Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sweetest Thing Happened Today

AZGirl

By AZGirl
in Coping with Celiac Disease

Recommended Posts

AZGirl Rookie
AZGirl
Posted

The sweetest thing happened to me today. It was my turn to grocery shop and as I was walking through the store filling my basket, while carefully reading the ingredient labels, I looked down at my list and there written next to bread was (sorry :( ).

I almost burst into tears at how sweet it was for my husband to feel bad that he likes to eat sandwiches for lunch while I have chicken or something. He is amazing and has been right by my side since my diagnosis a few months ago.

He's the guy who reminds me to look for barley and oats and not just wheat on labels and he's the guy who holds my hand and rubs my back when I am sick.

I just wanted to share with someone how wonderful those parenthesis made me feel. I've had a hard time at work with the copious amount of cookies etc... that I can't eat. Needless to say the "parenthesis" are few and far between.

I knew all of you would appreciate those parenthesis as much as I did. :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CarolinaKip Community Regular
CarolinaKip
Posted

The sweetest thing happened to me today. It was my turn to grocery shop and as I was walking through the store filling my basket, while carefully reading the ingredient labels, I looked down at my list and there written next to bread was (sorry :( ).

I almost burst into tears at how sweet it was for my husband to feel bad that he likes to eat sandwiches for lunch while I have chicken or something. He is amazing and has been right by my side since my diagnosis a few months ago.

He's the guy who reminds me to look for barley and oats and not just wheat on labels and he's the guy who holds my hand and rubs my back when I am sick.

I just wanted to share with someone how wonderful those parenthesis made me feel. I've had a hard time at work with the copious amount of cookies etc... that I can't eat. Needless to say the "parenthesis" are few and far between.

I knew all of you would appreciate those parenthesis as much as I did. :)

Sweet!!!

cO-ol Explorer
cO-ol
Posted

My parents have been reaallllly supportive of me as well (Well, my dad was initially defensive, but he realized how serious I am about this; I now know I HAVE to be!). My mom was, not excited but she was I guess impressed with me working on figuring out what foods agree with me and what ones don't in addition to going gluten-free. My dad's hugged me on those days I had a massive emotional outburst over a lost item (and now I'm finally able to explain WHY I freak out that badly!). They're getting better and better about asking me if I can eat stuff. And so on.

I think my friends will be equally supportive; I just don't see them as often as I'd like. :(

Supportive people rock; in the midst of all those goons and doofbrains who dismiss us it's definitely tear-inducing. <3

wheeleezdryver Community Regular
wheeleezdryver
Posted

The sweetest thing happened to me today. It was my turn to grocery shop and as I was walking through the store filling my basket, while carefully reading the ingredient labels, I looked down at my list and there written next to bread was (sorry :( ).

I almost burst into tears at how sweet it was for my husband to feel bad that he likes to eat sandwiches for lunch while I have chicken or something. He is amazing and has been right by my side since my diagnosis a few months ago.

He's the guy who reminds me to look for barley and oats and not just wheat on labels and he's the guy who holds my hand and rubs my back when I am sick.

I just wanted to share with someone how wonderful those parenthesis made me feel. I've had a hard time at work with the copious amount of cookies etc... that I can't eat. Needless to say the "parenthesis" are few and far between.

I knew all of you would appreciate those parenthesis as much as I did. :)

yep, that's sweet... and AWESOME!!! What a supportive guy you've got there!

kareng Grand Master
kareng
Posted

That's cute! Mine said if I didn't want to buy & touch the regular bread for him and the kids, to let him know so he can pick it up after work.

AZGirl Rookie
AZGirl
Posted
  • Author

My parents have been reaallllly supportive of me as well (Well, my dad was initially defensive, but he realized how serious I am about this; I now know I HAVE to be!). My mom was, not excited but she was I guess impressed with me working on figuring out what foods agree with me and what ones don't in addition to going gluten-free. My dad's hugged me on those days I had a massive emotional outburst over a lost item (and now I'm finally able to explain WHY I freak out that badly!). They're getting better and better about asking me if I can eat stuff. And so on.

I think my friends will be equally supportive; I just don't see them as often as I'd like. :(

Supportive people rock; in the midst of all those goons and doofbrains who dismiss us it's definitely tear-inducing. <3

I am so happy your family is starting to support you in a more expressive way. It sounds like you are starting to feel better. I sure hope this is the answer for you. You sound like an amazing person. I am in awe of your maturity. You feel, to me, like an amazing person who will overcome and doing important things with your life.

