Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Weird Symptom...

zebaldwin

Recommended Posts

zebaldwin Explorer
zebaldwin
Posted

I'm afraid to even ask my doctor in fear he'll just think I'm making it up...but I starting getting this really strange feeling in my lower throat/upper lungs (not exactly sure) but it's a random sharp pain every once in a while...almost like when you swallow something to big. Its not my throat itself...maybe the muscle.

Just curious if anyone has had anything or heard of anything like this. It's been going on for a couple weeks now. Doesn't really get worse or better.

Sorry if this is a stupid question

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Emilushka Contributor
Emilushka
Posted

Not a stupid question. There are tests to evaluate your muscle function. If this is continuing and it's only in your esophagus, there's such a thing as an esophageal muscle spasm (along with other functional problems) that you could be experiencing. It sounds like it's worth an evaluation.

IrishHeart Veteran
IrishHeart
Posted

I ask so many questions on here about seemingly bizarre questions and no one thinks they are stupid. Feel safe to ask anything--these people have seen it all/heard it all/experienced it all! And someone answers with kindness!

That said...I HAVE had this same sensation. As if I have swallowed a giant pill and it hurts like heck!? One day, just drinking WATER did it. It really hurt, but then it passed. I do not know what causes it, sorry.

I had it for a long time. Months. Then, one day, it stopped. I am not sure if it is because I am healing and the inflammation--which is in my GI tract from my throat to my well,you know.. <_< --is subsiding.

I agree with Emilushka. Might be worth asking your doctor if it continues to give you grief.

cassP Contributor
cassP
Posted

I'm afraid to even ask my doctor in fear he'll just think I'm making it up...but I starting getting this really strange feeling in my lower throat/upper lungs (not exactly sure) but it's a random sharp pain every once in a while...almost like when you swallow something to big. Its not my throat itself...maybe the muscle.

Just curious if anyone has had anything or heard of anything like this. It's been going on for a couple weeks now. Doesn't really get worse or better.

Sorry if this is a stupid question

i had something similar months ago- while at work- it scared the bejesus out of me- then it seemed to migrate to my upper right rectus abdominus (upper right stomach muscle in an 8 pack)-> where i had severe muscle spasms- so bad i was asking my manager if i could leave- and i was the tears were just dripping like crazy... i went to a walk in clinic- the osteopath felt around- bottom line- i got muscle relaxers- and found some relief.

still didnt know what the pain in my throat/esophagus region was...then i started googling at home- and really scared myself with all the aortic aneurisms... pain starting in the throat- going to the stomach

BUT- i was fine obviously....

also scaring myself - with all my reflux issues- and smoking- i thought about barrets esophagus, etc...

anyways- a few weeks later i was dx with Hypothyroid.. then Hashimoto's... then also Grave's... so, now im wondering if the pain was coming from my thyroid...??

also found out im vit. D deficient... then i was reading about Hyperparathyroidism which can also lead to muscle spasms..???????

sorry for all the thinking outloud- but maybe you're having something similar??? maybe you should have your thyroid checked- a panel, and also maybe the doc checking for swelling ??

cassP Contributor
cassP
Posted

I ask so many questions on here about seemingly bizarre questions and no one thinks they are stupid. Feel safe to ask anything--these people have seen it all/heard it all/experienced it all! And someone answers with kindness!

That said...I HAVE had this same sensation. As if I have swallowed a giant pill and it hurts like heck!? One day, just drinking WATER did it. It really hurt, but then it passed. I do not know what causes it, sorry.

I had it for a long time. Months. Then, one day, it stopped. I am not sure if it is because I am healing and the inflammation--which is in my GI tract from my throat to my well,you know.. <_< --is subsiding.

I agree with Emilushka. Might be worth asking your doctor if it continues to give you grief.

um- sorry to go on and on about the thyroid- but you mentioned the pill getting stuck-> have u and i already discussed if youve had a thyroid panel????

hope im not annoying anyone- but im learning so so much about it these days with my dx... and kinda frustrated that i AT LEAST had it for the last 7 years- but never knew all these symptoms <_< i wish i had. i only thought it involved being cold and overweight... if only i could have known and not suffered <_<

zebaldwin Explorer
zebaldwin
Posted
  • Author

Thanks guys.

I have had my thyroid checked and recently a full physical...

It's just very weird. Doesn't exactly feel like a muscle, but it definitely isn't like a soar throat. And it's just a quick shooting pain...happens randomly throughout the day, usually after I swallow.

My doctor has just been very sympathetic with me so far (even after months of no results) and I dont want to throw random symptoms at him and have him start to not take me seriously...maybe a stupid fear to have.

cassP Contributor
cassP
Posted

Thanks guys.

I have had my thyroid checked and recently a full physical...

It's just very weird. Doesn't exactly feel like a muscle, but it definitely isn't like a soar throat. And it's just a quick shooting pain...happens randomly throughout the day, usually after I swallow.

