Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Armour Thyroid And Synthroid Contain Gluten!


Angelnoir1111

Recommended Posts

Angelnoir1111 Newbie

I have celiac disease and a sulfite allergy and have been on Thyroid medication for 15 yrs and was fine until my pharmacy gave me the generic Levoxyl (synthroid) a year and a half ago and I was also on Armour which has just been changed to a new formula. I started getting very very sick with celiac symptoms and had no idea why since I had been on these medications for so long. I stopped eating everything and my heart and lungs started becoming affected along with my liver and I knew I was getting gluten in something. I was taken off of my thyroid meds and my celiac symptoms went away but my thyroid was messed up so I went back on my thyroid meds and got my celiac symptoms back. I finally found information on hidden gluten in meds and here you go... Open Original Shared Link

Ive checked levoxyl and my compounded sustained release T3 and those are fine.

I hope this will help those of you who can't figure out where your gluten is coming from!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Traveller Rookie

Are you sure that those products contain gluten? I've used Armour consistently for two years without problems, and the Armour web site says their product is gluten-free.

Open Original Shared Link

T.H. Community Regular

Armour web site says their product is gluten-free.

It's possible that the new change in formula has upped the gluten levels, even if they are still below the 20ppm threshold. So some who are more sensitive might have an issue.

However, the synthroid used to be listed as gluten free on www.glutenfreedrugs.com, and is now listed as 'can no longer guarantee gluten-free status'

So could be either, but the synthroid would worry me more, actually.

beefree11 Newbie

It's possible that the new change in formula has upped the gluten levels, even if they are still below the 20ppm threshold. So some who are more sensitive might have an issue.

However, the synthroid used to be listed as gluten free on www.glutenfreedrugs.com, and is now listed as 'can no longer guarantee gluten-free status'

So could be either, but the synthroid would worry me more, actually.

Good to know.

psawyer Proficient

"Can not guarantee gluten-free status" is generally a disclaimer given for legal reasons. It does not mean that the product contains gluten.

Any guarantee requires testing to back it up, and for cost reasons it is rarely done. If testing is done, there will be a qualifier applied, such as "tested to verify less than 20 ppm gluten." And again, less than 20 ppm can and often does mean 0 ppm. They can only guarantee what the test will cover.

  • 2 months later...
Angelnoir1111 Newbie

Are you sure that those products contain gluten? I've used Armour consistently for two years without problems, and the Armour web site says their product is gluten-free.

Open Original Shared Link

Actually, I just found out that what the pharmacies have been passing off as the "new Armour" is actually NP Thyroid and not made by the same company at all so

Armour made by Forest is still okay but NP Thyroid made by Acella DOES contain gluten. The 60mg tablets have an AP on one side of them and 330 on the other side and Real Armour only has an A stamped on it. Yes Synthroid does contain gluten now.

mamaw Community Regular

Are you sure about the synthroid?I was under the understanding that the 50mcg does not contain gluten ? (Abbott Pharmancy)

My insurance had me change to generic synthroid & I've been sick for two months with a swollen mouth , dry cracked lips,& a skin eruption on my forearm.....I just got back the synthroid from Abbott. I honestly think synthroid is crap & I'm in the process of going to natural forms. I hear ERFA is the best. Amour & nature-roid has been re-formulated & I hear it does not work like the old ones did. For me being thyroidless from RAI is scary....

blessings

mamaw


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cahill Collaborator

I have celiac disease and a sulfite allergy and have been on Thyroid medication for 15 yrs and was fine until my pharmacy gave me the generic Levoxyl (synthroid) a year and a half ago and I was also on Armour which has just been changed to a new formula. I started getting very very sick with celiac symptoms and had no idea why since I had been on these medications for so long. I stopped eating everything and my heart and lungs started becoming affected along with my liver and I knew I was getting gluten in something. I was taken off of my thyroid meds and my celiac symptoms went away but my thyroid was messed up so I went back on my thyroid meds and got my celiac symptoms back. I finally found information on hidden gluten in meds and here you go... Open Original Shared Link

Ive checked levoxyl and my compounded sustained release T3 and those are fine.

