eating your own meal, learn about celiac, and go get tested.

Mama Melissa Enthusiast

Well maybe they will choose a place that actually had a gluten-free menu and i will get lucky:)the funeral start at 745 am so it will be hard to bring anything thats hot but i will try to atleast eat my breakfast first then take it from there thank you all for your time to answer my post xoxox

rockectman Rookie

meat, salads and veggies......usually pretty safe bet.

Mama Melissa Enthusiast

i love all 3:)

jenngolightly Contributor

Well maybe they will choose a place that actually had a gluten-free menu and i will get lucky:)the funeral start at 745 am so it will be hard to bring anything thats hot but i will try to atleast eat my breakfast first then take it from there thank you all for your time to answer my post xoxox

This is what I do in a situation like yours. I hang back when the party is seated. I talk to the hostess/host and ask if they have a gluten-free menu. If yes- yippee! If not, go to the table and when the waiter is taking drink orders and comes to you, tell him, "Oh, and when you're done with the drinks I need to talk to you about my food allergies." Very casually and without making a fuss - as if you do it all the time (fairly soon you will be!). Then he's prepared to spend a bit of time with you. It's low key and you aren't holding up everyone else's order.

Most restaurants already know all about Celiac/gluten intolerance. Just tell the waiter that you have Celiac (but I always say that I'm "allergic" to wheat, rye, and barley because their ears perk up at the word allergic). Tell him that you'd like the _________ (salad, meat, xxx), but you want to make sure that it doesn't have wheat, rye, or barley. He'll either go back to the kitchen to ask the chef about what you ordered, or tell you that he'll take care of it.

Just make sure the salad dressing is gluten-free! Lots of dressings aren't, so pay particular attention and ask him if he's sure it's gluten-free. Or go with plain oil and vinegar if you don't want to make a fuss. No croutons! But again, most restaurants are pretty used to this kind of thing. If it comes with croutons, don't pick them off. Order a new salad. When I was new to Celiac, I bought individual gluten-free salad dressing packets and kept them in my bag for when I ate at restaurants. That way I didn't have to worry about the salad dressings at the restaurant. I only had to worry about croutons. I got them at Sprouts (similar to Whole Foods).

Relax and enjoy the time you spend with relatives. It's a somber event, but often brings up joyful memories. It won't be a big deal at the restaurant if you are prepared for what to say to the waiter.

And, by the way, Lara bars are a great snack to keep in your purse at all times! Kinda pricey, but they've gotten me through ravenous hunger. Our Costco has them, and my local Kroger store, Whole Foods... lots of flavors, too. Mostly they have nuts and dates and berries that come together as a dense granola-type bar. I love the peanut butter cookie flavor.

jenngolightly Contributor

meat, salads and veggies......usually pretty safe bet.

Be careful about meat. It's often marinated in gluten. Ask about this.

Mama Melissa Enthusiast

Jen thank you soo much for your helpful and informative post:) I agree your approach is exactly what i will do,you def have the right idea.As for salad dressing ususally brig my own bulky bottle but i love your idea about the packets im going to check my whole foods next time i go:) Also can i add in addition to larabars what i seem to like even better and give meTONS of energy are KIND BARS omgggg to die forrrr if you like nuts that is:) thanx again xoxoxo

jenngolightly Contributor

For my body, it would be a risk at many restaraunts. Any time there is a large table of people, or during lunch/dinner rush, the kitchen gets busy and mistakes are more likely to happen. I am very sensitive to CC and seem to be unable to manage meals that others might be fine with.

I would take my own meal into the restaraunt in a small container. In a situation where didn't have much control over the timing of the outing, I would probably take canned food that I wouldn't mind eating cold. At minimum, I would take the dish into the restaraunt in my purse along with a snack and see how busy or safe the restaraunt felt. Then I could decide to order or eat my own meal without feeling hungry.

As a bonus to eating your own meal, maybe a cousin will ask why you are eating your own meal, learn about celiac, and go get tested.

I've taken my own food many times. I'll ask the waiter for a plate, and discretely put my own food on the plate when everyone else's food has arrived. Most people never notice that it's my own food. My suggestion is that you warn the waiter that you're going to do this and why. Most places are cool about it, but you don't want to make a scene when a manager comes over to grill you about why you aren't eating their food.

Skylark Collaborator

Sorry for your loss. Your husband must be pretty upset.

I eat a tossed salad with oil and vinegar in a restaurant where I am uncertain about the rest of the food. Sometimes you can get a baked potato or a completely plain piece of chicken breast or fish. If it's an Oriental restaurant, I get plain rice and plain steamed veggies. At chains, I ask for the allergy information and look for foods without wheat. (Often salad!)