My doctor has just been very sympathetic with me so far (even after months of no results) and I dont want to throw random symptoms at him and have him start to not take me seriously...maybe a stupid fear to have.

if you're gluten intolerant, or celiac: have you had a history of reflux? or silent reflux? when was your last endoscopy?? if its been a while- it might be a good idea to scope and check everything..?? and maybe get your vitamin levels checked too...

hope you get it all figured out :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


IrishHeart Veteran
IrishHeart
Posted

um- sorry to go on and on about the thyroid- but you mentioned the pill getting stuck-> have u and i already discussed if youve had a thyroid panel????

hope im not annoying anyone- but im learning so so much about it these days with my dx... and kinda frustrated that i AT LEAST had it for the last 7 years- but never knew all these symptoms <_< i wish i had. i only thought it involved being cold and overweight... if only i could have known and not suffered <_<

cass---Thyroid is a good idea, but I had mine checked repeatedly. No nodules, low antibodies. TSH good. Thanks for the thought!! G.

zebaldwin Explorer
zebaldwin
Posted
  • Author

Im not diagnosed with celiac or gluten intolerance...but bloodwork came back negative last week, moving forward with a GI (hopefully) this week...then either way Im going to go on the diet. I am praying I have at least gluten intolerance (to explain all my other symptoms) and was just curious if this could be part of that...

mushroom Proficient
mushroom
Posted

Do you think it could possibly be esophageal spasm? Here is a link with links to other websites: Open Original Shared Link

I have occasionally had this, though not so much lately.

zebaldwin Explorer
zebaldwin
Posted
  • Author

Hmmm...not sure if that's what it is.

I'm thinking maybe a symptom from being stressed about all the other symptoms...I think I'll bring it up to my doctor tomorrow

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. sc'Que?
      - sc'Que? commented on Scott Adams's article in Product Labeling Regulations
      1

      Global Experts Recommend Gluten Reference Dose: What It Means for Celiac Safety (+Video)

      This is FANTASTIC--especially that they are recognising barley and (potentially) oats as sources of gluten/contamination! Now if only we can get labeling guidelines to clarify "spices" and "natural flavors" for those of us with other severe allergies.
    2. xxnonamexx
      - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      What's your daily meals? Protein bars?

      What are your daily meals? Guilty pleasure snacks? Protein bars? I feel when looking for gluten free foods they are filled with sugar cholesterol. Looking for healthy gluten-free protein bars. Something to fill since sometimes I feel like not to eat anything. Especially if on vacation and unsure of cross contamination I figure go with a salad and protein...
    3. trents
      - trents replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

      Unfortunately, there is presently no test for NCGS. Celiac disease must first be ruled out. NCGS is thought to be much more common than celiac disease. We know that celiac disease is an autoimmune disorder but the mechanism of NCGS is less clear. Both call for an elimination of gluten from the diet.
    4. Seabeemee
      - Seabeemee replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

      Thanks for your reply Trents…most appreciated. I am unfamiliar with celiac labs terminology so I wanted to know if the presence of HLA variants (DA:101, DA:105, DQB1:0301 and DQB1:0501) that the labs detected had any merit in predisposing one to be more sensitive to gluten/carbs than the general population? Also, I found what you said about N...
    5. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      My journey is it gluten or fiber?

      Thanks bumped it up and now take all 3 vitamins 2 capsules each with the super b complex at breakfast. I will give it some time to see if I notice a difference. I am going to track my eating daily diary on a myfitness pal app to see if the "claimed" gluten free foods bother me or not.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,173
    • Most Online (within 30 mins)
      7,748
    Mel12
    Newest Member
    Mel12
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • xxnonamexx
      What's your daily meals? Protein bars?

      By xxnonamexx · Posted

      What are your daily meals? Guilty pleasure snacks? Protein bars? I feel when looking for gluten free foods they are filled with sugar cholesterol. Looking for healthy gluten-free protein bars. Something to fill since sometimes I feel like not to eat anything. Especially if on vacation and unsure of cross contamination I figure go with a salad and protein bar to fill and play it safe.
    • trents
      Labs ? Awaiting in person follow up with my GI

      By trents · Posted

      Unfortunately, there is presently no test for NCGS. Celiac disease must first be ruled out. NCGS is thought to be much more common than celiac disease. We know that celiac disease is an autoimmune disorder but the mechanism of NCGS is less clear. Both call for an elimination of gluten from the diet.
    • Seabeemee
      Labs ? Awaiting in person follow up with my GI

      By Seabeemee · Posted

      Thanks for your reply Trents…most appreciated.  I am unfamiliar with celiac labs terminology so I wanted to know if the presence of HLA variants (DA:101, DA:105, DQB1:0301 and DQB1:0501) that the labs detected had any merit in predisposing one to be more sensitive to gluten/carbs than the general population?  Also,  I found what you said about NCGS very interesting and I appreciate you mentioning that.  I’ve worked hard to research and advocate for myself with my Hematologist and now with a new GI, since my bowel surgery and to maintain my Vitamin B12 health concurrent with keeping my levels of Iron in the optimal range. I’ve been tested for SIBO (do not have it), biopsy showed negative for HPylori, and have had Fecal studies done (nothing showed up) and I understand how a loss of a large amount of bowel could be highly impacting re: SIBO, malabsorption and motility issues. So I’ve managed pretty well diet and elimination-wise until just recently. That said, this new problem with extreme bloating, distention and upper girth, NAFLD just occured over the last 4 months so it is new for me and I thought celiac might be a possible issue. I’ll probably just continue on in this less gluten/carbs seem to be better for me and see how reintroducing certain foods go.  Thanks again.    
    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      Thanks bumped it up and now take all 3 vitamins 2 capsules each with the super b complex at breakfast. I will give it some time to see if I notice a difference. I am going to track my eating daily diary on a myfitness pal app to see if the "claimed" gluten free foods bother me or not.
    • JoJo0611
      Yeast extract

      By JoJo0611 · Posted

      Please can anyone help. I was diagnosed on 23rd December and I am trying my best to get my head around all the things to look out for. I have read that yeast extract is not to be eaten by coeliacs. Why? And is this all yeast extract. Or is this information wrong. Thanks. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.