I hope this will help those of you who can't figure out where your gluten is coming from!

OK I am confused :unsure: my understand was that GENERIC synthyroid contains gluten but NAME BRAND Synthyroid is gluten free,,, can someone clarify this for me???

I take name brand Synthyroid daily

mamaw Community Regular

I just went to a gluten-free drug site & no synthroid is guarenteed to be gluten-free.... & I also found out Diovan can not be guarenteed gluten-free either.URRRRRRGGGGGGHHHHHHHH.....diovan hct is gluten-free!

Probably why I'm having a sore tongue& lips........ Chill -----your doctor is not in my insurance plan! But thanks for the name! I'm getting off of synthyroid....

blessings

mamaw

cahill Collaborator

I just went to a gluten-free drug site & no synthroid is guarenteed to be gluten-free.... & I also found out Diovan can not be guarenteed gluten-free either.URRRRRRGGGGGGHHHHHHHH.....diovan hct is gluten-free!

Probably why I'm having a sore tongue& lips........ Chill -----your doctor is not in my insurance plan! But thanks for the name! I'm getting off of synthyroid....

blessings

mamaw

Sorry she is not in your Insurance plan :( really upsets me that some times our health depends on what our insurance will or will not cover :angry:

I need suggestions for an alternative to synthyroid

mamaw Community Regular

chill

I sent you a PM....

mamaw

MaryJones2 Enthusiast

Actually, I just found out that what the pharmacies have been passing off as the "new Armour" is actually NP Thyroid and not made by the same company at all so

Armour made by Forest is still okay but NP Thyroid made by Acella DOES contain gluten. The 60mg tablets have an AP on one side of them and 330 on the other side and Real Armour only has an A stamped on it. Yes Synthroid does contain gluten now.

Where did you verify that Synthroid contains gluten? I haven't seen anything in this thread that suggests anyone has called the company to confirm.

Per Syntroid's website: Open Original Shared Link The ingredients are:

Acacia, confectioner's sugar (contains corn starch), lactose monohydrate, magnesium stearate, povidone, and talc.

MaryJones2 Enthusiast

Also, I don't see any gluten in NP Thyroid by Acella either:

Open Original Shared Link

Inactive Ingredients: CALCIUM STEARATE, DEXTROSE MONOHYDRATE, MALTODEXTRIN, MINERAL OIL

Tigercat17 Enthusiast

Whenever someone talks about Synthroid, I always have to share my story...

I know I was getting some CC of gluten from the brand name Synthroid (Abbott) last year. I was on Synthroid for my first three months of being gluten free and I didn't get any better at all. I called the Abbott company twice & they told me the same thing - "They didn't add gluten to the Synthroid and they didn't test for gluten, but they couldn't guarantee it was gluten free." When I got my new prescription for that third month, I suddenly felt worse. I started to suspect that it was the Synthroid since that was the only new item I added to my diet. I always keep a food journal. So, I called the Abbott company again & the rep. told me that "Synthroid was not marketed as a gluten free product." :ph34r: That statement really made me nervous. So, I started eating nothing but natural whole foods and I was still feeling worse everyday. I was starting to not being able to eat again. I get a horrible stomach fullness when I get a lot of gluten in my system, I was losing weight again and my acid reflux wasn't going away at all. So, I weeded out all of the processed foods. I was really worried that I was never going to get better- maybe I had other food allergies or even another disease. I was so sick and I was just getting worse. After two weeks of taking the new prescription of Synthriod, I knew it couldn't be anything else but that. It had to be that since I was eating all fresh, whole foods. I really didn't want to change my thyroid hormone med, but I called my doctor & told them how I was feeling. My Endo doctor called the Abbott company also & they told him the same thing, so they switched me to Levoxyl from King Pharmaceuticals.

I did some research on the King Pharm. company before I started taking the brand name Levoxyl. When I called King Pharm. last year, they told me they do guarantee that Levoxly is gluten free when it leaves their facility. My doctor totally agreed with me to change and didn't argue at all with me when I told him that I thought I was getting some gluten from the Synthriod.