Mama Melissa Enthusiast

thanx skylark yes he is very upset as well as myself,grandmas are special people:)

MelindaLee Contributor

Sorry about the loss. It's very wonderful of you to be concerned about being there for your husband. I would suggest and once drinks are ordered, excuse yourself and go talk to the manager or waiter. Then you don't have to feel like its a big deal. I still feel uncomfortable having to ask for special accodations, so doing it away from the group is easier for me. We had a birthday celebration at a buffet restaurant. I knew that wouldn't work for me, so I got there ahead of time and talked with the server. It worked great! Good food and it was no big deal because I could talk to them in private. ♥ to you and your family!

cap6 Enthusiast

I often tuck some tuna or turkey burger on gluten-free bread in my purse. Then I order a plain salad with oil & vinegar dressing and have my sandwich on the side. It's a meal - not the best but it works in a crunch.

Mama Melissa Enthusiast

thank you everyone:)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      6

      Help understand results

    2. - knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      10

      Insomnia help

    3. - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Positive biopsy

    4. - pothosqueen posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Positive biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,990
    • Most Online (within 30 mins)
      7,748

    pothosqueen
    Newest Member
    pothosqueen
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      That test is saying that your daughter is not making normal amounts of any IGA antibodies.  She's not making normal amounts of antibodies against gliadin, not against bacteria, not against viruses.  She is deficient in total IGA, so the test for antigliadin antibodies is not valid.  The test was a failure.  The test only works if all different kinds of antibodies were being made.  Your daughter is not making all different kinds of antibodies, so the test results are moot.  Your daughter should have the DGP IgG and TTG IgG tests done.   The tests should be performed while she is still consuming gluten.  Stopping and restarting a gluten containing diet can make her more sick, just like you refuse to eat gluten for testing.  Call the doctor's office, request both the IGG tests. Request to be put on the cancellation list for an appointment sooner.  Ask for genetic testing.   Celiac disease is passed on from parents to children.  You and all seven children should be tested for genes for Celiac disease.  Your parents, your siblings and their children should be tested as well.  Eating gluten is not required for genetic testing because your genes don't change.  Genetic testing is not a diagnosis of Celiac disease.  Just having the genes means there is the potential of developing Celiac disease if the Celiac genes are activated.  Genetic testing helps us decide if the Celiac genes are activated when coupled with physical symptoms, antibody testing, and biopsy examination. It's frustrating when doctors get it wrong and we suffer for it.  Hang in there.  You're a good mom for pursuing this!  
    • knitty kitty
      @hjayne19, So glad you found the information helpful.  I know how difficult my struggle with anxiety has been.  I've been finding things that helped me and sharing that with others makes my journey worthwhile. I like Life Extension Bioactive Complete B Complex.  It contains the easily activated forms of B vitamins needed by people with the MTHFR genetic variation often found with Celiac disease.   Avoid B Complex vitamins if they contain Thiamine Mononitrate if possible.  (Read the ingredients listing.)  Thiamine Mononitrate is the "shelf-stable" form of B 1 that the body can't utilize.  B vitamins breakdown when exposed to heat and light, and over time.  So "shelf-stable" forms won't breakdown sitting on a shelf in a bright store waiting to be bought.  (It's also very cheap.)  Thiamine Mononitrate is so shelf-stable that the body only absorbs about thirty percent of it, and less than that is utilized.  It takes thiamine already in the body to turn Thiamine Mononitrate into an active form.   I take MegaBenfotiamine by Life Extension.  Benfotiamine has been shown to promote intestinal healing, neuropathy, brain function, glycemic control, and athletic performance.   I take TTFD-B1 Max by Maxlife Naturals, Ecological Formulas Allthiamine (TTFD), or Thiamax by EO Nutrition.  Thiamine Tetrahydrofurfuryl Disulfide (TTFD for short) gets into the brain and makes a huge difference with the anxiety and getting the brain off the hamster wheel.  Especially when taken with Magnesium Threonate.   Any form of Thiamine needs Magnesium to make life sustaining enzymes and energy.  I like NeuroMag by Life Extension.  It contains Magnesium Threonate, a form of magnesium that easily crosses the blood brain barrier.  My brain felt like it gave a huge sigh of relief and relaxed when I started taking this and still makes a difference daily.   Other brands of supplements i like are Now Foods, Amazing Formulas, Doctor's Best, Nature's Way, Best Naturals, Thorne, EO Nutrition. Naturewise.  But I do read the ingredients labels all the time just to be sure they are gluten and dairy free. Glad to help with further questions.  
    • trents
      Welcome to the celiac.com community @pothosqueen!   Can you be more specific about which IGA test was run that resulted in 114 score and said to be "normal" and could you please include the reference range for what would be normal? By the size of that number it looks like it may have been what we call "total IGA" but that test is not usually run without also running a TTG-IGA. Total IGA tests for IGA deficiency. If someone is IGA deficient, then the celiac-specific IGA tests like the TTG-IGA will be inaccurate. Was this the only IGA test that was run? To answer, your question, yes, a positive biopsy is normally definitive for celiac disease but there are some other medical conditions, some medications and even some food proteins in rare cases that can cause positive biopsies. But it is pretty unlikely that it is due to anything other than celiac disease.
    • pothosqueen
      Upper endoscopy last week resulted in positive biopsy for celiac disease. The IgA they ran was normal (114). Does positive biopsy automatically mean definitive diagnosis?
    • hjayne19
      This is great thank you very much @Scott Adams
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.