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"normal" Endoscopy?

Kimbalou

By Kimbalou
in Coping with Celiac Disease

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Kimbalou Enthusiast
Kimbalou
Posted

Dr. said it was normal today from what he could see. But I guess we don't know for sure until the biopsy results, right? Only a biopsy can detect the disease, you can't see it with the naked eye, right? I should know this, I'm a nurse...lol...but just wondering if I'm correct. 2-3 weeks to wait, ugh. But pretty sure it's positive.

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jerseyangel Proficient
jerseyangel
Posted

Dr. said it was normal today from what he could see. But I guess we don't know for sure until the biopsy results, right? Only a biopsy can detect the disease, you can't see it with the naked eye, right? I should know this, I'm a nurse...lol...but just wondering if I'm correct. 2-3 weeks to wait, ugh. But pretty sure it's positive.

Yeah--every once in a while the doctor can see changes such as scalloping or folds or inflammation but the damage to the villi is microscopic and you'll need to wait for the biopsy report for that.

jenngolightly Contributor
jenngolightly
Posted

Dr. said it was normal today from what he could see. But I guess we don't know for sure until the biopsy results, right? Only a biopsy can detect the disease, you can't see it with the naked eye, right? I should know this, I'm a nurse...lol...but just wondering if I'm correct. 2-3 weeks to wait, ugh. But pretty sure it's positive.

Or not... sometimes biopsies come back negative and you still have Celiac. It depends upon where the doctor takes the biopsy from. Your intestines are HUGE, and the doctor grabs bits from only a few locations. If he doesn't grab from the parts that are damaged, then the biopsy is negative. Biopsies are supposed to be the "gold standard" by which to diagnose Celiac, but they can generate false negatives as I just noted. My endoscopy was normal and biopsies were negative, but my diagnosis is positive based on multiple other factors. Look at your symptoms as a whole, not a single test. What else leads you to believe you have Celiac?

ravenwoodglass Mentor
ravenwoodglass
Posted

Your done with testing so now is when you start the diet strictly. Your body may give you the answer before the biopsy results. False negatives on biopsies are not all that unusual but your body knows the answer about whether you need to be gluten free or not.

Kimbalou Enthusiast
Kimbalou
Posted
  • Author

To Jenn: I've already had a positive blood test. I've had the symptoms for a long time too...mostly irritable bowel symptoms, etc. I know I need to be gluten free.

Emilushka Contributor
Emilushka
Posted

As has already been said, the endoscopy can come back totally normal (I got both ends scoped and was normal but the antibody panel and diet response proved the Celiac diagnosis).

I hope your endoscopy doesn't show too much damage and your symptoms clear up quickly on the diet!

rockectman Rookie
rockectman
Posted

Over 90 percent of Celiac cases are mis-diagnosed per Dr OZ, meaning 9 out of 10 people who think they have it and

are told they dont, actually do........what a shame!

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      Welcome to the celiac.com community, @SamAlvi! Were there any other antibody tests ordered? Particularly, was there a "total IGA" test ordered to check for IGA deficiency. When people are IGA deficient, celiac panel IGA test scores, such as the TTG-IGA, are likely not valid. If a total IGA test was not ordered, I would request such to be done. Note: "Total IGA" goes by other names as well. I will include a primer on celiac disease antibody testing which does a good job in covering the nomenclature variations connected with the various tests. Elevated IGG scores can certainly indicate celiac disease but they are more likely than elevated IGA tests to be caused by something else.  
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