Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Arthritis


GFreeMO

Recommended Posts

GFreeMO Proficient

Does anyone here with celiac have arthritis as well? I have terrible arthritis in my hand joints and in my neck. I have read that there is a connection with celiac and arthritis. What is the best over the counter med. to take? I have been taking Tylenol but I don't really notice a difference.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

Is it osteo or rheumatoid arthritis? And have you seem a rheumatologist? I have psoriatic arthritis which is unresponsive to diet. I got into trouble with NSAID's (prescribed) and almost killed off my kidney so you do have to be careful with your pain meds. It depends on which type you have what you take for it.

ravenwoodglass Mentor

I have arthritis as well, or maybe I should say had. I got very lucky and within about 6 months gluten-free it was pretty much in remission unless I get gluten or soy in my system. They tried a lot of different script meds for it but nothing gave me any relief and some even got pulled off the market. The most effective thing for me is plain asprin when things flare.

IrishHeart Veteran

I have osteoarthritis, too. Developed about 12 years ago, right around the time the "IBS" (ha!) erupted.

It was always manageable/tolerable until the celiac "triggered" in 2008, and now, I am in agony with it: , hands, hips, knees, feet.

I hope that going gluten-free and having the inflammatory response calm down will help in the long run.

Through the years, they gave me several drugs (script NSAIDs) to try (just like Raven--none worked) --and all they did was contribute to the leaky gut. I had no idea what they did to me until I started reading about them years later. They are so dangerous, yet people pop NSAIDs like candy. Tylenol never helps me either. Bummer!

I take nothing for the pain simply because I cannot. My stomach is too much of a mess. Wish I had some helpful advice.

My PT has suggested Turmeric, but again, a bunch of supplements I paid a lot of money for did squat for me. How could they? No absorption in a gut with celiac! The things I know NOW!! :)

Perhaps the aspirin will help? I wish you relief!!

Leonie Newbie

Hello fellow members,

I live in Australia and just joined this forum. I have Rheumatoid Arthritis and associated Leaky Gut, and I've found that many of my symptoms can be alleviated with the right diet. It's just figuring out exactly what to avoid, is the biggest problem. Grains including rice, is the major one, and dairy also. I guess it comes down to eating quite a basic diet of veges, herbs, meat, and maybe eggs and good oils like coconut and olive etc, with some ok nuts and seeds also. I'm joining in with you guys in the hope of talking about Leaky gut related topics, and possibly auto-immune disease etc. I feel that folks with Celiac have a lot of knowledge to offer people like me, since you've done a lot of research of your own, and been through some tough times with your illness. I've been eating gluten free breads for a while - the one i eat is yeast, soy and dairy free.....mostly containing quinoa flour, and a little tapioca flour. Somehow I got on the track of reading up on SAPONINS in various foods, including quinoa. The info that i read, related to how saponins can EXACERBATE leaky gut.... UGH!! anyway, that's kinda where I'm up to right now...I always end up confused, just when I think I'm doing some things right :)... buy the way, I find sticking to the diet hard, and go in and out of phases of doing it properly, 100% Right now, I'm not doing it 100%, but not eating grains etc, and other processed stuff.

Thanks for listening... I appreciate this opportunity, and look forward to chatting... - all the best to you !.... Leonie

mushroom Proficient

Hello, and welcome, Leonie from Australia.

When you say you're not 100% right now, I assume you mean gluten free. Our experience on this board is that if gluten is your problem, it is an all or nothing proposition - even that little bit still hurts and you must get rid of it all. Otherwise you keep on making the antigliadin antibodies and your gut continues leaking and you keep developing other intolerances. I am not familiar with saponins and their effect on the body. I am a lectin person, myself. I have discovered that all my intolerances are to high lectin-containing foods, and if I avoid them I am okay. There are lectins in the wheat protein also :( and also in quinoa, which I do not tolerate. Can you not eat any rice?. That makes things a bit tough. Do you handle corn? Nightshades, since they are inflammatory? How about any soy? What about fruit? Were you ever tested for celiac disease? Sorry for so many questions, just trying to get to know you :) :) :D

ravenwoodglass Mentor

Does anyone here with celiac have arthritis as well? I have terrible arthritis in my hand joints and in my neck. I have read that there is a connection with celiac and arthritis. What is the best over the counter med. to take? I have been taking Tylenol but I don't really notice a difference.

I forgot to mention that one of the most effective things for me was a topical rather than something I took orally. Tiger Balm seemed to help a great deal if you can find it. Stuff like BenGay also gave some relief along with hot compresses.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IrishHeart Veteran

Hello fellow members,

I live in Australia and just joined this forum. I have Rheumatoid Arthritis and associated Leaky Gut, and I've found that many of my symptoms can be alleviated with the right diet. It's just figuring out exactly what to avoid, is the biggest problem. Grains including rice, is the major one, and dairy also. I guess it comes down to eating quite a basic diet of veges, herbs, meat, and maybe eggs and good oils like coconut and olive etc, with some ok nuts and seeds also. I'm joining in with you guys in the hope of talking about Leaky gut related topics, and possibly auto-immune disease etc. I feel that folks with Celiac have a lot of knowledge to offer people like me, since you've done a lot of research of your own, and been through some tough times with your illness. I've been eating gluten free breads for a while - the one i eat is yeast, soy and dairy free.....mostly containing quinoa flour, and a little tapioca flour. Somehow I got on the track of reading up on SAPONINS in various foods, including quinoa. The info that i read, related to how saponins can EXACERBATE leaky gut.... UGH!! anyway, that's kinda where I'm up to right now...I always end up confused, just when I think I'm doing some things right :)... buy the way, I find sticking to the diet hard, and go in and out of phases of doing it properly, 100% Right now, I'm not doing it 100%, but not eating grains etc, and other processed stuff.

Thanks for listening... I appreciate this opportunity, and look forward to chatting... - all the best to you !.... Leonie

Hi Leonie!

I can't add much more advice than what the very wise Ms. Mushroom has offered (especially about being 100% gluten free is the key for us)but I say "welcome" and hope there are answers here for you. This forum has been INVALUABLE to me and my healing process.

Best wishes--or should I say "g'day?" ;)

Irish

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,514
    • Most Online (within 30 mins)
      7,748

    PaulK
    Newest Member
    PaulK
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Russ H
      I hope you are on the mend soon. About 1 in 5 people who contracted chicken pox as a child go on to develop shingles in later life - it is not uncommon. There are 5 known members of the herpes virus family including chicken pox that commonly infect humans, and they all cause lifelong infections. The exact cause of viral reactivation as in the case of shingles or cold sores is not well understood, but stress, sunburn and radiotherapy treatment are known triggers. Some of the herpes viruses are implicated in triggering autoimmune diseases: Epstein-Barr virus is suspected of triggering multiple sclerosis and lupus, and there is a case where it is suspected of triggering coeliac disease. As to whether coeliac disease can increase the likelihood of viral reactivation, there have been several cohort studies including a large one in Sweden suggesting that coeliac disease is associated with a moderate increase in the likelihood of developing shingles in people over the age of 50. US 2024 - Increased Risk of Herpes Zoster Infection in Patients with Celiac Disease 50 Years Old and Older Sweden 2018 - Increased risk of herpes zoster in patients with coeliac disease - nationwide cohort study
    • Russ H
      BFree bread is fortified with vitamins and minerals as is ASDA own-brand gluten-free bread. All the M&S bread seems to be fortified also.
    • Flash1970
      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
    • Roses8721
      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.