Stay strong. I'm rooting for you!!!!

AZGirl Rookie
AZGirl
Posted
  • Author

That's cute! Mine said if I didn't want to buy & touch the regular bread for him and the kids, to let him know so he can pick it up after work.

Awwwwww, I love it! It's amazing that these little things can really make a huge difference. I'm glad that you are supported in your journey. I know that if feels great!!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Looking for answers Contributor
Looking for answers
Posted

It's so nice to see someone getting the caring and supportive they need. My husband is also very supportive and wonderful.

FooGirlsMom Rookie
FooGirlsMom
Posted

Ah if only more people were as nice, the world would be a better place, wouldn't it? He's a keeper. Couldn't be happier to share your story. Thanks. :)

FooGirlsMom

mbrookes Community Regular
mbrookes
Posted

I have to tell my good story. A few nights ago a dear friend had a big cocktail party. When I arrived she quietly said " there are dips and some pork tenderloin in the kitchen. Make your plate in there" She knew I always take crackers in my purse, and she was protecting me from cross contamination. I know how lucky I am to have such support from all of my family and friends.

sandsurfgirl Collaborator
sandsurfgirl
Posted

After awhile you will get to know which gluten free desserts you like and then that gluten stuff wont' tempt you. So far I haven't run across any gluteny thing I can't make gluten free that tastes great or even better.

I keep Betty Crocker gluten-free mixes on hand. Gluten Free Pantry mixes on hand. And I use Annalise G. Roberts Gluten Free Baking Classics book to bake with. We have more gluten free junk food than we need to be eating in our house.

Libby's pumpkin pie with no crust is really good! Just make the filling according to directions. Grease the pie pan and pour it in.

Marz Enthusiast
Marz
Posted

I was ordering some take-aways at a new place that had opened up. First day open and they were very busy.

The owner who was taking orders said "Wow, that must be hard..." very sympathetically when I explained why I needed wheat-free fish. That was the first time someone actually sympathised with me, instead of staring/smiling/laughing or just no comment (Waiters laugh, I don't know why, when I ask specifically no wheat. Maybe they think it's a joke???)

I really appreciated that. I also get sympathy from husband and family, it does help somewhat :) Hubby especially feels bad ordering awesome food, and I have to always have a salad/chips instead. I wish I could explain that it isn't that bad for me - feeling great instead of sick is more important to me than having an awesome restaurant meal.

AZGirl Rookie
AZGirl
Posted
  • Author

I have to tell my good story. A few nights ago a dear friend had a big cocktail party. When I arrived she quietly said " there are dips and some pork tenderloin in the kitchen. Make your plate in there" She knew I always take crackers in my purse, and she was protecting me from cross contamination. I know how lucky I am to have such support from all of my family and friends.

Wow!!! What an amazing friend. Thanks for sharing your story! It's the beautiful things in life that keep us going.

AZGirl Rookie
AZGirl
Posted
  • Author

I was ordering some take-aways at a new place that had opened up. First day open and they were very busy.

The owner who was taking orders said "Wow, that must be hard..." very sympathetically when I explained why I needed wheat-free fish. That was the first time someone actually sympathised with me, instead of staring/smiling/laughing or just no comment (Waiters laugh, I don't know why, when I ask specifically no wheat. Maybe they think it's a joke???)

I really appreciated that. I also get sympathy from husband and family, it does help somewhat :) Hubby especially feels bad ordering awesome food, and I have to always have a salad/chips instead. I wish I could explain that it isn't that bad for me - feeling great instead of sick is more important to me than having an awesome restaurant meal.

It's just nice to know that they are thinking about you when they order and they eat. That your situation does not go unnoticed. Sounds like your hubby is a keeper, too.

cap6 Enthusiast
cap6
Posted

What a kind thing! Hang on to that special friend.

My dear friend is a chef and has been hanging on my every word as to how and what I can eat. She said that she has to learn too!!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,549
    • Most Online (within 30 mins)
      7,748
    Blough
    Newest Member
    Blough
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Taken Seriously

      By Scott Adams · Posted

      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      Looking for a gluten-free roomie in Denver CO

      By Scott Adams · Posted

      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Allergy medication: cetirizine by the HealthA2Z is it gluten free?

      By Scott Adams · Posted

      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      Protein or fat?

      By Scott Adams · Posted

      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.