Here's the Levoxyl link:

Open Original Shared Link

I noticed a difference as soon as I stopped the Synthroid and started taking the brand name Levoxyl. After just one day my stomach fullness went away and I was able to eat again. After about a week I gained about 4 lbs! And after a month I gained about 8 lbs! Before I was really struggling with keeping my weight up. I was 96 pounds at 5'2". So I really needed to gain weight.

I know I'll never take the brand name of Synthroid ever again or any other medicines from the Abbott company. I've been sticking with the brand name Levoxly and haven't had any problems since.

I hope this helps someone!

mamaw Community Regular

Lisa

Tigercat

did your internist from Oakland give this to you? I'm caaling to make my appt on Monday with him. I had to make sure he was under my insurance...

thanks mamaw...Maybe that will help meas well....

Tigercat17 Enthusiast

Lisa

Tigercat

did your internist from Oakland give this to you? I'm caaling to make my appt on Monday with him. I had to make sure he was under my insurance...

thanks mamaw...Maybe that will help meas well....

Yes, mamaw. His name is doctor Steven Hodak, my Endo doctor at the Falk Clinic in Oakland. He really is amazing! He called the companies himself and changed me to Levoxyl from King Pharm. since I wasn't getting any better on the gluten free diet for those first three months. He really listened to me and his nurses are so understanding. They helped me so much! Good Luck! I hope he's taking new patients He's pretty popular. But if not, he has other doctors in his group that are great, too. Hopefully they'll be able to help you! :)

mamaw Community Regular

Tigercat

I'm hoping he will consider a med with both T-4 & T-3..And I hope I get to see him... I need a second opinion......

thanks again

Takala Enthusiast

This is insane.

Celiac disease contributes to thyroid disease. Proven medical fact.

Manufacturers of thyroid medications are putting gluten into it, or cannot or will not guarantee its gluten status.

Many of these drug manufacturers are using imported base ingredients, it's going to take another outbreak along the lines of melamine tainted pet food scandal (which was an importer in the U.S. deliberately coordinating mislabeling of a "human food grade" gluten protein with the out of country Chinese processor, according to the court documents and testimony I researched, so it would be even less suspect when used in pet foods) before people wise up and demand that prescription fillers/binders of grain products be certified more carefully. Another big scandal going on recently with how certain vendors at Ali-baba, the huge wholesale site which brokers much of the raw ingredients used in medicine manufacturing, were paying for their "premium" status. The two top CEO's resigned. While the few online references to this talk about consumer goods like handbags and electronics, it is important for consumers on this side of the ocean to recognize where things come from, what they are really made of, and keep up the demand for safety regulations in quality control. SOMEBODY has to care what is in the medicines.

mamaw Community Regular

Amen !!!! It's a shame one cannot even trust a doctor to insure what they are writng scripts for is safe for the person.The buck in the pocket is more valuable than human ife...very sad...

  • 9 months later...
4everglutenfree Newbie

For those of you that cannot have gluten, corn, soy, casein. NatureThroid does not contain any of these. Armour also contains corn as the binder. I cannot have these. I Have been doing great since starting NatureThroid. It is amazing.

norcal-gf Newbie

This is unbelievable! But explains my horrible reaction when I was taking Synthroid several years ago. Since I was feeling worse my doctor increased my dose - which lead to feeling like I was having an emotion break down. (They were over medicating me!) I cold turkey stop taking Synthroid and started taking the over the counter vitamin Selenium. Works perfect for me ever since. I know this is not for everyone - but I was boarder line Hypo and didn't need to take Synthroid. Horrible stuff, and it suppresses your thyroid so you have no chance of healing.

  • 1 month later...
Lady-Alkaline Newbie

Dear Lisa,

Your post has helped me. I was beginning to think I was crazy as I am having much difficulty with digesting anything. Something changed in me with using Armour in Nov. 2011 (I had been on it with no problems for 3 years). It was like I quit digesting foods properly. I also began to have awful symtoms: throat constricting, naseau, stomach pains, even weird symptoms of sore tongue and acid reflux or full feeling in neck and stomach.

