Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dry Mouth A Side Effect?

Terri O

By Terri O
in Coping with Celiac Disease

Recommended Posts

Terri O Rookie
Terri O
Posted

I have been gluten-free for 3 weeks or so and the other day I had the worst thirst ever! I usually drink a fair amount of water but now am finding myself drinking water ALL day long! This is fine with me, but I am just wondering if others have had this "cotton mouth" as a side effect of going gluten-free...and does it stop? Thanks! Terri O

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

I have never heard of this as a side effect to going gluten free. Do you take any medications? Some can give this effect. Have you greatly increased your intake of carbs or sugar to 'replace' the gluten foods that you have given up? Are you getting up at night to pee? I know this answer was more question than answer but if it doesn't resolve soon and the need to pee is waking you up at night you may want to bring this up with your doctor.

IrishHeart Veteran
IrishHeart
Posted

I have been gluten-free for 3 weeks or so and the other day I had the worst thirst ever! I usually drink a fair amount of water but now am finding myself drinking water ALL day long! This is fine with me, but I am just wondering if others have had this "cotton mouth" as a side effect of going gluten-free...and does it stop? Thanks! Terri O

Actually, I had a dry mouth BEFORE going gluten-free. :) It is much better now. I understand it can occur for a number of reasons: hormonal shifts, diabetes or sugar imbalances, bacterial infection in the mouth, some autoimmune diseases, yadda yadda yadda....I just found out I need periodontal work (ugh) and that can also accompany a dry mouth...Oh goody! just another thing with this disease. :angry:

It may just be that you require more hydration since your body is undergoing an enormous shift? Did you always drink a lot of water?

I drink water all day long because NOW my body is used to it, I guess. So, naturally, I also pee a lot :D the "thirsty feeling" subsided quite a bit and I think maybe my body is just used to being hydrated? See how you do in the coming days, but as Raven suggests, if the dry mouth gets to be ridiculous, causing burning mouth or tongue as I have (not fun at all) , it's worth talking to your doctor about it.

Terri O Rookie
Terri O
Posted
  • Author

Thanks for the replies! I actually seem a little better today...not quite so dry. Maybe the 500 glasses of water helped me? LOL! T

RiceGuy Collaborator
RiceGuy
Posted

I used to get a super-dry mouth from gluten. Then once gluten-free for awhile, it started again. I eventually determined I had an electrolyte imbalance. A potassium supplement resolved it in about two weeks.

  • 8 months later...
aussiechick4jc Rookie
aussiechick4jc
Posted

Hi there,

I'm wondering if someone might be able to give me some direction. I have uncomfortable dry mouth, although there is still saliva. At times it can be thick and other times very running. There have also been periods when all seems well. I have been gluten free for neally two weeks now, have noticed a huge difference in a few things. Still have a long way to go. I have been tested for Sjogrens Syndrome twice, both times normal to negative. I was experiencing issues with eyes but that seems to have fixed itself with going off gluten. I have also had my eyes tested and it appears there are no dry spots and tears ducks seem OK. The fact that it's happening is extremely annoying.

Anyone else had issues, what steps did you take and did it go away, if so, how long did it take.

Thanks everyone for you advise, it is much appreciated.

God Bless

Karen from Newcastle - Australia

  • 1 year later...
funkflex Rookie
funkflex
Posted

I am also thirsty and suffering from dry mouth. How's yours now? Any answers?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Opa3 Apprentice
Opa3
Posted

I have a dry mouth for years. A GFD didn't fix either. Doc suggested chewing gum. It would help saliva flow for better digestion after meals and keep mouth wet inbetween.

Do be careful with any intolerance to sugar alcohols( ie: sorbitol). Can give one GI symptoms (stomach pain, gas, diarrhea).

TRIDENT sugar free gums contain natural and artifical flavors- hidden gluten. To use 1 stick/day, could depend on your "sensitivity" to gluten. The stick is so small so how much gluten can be in them? Don't know.

I try a stick infrequently( I believe I can tolerate <20 ppm without villi damage, yet TBD) but need to err on the side of caution for any long term useage.

shadowicewolf Proficient
shadowicewolf
Posted

In the U.S., natural flavors do not normally contain gluten.

Trident states on their website that they do not have gluten.

1desperateladysaved Proficient
1desperateladysaved
Posted

Last time I had dry mouth, coconut water resolved it. I buy 100% coconut water in a can. It contains both potassium and magnesium, and probably other nutrients. It is in naturally occuring amounts; it is not added. It is like sport water in its hydration ability, but without all that added sugar. You may want to try some. Expect it to taste about like water, but quench thirst better. If you expect it to taste like water, you may be pleasantly surprised. If you want it to taste like soda....forget it.

I am starting to wonder if there are any other coconut water fans out there, since I seem to talk about it each day recently.

Opa3 Apprentice
Opa3
Posted

In the U.S., natural flavors do not normally contain gluten.

Trident states on their website that they do not have gluten.

You are a Life Saver. They too will keep the juices flowing. :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,202
    • Most Online (within 30 mins)
      7,748
    PatBurnham
    Newest Member
    PatBurnham
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By trents · Posted

      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Scott Adams · Posted

      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      CT with contrast.

      By Scott Adams · Posted

      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      New labs are now very elevated

      By Scott Adams · Posted

      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.