Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

First Menstrual Period gluten-free, Feeling Aweful!


possiblyglutensensitive

Recommended Posts

JBaby Enthusiast

I have been mostly gluten-free for over a year, had a glutting recently. My symptoms did increase for the worse however, in December I started taking Barleans fish oil liquid. It tastes like a smoothie. Well, the last 2 periods I had, I barely had symptoms both pre and during. Some, but no where as distressing. And I don't take it everyday. Maybe it will help.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Missjess Newbie

So interesting to read all of these posts. I have been gluten free for six or seven weeks and I recently had my worst period ever! I am taking it as a positive sign. I have been struggling with infertility and colitis. I just tried gluten free because I still never felt quite right. U feel SO So much better avoiding gluten!,,

annegirl Explorer

Sorry! I know feeling sick on top of everything else sucks.

I've experienced that exact opposite. Gluten free for only 3 weeks and I had no problems with mine other than a tiny bit of fatigue which is normal for me. This is exciting to me as my PMS had gotten really bad the last couple of years. No cramps etc. It was awesome! (still some chest soreness...but that doesn't bother me much and I figure you can't win em all)

I hope it gets better!

Jungle Rookie

I am hoping that I skip those extra side effects this month and the next few.

I have been using the Diva Cup for a year and all I can say is it is life changing. It makes it so that I barely even know I have my period. 2 times a day I "deal" with the mess. And one of those times I am in the shower so it is easy. As it is made of silicone there aren't the problems of what might be in it. I liked it so much that after the 2nd month (it takes a little bit to get the hang of it) I threw out all my pads and tampons as I knew I'd never use them again. There is also no risk of Toxic Shock Syndrome.

StacyA Enthusiast

Light or missing periods often goes with undiagnosed celiac disease, therefore it appears common for periods to get heavier (with worse symptoms) when women go gluten-free. I thought I was going through menopause when my celiac disease first got triggered because my periods suddenly got very light - but when I went gluten-free they got even heavier than before. All part of being a woman...

txplowgirl Enthusiast

Very interesting thread. I'm 46 and gluten free for 2 years now. Last months period and this one i'm currently on has been different. More pain, heavier bleeding and I still have cramps on the 4th day. Usually the first 2 days are the worse with heavy cramps and heavy bleeding then it eases off. But not these past 2 i'm 4 days in and it's still bad.

I have never been able to use tampons. Very painful, feels like I have something jammed up inside me hitting my cervix. Plus, I can't pull them out. They're like super glue, lol. I know, TMI.

I'm hoping it's just my age and my body's trying to go into menopause. I will be so glad when I get there.

  • 2 weeks later...
thleensd Enthusiast

I know that my hormones are still adjusting, and my periods suck... but I just figured out after using them for two years that:

Seventh Generation Pads contain wheat!

Here is the link to the ingredients: Open Original Shared Link

It says, "Chlorine-Free Ultra-thin Pads with Wings (and Maxi): The absorbent materials consist of chlorine free wood pulp, chlorine free airlaid fabric, and Lysorb, an absorbent gel. Lysorb, also known as SNAP (super absorbent natural polymer), is a polysaccharide derived from wheat."

Please let's not argue about whether or not you can get glutened from that. I'm not putting wheat next to any mucous membrane.

It says their tampons are 100% cotton.

By the way... I've been on a VERY strict gluten-free diet for 2 years, and I'm still too weak to work. Just changed these out last month, so we'll see if it makes a difference. Interestingly enough I've made more progress with better energy over the last month or so. Coincidence? <_<


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Strawberry-Jam Enthusiast

two words: menstrual cups. (see menstrualcups.org)

My period's never been the same since I started using my Yuuki. And it's probably coincidence, but I swear my cramps have also gotten better since I started using it.

Also reusable cotton pads are gluten-free and good for the environment. :)

AzizaRivers Apprentice

two words: Open Original Shared Link. (< click link!)

My period's never been the same since I started using my Yuuki. And it's probably coincidence, but I swear my cramps have also gotten better since I started using it.

Also reusable cotton pads are gluten-free and good for the environment. :)

I second the cups. My debilitating cramps have gotten SO much better, I don't spend $15 a month on supplies, there's nothing to throw away, I don't have to empty it every 4-6 hours...the list goes on.

On another note, horrible periods were one of my symptoms. I had always had bad ones, but year before being diagnosed my 40-41 day cycle (long, I know) began to rapidly shrink and I would throw up anything I tried to eat for the first few days. At my worst it was 20 days long with spotting in between. Gradually as I got sicker, the stomach problems started spreading beyond my period, and that's when I finally started getting checked out. When I got diagnosed and started healing, the cycle started stretching out and the vomiting stopped at the next cycle. Now, 3.5 months post-gluten-free I'm back to 41 days and I'm not sick on it; with that plus my Mooncup (just switched from Divacup because I got angry with Diva while I was learning and maimed her with a hole puncher) I'm finally having manageable periods for the first time since puberty.

