Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Darn Near Narcoleptic, Glutened Symptom?


Aphreal

Recommended Posts

Aphreal Contributor

I confess that Sunday I snuck a piece of regular pizza because it smelled SO GOOD and I was weak. figured... how bad could it be right? The next morning I could NOT manage out of bed. I was beyond exhausted and literally can not keep my eyes opened, every moment able, I would go back to sleep. I blew it off.

Last night I got up in the middle of the night and ate a bowl of life cereal. I thought it was a dream, I mean I remember doing it but not fully conscience of doing it.. I have heard of sleep eating but this was just odd. So today, I am dealing with the same symptom. I can't keep my eyes open, I am so out of it.

Is this a glutened symptom? I just want to sleep and do nothing.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nutzieone Newbie

Oh dear! I dont know if I could knowingly do that to myself! poor you though! I've been glutened a few times accidentally and the symptoms range from what you have explained to mildish with just some bloating and nausea. I am chronically fatigued and exhausted. Most days I cant keep my eyes open so for me this is just nomral day to day stuff! I unfortunately also have Rheumatoid Arthritis so that also slams me with the fatigue, etc.

I've also had sleep eating episodes! I once got up in the middle of the night and ate some sweets my husband was keeping on his desk! I remembered it the next morning as a dream but when he asked where his candy was I had to own up!

Good luck!

IrishHeart Veteran

I confess that Sunday I snuck a piece of regular pizza because it smelled SO GOOD and I was weak. figured... how bad could it be right? The next morning I could NOT manage out of bed. I was beyond exhausted and literally can not keep my eyes opened, every moment able, I would go back to sleep. I blew it off.

Last night I got up in the middle of the night and ate a bowl of life cereal. I thought it was a dream, I mean I remember doing it but not fully conscience of doing it.. I have heard of sleep eating but this was just odd. So today, I am dealing with the same symptom. I can't keep my eyes open, I am so out of it.

Is this a glutened symptom? I just want to sleep and do nothing.

It is for me! I feel as if I have been drugged and can barely make a sentence.

I am just wondering... why you would eat gluten NOW after being gluten-free for so long?

lynnelise Apprentice

I will be extremely fatigued for a week or so after a glutening incident. I have never consumed an entire slice of pizza or a bowl of cereal though...just CC. Hope you feel better soon and get over your gluten cravings! I wonder why you are having cravings all the sudden? Is this your first cheat since July?

Looking for answers Contributor

Many people with gluten intolerance share the same gene that puts you at higher risk of narcolepsy, so research is beginning to link the two. Of couse, it could just be an auto-immune reaction as well. But, just thought you might find that interesting.

glutenfreeresistant Newbie

Many people with gluten intolerance share the same gene that puts you at higher risk of narcolepsy, so research is beginning to link the two. Of couse, it could just be an auto-immune reaction as well. But, just thought you might find that interesting.

This is interesting to read. Besides Lactose intolerance, fatigue seems to be my only other physical symptom. (I also suspect depression and anxiety, but have not been able to prove that.)My entire life I have been a very tired person. It was all difficult to figure out because I have also worked the nightshift for the past 5 years. I would be so tired intermittently.So because of this, I got tested. Now that I have been attempting to be gluten-free I notice more of the connection.

LivesIntheSun Apprentice

Gluten makes me 'sleep for England'. In the years before I found out I would wake up in the morning, have breakfast (toast...) then intend to just lie back down for a few minutes (I'd always sleep right through til lunchtime), get up and have lunch (a sandwich), then sleep again til 4 or 5pm. I'd go back to bed at 10pm and sleep til morning. What a waste.

And when I was working I'd drag myself through the morning with lots of strong tea and on my lunchbreak lie down on a bench or anywhere and set the alarm on my mobile phone for when I had to be back on my shift, and fall asleep with dreams and everything.

Now if I find myself wanting a nap in the morning after sleeping all night I know I've been glutened.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Bella001 Explorer

I confess that Sunday I snuck a piece of regular pizza because it smelled SO GOOD and I was weak. figured... how bad could it be right? The next morning I could NOT manage out of bed. I was beyond exhausted and literally can not keep my eyes opened, every moment able, I would go back to sleep. I blew it off.

Last night I got up in the middle of the night and ate a bowl of life cereal. I thought it was a dream, I mean I remember doing it but not fully conscience of doing it.. I have heard of sleep eating but this was just odd. So today, I am dealing with the same symptom. I can't keep my eyes open, I am so out of it.

Is this a glutened symptom? I just want to sleep and do nothing.

I had extreme fatigue before I went gluten free. I couldn't stay awake past 8-8:30 and no matter how much sleep I got, I was tired all the time and had a hard time getting out of bed. Within a week of getting rid of the gluten, my energy came back full force.

Jestgar Rising Star

Many people with gluten intolerance share the same gene that puts you at higher risk of narcolepsy, so research is beginning to link the two.

Where did you see this?

Looking for answers Contributor

Where did you see this?

I have two copies of the 0602 gene

Open Original Shared Link

glutenfreesavvy Rookie

Wow...you are so not alone. I have several symptoms that hit me hard after a glutening & severe exhaustion & sleepiness is one of them. There have been a few times that I felt "drugged" & that was just from CC. I'm scared to think what would happen if I ate a piece of gluten-filled pizza. Yikes! :o

I hope you're feeling better... :)

warmly,

Faydra

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,538
    • Most Online (within 30 mins)
      7,748

    antoniotorres
    Newest Member
    antoniotorres
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
    • lmemsm
      I've used magnesium taurinate and magnesium taurate vitamins.  Didn't notice much of a difference when I used them.
    • Scatterbrain
      Anyone experimented with Taurine supplementation either via electrolyte powders or otherwise? Thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.