Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Husband's Blood Results

Simona19

Recommended Posts

Simona19 Collaborator
Simona19
Posted

I have my husband's blood results. It was celiac disease panel.

Tissue transglutam AB IGA 39 high ref. range <5

Gliadin AB (IGA) 76 high ref. range <11

Both are positive for the celiac disease.

His Doctor told him that he doesn't even have to have the upper endoscopy for the final diagnosis. His blood work is strongly positive which means he must stop eathing gluten emediately. She also ordered the blood work to check some vitamins and CT of abdommen with barium and IV.

It is ok to skip the upper endoscopy? Are his levels very high?

What medicine is ok to take for hypothyroidism? Levoxyl is ok?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

Yea it's okay to skip the endo with positive blood tests and it is becoming much more common for doctors to skip them. I hope he is doing better soon.

modiddly16 Enthusiast
modiddly16
Posted

I didn't have an endo and just relied on the blood test results for my diagnosis. I can't speak to your other questions though. I do know that once I started the gluten-free diet my life was much more pleasant :)

cassP Contributor
cassP
Posted

I have my husband's blood results. It was celiac disease panel.

Tissue transglutam AB IGA 39 high ref. range <5

Gliadin AB (IGA) 76 high ref. range <11

Both are positive for the celiac disease.

His Doctor told him that he doesn't even have to have the upper endoscopy for the final diagnosis. His blood work is strongly positive which means he must stop eathing gluten emediately. She also ordered the blood work to check some vitamins and CT of abdommen with barium and IV.

It is ok to skip the upper endoscopy? Are his levels very high?

What medicine is ok to take for hypothyroidism? Levoxyl is ok?

agreed- its okay to skip the endoscopy- he's positive enough.. go gluten free now... but in the future- i think endos and colonoscopies are all good ideas for us- after years of being undiagnosed- its good to keep an eye and make sure everything's ok

has he also been dx with hypothroidism??

i am 99% sure Levoxyl is gluten free (and maybe lactose free).

Synthroid has NO gluten ingredients- but for legal and safety issues- they have said that they cannot guarantee that any of their raw materials are free from cc.

Cytomel is gluten free

(all brand names).. some generic are gluten free- but im not sure which.

and Armour is gluten free.

but best too- whenever in doubt, to call your own drug company

SaraKat Contributor
SaraKat
Posted

My TTG # was 38- very similar to your husbands! I had the endoscopy for the final diagnosis- they told me without it they couldn't give me the celiac diagnosis, since the endo is the gold standard. If he has insurance I would have the endo.

Did they say why they were doing the CT of abdommen with barium and IV and not a endoscopy?

I take Synthroid for hypo, it is gluten free.

What were your husbands symptoms that made him get the celiac panel done? I am always curious about that :)

Simona19 Collaborator
Simona19
Posted
  • Author

agreed- its okay to skip the endoscopy- he's positive enough.. go gluten free now... but in the future- i think endos and colonoscopies are all good ideas for us- after years of being undiagnosed- its good to keep an eye and make sure everything's ok

has he also been dx with hypothroidism??

i am 99% sure Levoxyl is gluten free (and maybe lactose free).

Synthroid has NO gluten ingredients- but for legal and safety issues- they have said that they cannot guarantee that any of their raw materials are free from cc.

Cytomel is gluten free

(all brand names).. some generic are gluten free- but im not sure which.

and Armour is gluten free.

but best too- whenever in doubt, to call your own drug company

He was diagnosed with hypothyroidism 3 years ago. He was taking generic Levothyroxine for Levoxyl. Now his doctor changed for Levoxyl. Thank you for info on this.

The story about his diagnosis is funny.

In May 2010 I had gastritis and my doctor send me to gastroenterologist. He did the upper endoscopy. It was Marsh1, but inconclusive. After that I had many tests, 3 times gene test- always negative. My allergologist tested me for wheat and milk. I was positive right a way for milk and after 2 hours positive for wheat. The results- the casein allergy and wheat intolerance, or celiac disease,but no allergy to wheat. I stoped to eat gluten and casein as the result from that.

I saw a doctor at the Celiac clinic in New York. She ordered new gene test trough other lab- positive for a half of DQ2 associated with the celiac disease. She also told me to test my son, and if he was positive for it, she would give me the final answer (I have it, or not). He was positive only in one thing and needed the upper endoscopy to finalize his diagnosis.

All this time I gave my husband samples from my food (pizza, bread before I found Udi's). He didn't like it. I always laughed from his facial expresions. It was very funny.

He was sick. He saw his doctor, and I told him to ask also for the blood work for celiac disease. It is genetic disease and his son was positive for it.