  • 4 months later...
cait Apprentice

Just searched and found this thread from earlier this year. I've been gluten-free since May and had gotten to a point where I was feeling better. Not 100%, but definitely headed in the right direction. Then we went to visit my mom for two weeks. After two weeks of low level glutenings here and there, I came back feeling pretty lousy. I thought I'd feel better after being home, but I haven't. My joint pain is back in action, I'm super tired, my stomach is all confused and cranky, and I'm low on patience and mental energy. I may have made some mistakes in the first few days back (we're still de-glutening the kitchen, but have hopefully finished that this week), but it's been hard to tell if I'm dealing with continued gluten exposure, carryover from the two weeks, or if there's some other intolerance I need to sort out. My period finally started today after days of (omgjuststartalready) leadup. I feel like hell. I kinda remember that last month I felt a little funky before my period and then after the first day was back to normal, but it wasn't nearly this bad. Could all of this be the combination of two weeks of gluten exposure and hormonal crap? If so, is there anything I can do to avoid this in the future? Obviously, avoid gluten exposure. But besides that?

aroche84 Rookie

I haven't had the pain like some of you are describing but one thing I have noticed is that it seems like I am bleeding almost 5 times more than normal. Does anyone else have this problem could it be where the anemia plays in?

Harpgirl Explorer

Thank you Cait for bring this thread up again! I'm not quite 2 months gluten-free and I've got my period for the first time since weening my youngest son. I've been enjoying being "period free" for almost 4 years (except for 1 cycle between pregnancies), but it seems to have returned with a vengance. For the first 2 days, I went through a tampon every 2 hours and standing up is agony. I feel like my insides are going to fall out. Not to mention I almost feel as though I've been glutened with all the cramping, tiredness and irritability. I'm glad to read that the strengthened symptoms could be from now being gluten-free and hopefully I won't have to endure this every month.

Medusa Newbie

If it's any consolation my periods are way better since I went gluten free. They are less painful, shorter and best of all I have so much less PMS beforehand - it used to be awful and last up to two weeks before my period started. I used to feel like my hormones ruled my life - in a very negative way! They are not very regular now, but that could be because of the stress of imminent emigration... ;)

I agree with the idea that cycles have a run in time of a couple of months - it may take a while to see positive changes, but yes, absolutely gluten issues affect hormones in the body - how about the effect on thyroid levels for an example?

Gluten/wheat derivatives turn up in the weirdest places. It really wouldn't surprise me if it was in sanitary products too.

melikamaui Explorer

I am very interested in this thread too. My period disappeared in March of 2010 and I've only had it once since. I would really like to have a regular cycle again because this honestly freaks me out. It just can't be normal not to have a period for this long! I'm hoping going gluten-free will help bring it back.

  • 3 weeks later...
ShawnieB Newbie

I am on birth control pills and i was only into my gluten-free diet for 3 days before starting my period and i still had one pill left in the pack. It came way early. Is this normal even if i just started the diet? Also, it seems stronger.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,869
    • Most Online (within 30 mins)
      7,748

    Stacy W
    Newest Member
    Stacy W
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jmartes71
      Hello still dancing around my celiac disease and not getting medically backed up considering Ive been glutenfree since 1994.All my ailments are the core issue of my ghost disease aka celiac disease. Im angery because the "celiac specialist " basically lightly dismissed me.Im extremely angery and fighting for a new primary care physician which is hard to do in Northern Cali.So currently without and looking.Im angery that its lightly taken when its extremely serious to the one who has it.My only evidence is a brochure back in the days when I got news letters when I lived at my parents.It was published in 1998.I was diagnosed before any foods eliminated from my diet. Angery doctors don't take seriously when Im clearly speaking.I did write to the medicine of congress and have case number.
    • Scott Adams
      I totally get this. It's absolutely a grieving process, and it's okay to feel gutted about the loss of those simple joys, especially at 18. Your feelings are completely valid—it's not about being ungrateful for your amazing boyfriend, it's about mourning the life you thought you'd have. That "tortured by the smell" feeling is so real. It does get easier, I promise, but it's okay to sit in the sadness and just vent about how much it stings right now. Thanks for sharing that. Celiac.com has published a book on our site by Jean Duane PhD called Gluten-Centric Culture, which covers many of the social aspects of having celiac disease: This chapter in particular covers issues around eating with family and others - Gluten-Centric Culture: Chapter 5 - Grabbing A Bite Together:    
    • Scott Adams
      Many of us with celiac find that the fillers in medications can cause a reaction, and sometimes our bodies just process things weirdly. That "rebound muscle pain" and "burning feet" you described sounds awful and is a huge red flag. It's frustrating enough managing the diet without medication causing setbacks. So sorry you're dealing with this, but you're definitely on the right track by connecting the dots. You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      It's so tough when you're doing everything right and still get hit with it. I'm glad you're figuring out a system that works for you—the peppermint tea and rehydration powders are smart moves. It sounds like you've really learned to listen to your body, and that's half the battle. Sticking to simple, safe food at home is the best way to build yourself back up. It's great you can take the time to rest properly. Thanks for sharing what works; it's a big help to others figuring this out too. This article, and the comments below it, may be helpful:    
    • Scott Adams
      I am so sorry you're going through this. It's bad enough to fight for a diagnosis and manage this disease, but to have your partner use it as a weapon against you is truly devastating. What you're describing isn't just a lack of support; it's abuse, full stop. Controlling your food and money is cruel, and his pleasure in your misery is chilling. Please hear this: the kindness from that woman at the food pantry is what you deserve. It's a glimpse of the real world, where people care. You deserve to eat, to heal, and to have peace. His actions are the biggest barrier to your health right now, and you are not broken—you are surviving in an impossible situation. Don't give up on that lifeline you've found.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.