I quit taking Armour and started to see these symptoms lessen or altogether disappear. Feeling that I needed to take a thyroid supplement I went to get the Armour compounded (maybe less allergens?)but no - again my symptoms reappeared.

Again I quit taking Armour. Also again symtoms subsided.

I decided to try Nature-throid, again weird symptoms are returning.

I too have changed my diet as you with only eating natural foods and gluten-free.

This now affirms the medicine is causing my grief.

I am going to make an appt. with my doctor and look into Levoxyl.

Many thanks for your share.

Sloan

Gemini Experienced

Dear Lisa,

Your post has helped me. I was beginning to think I was crazy as I am having much difficulty with digesting anything. Something changed in me with using Armour in Nov. 2011 (I had been on it with no problems for 3 years). It was like I quit digesting foods properly. I also began to have awful symtoms: throat constricting, naseau, stomach pains, even weird symptoms of sore tongue and acid reflux or full feeling in neck and stomach.

I quit taking Armour and started to see these symptoms lessen or altogether disappear. Feeling that I needed to take a thyroid supplement I went to get the Armour compounded (maybe less allergens?)but no - again my symptoms reappeared.

Again I quit taking Armour. Also again symtoms subsided.

I decided to try Nature-throid, again weird symptoms are returning.

I too have changed my diet as you with only eating natural foods and gluten-free.

This now affirms the medicine is causing my grief.

I am going to make an appt. with my doctor and look into Levoxyl.

Many thanks for your share.

Sloan

Nature-throid is completely gluten-free. I have used it for a long time, am an incredibly sensitive Celiac and I have had no weirdness with it. It is also far better to take a thyroid med with both T3 and T4 in it, as opposed to Levoxyl, which is only T4. I used Levoxyl for a while but it did not do the job for me because it's a T4 med only.

I know it's easy to become paranoid about thyroid meds when you have Celiac but I have yet to find any which contain gluten. I am in the US so only have used what's available here. As Peter said in his earlier post, the disclaimer is for liability reasons only. It in no way means there is gluten in the product. You can also have weirdness with thyroid meds if the dose is not correct. It affects your metabolism so stomach issues can erupt from an incorrect dose. I have never used Synthroid because I think it is a rip-off. There are many that work better than Synthroid and cost a fraction of what it does.

Unless you have proof that a certain med contains gluten, do not post that it does. Nature-throid is a really good thyroid med and many Celiacs use it without issue. I would hate to see this branded as a bad choice for us.

  • 8 months later...
nomogluten Newbie

A couple of years ago when Armour was having production problems my doctor recommended compounded pig thyroid available at a local pharmacy. I started on that and noticed gluten issues - until I had the pharmacy switch from gelatin capsules to cellulose ones. I have done better, both thyroid- and gluten-wise, on compounded pig thyroid in cellulose capsules than anything else I have tried (Synthroid, levothyroxine (sp?), Armour thyroid). The major drawback is the cost - significantly higher that the other options; insurance may or may not cover, but will probably consider it a "premium" prescription which carries a higher co-pay. I started back on Armour again for the first time in a couple of years just a couple of weeks ago because of the cost differential (about $25-30 more a month), but am noticing possible gluten related issues, so, just this morning decided to go back on the compounded pig thyroid.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - TheDHhurts posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Prana Organics no longer GFCO-certified

    2. - cristiana replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

    3. - trents replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

    4. - Dizzyma posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,924
    • Most Online (within 30 mins)
      7,748