The result came back and he don't even have to have the upper endoscopy to be diagnosed. He didn't even thought that he might have it. It wasn't possible because he didn't have diarhea. He had gas and blothing, but not D.

This weak is his last week on gluten. I'm coking for him his favorite food. He needs to say Good bye! to it.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. SusanJ
      - SusanJ replied to Jillian83's topic in Coping with Celiac Disease
      5

      Celiac and dermatitis herpetiformis has taken Me from Me

      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was...
    2. knitty kitty
      - knitty kitty replied to tiffanygosci's topic in Coping with Celiac Disease
      13

      New Celiac Mama in My 30s

      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body. See my blog. Click on my name to go to my page...
    3. tiffanygosci
      - tiffanygosci replied to tiffanygosci's topic in Coping with Celiac Disease
      13

      New Celiac Mama in My 30s

      Thank you for sharing all of this, Knitty Kitty! I did just want someone to share some commonality with. I did not know This one Deficiency was a thing and that it's common for Celiac Disease. It makes sense since this is a disorder that causes malabsorption. I will have to keep this in mind for my next appointments. You also just spurred me on to make that...
    4. RMJ
      - RMJ replied to Riley.'s topic in Introduce Yourself / Share Stuff
      4

      Outgrow celiac?

      I think your initial idea, eat gluten and be tested, was excellent. Now you have fear of that testing, but isn’t there also a fear each time you eat gluten that you’re injuring your body? Possibly affecting future fertility, bone health and more? Wouldn’t it be better to know for sure one way or the other? If you test negative, then you celebrate and g...
    5. knitty kitty
      - knitty kitty replied to Riley.'s topic in Introduce Yourself / Share Stuff
      4

      Outgrow celiac?

      @Riley., Welcome to the forum, but don't do it! Don't continue to eat gluten! The health problems that will come if you continue to eat gluten are not worth it. Problems may not show up for years, but the constant inflammation and nutritional losses will manifest eventually. There's many of us oldsters on the forum who wish they'd been diagnosed...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,981
    • Most Online (within 30 mins)
      7,748
    Cathal Brugha
    Newest Member
    Cathal Brugha
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • SusanJ
      Celiac and dermatitis herpetiformis has taken Me from Me

      By SusanJ · Posted

      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
    • knitty kitty
      New Celiac Mama in My 30s

      By knitty kitty · Posted

      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body.  See my blog.  Click on my name to go to my page, scroll to drop down menu "activities" and select blog.   So glad you're motivated to see the dietician!  We're always happy to help with questions.  Keep us posted on your progress! 
    • tiffanygosci
      New Celiac Mama in My 30s

      By tiffanygosci · Posted

      Thank you for sharing all of this, Knitty Kitty! I did just want someone to share some commonality with. I did not know This one Deficiency was a thing and that it's common for Celiac Disease. It makes sense since this is a disorder that causes malabsorption. I will have to keep this in mind for my next appointments. You also just spurred me on to make that Dietician appointment. There's a lot of information online but I do need to see a professional. There is too much to juggle on my own with this condition.<3
    • RMJ
      Outgrow celiac?

      By RMJ · Posted

      I think your initial idea, eat gluten and be tested, was excellent. Now you have fear of that testing, but isn’t there also a fear each time you eat gluten that you’re injuring your body? Possibly affecting future fertility, bone health and more? Wouldn’t it be better to know for sure one way or the other? If you test negative, then you celebrate and get tested occasionally to make sure the tests don’t turn positive again. If you test positive, of course the recommendation from me and others is to stop gluten entirely.  But if you’re unable to convince yourself to do that, could a positive test at least convince you to minimize your gluten consumption?  Immune reactions are generally what is called dose response, the bigger the dose, the bigger the response (in this case, damage to your intestines and body). So while I am NOT saying you should eat any gluten with a positive test, the less the better.  
    • knitty kitty
      Outgrow celiac?

      By knitty kitty · Posted

      @Riley., Welcome to the forum, but don't do it!  Don't continue to eat gluten!  The health problems that will come if you continue to eat gluten are not worth it.  Problems may not show up for years, but the constant inflammation and nutritional losses will manifest eventually.  There's many of us oldsters on the forum who wish they'd been diagnosed as early.    Fertility problems, gallbladder removal, diabetes, osteoporosis and mental health challenges are future health issues you are toying with.   To dispel fear, learn more about what you are afraid of.  Be proactive.  Start or join a Celiac group in your area.  Learn about vitamins and nutrition.   Has your mother been checked for Celiac?  It's inherited.  She may be influencing you to eat gluten as a denial of her own symptoms.  Don't let friends and family sway you away from the gluten-free diet.  You know your path.  Stick to it.  Be brave. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.