Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Long Journey Finally Coming To An End

tikwid

Recommended Posts

tikwid Newbie
tikwid
Posted

Just had to share my excitement - I can soon stop eating gluten for good!

Ok, let me back up. I was gluten free for four months on a recommendation from my school doctor and felt FANTASTIC for the first time since I was first diagnosed with mono 2 years ago. According to the doc, my gluten sensitivity was caused by my 8 month bout with mono. Exhaustion, depression, gastro issues, extreme joint pain, the list goes on and on with what I was dealing with. I took 12 tests for everything from rheumatoid arthritis to lupus. Being 21 and having these issues has really prevented me from giving my all in my undergrad program, so I've been so anxious to figure out what this is.

The gluten free diet did the trick. However, once I told my at home doctor that I'd never been tested, she put me back on a gluten-rich diet for 4-12 weeks so that I could have accurate Celiac testing results. Somehow, I've made it through the 4 weeks. Been sick for the last two and have only eaten gluten at night (I get super brain fog, so being able to sleep after is crucial), but the month is up.

What do you guys think - should I do the test now or wait it out a bit longer? The idea of going back to a gluten free lifestyle soon sounds so amazing to me, but I also want accurate results. I REALLY wish my school doctor had given me these tests prior to my going on a gluten free diet.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jny1179 Newbie
jny1179
Posted

The truth is, none of the tests are 100% accurate. So even after 4-12 weeks of a gluten challenge, you may not have a 100% positive test result. I say get the tests done anyway but no matter what the results are, go back to the gluten-free lifestyle! I have been tested six ways to sunday, all negative. I do have Crohn's disease however. The gluten-free diet is the ONLY thing that works for me. Whether you should test now at 4 weeks or wait the full 12, I don't know. But don't torture yourself. You know how your body feels, do what you think is right!

ravenwoodglass Mentor
ravenwoodglass
Posted

It sounds like your body has given you the answer. Even on a full gluten diet some of us will show negative on tests. It is usually advised to go back on gluten for about 2 to 3 months but it sounds like you ill enough not to want to do the challenge that long. I hope the tests give you a positive but if they don't your body is clearly telling you it wants to be gluten free.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,539
    • Most Online (within 30 mins)
      7,748
    Josiemc
    Newest Member
    Josiemc
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
    • Celiac50
      Unusual bright yellow but odourless discharge

      By Celiac50 · Posted

      That sounds so very likely in my case! I will absolutely ask my doctor on my next bone check coming up in March... Thanks a lot! 
    • trents
      Unusual bright yellow but odourless discharge

      By trents · Posted

      Calcium levels as measured in the blood can be quite deceiving as the body will rob calcium from the bones to meet demands for it by other bodily functions. Also, supplementing with calcium can be counterproductive as it tends to raise gut pH and decrease absorption. More often than not, the problem is poor absorption to begin with rather than deficiency of intake amounts in the diet. Calcium needs an acidic environment to be absorbed. This is why so many people on PPIs develop osteoporosis. The PPIs raise gut pH. And some people have high gut PH for other reasons. Low pH equates to a more acidic environment whereas high pH equates to a more basic (less acidic) environment.
    • Celiac50
      Unusual bright yellow but odourless discharge

      By Celiac50 · Posted

      Kind thanks for all this valuable information! Since my Folate was/is low and also my Calcium, there IS a chance I am low in B vitamins... My doctor only measured the first two, oh and Zinc as I has twisted her arm and guess what, that was mega low too. So who knows, until I get myself tested properly, what else I am deficient in... I did a hair mineral test recently and it said to avoid All sources of Calcium. But this is confusing for me as my Ca is so low and I have osteoporosis because of this. It is my Adjusted Ca that is on the higher side and shouldn't be. So am not sure why the mineral test showed high Ca (well, it was medium in the test but relative to my lowish Magnesium, also via hair sample, it was high I was told). But anyway, thanks again for the VitB download, I will look into this most certainly!
    • ElisaAllergiesgluten
      Allergy medication: cetirizine by the HealthA2Z is it gluten free?

      By ElisaAllergiesgluten · Posted

      Hello good afternoon, I was wondering if anyone has ever brought their anti-allergy pills? I have been wanting to use their Cetirizine HCI 10mg. They are called HealthA2Z and distributed by Allegiant Health.I’m also Asthmatic and these allergies are terrible for me but I also want to be sure they don’t have any sort of gluten compound.    I have tried calling them but to no avail. Has anyone ever used them? If so, did you had any problems or no problems at all?    thank you
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.