    Jimlock
    Newest Member
    Jimlock
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • TheDHhurts
      I've been buying my seeds and nuts from Prana Organics for a number of years because the products have been GFCO-certified. I just got a new order delivered of their flax and sunflower seeds, and it turns out that they are no longer GFCO-certified. Instead, it just has a generic "Gluten Free" symbol on the package. I reached out to them to ask what protocols/standards/testing they have in place. The person that wrote back said that they are now certifying their gluten free status in-house, but that she couldn't answer my questions related to standards because the person with that info was on vacation. Not very impressed, especially since it still says on their website that they are GFCO-certified. Buyer beware!
    • cristiana
      Hi @Dizzyma I note what @trents has commented about you possibly posting from the UK.  Just to let you know that am a coeliac based in the UK, so if that is the case, do let me know if can help you with any questions on the NHS provision for coeliacs.    If you are indeed based in the UK, and coeliac disease is confirmed, I would thoroughly recommend you join Coeliac UK, as they provide a printed food and drink guide and also a phone app which you can take shopping with you so you can find out if a product is gluten free or not. But one thing I would like to say to you, no matter where you live, is you mention that your daughter is anxious.  I was always a bit of a nervous, anxious child but before my diagnosis in mid-life my anxiety levels were through the roof.   My anxiety got steadily better when I followed the gluten-free diet and vitamin and mineral deficiencies were addressed.  Anxiety is very common at diagnosis, you may well find that her anxiety will improve once your daughter follows a strict gluten-free diet. Cristiana 
    • trents
      Welcome to the celic.com community @Dizzyma! I'm assuming you are in the U.K. since you speak of your daughter's celiac disease blood tests as "her bloods".  Has her physician officially diagnosed her has having celiac disease on the results of her blood tests alone? Normally, if the ttg-iga blood test results are positive, a follow-up endoscopy with biopsy of the small bowel lining to check for damage would be ordered to confirm the results of "the bloods". However if the ttg-iga test score is 10x normal or greater, some physicians, particularly in the U.K., will dispense with the endoscopy/biopsy. If there is to be an endoscopy/biopsy, your daughter should not yet begin the gluten free diet as doing so would allow healing of the small bowel lining to commence which may result in a biopsy finding having results that conflict with the blood work. Do you know if an endoscopy/biopsy is planned? Celiac disease can have onset at any stage of life, from infancy to old age. It has a genetic base but the genes remain dormant until and unless triggered by some stress event. The stress event can be many things but it is often a viral infection. About 40% of the general population have the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. So, for most, the genes remain dormant.  Celiac disease is by nature an autoimmune disorder. That is to say, gluten ingestion triggers an immune response that causes the body to attack its own tissues. In this case, the attack happens in he lining of the small bowel, at least classically, though we now know there are other body systems that can sometimes be affected. So, for a person with celiac disease, when they ingest gluten, the body sends attacking cells to battle the gluten which causes inflammation as the gluten is being absorbed into the cells that make up the lining of the small bowel. This causes damage to the cells and over time, wears them down. This lining is composed of billions of tiny finger-like projections and which creates a tremendous surface area for absorbing nutrients from the food we eat. This area of the intestinal track is where all of our nutrition is absorbed. As these finger-like projections get worn down by the constant inflammation from continued gluten consumption before diagnosis (or after diagnosis in the case of those who are noncompliant) the efficiency of nutrient absorption from what we eat can be drastically reduced. This is why iron deficiency anemia and other nutrient deficiency related medical problems are so common in the celiac population. So, to answer your question about the wisdom of allowing your daughter to consume gluten on a limited basis to retain some tolerance to it, that would not be a sound approach because it would prevent healing of the lining of her small bowel. It would keep the fires of inflammation smoldering. The only wise course is strict adherence to a gluten free diet, once all tests to confirm celiac disease are complete.
    • Dizzyma
      Hi all, I have so many questions and feel like google is giving me very different information. Hoping I may get some more definite answers here. ok, my daughter has been diagnosed as a coeliac as her bloods show anti TTG antibodies are over 128. We have started her  on a full gluten free diet. my concerns are that she wasn’t actually physically sick on her regular diet, she had tummy issues and skin sores. My fear is that she will build up a complete intolerance to gluten and become physically sick if she has gluten. Is there anything to be said for keeping a small bit of gluten in the diet to stop her from developing a total intolerance?  also, she would be an anxious type of person, is it possible that stress is the reason she has become coeliac? I read that diagnosis later in childhood could be following a sickness or stress. How can she have been fine for the first 10 years and then become coeliac? sorry, I’m just very confused and really want to do right by her. I know a coeliac and she has a terrible time after she gets gluttened so just want to make sure going down a total gluten free road is the right choice. thank you for any help or advise xx 
    • xxnonamexx
      very interesting thanks for the info  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.